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New Mom- help understanding dx of CF
- Thread starter pypersmom
- Start date
Well I first visit this site in Jan, and told my story about my daughter. She had an abnormal newborn screeing and a sweat chloride test, score of 27.
We have been in limbo waiting to see if our insurance will pay for the genetic testing and back and forth with our ped. I work at the University of Cincinnati and am blessed with some resources at my finger tips. I got to speak to Dr. Dan Hassett, a CF researcher. He suggested to us to go ahead with the genetic testing just to be 100% postive. In the meantime, I was also able to meet with UC's head CF Specialist. She went over or sweat chloride report and said our daughter was in normal range, she has no CF symptoms ( she never has had a cold, runny nose, sinus issues, lung issues, no wheezing and her BM are normal and regualar), she is definalty not failing to thrive and recommended that we not perform the genetic testing and if we still have concerns repeat her sweat chloride when she is 6 months. I trust her opinion totally, however; I wanted to know from you, the experienced CF moms and dads what you think. Also we have two peds in our group one says get the genetic testing and one says not to as she is certain she doesn't have CF.
Any advice would be great!
We have been in limbo waiting to see if our insurance will pay for the genetic testing and back and forth with our ped. I work at the University of Cincinnati and am blessed with some resources at my finger tips. I got to speak to Dr. Dan Hassett, a CF researcher. He suggested to us to go ahead with the genetic testing just to be 100% postive. In the meantime, I was also able to meet with UC's head CF Specialist. She went over or sweat chloride report and said our daughter was in normal range, she has no CF symptoms ( she never has had a cold, runny nose, sinus issues, lung issues, no wheezing and her BM are normal and regualar), she is definalty not failing to thrive and recommended that we not perform the genetic testing and if we still have concerns repeat her sweat chloride when she is 6 months. I trust her opinion totally, however; I wanted to know from you, the experienced CF moms and dads what you think. Also we have two peds in our group one says get the genetic testing and one says not to as she is certain she doesn't have CF.
Any advice would be great!
Well I first visit this site in Jan, and told my story about my daughter. She had an abnormal newborn screeing and a sweat chloride test, score of 27.
We have been in limbo waiting to see if our insurance will pay for the genetic testing and back and forth with our ped. I work at the University of Cincinnati and am blessed with some resources at my finger tips. I got to speak to Dr. Dan Hassett, a CF researcher. He suggested to us to go ahead with the genetic testing just to be 100% postive. In the meantime, I was also able to meet with UC's head CF Specialist. She went over or sweat chloride report and said our daughter was in normal range, she has no CF symptoms ( she never has had a cold, runny nose, sinus issues, lung issues, no wheezing and her BM are normal and regualar), she is definalty not failing to thrive and recommended that we not perform the genetic testing and if we still have concerns repeat her sweat chloride when she is 6 months. I trust her opinion totally, however; I wanted to know from you, the experienced CF moms and dads what you think. Also we have two peds in our group one says get the genetic testing and one says not to as she is certain she doesn't have CF.
Any advice would be great!
We have been in limbo waiting to see if our insurance will pay for the genetic testing and back and forth with our ped. I work at the University of Cincinnati and am blessed with some resources at my finger tips. I got to speak to Dr. Dan Hassett, a CF researcher. He suggested to us to go ahead with the genetic testing just to be 100% postive. In the meantime, I was also able to meet with UC's head CF Specialist. She went over or sweat chloride report and said our daughter was in normal range, she has no CF symptoms ( she never has had a cold, runny nose, sinus issues, lung issues, no wheezing and her BM are normal and regualar), she is definalty not failing to thrive and recommended that we not perform the genetic testing and if we still have concerns repeat her sweat chloride when she is 6 months. I trust her opinion totally, however; I wanted to know from you, the experienced CF moms and dads what you think. Also we have two peds in our group one says get the genetic testing and one says not to as she is certain she doesn't have CF.
Any advice would be great!
Well I first visit this site in Jan, and told my story about my daughter. She had an abnormal newborn screeing and a sweat chloride test, score of 27.
