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ClashPunk82 · Oct 19, 2004

Hi im Nicole 22 and have CF and CFRD. I just wanted to say hi to everyone and that this is my first time ever comin to a CF site. kinda strange but I just never looked i guess. so anyway im from Boston and go to Childrens hostpital. where is everyone else from? I also wanted to know is anyone pre or post lung transplant? i am about to be evaluated for one and just wanted to know how it all works? hope to talk ta everyone soon <img src="i/expressions/face-icon-small-smile.gif" border="0">

Nichole · Oct 19, 2004

hullo<img src="i/expressions/face-icon-small-smile.gif" border="0">
My name is Nichole as well, and I am 20 with CF and CFRD. Welcome to the site! I'm from Washington State, and I'm actually really good friends with somebody with cf from the boston area. Good luck with your evaluation. I'm on aim all of the time, and my username is NicholeGrace11 if you ever feel like chattin' it up.

jaime · Oct 19, 2004

Hi Im from Boston too! Welcome, I know you will find this site very informative!

anonymous · Oct 19, 2004

Hi. I'm 35 w/cf. I'm from Michigan. This site is sooo informational. I think you'll like it. I'v learned alot. Eva

ClashPunk82 · Oct 20, 2004

hey everyone great to meet ya and i hope to be talkin to ya lots <img src="i/expressions/face-icon-small-smile.gif" border="0">

star · Oct 20, 2004

Hello Nicole
I am a Nicole as well. My cousin was jsut recently diagnosed with CF so I am still learning as well. I wish you much luck with your up coming evaluation. I just have one question what is CFRD?

star · Oct 20, 2004

Hello Nicole
I am a Nicole as well. My cousin was jsut recently diagnosed with CF so I am still learning as well. I wish you much luck with your up coming evaluation. I just have one question what is CFRD?

ClashPunk82 · Oct 20, 2004

Hi Nicole nice to meet ya <img src="i/expressions/face-icon-small-smile.gif" border="0"> Oh and CFRD means CF Related Diabetes. Sorry to hear about your cousin how old is she/he? Thanks for the luck i appreciate it. <img src="i/expressions/heart.gif" border="0">

ClashPunk82 · Oct 20, 2004

Hi Nicole nice to meet ya <img src="i/expressions/face-icon-small-smile.gif" border="0"> Oh and CFRD means CF Related Diabetes. Sorry to hear about your cousin how old is she/he? Thanks for the luck i appreciate it. <img src="i/expressions/heart.gif" border="0">

star · Oct 20, 2004

My cousin is 23. We were raised together so she's like having a twin sister we are nearly inseperable (sometimes). She has it tough she lost her mother when we were young so my mother raised her. She's in denial about this whole thing so even though it's her who has CF it's draining me as well because I'm keeping up on her about her CF as much as I can. I'm even taking this semester and maybe next off until I know she is really on it.

star · Oct 20, 2004

My cousin is 23. We were raised together so she's like having a twin sister we are nearly inseperable (sometimes). She has it tough she lost her mother when we were young so my mother raised her. She's in denial about this whole thing so even though it's her who has CF it's draining me as well because I'm keeping up on her about her CF as much as I can. I'm even taking this semester and maybe next off until I know she is really on it.

ClashPunk82 · Oct 20, 2004

wow your really a great person to be so involved with that. i can understand tho why it would be a drain. its a tough thing to deal with but she is lucky to have you but if shes in denial and you are always on her no matter how much you care or what you say if she doesnt want to take care of herself she wont. my brother is like that too. he never talks about it and doesnt like people knowing he has it. im the opposite i feel better when i talk about it. but also too if she was just recently diagnosed then this is probably so overwhelmig for her. i would try and talk to her about it and see how she feels and maybe just back off a bit and give her some time to grieve. im sure after a bit she will accept it and learn to try and stay positive. you have to with this disease if ya dont you'll go bonkers. <img src="i/expressions/face-icon-small-smile.gif" border="0"> you should tell her to come to these boards everyone is nice here and would love to talk to her and help her with this. i hope this helps a bit and im always here so if you wanna talk just write me <img src="i/expressions/heart.gif" border="0">

