New to the CF club: DX at 43...

Juliet

New member
Thanks for the replies. It's a comfort to know I'm not crazy. <img src="">

Nicole - I hear you about re-tuning into signals from the 'bod! Fortunately the Adult CF center at JH in Baltimore is really good. I've dropped the pulmonologist I had been seeing (never liked him much anyways as we often disagreed on treatments & drug dosages). My 'regular' doc who sent me to the CF Docs in the first place (in spite of my pulmonologist's recommendation otherwise) are coordinating closely to get all my tests done to assess PI, vitamin deficiencies, GI issues etc... So I fortunately have a good medical team on my side.

Chrissy - I too missed a lot of school growing up. I was always coughing (which I now realize was a good thing!) but it sure sucked to be treated like a social outcast. I remember one episode in Junior High School where I had such a bad coughing attack I fell out of my chair. Talk about enhancing my geek status and totally killing any social life at that tender age! <img src="">

Diane - What kind of Muscle car do you have? I've got a 2007 corvette (my everyday car) and a 1970 Corvette that I restored myself. I bought the '70 from the original owner, a woman with 44k miles. <img src=""> I earned an NCRS Top flight a few years back. I also take it to the drag strip with the Corvette clubs a few times a year. Maybe in June I can win back my "King of the Hill" Title I had in 2002. Both of my corvettes have automatics so I usually am pretty consistent racing brackets. I remember that last race in '02 was against a new corvette with about $50k of engine mods. I was driving the 1970. His car was running something in the 9s or 10s and I'm lucky to get 14.0. The commentator on the track PA system is a member of my corvette club so he was going on and on about all the work I did myself on the car. I'd only just finished the drive train restoration and got the car back together & aligned the day before. (insert all nighters and days off from work to get it done!) I was listening to the comentator (simulcast on the AM radio in the car) & I could hear my friends in the stands cheering me on. Anyways because of the bracket times I had almost a 5 second head start - talk about psyching out the competition. My trap speeds are in the 90s and I remember him blasting by somewhere near the finish line at around 130+ MPH. I didn't know who had won until I got to the back stretch and picked up my time slip and was then presented with the "BIG TROPHY". I was floored. His day sucked, being beaten by 'a girl' who had restored her own car no less! <img src=""> ~Juliet
 

Juliet

New member
Thanks for the replies. It's a comfort to know I'm not crazy. <img src="">

Nicole - I hear you about re-tuning into signals from the 'bod! Fortunately the Adult CF center at JH in Baltimore is really good. I've dropped the pulmonologist I had been seeing (never liked him much anyways as we often disagreed on treatments & drug dosages). My 'regular' doc who sent me to the CF Docs in the first place (in spite of my pulmonologist's recommendation otherwise) are coordinating closely to get all my tests done to assess PI, vitamin deficiencies, GI issues etc... So I fortunately have a good medical team on my side.

Chrissy - I too missed a lot of school growing up. I was always coughing (which I now realize was a good thing!) but it sure sucked to be treated like a social outcast. I remember one episode in Junior High School where I had such a bad coughing attack I fell out of my chair. Talk about enhancing my geek status and totally killing any social life at that tender age! <img src="">

Diane - What kind of Muscle car do you have? I've got a 2007 corvette (my everyday car) and a 1970 Corvette that I restored myself. I bought the '70 from the original owner, a woman with 44k miles. <img src=""> I earned an NCRS Top flight a few years back. I also take it to the drag strip with the Corvette clubs a few times a year. Maybe in June I can win back my "King of the Hill" Title I had in 2002. Both of my corvettes have automatics so I usually am pretty consistent racing brackets. I remember that last race in '02 was against a new corvette with about $50k of engine mods. I was driving the 1970. His car was running something in the 9s or 10s and I'm lucky to get 14.0. The commentator on the track PA system is a member of my corvette club so he was going on and on about all the work I did myself on the car. I'd only just finished the drive train restoration and got the car back together & aligned the day before. (insert all nighters and days off from work to get it done!) I was listening to the comentator (simulcast on the AM radio in the car) & I could hear my friends in the stands cheering me on. Anyways because of the bracket times I had almost a 5 second head start - talk about psyching out the competition. My trap speeds are in the 90s and I remember him blasting by somewhere near the finish line at around 130+ MPH. I didn't know who had won until I got to the back stretch and picked up my time slip and was then presented with the "BIG TROPHY". I was floored. His day sucked, being beaten by 'a girl' who had restored her own car no less! <img src=""> ~Juliet
 

