New study in Canada....worth reading!

kitomd21

New member
Unfortunately, we don't take DD to any known CF gatherings other than her CF clinic. Not worth the risk. She can decide for herself when she's an adult...until then, we're erring on the side of caution. If it's known that CF individuals can spread strains to other CF individuals, it doesn't make sense to take the chance.
 
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bookworm

Guest
Here is the actual updated posting on the Canadian cystic fibrosis site. The date is March 2011 and contains the information cited in the National Post article:

http://www.cysticfibrosis.ca/assets/files/pdf/Infection_Control_BackgrounderQA.pdf

This is the study that the backgrounder cites:

The online scientific abstract on the Ontario study on transmissible Pseudomonas in JAMA (Journal of the American Medical Association), volume 304, November 17, 2010, can be found at http://jama.ama-assn.org/content/304/19/2145.abstract?sid=818fcfbf-dfde-412d-b7bb-3048bf6a0014
 
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bookworm

Guest
Here is the actual updated posting on the Canadian cystic fibrosis site. The date is March 2011 and contains the information cited in the National Post article:

http://www.cysticfibrosis.ca/assets/files/pdf/Infection_Control_BackgrounderQA.pdf

This is the study that the backgrounder cites:

The online scientific abstract on the Ontario study on transmissible Pseudomonas in JAMA (Journal of the American Medical Association), volume 304, November 17, 2010, can be found at http://jama.ama-assn.org/content/304/19/2145.abstract?sid=818fcfbf-dfde-412d-b7bb-3048bf6a0014
 
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bookworm

Guest
Here is the actual updated posting on the Canadian cystic fibrosis site. The date is March 2011 and contains the information cited in the National Post article:
<br />
<br />http://www.cysticfibrosis.ca/assets/files/pdf/Infection_Control_BackgrounderQA.pdf
<br />
<br />This is the study that the backgrounder cites:
<br />
<br />The online scientific abstract on the Ontario study on transmissible Pseudomonas in JAMA (Journal of the American Medical Association), volume 304, November 17, 2010, can be found at http://jama.ama-assn.org/content/304/19/2145.abstract?sid=818fcfbf-dfde-412d-b7bb-3048bf6a0014
<br />
<br />
 

hmw

New member
Thank you, Bookworm for taking the time to research this and confirm that this article is legit and addressing a 'real' concern.

I wonder what our labs' capabilities for identifying the strains are vs. the Canadian ones.
 

hmw

New member
Thank you, Bookworm for taking the time to research this and confirm that this article is legit and addressing a 'real' concern.

I wonder what our labs' capabilities for identifying the strains are vs. the Canadian ones.
 

hmw

New member
Thank you, Bookworm for taking the time to research this and confirm that this article is legit and addressing a 'real' concern.
<br />
<br />I wonder what our labs' capabilities for identifying the strains are vs. the Canadian ones.
 

Ratatosk

Administrator
Staff member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>kitomd21</b></i> Unfortunately, we don't take DD to any known CF gatherings other than her CF clinic. Not worth the risk. She can decide for herself when she's an adult...until then, we're erring on the side of caution. If it's known that CF individuals can spread strains to other CF individuals, it doesn't make sense to take the chance.</end quote></div>
That was our BIGGEST fear when DS was a baby/toddler and going to the CF clinic as the local one didn't/doesn't have good germ control policies.  We actually stopped going because they had a small crowded waiting room, played musical rooms, would bring toys in from the waiting room -- was HORRIBLE.
As far as CF events, we did avoid the CF walk for a long time because the walks take place at a park and I couldn't trust anyone to keep DS away from the playground and the other children while I helped out and there are several families who still go to the the local CF clinic who aren't concerned with cross contamination.   Nowdays we keep DS with our group and we eat at my inlaws afterwards and take him to the park near our house later in the afternoon.
 

Ratatosk

Administrator
Staff member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>kitomd21</b></i> Unfortunately, we don't take DD to any known CF gatherings other than her CF clinic. Not worth the risk. She can decide for herself when she's an adult...until then, we're erring on the side of caution. If it's known that CF individuals can spread strains to other CF individuals, it doesn't make sense to take the chance.</end quote>
That was our BIGGEST fear when DS was a baby/toddler and going to the CF clinic as the local one didn't/doesn't have good germ control policies. We actually stopped going because they had a small crowded waiting room, played musical rooms, would bring toys in from the waiting room -- was HORRIBLE.
As far as CF events, we did avoid the CF walk for a long time because the walks take place at a park and I couldn't trust anyone to keep DS away from the playground and the other children while I helped out and there are several families who still go to the the local CF clinic who aren't concerned with cross contamination. Nowdays we keep DS with our group and we eat at my inlaws afterwards and take him to the park near our house later in the afternoon.
 

Ratatosk

Administrator
Staff member
<p><div class="FTQUOTE"><begin quote><i>Originally posted by: <b>kitomd21</b></i> Unfortunately, we don't take DD to any known CF gatherings other than her CF clinic. Not worth the risk. She can decide for herself when she's an adult...until then, we're erring on the side of caution. If it's known that CF individuals can spread strains to other CF individuals, it doesn't make sense to take the chance.</end quote>
<p>That was our BIGGEST fear when DS was a baby/toddler and going to the CF clinic as the local one didn't/doesn't have good germ control policies. We actually stopped going because they had a small crowded waiting room, played musical rooms, would bring toys in from the waiting room -- was HORRIBLE.
<p>As far as CF events, we did avoid the CF walk for a long time because the walks take place at a park and I couldn't trust anyone to keep DS away from the playground and the other children while I helped out and there are several families who still go to the the local CF clinic who aren't concerned with cross contamination. Nowdays we keep DS with our group and we eat at my inlaws afterwards and take him to the park near our house later in the afternoon.
 
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