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New Members: We welcome you here!
- Thread starter Imogene
- Start date
Greetings from Germany
Hello everybody,
my name is Melanie and I´m 25. And I live in Germany. I thought it would be a good idea to join a forum from another country because I wonder if everything is "the same" (therapy, medication,...) than in Germany. And maybe be can give each other tips or advice.
Here are some facts about me: I´m married for 2 years now and I have a little Jack Russel dog.
Doctors found out that I have CF when I was about 9 or 10 years old. I never had any problems (lungfunction 100%) and so I did less therapy and "ignored" CF ... until I was 21. Then I got so ill, that I was in a coma for 4 weeks and most of the docs didn´t think I would survive. I had sepsis, lungbleeding, pneumonia and I got a tracheotomy. But of course I DID survive. I´m not in such a good health than I used to be but I´m feeling good and I´m happy, and of course now I do a lot more therapy.
That´s all for now. Have a nice weekend!
Hello everybody,
my name is Melanie and I´m 25. And I live in Germany. I thought it would be a good idea to join a forum from another country because I wonder if everything is "the same" (therapy, medication,...) than in Germany. And maybe be can give each other tips or advice.
Here are some facts about me: I´m married for 2 years now and I have a little Jack Russel dog.
Doctors found out that I have CF when I was about 9 or 10 years old. I never had any problems (lungfunction 100%) and so I did less therapy and "ignored" CF ... until I was 21. Then I got so ill, that I was in a coma for 4 weeks and most of the docs didn´t think I would survive. I had sepsis, lungbleeding, pneumonia and I got a tracheotomy. But of course I DID survive. I´m not in such a good health than I used to be but I´m feeling good and I´m happy, and of course now I do a lot more therapy.
That´s all for now. Have a nice weekend!
Greetings from Germany
Welcome! I also neglected my health for many years thinking that it was ok because I didnt feel the immediate affects.
Now I dont have that luxury!
We have a at least one German member so far. Many from all over the world.
I hope you find loads of information that is helpful to you!
Hugs...
Welcome! I also neglected my health for many years thinking that it was ok because I didnt feel the immediate affects.
Now I dont have that luxury!
We have a at least one German member so far. Many from all over the world.
I hope you find loads of information that is helpful to you!
Hugs...
Greetings from Germany
Welcome and so nice to meet you. I hope you find this site helpful.
I have a Jack Russell too. Her name is Zippy (husband named her before we met). And I have a Chihuahua.
I'm 29 with CF. My lung function shows moderate disease. I've been married for 4 years and have 5 step-kids. Call me crazy!
Have a great day, Melanie!
Kelli
29 f CF
Welcome and so nice to meet you. I hope you find this site helpful.
I have a Jack Russell too. Her name is Zippy (husband named her before we met). And I have a Chihuahua.
I'm 29 with CF. My lung function shows moderate disease. I've been married for 4 years and have 5 step-kids. Call me crazy!
Have a great day, Melanie!
Kelli
29 f CF
Just joined
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>silverd</b></i>
how do you get into the chatrooms to help me to understand and deal with my wifes CF</end quote></div>
Up on the right corner just above the threads there are options of
new topic, profile, help faq CHAT SERVER etc
Click on chat server. You did need to have the java program to run chat.
People are usually on after 8 eastern time
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>silverd</b></i>
how do you get into the chatrooms to help me to understand and deal with my wifes CF</end quote></div>
Up on the right corner just above the threads there are options of
new topic, profile, help faq CHAT SERVER etc
Click on chat server. You did need to have the java program to run chat.
People are usually on after 8 eastern time
kayleesgrandma
New member
Just joined
Welcome Melanie and Silverd, I hope you find this a a caring, and supportive place where you can ask ANYTHING you need to know . We are growing so fast, it's incredible! I look forward to getting to know you both. <img src="i/expressions/heart.gif" border="0">
Welcome Melanie and Silverd, I hope you find this a a caring, and supportive place where you can ask ANYTHING you need to know . We are growing so fast, it's incredible! I look forward to getting to know you both. <img src="i/expressions/heart.gif" border="0">
lucypearl1130
New member
Just joined
Hello, my name is Lucretia, nickname Lou, new to this site, have been going to another site as well (mycysticfibrosis.com) but it's more for keeping up with your health personally so you can report it to your dr.