We have been in limbo waiting to see if our insurance will pay for the genetic testing and back and forth with our ped. I work at the University of Cincinnati and am blessed with some resources at my finger tips. I got to speak to Dr. Dan Hassett, a CF researcher. He suggested to us to go ahead with the genetic testing just to be 100% postive. In the meantime, I was also able to meet with UC's head CF Specialist. She went over or sweat chloride report and said our daughter was in normal range, she has no CF symptoms ( she never has had a cold, runny nose, sinus issues, lung issues, no wheezing and her BM are normal and regualar), she is definalty not failing to thrive and recommended that we not perform the genetic testing and if we still have concerns repeat her sweat chloride when she is 6 months. I trust her opinion totally, however; I wanted to know from you, the experienced CF moms and dads what you think. Also we have two peds in our group one says get the genetic testing and one says not to as she is certain she doesn't have CF.
Any advice would be great!
We have been in limbo waiting to see if our insurance will pay for the genetic testing and back and forth with our ped. I work at the University of Cincinnati and am blessed with some resources at my finger tips. I got to speak to Dr. Dan Hassett, a CF researcher. He suggested to us to go ahead with the genetic testing just to be 100% postive. In the meantime, I was also able to meet with UC's head CF Specialist. She went over or sweat chloride report and said our daughter was in normal range, she has no CF symptoms ( she never has had a cold, runny nose, sinus issues, lung issues, no wheezing and her BM are normal and regualar), she is definalty not failing to thrive and recommended that we not perform the genetic testing and if we still have concerns repeat her sweat chloride when she is 6 months. I trust her opinion totally, however; I wanted to know from you, the experienced CF moms and dads what you think. Also we have two peds in our group one says get the genetic testing and one says not to as she is certain she doesn't have CF.
Any advice would be great!
Well I first visit this site in Jan, and told my story about my daughter. She had an abnormal newborn screeing and a sweat chloride test, score of 27.
We have been in limbo waiting to see if our insurance will pay for the genetic testing and back and forth with our ped. I work at the University of Cincinnati and am blessed with some resources at my finger tips. I got to speak to Dr. Dan Hassett, a CF researcher. He suggested to us to go ahead with the genetic testing just to be 100% postive. In the meantime, I was also able to meet with UC's head CF Specialist. She went over or sweat chloride report and said our daughter was in normal range, she has no CF symptoms ( she never has had a cold, runny nose, sinus issues, lung issues, no wheezing and her BM are normal and regualar), she is definalty not failing to thrive and recommended that we not perform the genetic testing and if we still have concerns repeat her sweat chloride when she is 6 months. I trust her opinion totally, however; I wanted to know from you, the experienced CF moms and dads what you think. Also we have two peds in our group one says get the genetic testing and one says not to as she is certain she doesn't have CF.
Any advice would be great!
We have been in limbo waiting to see if our insurance will pay for the genetic testing and back and forth with our ped. I work at the University of Cincinnati and am blessed with some resources at my finger tips. I got to speak to Dr. Dan Hassett, a CF researcher. He suggested to us to go ahead with the genetic testing just to be 100% postive. In the meantime, I was also able to meet with UC's head CF Specialist. She went over or sweat chloride report and said our daughter was in normal range, she has no CF symptoms ( she never has had a cold, runny nose, sinus issues, lung issues, no wheezing and her BM are normal and regualar), she is definalty not failing to thrive and recommended that we not perform the genetic testing and if we still have concerns repeat her sweat chloride when she is 6 months. I trust her opinion totally, however; I wanted to know from you, the experienced CF moms and dads what you think. Also we have two peds in our group one says get the genetic testing and one says not to as she is certain she doesn't have CF.
Any advice would be great!
Well I first visit this site in Jan, and told my story about my daughter. She had an abnormal newborn screeing and a sweat chloride test, score of 27.
<br />
<br />We have been in limbo waiting to see if our insurance will pay for the genetic testing and back and forth with our ped. I work at the University of Cincinnati and am blessed with some resources at my finger tips. I got to speak to Dr. Dan Hassett, a CF researcher. He suggested to us to go ahead with the genetic testing just to be 100% postive. In the meantime, I was also able to meet with UC's head CF Specialist. She went over or sweat chloride report and said our daughter was in normal range, she has no CF symptoms ( she never has had a cold, runny nose, sinus issues, lung issues, no wheezing and her BM are normal and regualar), she is definalty not failing to thrive and recommended that we not perform the genetic testing and if we still have concerns repeat her sweat chloride when she is 6 months. I trust her opinion totally, however; I wanted to know from you, the experienced CF moms and dads what you think. Also we have two peds in our group one says get the genetic testing and one says not to as she is certain she doesn't have CF.
