New to the CF club: DX at 43...

Aspiemom · May 19, 2008

Wow, I was dx at age 43 at JH, also! Do you see Dr. B? I LOVED him! <img src="i/expressions/heart.gif" border="0">(We moved to GA in early 2007 and I miss him and his staff terribly!). My nurse there told me that as a late dx I am going to have to change my thinkings on things. Growing up not knowing about the CF, I hadn't been proactive about my health and there was so much I didn't know about, that early dx know, so S. would try to get things in to my thick head that things would not be like they'd always been.

I was dx w/ bronchiectisis at age 28, too. When I finally got the CF dx so much made sense to me. I had Pulmonary Dr. Sonye D. at JH before the dx and she was wonderful and very compassionate when she broke the news and explained the basics to me. She kept asking me "Are you OK? Are you going to be alright?" because I felt such shock to find out I had something so severe and HAD HAD IT ALL ALONG. She had basically rendered me speechless. But I told her the RELIEF was so nice and I was grateful for the dx so we knew what we were dealing with after all of those years.

Emotionally, it's very hard to come to terms with. Sometimes I've gotten upset at all of the drs. who mis-treated me, missed the dx, who probably made things worse for me now. But the others questions I don't do. You can't change things in the past, so I don't bother myself with whatifs and make myself crazy.

One of the hardest things for me to deal with, with the late dx, is my husband didn't know this when he married me and I've had the idea ever since the dx that he wouldn't have married me. This wasn't what he bargained for and he seems resentful of the financial burden and the many things I can't do. He won't admit it, but I certainly get that feeling and it hurts. So many on here, their husbands KNEW what they were getting into and still did it, which really spells out l-o-v-e for me.

So, do you see Dr. B? Isn't he WONDERFUL!!!!!!?????

Aspiemom · May 19, 2008

Wow, I was dx at age 43 at JH, also! Do you see Dr. B? I LOVED him! <img src="i/expressions/heart.gif" border="0">(We moved to GA in early 2007 and I miss him and his staff terribly!). My nurse there told me that as a late dx I am going to have to change my thinkings on things. Growing up not knowing about the CF, I hadn't been proactive about my health and there was so much I didn't know about, that early dx know, so S. would try to get things in to my thick head that things would not be like they'd always been.

I was dx w/ bronchiectisis at age 28, too. When I finally got the CF dx so much made sense to me. I had Pulmonary Dr. Sonye D. at JH before the dx and she was wonderful and very compassionate when she broke the news and explained the basics to me. She kept asking me "Are you OK? Are you going to be alright?" because I felt such shock to find out I had something so severe and HAD HAD IT ALL ALONG. She had basically rendered me speechless. But I told her the RELIEF was so nice and I was grateful for the dx so we knew what we were dealing with after all of those years.

Emotionally, it's very hard to come to terms with. Sometimes I've gotten upset at all of the drs. who mis-treated me, missed the dx, who probably made things worse for me now. But the others questions I don't do. You can't change things in the past, so I don't bother myself with whatifs and make myself crazy.

One of the hardest things for me to deal with, with the late dx, is my husband didn't know this when he married me and I've had the idea ever since the dx that he wouldn't have married me. This wasn't what he bargained for and he seems resentful of the financial burden and the many things I can't do. He won't admit it, but I certainly get that feeling and it hurts. So many on here, their husbands KNEW what they were getting into and still did it, which really spells out l-o-v-e for me.

So, do you see Dr. B? Isn't he WONDERFUL!!!!!!?????

Aspiemom · May 19, 2008

Wow, I was dx at age 43 at JH, also! Do you see Dr. B? I LOVED him! <img src="i/expressions/heart.gif" border="0">(We moved to GA in early 2007 and I miss him and his staff terribly!). My nurse there told me that as a late dx I am going to have to change my thinkings on things. Growing up not knowing about the CF, I hadn't been proactive about my health and there was so much I didn't know about, that early dx know, so S. would try to get things in to my thick head that things would not be like they'd always been.

I was dx w/ bronchiectisis at age 28, too. When I finally got the CF dx so much made sense to me. I had Pulmonary Dr. Sonye D. at JH before the dx and she was wonderful and very compassionate when she broke the news and explained the basics to me. She kept asking me "Are you OK? Are you going to be alright?" because I felt such shock to find out I had something so severe and HAD HAD IT ALL ALONG. She had basically rendered me speechless. But I told her the RELIEF was so nice and I was grateful for the dx so we knew what we were dealing with after all of those years.

