New to site and CF

[SARAHSARAH253]

Jen...I have just been where you are at..My son is 6 weeks old..However when he was born he had a bowel abstruction...That had the doctors asking if I was tested for CF during my pregnancy. I said yes..but my husband was tested and was not a carrier. We went through hell for the last five weeks..sweat teasts..fecal tests...Our baby came back last weeks as being positive for CF. I was so angry and pissed...I screamed you told me early in my pregnancy there was no chance of CF because my husband is not a carrier...The GI doctors then explained how my OBYGN was wrong the test they had done on my husband and only rules out 85 percent. and there is another portion of the CF they test a second time for when they get to this point..We are waiting now 5 to 6 weeks to find out what exact CF kind my husband is a carrier for.....I understand the fustration..

 

[SARAHSARAH253]

Jen...I have just been where you are at..My son is 6 weeks old..However when he was born he had a bowel abstruction...That had the doctors asking if I was tested for CF during my pregnancy. I said yes..but my husband was tested and was not a carrier. We went through hell for the last five weeks..sweat teasts..fecal tests...Our baby came back last weeks as being positive for CF. I was so angry and pissed...I screamed you told me early in my pregnancy there was no chance of CF because my husband is not a carrier...The GI doctors then explained how my OBYGN was wrong the test they had done on my husband and only rules out 85 percent. and there is another portion of the CF they test a second time for when they get to this point..We are waiting now 5 to 6 weeks to find out what exact CF kind my husband is a carrier for.....I understand the fustration..

 

[SARAHSARAH253]

Jen...I have just been where you are at..My son is 6 weeks old..However when he was born he had a bowel abstruction...That had the doctors asking if I was tested for CF during my pregnancy. I said yes..but my husband was tested and was not a carrier. We went through hell for the last five weeks..sweat teasts..fecal tests...Our baby came back last weeks as being positive for CF. I was so angry and pissed...I screamed you told me early in my pregnancy there was no chance of CF because my husband is not a carrier...The GI doctors then explained how my OBYGN was wrong the test they had done on my husband and only rules out 85 percent. and there is another portion of the CF they test a second time for when they get to this point..We are waiting now 5 to 6 weeks to find out what exact CF kind my husband is a carrier for.....I understand the fustration..

 

[SARAHSARAH253]

Jen...I have just been where you are at..My son is 6 weeks old..However when he was born he had a bowel abstruction...That had the doctors asking if I was tested for CF during my pregnancy. I said yes..but my husband was tested and was not a carrier. We went through hell for the last five weeks..sweat teasts..fecal tests...Our baby came back last weeks as being positive for CF. I was so angry and pissed...I screamed you told me early in my pregnancy there was no chance of CF because my husband is not a carrier...The GI doctors then explained how my OBYGN was wrong the test they had done on my husband and only rules out 85 percent. and there is another portion of the CF they test a second time for when they get to this point..We are waiting now 5 to 6 weeks to find out what exact CF kind my husband is a carrier for.....I understand the fustration..

 

[SARAHSARAH253]

Jen...I have just been where you are at..My son is 6 weeks old..However when he was born he had a bowel abstruction...That had the doctors asking if I was tested for CF during my pregnancy. I said yes..but my husband was tested and was not a carrier. We went through hell for the last five weeks..sweat teasts..fecal tests...Our baby came back last weeks as being positive for CF. I was so angry and pissed...I screamed you told me early in my pregnancy there was no chance of CF because my husband is not a carrier...The GI doctors then explained how my OBYGN was wrong the test they had done on my husband and only rules out 85 percent. and there is another portion of the CF they test a second time for when they get to this point..We are waiting now 5 to 6 weeks to find out what exact CF kind my husband is a carrier for.....I understand the fustration..

 

[tbw18]

Welcome Angela and Luke, my name is Hope and I have a son who has CF, he is 18 years old he was diagnosised at 6months, he is in college now, he has a girlfriend he is a EMS with our local fire department. Yes things were so scary for us and we wondered why and how would he ever survive this disease, we sent him to daycare, school, birthday parties, you name it he tried it. We have tried to keep his life as normal as possible and we have always let him know he can do anything he wants to do. We dont want anyone to pity us or him, no one will understand what CF is unless they are living with it, hang on and take one day at a time, this site is a life line for me and many others it will always understand and be there to listen and pick you up when nothing else will. I understand what you are feeling and so do many others on this site. You and Luke are in our prayers and I will be happy to answer any questions you have or if you just need someone to talk with.
HOPE

THE SUN RISES AND SETS IN THE EYES OF TBW

 

[tbw18]

