is the first time i write in the forum (really second i ask ambry about the mutation), but i have been reading it since my only daughter was Dx 6 month ago.
i don´t speak much english, nor write, but i will try to do my best.
she is a year and a half, since she was 4 month she started having this regular cold, bronchitis and a little pneumonia. But, she wasn´t very bad, just a lot of cough. we did the sweat test just to be sure she hasn´t cf, because all the doctors that we went said to us: is impossible, but something inside my heart told me to do it. To make a long story short, all of us, specially the doctors were very surprised with the result, we did it three times.
Since then we do her exercise in the chest every morning (physiotherapy), and i took her to a pediatrician that just give natural medicine ( antroposofica), and a normal doctor as well. She is doing great, i touch wood, she is in her size and weight, and since she has been dx she havent been sick.
I Have thousands of questions about her future, my future,my family etc, but to read this forum makes me feel comfortable (even thou sometimes i dont understand specially when you use letters instead of word example: cf: cystic fibrosis).
First question: at what age the cf start to be a really pain, i know it depends in the person, but more or less.
second question: what about more kids, please the mothers that have two or more kids with CF how it is? cross infection? company? ect.
third: do you understand my really kidergarten english? ja ja, hope you did.
thank you
i don´t speak much english, nor write, but i will try to do my best.
she is a year and a half, since she was 4 month she started having this regular cold, bronchitis and a little pneumonia. But, she wasn´t very bad, just a lot of cough. we did the sweat test just to be sure she hasn´t cf, because all the doctors that we went said to us: is impossible, but something inside my heart told me to do it. To make a long story short, all of us, specially the doctors were very surprised with the result, we did it three times.
Since then we do her exercise in the chest every morning (physiotherapy), and i took her to a pediatrician that just give natural medicine ( antroposofica), and a normal doctor as well. She is doing great, i touch wood, she is in her size and weight, and since she has been dx she havent been sick.
I Have thousands of questions about her future, my future,my family etc, but to read this forum makes me feel comfortable (even thou sometimes i dont understand specially when you use letters instead of word example: cf: cystic fibrosis).
First question: at what age the cf start to be a really pain, i know it depends in the person, but more or less.
second question: what about more kids, please the mothers that have two or more kids with CF how it is? cross infection? company? ect.
third: do you understand my really kidergarten english? ja ja, hope you did.
thank you