<br />
<br />Any advice would be great!
<br />
<br />We have been in limbo waiting to see if our insurance will pay for the genetic testing and back and forth with our ped. I work at the University of Cincinnati and am blessed with some resources at my finger tips. I got to speak to Dr. Dan Hassett, a CF researcher. He suggested to us to go ahead with the genetic testing just to be 100% postive. In the meantime, I was also able to meet with UC's head CF Specialist. She went over or sweat chloride report and said our daughter was in normal range, she has no CF symptoms ( she never has had a cold, runny nose, sinus issues, lung issues, no wheezing and her BM are normal and regualar), she is definalty not failing to thrive and recommended that we not perform the genetic testing and if we still have concerns repeat her sweat chloride when she is 6 months. I trust her opinion totally, however; I wanted to know from you, the experienced CF moms and dads what you think. Also we have two peds in our group one says get the genetic testing and one says not to as she is certain she doesn't have CF.
<br />
<br />Any advice would be great!
my son has always been in the 85% on the charts for wieght and does not need to take enzymes and did not get sick or have lung involement for five years so if I were you and I would go and get the test done so there are no worries. the only reason me son was dx when he was was because of severe dehydration. hope everything goes well with her
my son has always been in the 85% on the charts for wieght and does not need to take enzymes and did not get sick or have lung involement for five years so if I were you and I would go and get the test done so there are no worries. the only reason me son was dx when he was was because of severe dehydration. hope everything goes well with her
my son has always been in the 85% on the charts for wieght and does not need to take enzymes and did not get sick or have lung involement for five years so if I were you and I would go and get the test done so there are no worries. the only reason me son was dx when he was was because of severe dehydration. hope everything goes well with her
my son has always been in the 85% on the charts for wieght and does not need to take enzymes and did not get sick or have lung involement for five years so if I were you and I would go and get the test done so there are no worries. the only reason me son was dx when he was was because of severe dehydration. hope everything goes well with her
my son has always been in the 85% on the charts for wieght and does not need to take enzymes and did not get sick or have lung involement for five years so if I were you and I would go and get the test done so there are no worries. the only reason me son was dx when he was was because of severe dehydration. hope everything goes well with her
This is a tough one. I'm usually the first one to say get the test, but in this case I'm hesitant. In your case, (no symptoms, neg sweat test) I might be inclined to agree with the UC's head CF specialist.
I guess I'd just go with what my gut was telling me. That mommy instinct is pretty strong, and usually not too far off target.
Stacey
I guess I'd just go with what my gut was telling me. That mommy instinct is pretty strong, and usually not too far off target.
Stacey
This is a tough one. I'm usually the first one to say get the test, but in this case I'm hesitant. In your case, (no symptoms, neg sweat test) I might be inclined to agree with the UC's head CF specialist.
I guess I'd just go with what my gut was telling me. That mommy instinct is pretty strong, and usually not too far off target.
Stacey
I guess I'd just go with what my gut was telling me. That mommy instinct is pretty strong, and usually not too far off target.
Stacey
This is a tough one. I'm usually the first one to say get the test, but in this case I'm hesitant. In your case, (no symptoms, neg sweat test) I might be inclined to agree with the UC's head CF specialist.
I guess I'd just go with what my gut was telling me. That mommy instinct is pretty strong, and usually not too far off target.
Stacey
I guess I'd just go with what my gut was telling me. That mommy instinct is pretty strong, and usually not too far off target.
Stacey
This is a tough one. I'm usually the first one to say get the test, but in this case I'm hesitant. In your case, (no symptoms, neg sweat test) I might be inclined to agree with the UC's head CF specialist.
I guess I'd just go with what my gut was telling me. That mommy instinct is pretty strong, and usually not too far off target.
Stacey
I guess I'd just go with what my gut was telling me. That mommy instinct is pretty strong, and usually not too far off target.
Stacey
This is a tough one. I'm usually the first one to say get the test, but in this case I'm hesitant. In your case, (no symptoms, neg sweat test) I might be inclined to agree with the UC's head CF specialist.
<br />
<br />I guess I'd just go with what my gut was telling me. That mommy instinct is pretty strong, and usually not too far off target.
<br />
<br />Stacey
<br />
<br />I guess I'd just go with what my gut was telling me. That mommy instinct is pretty strong, and usually not too far off target.
<br />
<br />Stacey