Emotionally, it's very hard to come to terms with. Sometimes I've gotten upset at all of the drs. who mis-treated me, missed the dx, who probably made things worse for me now. But the others questions I don't do. You can't change things in the past, so I don't bother myself with whatifs and make myself crazy.

One of the hardest things for me to deal with, with the late dx, is my husband didn't know this when he married me and I've had the idea ever since the dx that he wouldn't have married me. This wasn't what he bargained for and he seems resentful of the financial burden and the many things I can't do. He won't admit it, but I certainly get that feeling and it hurts. So many on here, their husbands KNEW what they were getting into and still did it, which really spells out l-o-v-e for me.

So, do you see Dr. B? Isn't he WONDERFUL!!!!!!?????

Aspiemom · May 19, 2008

Wow, I was dx at age 43 at JH, also! Do you see Dr. B? I LOVED him! <img src="i/expressions/heart.gif" border="0">(We moved to GA in early 2007 and I miss him and his staff terribly!). My nurse there told me that as a late dx I am going to have to change my thinkings on things. Growing up not knowing about the CF, I hadn't been proactive about my health and there was so much I didn't know about, that early dx know, so S. would try to get things in to my thick head that things would not be like they'd always been.

I was dx w/ bronchiectisis at age 28, too. When I finally got the CF dx so much made sense to me. I had Pulmonary Dr. Sonye D. at JH before the dx and she was wonderful and very compassionate when she broke the news and explained the basics to me. She kept asking me "Are you OK? Are you going to be alright?" because I felt such shock to find out I had something so severe and HAD HAD IT ALL ALONG. She had basically rendered me speechless. But I told her the RELIEF was so nice and I was grateful for the dx so we knew what we were dealing with after all of those years.

Emotionally, it's very hard to come to terms with. Sometimes I've gotten upset at all of the drs. who mis-treated me, missed the dx, who probably made things worse for me now. But the others questions I don't do. You can't change things in the past, so I don't bother myself with whatifs and make myself crazy.

One of the hardest things for me to deal with, with the late dx, is my husband didn't know this when he married me and I've had the idea ever since the dx that he wouldn't have married me. This wasn't what he bargained for and he seems resentful of the financial burden and the many things I can't do. He won't admit it, but I certainly get that feeling and it hurts. So many on here, their husbands KNEW what they were getting into and still did it, which really spells out l-o-v-e for me.

So, do you see Dr. B? Isn't he WONDERFUL!!!!!!?????

Aspiemom · May 19, 2008

Wow, I was dx at age 43 at JH, also! Do you see Dr. B? I LOVED him! <img src="i/expressions/heart.gif" border="0">(We moved to GA in early 2007 and I miss him and his staff terribly!). My nurse there told me that as a late dx I am going to have to change my thinkings on things. Growing up not knowing about the CF, I hadn't been proactive about my health and there was so much I didn't know about, that early dx know, so S. would try to get things in to my thick head that things would not be like they'd always been.
 
 I was dx w/ bronchiectisis at age 28, too. When I finally got the CF dx so much made sense to me. I had Pulmonary Dr. Sonye D. at JH before the dx and she was wonderful and very compassionate when she broke the news and explained the basics to me. She kept asking me "Are you OK? Are you going to be alright?" because I felt such shock to find out I had something so severe and HAD HAD IT ALL ALONG. She had basically rendered me speechless. But I told her the RELIEF was so nice and I was grateful for the dx so we knew what we were dealing with after all of those years.
 
 Emotionally, it's very hard to come to terms with. Sometimes I've gotten upset at all of the drs. who mis-treated me, missed the dx, who probably made things worse for me now. But the others questions I don't do. You can't change things in the past, so I don't bother myself with whatifs and make myself crazy.
 
 One of the hardest things for me to deal with, with the late dx, is my husband didn't know this when he married me and I've had the idea ever since the dx that he wouldn't have married me. This wasn't what he bargained for and he seems resentful of the financial burden and the many things I can't do. He won't admit it, but I certainly get that feeling and it hurts. So many on here, their husbands KNEW what they were getting into and still did it, which really spells out l-o-v-e for me.
 
 So, do you see Dr. B? Isn't he WONDERFUL!!!!!!?????

DarbSkull · May 20, 2008