I've been married almost 16 years this November, and am very happy to say that my husband has always supported me from the first moment we met, and he had never even heard of Cystic Fibrosis before he met me. Like I've read in so many other quotes, God sent me my husband and thank Him every day for that. I also know that without God none of us would be here. He is what truly sustains us and gives us the will to thrive.
I was dx'd @ 4 1/2 months old and am grateful that I had parents and grandparents who recognized there was something wrong.
I hope to learn as much as I can from all of you, because that is what we need to do is support one another, and grow, to thrive. Especially the older we get because even thought every day of my life has been precious, as we grow older it's even more important to give our support and learn as much as possible to help ourselves as well as those coming up behind us.<img src="i/expressions/rose.gif" border="0">
Hello, my name is Lucretia, nickname Lou, new to this site, have been going to another site as well (mycysticfibrosis.com) but it's more for keeping up with your health personally so you can report it to your dr.
I've been married almost 16 years this November, and am very happy to say that my husband has always supported me from the first moment we met, and he had never even heard of Cystic Fibrosis before he met me. Like I've read in so many other quotes, God sent me my husband and thank Him every day for that. I also know that without God none of us would be here. He is what truly sustains us and gives us the will to thrive.
I was dx'd @ 4 1/2 months old and am grateful that I had parents and grandparents who recognized there was something wrong.
I hope to learn as much as I can from all of you, because that is what we need to do is support one another, and grow, to thrive. Especially the older we get because even thought every day of my life has been precious, as we grow older it's even more important to give our support and learn as much as possible to help ourselves as well as those coming up behind us.<img src="i/expressions/rose.gif" border="0">
Just joined
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>silverd</b></i>
how do you get into the chatrooms to help me to understand and deal with my wifes CF</end quote></div>
Up on the right corner just above the threads there are options of
new topic, profile, help faq CHAT SERVER etc
Click on chat server. You did need to have the java program to run chat.
People are usually on after 8 eastern time
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>silverd</b></i>
how do you get into the chatrooms to help me to understand and deal with my wifes CF</end quote></div>
Up on the right corner just above the threads there are options of
new topic, profile, help faq CHAT SERVER etc
Click on chat server. You did need to have the java program to run chat.
People are usually on after 8 eastern time
kayleesgrandma
New member
Just joined
Welcome Melanie and Silverd, I hope you find this a a caring, and supportive place where you can ask ANYTHING you need to know . We are growing so fast, it's incredible! I look forward to getting to know you both. <img src="i/expressions/heart.gif" border="0">
Welcome Melanie and Silverd, I hope you find this a a caring, and supportive place where you can ask ANYTHING you need to know . We are growing so fast, it's incredible! I look forward to getting to know you both. <img src="i/expressions/heart.gif" border="0">
lucypearl1130
New member
Just joined
Hello, my name is Lucretia, nickname Lou, new to this site, have been going to another site as well (mycysticfibrosis.com) but it's more for keeping up with your health personally so you can report it to your dr.
I've been married almost 16 years this November, and am very happy to say that my husband has always supported me from the first moment we met, and he had never even heard of Cystic Fibrosis before he met me. Like I've read in so many other quotes, God sent me my husband and thank Him every day for that. I also know that without God none of us would be here. He is what truly sustains us and gives us the will to thrive.
I was dx'd @ 4 1/2 months old and am grateful that I had parents and grandparents who recognized there was something wrong.
