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Negative initial genetic testing
- Thread starter asiewny
- Start date
V
valigirl21
Guest
And the similarities mount between your son and mine! Interesting. I'm glad your GI doc referred you, we were referred to a pulm. He said he'd refer me to the CF center if I wanted, but he is treating my son as though hehas a positive dx, so I don't see the need to go so far out of my way to get the same treatment. Good luck on the next step and keep us posted!
V
valigirl21
Guest
And the similarities mount between your son and mine! Interesting. I'm glad your GI doc referred you, we were referred to a pulm. He said he'd refer me to the CF center if I wanted, but he is treating my son as though hehas a positive dx, so I don't see the need to go so far out of my way to get the same treatment. Good luck on the next step and keep us posted!
V
valigirl21
Guest
And the similarities mount between your son and mine! Interesting. I'm glad your GI doc referred you, we were referred to a pulm. He said he'd refer me to the CF center if I wanted, but he is treating my son as though hehas a positive dx, so I don't see the need to go so far out of my way to get the same treatment. Good luck on the next step and keep us posted!
V
valigirl21
Guest
And the similarities mount between your son and mine! Interesting. I'm glad your GI doc referred you, we were referred to a pulm. He said he'd refer me to the CF center if I wanted, but he is treating my son as though hehas a positive dx, so I don't see the need to go so far out of my way to get the same treatment. Good luck on the next step and keep us posted!
V
valigirl21
Guest
And the similarities mount between your son and mine! Interesting. I'm glad your GI doc referred you, we were referred to a pulm. He said he'd refer me to the CF center if I wanted, but he is treating my son as though hehas a positive dx, so I don't see the need to go so far out of my way to get the same treatment. Good luck on the next step and keep us posted!
I guess it was easy for her to refer us to the CF center because it is literally 2 rooms down from the exam room we were in! It is a pediatric specialty clinic for so many things, cancer, CF, behavioral, autism-so we have been to this place too many times to count already! I just can't stand having to wait another month to get to the CF clinic and hear their opinion of my son. So, he will have his appt. at the CF center the same week he has his MRI scheduled for the endo doc! And I wonder how many more tests he will have to have from the upcoming CF visit-I definitely see another sweat test, so at least one more trip back!(an hour and a half drive from our home!) I will keep you all posted on our status! Thanks for your support!
I guess it was easy for her to refer us to the CF center because it is literally 2 rooms down from the exam room we were in! It is a pediatric specialty clinic for so many things, cancer, CF, behavioral, autism-so we have been to this place too many times to count already! I just can't stand having to wait another month to get to the CF clinic and hear their opinion of my son. So, he will have his appt. at the CF center the same week he has his MRI scheduled for the endo doc! And I wonder how many more tests he will have to have from the upcoming CF visit-I definitely see another sweat test, so at least one more trip back!(an hour and a half drive from our home!) I will keep you all posted on our status! Thanks for your support!
I guess it was easy for her to refer us to the CF center because it is literally 2 rooms down from the exam room we were in! It is a pediatric specialty clinic for so many things, cancer, CF, behavioral, autism-so we have been to this place too many times to count already! I just can't stand having to wait another month to get to the CF clinic and hear their opinion of my son. So, he will have his appt. at the CF center the same week he has his MRI scheduled for the endo doc! And I wonder how many more tests he will have to have from the upcoming CF visit-I definitely see another sweat test, so at least one more trip back!(an hour and a half drive from our home!) I will keep you all posted on our status! Thanks for your support!
I guess it was easy for her to refer us to the CF center because it is literally 2 rooms down from the exam room we were in! It is a pediatric specialty clinic for so many things, cancer, CF, behavioral, autism-so we have been to this place too many times to count already! I just can't stand having to wait another month to get to the CF clinic and hear their opinion of my son. So, he will have his appt. at the CF center the same week he has his MRI scheduled for the endo doc! And I wonder how many more tests he will have to have from the upcoming CF visit-I definitely see another sweat test, so at least one more trip back!(an hour and a half drive from our home!) I will keep you all posted on our status! Thanks for your support!
I guess it was easy for her to refer us to the CF center because it is literally 2 rooms down from the exam room we were in! It is a pediatric specialty clinic for so many things, cancer, CF, behavioral, autism-so we have been to this place too many times to count already! I just can't stand having to wait another month to get to the CF clinic and hear their opinion of my son. So, he will have his appt. at the CF center the same week he has his MRI scheduled for the endo doc! And I wonder how many more tests he will have to have from the upcoming CF visit-I definitely see another sweat test, so at least one more trip back!(an hour and a half drive from our home!) I will keep you all posted on our status! Thanks for your support!