Welcome Angela and Luke, my name is Hope and I have a son who has CF, he is 18 years old he was diagnosised at 6months, he is in college now, he has a girlfriend he is a EMS with our local fire department. Yes things were so scary for us and we wondered why and how would he ever survive this disease, we sent him to daycare, school, birthday parties, you name it he tried it. We have tried to keep his life as normal as possible and we have always let him know he can do anything he wants to do. We dont want anyone to pity us or him, no one will understand what CF is unless they are living with it, hang on and take one day at a time, this site is a life line for me and many others it will always understand and be there to listen and pick you up when nothing else will. I understand what you are feeling and so do many others on this site. You and Luke are in our prayers and I will be happy to answer any questions you have or if you just need someone to talk with.
HOPE

THE SUN RISES AND SETS IN THE EYES OF TBW

 

[tbw18]

Welcome Angela and Luke, my name is Hope and I have a son who has CF, he is 18 years old he was diagnosised at 6months, he is in college now, he has a girlfriend he is a EMS with our local fire department. Yes things were so scary for us and we wondered why and how would he ever survive this disease, we sent him to daycare, school, birthday parties, you name it he tried it. We have tried to keep his life as normal as possible and we have always let him know he can do anything he wants to do. We dont want anyone to pity us or him, no one will understand what CF is unless they are living with it, hang on and take one day at a time, this site is a life line for me and many others it will always understand and be there to listen and pick you up when nothing else will. I understand what you are feeling and so do many others on this site. You and Luke are in our prayers and I will be happy to answer any questions you have or if you just need someone to talk with.
HOPE

THE SUN RISES AND SETS IN THE EYES OF TBW

 

[tbw18]

Welcome Angela and Luke, my name is Hope and I have a son who has CF, he is 18 years old he was diagnosised at 6months, he is in college now, he has a girlfriend he is a EMS with our local fire department. Yes things were so scary for us and we wondered why and how would he ever survive this disease, we sent him to daycare, school, birthday parties, you name it he tried it. We have tried to keep his life as normal as possible and we have always let him know he can do anything he wants to do. We dont want anyone to pity us or him, no one will understand what CF is unless they are living with it, hang on and take one day at a time, this site is a life line for me and many others it will always understand and be there to listen and pick you up when nothing else will. I understand what you are feeling and so do many others on this site. You and Luke are in our prayers and I will be happy to answer any questions you have or if you just need someone to talk with.
HOPE

THE SUN RISES AND SETS IN THE EYES OF TBW

 

[tbw18]

Welcome Angela and Luke, my name is Hope and I have a son who has CF, he is 18 years old he was diagnosised at 6months, he is in college now, he has a girlfriend he is a EMS with our local fire department. Yes things were so scary for us and we wondered why and how would he ever survive this disease, we sent him to daycare, school, birthday parties, you name it he tried it. We have tried to keep his life as normal as possible and we have always let him know he can do anything he wants to do. We dont want anyone to pity us or him, no one will understand what CF is unless they are living with it, hang on and take one day at a time, this site is a life line for me and many others it will always understand and be there to listen and pick you up when nothing else will. I understand what you are feeling and so do many others on this site. You and Luke are in our prayers and I will be happy to answer any questions you have or if you just need someone to talk with.
HOPE

THE SUN RISES AND SETS IN THE EYES OF TBW

 

[jusudipta]

Hello I am Sudipta from India. I am very new to this forum. I don not know how to ask question here. So I post my query here.
My niece, who is 10 month old has been diagonised with CF. Our problem is as CF is very rare in India, we are unable to find any Cf centre in India. So can anybody help us providing a centre or doctor name who work on CF in Kolkata, India.
Regards
Sudipta

 

[jusudipta]

Hello I am Sudipta from India. I am very new to this forum. I don not know how to ask question here. So I post my query here.
My niece, who is 10 month old has been diagonised with CF. Our problem is as CF is very rare in India, we are unable to find any Cf centre in India. So can anybody help us providing a centre or doctor name who work on CF in Kolkata, India.
Regards
Sudipta

 

[jusudipta]

Hello I am Sudipta from India. I am very new to this forum. I don not know how to ask question here. So I post my query here.
My niece, who is 10 month old has been diagonised with CF. Our problem is as CF is very rare in India, we are unable to find any Cf centre in India. So can anybody help us providing a centre or doctor name who work on CF in Kolkata, India.
Regards
Sudipta

 

[jusudipta]

Hello I am Sudipta from India. I am very new to this forum. I don not know how to ask question here. So I post my query here.
My niece, who is 10 month old has been diagonised with CF. Our problem is as CF is very rare in India, we are unable to find any Cf centre in India. So can anybody help us providing a centre or doctor name who work on CF in Kolkata, India.
Regards
Sudipta

 

[jusudipta]

Hello I am Sudipta from India. I am very new to this forum. I don not know how to ask question here. So I post my query here.
My niece, who is 10 month old has been diagonised with CF. Our problem is as CF is very rare in India, we are unable to find any Cf centre in India. So can anybody help us providing a centre or doctor name who work on CF in Kolkata, India.
Regards
Sudipta