Juliet

New member
Thanks for the replies. It's a comfort to know I'm not crazy. <img src="">

Nicole - I hear you about re-tuning into signals from the 'bod! Fortunately the Adult CF center at JH in Baltimore is really good. I've dropped the pulmonologist I had been seeing (never liked him much anyways as we often disagreed on treatments & drug dosages). My 'regular' doc who sent me to the CF Docs in the first place (in spite of my pulmonologist's recommendation otherwise) are coordinating closely to get all my tests done to assess PI, vitamin deficiencies, GI issues etc... So I fortunately have a good medical team on my side.

Chrissy - I too missed a lot of school growing up. I was always coughing (which I now realize was a good thing!) but it sure sucked to be treated like a social outcast. I remember one episode in Junior High School where I had such a bad coughing attack I fell out of my chair. Talk about enhancing my geek status and totally killing any social life at that tender age! <img src="">

Diane - What kind of Muscle car do you have? I've got a 2007 corvette (my everyday car) and a 1970 Corvette that I restored myself. I bought the '70 from the original owner, a woman with 44k miles. <img src=""> I earned an NCRS Top flight a few years back. I also take it to the drag strip with the Corvette clubs a few times a year. Maybe in June I can win back my "King of the Hill" Title I had in 2002. Both of my corvettes have automatics so I usually am pretty consistent racing brackets. I remember that last race in '02 was against a new corvette with about $50k of engine mods. I was driving the 1970. His car was running something in the 9s or 10s and I'm lucky to get 14.0. The commentator on the track PA system is a member of my corvette club so he was going on and on about all the work I did myself on the car. I'd only just finished the drive train restoration and got the car back together & aligned the day before. (insert all nighters and days off from work to get it done!) I was listening to the comentator (simulcast on the AM radio in the car) & I could hear my friends in the stands cheering me on. Anyways because of the bracket times I had almost a 5 second head start - talk about psyching out the competition. My trap speeds are in the 90s and I remember him blasting by somewhere near the finish line at around 130+ MPH. I didn't know who had won until I got to the back stretch and picked up my time slip and was then presented with the "BIG TROPHY". I was floored. His day sucked, being beaten by 'a girl' who had restored her own car no less! <img src=""> ~Juliet
 

Juliet

New member
Thanks for the replies. It's a comfort to know I'm not crazy. <img src="">

Nicole - I hear you about re-tuning into signals from the 'bod! Fortunately the Adult CF center at JH in Baltimore is really good. I've dropped the pulmonologist I had been seeing (never liked him much anyways as we often disagreed on treatments & drug dosages). My 'regular' doc who sent me to the CF Docs in the first place (in spite of my pulmonologist's recommendation otherwise) are coordinating closely to get all my tests done to assess PI, vitamin deficiencies, GI issues etc... So I fortunately have a good medical team on my side.

Chrissy - I too missed a lot of school growing up. I was always coughing (which I now realize was a good thing!) but it sure sucked to be treated like a social outcast. I remember one episode in Junior High School where I had such a bad coughing attack I fell out of my chair. Talk about enhancing my geek status and totally killing any social life at that tender age! <img src="">

Diane - What kind of Muscle car do you have? I've got a 2007 corvette (my everyday car) and a 1970 Corvette that I restored myself. I bought the '70 from the original owner, a woman with 44k miles. <img src=""> I earned an NCRS Top flight a few years back. I also take it to the drag strip with the Corvette clubs a few times a year. Maybe in June I can win back my "King of the Hill" Title I had in 2002. Both of my corvettes have automatics so I usually am pretty consistent racing brackets. I remember that last race in '02 was against a new corvette with about $50k of engine mods. I was driving the 1970. His car was running something in the 9s or 10s and I'm lucky to get 14.0. The commentator on the track PA system is a member of my corvette club so he was going on and on about all the work I did myself on the car. I'd only just finished the drive train restoration and got the car back together & aligned the day before. (insert all nighters and days off from work to get it done!) I was listening to the comentator (simulcast on the AM radio in the car) & I could hear my friends in the stands cheering me on. Anyways because of the bracket times I had almost a 5 second head start - talk about psyching out the competition. My trap speeds are in the 90s and I remember him blasting by somewhere near the finish line at around 130+ MPH. I didn't know who had won until I got to the back stretch and picked up my time slip and was then presented with the "BIG TROPHY". I was floored. His day sucked, being beaten by 'a girl' who had restored her own car no less! <img src=""> ~Juliet
 