I hope to learn as much as I can from all of you, because that is what we need to do is support one another, and grow, to thrive. Especially the older we get because even thought every day of my life has been precious, as we grow older it's even more important to give our support and learn as much as possible to help ourselves as well as those coming up behind us.<img src="i/expressions/rose.gif" border="0">
Hello, my name is Lucretia, nickname Lou, new to this site, have been going to another site as well (mycysticfibrosis.com) but it's more for keeping up with your health personally so you can report it to your dr.
I've been married almost 16 years this November, and am very happy to say that my husband has always supported me from the first moment we met, and he had never even heard of Cystic Fibrosis before he met me. Like I've read in so many other quotes, God sent me my husband and thank Him every day for that. I also know that without God none of us would be here. He is what truly sustains us and gives us the will to thrive.
I was dx'd @ 4 1/2 months old and am grateful that I had parents and grandparents who recognized there was something wrong.
I hope to learn as much as I can from all of you, because that is what we need to do is support one another, and grow, to thrive. Especially the older we get because even thought every day of my life has been precious, as we grow older it's even more important to give our support and learn as much as possible to help ourselves as well as those coming up behind us.<img src="i/expressions/rose.gif" border="0">
Just joined
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>silverd</b></i>
how do you get into the chatrooms to help me to understand and deal with my wifes CF</end quote></div>
Up on the right corner just above the threads there are options of
new topic, profile, help faq CHAT SERVER etc
Click on chat server. You did need to have the java program to run chat.
People are usually on after 8 eastern time
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>silverd</b></i>
how do you get into the chatrooms to help me to understand and deal with my wifes CF</end quote></div>
Up on the right corner just above the threads there are options of
new topic, profile, help faq CHAT SERVER etc
Click on chat server. You did need to have the java program to run chat.
People are usually on after 8 eastern time
kayleesgrandma
New member
Just joined
Welcome Melanie and Silverd, I hope you find this a a caring, and supportive place where you can ask ANYTHING you need to know . We are growing so fast, it's incredible! I look forward to getting to know you both. <img src="i/expressions/heart.gif" border="0">
Welcome Melanie and Silverd, I hope you find this a a caring, and supportive place where you can ask ANYTHING you need to know . We are growing so fast, it's incredible! I look forward to getting to know you both. <img src="i/expressions/heart.gif" border="0">
lucypearl1130
New member
Just joined
Hello, my name is Lucretia, nickname Lou, new to this site, have been going to another site as well (mycysticfibrosis.com) but it's more for keeping up with your health personally so you can report it to your dr.
I've been married almost 16 years this November, and am very happy to say that my husband has always supported me from the first moment we met, and he had never even heard of Cystic Fibrosis before he met me. Like I've read in so many other quotes, God sent me my husband and thank Him every day for that. I also know that without God none of us would be here. He is what truly sustains us and gives us the will to thrive.
I was dx'd @ 4 1/2 months old and am grateful that I had parents and grandparents who recognized there was something wrong.
I hope to learn as much as I can from all of you, because that is what we need to do is support one another, and grow, to thrive. Especially the older we get because even thought every day of my life has been precious, as we grow older it's even more important to give our support and learn as much as possible to help ourselves as well as those coming up behind us.<img src="i/expressions/rose.gif" border="0">
Hello, my name is Lucretia, nickname Lou, new to this site, have been going to another site as well (mycysticfibrosis.com) but it's more for keeping up with your health personally so you can report it to your dr.
I've been married almost 16 years this November, and am very happy to say that my husband has always supported me from the first moment we met, and he had never even heard of Cystic Fibrosis before he met me. Like I've read in so many other quotes, God sent me my husband and thank Him every day for that. I also know that without God none of us would be here. He is what truly sustains us and gives us the will to thrive.
I was dx'd @ 4 1/2 months old and am grateful that I had parents and grandparents who recognized there was something wrong.
I hope to learn as much as I can from all of you, because that is what we need to do is support one another, and grow, to thrive. Especially the older we get because even thought every day of my life has been precious, as we grow older it's even more important to give our support and learn as much as possible to help ourselves as well as those coming up behind us.<img src="i/expressions/rose.gif" border="0">