It's all so overwhelming. You expect to deal with normal baby issues and suddenly you're learning about nebulizers, CPT, enzymes, measuring out oral meds in syringes every day. Pretty soon you'll get into a routine and have things figured out. I actually enjoy hanging out with DS watching videos, talking while doing nebs and CPT. And I know my husband likes his snuggle time in the mornings when DS has Tobi treatments.
I still worry about the future, the diagnosis, medical care and treatments, but it's not that horrible, horrible deer caught in the headlights feeling of panic I used to get when DS was first diagnosed. We pretty much have our routine down, though I'll admit I get thrown for a loop when a new one is added.