Juliet

New member
Thanks for the replies. It's a comfort to know I'm not crazy. <img src="">
<br />
<br />Nicole - I hear you about re-tuning into signals from the 'bod! Fortunately the Adult CF center at JH in Baltimore is really good. I've dropped the pulmonologist I had been seeing (never liked him much anyways as we often disagreed on treatments & drug dosages). My 'regular' doc who sent me to the CF Docs in the first place (in spite of my pulmonologist's recommendation otherwise) are coordinating closely to get all my tests done to assess PI, vitamin deficiencies, GI issues etc... So I fortunately have a good medical team on my side.
<br />
<br />Chrissy - I too missed a lot of school growing up. I was always coughing (which I now realize was a good thing!) but it sure sucked to be treated like a social outcast. I remember one episode in Junior High School where I had such a bad coughing attack I fell out of my chair. Talk about enhancing my geek status and totally killing any social life at that tender age! <img src="">
<br />
<br />Diane - What kind of Muscle car do you have? I've got a 2007 corvette (my everyday car) and a 1970 Corvette that I restored myself. I bought the '70 from the original owner, a woman with 44k miles. <img src=""> I earned an NCRS Top flight a few years back. I also take it to the drag strip with the Corvette clubs a few times a year. Maybe in June I can win back my "King of the Hill" Title I had in 2002. Both of my corvettes have automatics so I usually am pretty consistent racing brackets. I remember that last race in '02 was against a new corvette with about $50k of engine mods. I was driving the 1970. His car was running something in the 9s or 10s and I'm lucky to get 14.0. The commentator on the track PA system is a member of my corvette club so he was going on and on about all the work I did myself on the car. I'd only just finished the drive train restoration and got the car back together & aligned the day before. (insert all nighters and days off from work to get it done!) I was listening to the comentator (simulcast on the AM radio in the car) & I could hear my friends in the stands cheering me on. Anyways because of the bracket times I had almost a 5 second head start - talk about psyching out the competition. My trap speeds are in the 90s and I remember him blasting by somewhere near the finish line at around 130+ MPH. I didn't know who had won until I got to the back stretch and picked up my time slip and was then presented with the "BIG TROPHY". I was floored. His day sucked, being beaten by 'a girl' who had restored her own car no less! <img src=""> ~Juliet
 

dyza

New member
Juliet, knowing the people here with CF and their attitudes to life and accomplishments, I doubt that had you known about your CF from an early age, that you would have not accomplished what you have. In fact I think had you known you would have accomplished more.

Craig
 

dyza

New member
Juliet, knowing the people here with CF and their attitudes to life and accomplishments, I doubt that had you known about your CF from an early age, that you would have not accomplished what you have. In fact I think had you known you would have accomplished more.

Craig
 

dyza

New member
Juliet, knowing the people here with CF and their attitudes to life and accomplishments, I doubt that had you known about your CF from an early age, that you would have not accomplished what you have. In fact I think had you known you would have accomplished more.

Craig
 

dyza

New member
Juliet, knowing the people here with CF and their attitudes to life and accomplishments, I doubt that had you known about your CF from an early age, that you would have not accomplished what you have. In fact I think had you known you would have accomplished more.