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Hey Valigirl-what prompted the doc's to test your son for CF? Was it his growth or was it the GI problems? Because I was quick to blame my son's autism for all the GI problems and the stimulants for his growth. -completely blown away by all this CF stuff but it does make sense. I can see how it would be overlooked in my son with the stimulants and autism. I also never really paid too much more attention to his BM's because the dr. just gave us miralax and we went on a dairy free diet, -I was just led to believe it was normal-everyone gets constipated! But now I see how incredibly abnormal his BM's are (granted we don't have such terrible painful constipation anymore where he is on the pot for 8hrs straight trying to go and then ending up in the ER) and they do usually seem to come soon after he eats. As a matter of fact, when we left to go to the Dr. yesterday, he went after we ate before we got in the car and literally about 20 mins later he had to go again, and it is ALWAYS an emergency! We are lucky we made it!
Anyway, good to read other people are going through the same thing because I think everyone thinks that I am crazy for thinking there is still a chance he has CF.
Anyway, good to read other people are going through the same thing because I think everyone thinks that I am crazy for thinking there is still a chance he has CF.
Hey Valigirl-what prompted the doc's to test your son for CF? Was it his growth or was it the GI problems? Because I was quick to blame my son's autism for all the GI problems and the stimulants for his growth. -completely blown away by all this CF stuff but it does make sense. I can see how it would be overlooked in my son with the stimulants and autism. I also never really paid too much more attention to his BM's because the dr. just gave us miralax and we went on a dairy free diet, -I was just led to believe it was normal-everyone gets constipated! But now I see how incredibly abnormal his BM's are (granted we don't have such terrible painful constipation anymore where he is on the pot for 8hrs straight trying to go and then ending up in the ER) and they do usually seem to come soon after he eats. As a matter of fact, when we left to go to the Dr. yesterday, he went after we ate before we got in the car and literally about 20 mins later he had to go again, and it is ALWAYS an emergency! We are lucky we made it!
Anyway, good to read other people are going through the same thing because I think everyone thinks that I am crazy for thinking there is still a chance he has CF.
Anyway, good to read other people are going through the same thing because I think everyone thinks that I am crazy for thinking there is still a chance he has CF.
Hey Valigirl-what prompted the doc's to test your son for CF? Was it his growth or was it the GI problems? Because I was quick to blame my son's autism for all the GI problems and the stimulants for his growth. -completely blown away by all this CF stuff but it does make sense. I can see how it would be overlooked in my son with the stimulants and autism. I also never really paid too much more attention to his BM's because the dr. just gave us miralax and we went on a dairy free diet, -I was just led to believe it was normal-everyone gets constipated! But now I see how incredibly abnormal his BM's are (granted we don't have such terrible painful constipation anymore where he is on the pot for 8hrs straight trying to go and then ending up in the ER) and they do usually seem to come soon after he eats. As a matter of fact, when we left to go to the Dr. yesterday, he went after we ate before we got in the car and literally about 20 mins later he had to go again, and it is ALWAYS an emergency! We are lucky we made it!
Anyway, good to read other people are going through the same thing because I think everyone thinks that I am crazy for thinking there is still a chance he has CF.
Anyway, good to read other people are going through the same thing because I think everyone thinks that I am crazy for thinking there is still a chance he has CF.
Hey Valigirl-what prompted the doc's to test your son for CF? Was it his growth or was it the GI problems? Because I was quick to blame my son's autism for all the GI problems and the stimulants for his growth. -completely blown away by all this CF stuff but it does make sense. I can see how it would be overlooked in my son with the stimulants and autism. I also never really paid too much more attention to his BM's because the dr. just gave us miralax and we went on a dairy free diet, -I was just led to believe it was normal-everyone gets constipated! But now I see how incredibly abnormal his BM's are (granted we don't have such terrible painful constipation anymore where he is on the pot for 8hrs straight trying to go and then ending up in the ER) and they do usually seem to come soon after he eats. As a matter of fact, when we left to go to the Dr. yesterday, he went after we ate before we got in the car and literally about 20 mins later he had to go again, and it is ALWAYS an emergency! We are lucky we made it!
Anyway, good to read other people are going through the same thing because I think everyone thinks that I am crazy for thinking there is still a chance he has CF.
Anyway, good to read other people are going through the same thing because I think everyone thinks that I am crazy for thinking there is still a chance he has CF.
Hey Valigirl-what prompted the doc's to test your son for CF? Was it his growth or was it the GI problems? Because I was quick to blame my son's autism for all the GI problems and the stimulants for his growth. -completely blown away by all this CF stuff but it does make sense. I can see how it would be overlooked in my son with the stimulants and autism. I also never really paid too much more attention to his BM's because the dr. just gave us miralax and we went on a dairy free diet, -I was just led to believe it was normal-everyone gets constipated! But now I see how incredibly abnormal his BM's are (granted we don't have such terrible painful constipation anymore where he is on the pot for 8hrs straight trying to go and then ending up in the ER) and they do usually seem to come soon after he eats. As a matter of fact, when we left to go to the Dr. yesterday, he went after we ate before we got in the car and literally about 20 mins later he had to go again, and it is ALWAYS an emergency! We are lucky we made it!
<br />Anyway, good to read other people are going through the same thing because I think everyone thinks that I am crazy for thinking there is still a chance he has CF.
<br />Anyway, good to read other people are going through the same thing because I think everyone thinks that I am crazy for thinking there is still a chance he has CF.