Need some insight....

[BabyBeauty]

We found out I do not have CF. The state of AZ messed up our results and Avery has G542x AND DeltaF508.

 

[BabyBeauty]

We found out I do not have CF. The state of AZ messed up our results and Avery has G542x AND DeltaF508.

 

[BabyBeauty]

We found out I do not have CF. The state of AZ messed up our results and Avery has G542x AND DeltaF508.

 

[BabyBeauty]

We found out I do not have CF. The state of AZ messed up our results and Avery has G542x AND DeltaF508.

 

[BabyBeauty]

We found out I do not have CF. The state of AZ messed up our results and Avery has G542x AND DeltaF508.

 

[Alyssa]

How is it that they messed that up? Did they give you someone else's results or what?

 

[Alyssa]

How is it that they messed that up? Did they give you someone else's results or what?

 

[Alyssa]

How is it that they messed that up? Did they give you someone else's results or what?

 

[Alyssa]

How is it that they messed that up? Did they give you someone else's results or what?

 

[Alyssa]

How is it that they messed that up? Did they give you someone else's results or what?

 

[Wendy]

I just wanted to add that there is still a chance that you may have CF, especially given your GI issues. Your other gene mutation may be one of the ones not tested for. I would suggest you get an expanded panel or full panel test done. It is called something different depending on the company doing the testing. It may give you peace of mind or explain your years of pancreatic issues (I read in one of your first posts about you having health issues). You may not have CF, but I just wanted you to be aware that it may be undiagnosed if you were not tested for the full 1400 mutations identified. Good Luck and enjoy your precious baby girl!

 

[Wendy]

I just wanted to add that there is still a chance that you may have CF, especially given your GI issues. Your other gene mutation may be one of the ones not tested for. I would suggest you get an expanded panel or full panel test done. It is called something different depending on the company doing the testing. It may give you peace of mind or explain your years of pancreatic issues (I read in one of your first posts about you having health issues). You may not have CF, but I just wanted you to be aware that it may be undiagnosed if you were not tested for the full 1400 mutations identified. Good Luck and enjoy your precious baby girl!

 

[Wendy]

I just wanted to add that there is still a chance that you may have CF, especially given your GI issues. Your other gene mutation may be one of the ones not tested for. I would suggest you get an expanded panel or full panel test done. It is called something different depending on the company doing the testing. It may give you peace of mind or explain your years of pancreatic issues (I read in one of your first posts about you having health issues). You may not have CF, but I just wanted you to be aware that it may be undiagnosed if you were not tested for the full 1400 mutations identified. Good Luck and enjoy your precious baby girl!

 

[Wendy]

I just wanted to add that there is still a chance that you may have CF, especially given your GI issues. Your other gene mutation may be one of the ones not tested for. I would suggest you get an expanded panel or full panel test done. It is called something different depending on the company doing the testing. It may give you peace of mind or explain your years of pancreatic issues (I read in one of your first posts about you having health issues). You may not have CF, but I just wanted you to be aware that it may be undiagnosed if you were not tested for the full 1400 mutations identified. Good Luck and enjoy your precious baby girl!

 

[Wendy]

I just wanted to add that there is still a chance that you may have CF, especially given your GI issues. Your other gene mutation may be one of the ones not tested for. I would suggest you get an expanded panel or full panel test done. It is called something different depending on the company doing the testing. It may give you peace of mind or explain your years of pancreatic issues (I read in one of your first posts about you having health issues). You may not have CF, but I just wanted you to be aware that it may be undiagnosed if you were not tested for the full 1400 mutations identified. Good Luck and enjoy your precious baby girl!

 

[grassisgreener]

There is a mom on this messageboard:
<a target=_blank class=ftalternatingbarlinklarge href="http://health.groups.yahoo.com/group/CF_Infants_Toddlers/
">http://health.groups.yahoo.com.../CF_Infants_Toddlers/
</a>
who found out that she has CF after her daughter was diagnosed.

I hope you can get some answers soon!

 

[grassisgreener]

There is a mom on this messageboard:
<a target=_blank class=ftalternatingbarlinklarge href="http://health.groups.yahoo.com/group/CF_Infants_Toddlers/
">http://health.groups.yahoo.com.../CF_Infants_Toddlers/
</a>
who found out that she has CF after her daughter was diagnosed.

I hope you can get some answers soon!

 

[grassisgreener]

There is a mom on this messageboard:
<a target=_blank class=ftalternatingbarlinklarge href="http://health.groups.yahoo.com/group/CF_Infants_Toddlers/
">http://health.groups.yahoo.com.../CF_Infants_Toddlers/
</a>
who found out that she has CF after her daughter was diagnosed.

I hope you can get some answers soon!

 

[grassisgreener]

There is a mom on this messageboard:
<a target=_blank class=ftalternatingbarlinklarge href="http://health.groups.yahoo.com/group/CF_Infants_Toddlers/
">http://health.groups.yahoo.com.../CF_Infants_Toddlers/
</a>
who found out that she has CF after her daughter was diagnosed.

I hope you can get some answers soon!

 

[grassisgreener]

There is a mom on this messageboard:
<br /><a target=_blank class=ftalternatingbarlinklarge href="http://health.groups.yahoo.com/group/CF_Infants_Toddlers/
">http://health.groups.yahoo.com.../CF_Infants_Toddlers/
</a><br />
<br />who found out that she has CF after her daughter was diagnosed.
<br />
<br />I hope you can get some answers soon!