Craig
 

dyza

New member
Juliet, knowing the people here with CF and their attitudes to life and accomplishments, I doubt that had you known about your CF from an early age, that you would have not accomplished what you have. In fact I think had you known you would have accomplished more.
<br />
<br />Craig
 

minimedic304

New member
I am glad you have been able to live a normal life and not knowing til now. You deffienetly got more out of life but not having to worry 24/7 about cf. As for the diagnosis, I am not surprised that it took them this long, it just once again proves what a half ass heath care system this country has.
 

minimedic304

New member
I am glad you have been able to live a normal life and not knowing til now. You deffienetly got more out of life but not having to worry 24/7 about cf. As for the diagnosis, I am not surprised that it took them this long, it just once again proves what a half ass heath care system this country has.
 

minimedic304

New member
I am glad you have been able to live a normal life and not knowing til now. You deffienetly got more out of life but not having to worry 24/7 about cf. As for the diagnosis, I am not surprised that it took them this long, it just once again proves what a half ass heath care system this country has.
 

minimedic304

New member
I am glad you have been able to live a normal life and not knowing til now. You deffienetly got more out of life but not having to worry 24/7 about cf. As for the diagnosis, I am not surprised that it took them this long, it just once again proves what a half ass heath care system this country has.
 

minimedic304

New member
I am glad you have been able to live a normal life and not knowing til now. You deffienetly got more out of life but not having to worry 24/7 about cf. As for the diagnosis, I am not surprised that it took them this long, it just once again proves what a half ass heath care system this country has.
 
H

hopesiris

Guest
I was diagnosed last year at age 36. My reaction has been similar to yours. I experienced substantial relief initially, then fear and grief. Now I'm thinking about how I want to spend whatever time I have left and how I want to plan for my families future. For me the first year after diagnosis was hard.

I've pretty much decided that though I'm doing great still, it's all about staying healthy because my baby needs me. I've done the corporate job thing, worked crazy hard going to school and I'm satisfied. Now I want to have my family to enjoy and slow down. Slowing down doesn't mean no new experiences (I'd go crazy) but it does mean taking better care of myself.
 
H

hopesiris

Guest
I was diagnosed last year at age 36. My reaction has been similar to yours. I experienced substantial relief initially, then fear and grief. Now I'm thinking about how I want to spend whatever time I have left and how I want to plan for my families future. For me the first year after diagnosis was hard.

I've pretty much decided that though I'm doing great still, it's all about staying healthy because my baby needs me. I've done the corporate job thing, worked crazy hard going to school and I'm satisfied. Now I want to have my family to enjoy and slow down. Slowing down doesn't mean no new experiences (I'd go crazy) but it does mean taking better care of myself.
 
H

hopesiris

Guest
I was diagnosed last year at age 36. My reaction has been similar to yours. I experienced substantial relief initially, then fear and grief. Now I'm thinking about how I want to spend whatever time I have left and how I want to plan for my families future. For me the first year after diagnosis was hard.

I've pretty much decided that though I'm doing great still, it's all about staying healthy because my baby needs me. I've done the corporate job thing, worked crazy hard going to school and I'm satisfied. Now I want to have my family to enjoy and slow down. Slowing down doesn't mean no new experiences (I'd go crazy) but it does mean taking better care of myself.
 
H

hopesiris

Guest
I was diagnosed last year at age 36. My reaction has been similar to yours. I experienced substantial relief initially, then fear and grief. Now I'm thinking about how I want to spend whatever time I have left and how I want to plan for my families future. For me the first year after diagnosis was hard.

I've pretty much decided that though I'm doing great still, it's all about staying healthy because my baby needs me. I've done the corporate job thing, worked crazy hard going to school and I'm satisfied. Now I want to have my family to enjoy and slow down. Slowing down doesn't mean no new experiences (I'd go crazy) but it does mean taking better care of myself.
 
H

hopesiris

Guest
I was diagnosed last year at age 36. My reaction has been similar to yours. I experienced substantial relief initially, then fear and grief. Now I'm thinking about how I want to spend whatever time I have left and how I want to plan for my families future. For me the first year after diagnosis was hard.
<br />
<br />I've pretty much decided that though I'm doing great still, it's all about staying healthy because my baby needs me. I've done the corporate job thing, worked crazy hard going to school and I'm satisfied. Now I want to have my family to enjoy and slow down. Slowing down doesn't mean no new experiences (I'd go crazy) but it does mean taking better care of myself.
<br />
<br />
<br />
<br />
<br />
<br />
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