ClashPunk82 · Oct 20, 2004

wow your really a great person to be so involved with that. i can understand tho why it would be a drain. its a tough thing to deal with but she is lucky to have you but if shes in denial and you are always on her no matter how much you care or what you say if she doesnt want to take care of herself she wont. my brother is like that too. he never talks about it and doesnt like people knowing he has it. im the opposite i feel better when i talk about it. but also too if she was just recently diagnosed then this is probably so overwhelmig for her. i would try and talk to her about it and see how she feels and maybe just back off a bit and give her some time to grieve. im sure after a bit she will accept it and learn to try and stay positive. you have to with this disease if ya dont you'll go bonkers. <img src="i/expressions/face-icon-small-smile.gif" border="0"> you should tell her to come to these boards everyone is nice here and would love to talk to her and help her with this. i hope this helps a bit and im always here so if you wanna talk just write me <img src="i/expressions/heart.gif" border="0">

star · Oct 20, 2004

Thank you so much and again good luck

star · Oct 20, 2004

Thank you so much and again good luck

anonymous · Oct 20, 2004

NICOLE,

HOW LONG HAVE YOU HAD CFRD? I HAVE LOTS OF QUESTIONS ABOUT IT SINCE I WAS JUST DIAGNOSED WITH IT. PLEASE EMAIL ME @ SBANTA@DOUBLELIFECORP.COM.

SKYE BANTA

anonymous · Oct 20, 2004

NICOLE,

HOW LONG HAVE YOU HAD CFRD? I HAVE LOTS OF QUESTIONS ABOUT IT SINCE I WAS JUST DIAGNOSED WITH IT. PLEASE EMAIL ME @ SBANTA@DOUBLELIFECORP.COM.

SKYE BANTA

cfgirl38 · Oct 20, 2004

I found out at 30. In a way it was kind of a relief because I knew it was something else than they kept telling me allergies. I went through like a rebelion process. I knew I had it but I didn't think I had it bad or like everyone kept telling me at the hospitals I was tested at that it was a child disease. So I just disregarded it. went through the motions of my meds but didn't try really hard at trying to get to a high point. Then I went to my breathing test and seen it was lowereing each year. I woke up. So I believe like the other member she needs to grieve, but just be there for her without pressure. She'll talk to you about it when she's ready. I think it's great that your willing to learn as much as you can because it's so nice to talk to someone that you don't have to explain every detail to. Sometimes the things are embarrasing to tell and it's hard to explain. So anyway let her know that there are people that are here who have been where she is now. The fear of the unknown is the worst. There are some books at Borders on things her body may or may not see. But know that we don't all go through each and every symptom. Because there's all different severities (sp) of the disease. I don't feel she's ready for that now. It would be kind of freaky. But just to know for future reference. Eva <img src="i/expressions/heart.gif" border="0">

cfgirl38 · Oct 20, 2004

I found out at 30. In a way it was kind of a relief because I knew it was something else than they kept telling me allergies. I went through like a rebelion process. I knew I had it but I didn't think I had it bad or like everyone kept telling me at the hospitals I was tested at that it was a child disease. So I just disregarded it. went through the motions of my meds but didn't try really hard at trying to get to a high point. Then I went to my breathing test and seen it was lowereing each year. I woke up. So I believe like the other member she needs to grieve, but just be there for her without pressure. She'll talk to you about it when she's ready. I think it's great that your willing to learn as much as you can because it's so nice to talk to someone that you don't have to explain every detail to. Sometimes the things are embarrasing to tell and it's hard to explain. So anyway let her know that there are people that are here who have been where she is now. The fear of the unknown is the worst. There are some books at Borders on things her body may or may not see. But know that we don't all go through each and every symptom. Because there's all different severities (sp) of the disease. I don't feel she's ready for that now. It would be kind of freaky. But just to know for future reference. Eva <img src="i/expressions/heart.gif" border="0">

Diane · Oct 20, 2004

Hi Nicole,
Im Diane, from Pennsylvania. I'm 39 with cf .... cfrd 24 years ....and.... b.cepacia 7- 1/2 years. Welcome to the site !<img src="i/expressions/face-icon-small-happy.gif" border="0">

~Diane 39 / cf / diabetes / b.cepacia

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