Newbie carrier

K

kr14v

New member
Yes, I doubt we would do the amniocentesis either. Seems like other people dealing with CF babies found out further down the pike without doing it, and I would feel better about that.

Just a question, Heather - did you know you were a carrier before you tried to conceive? I have nagging feelings about being irresponsible if I have that information while still in the planning stages, but I doubt we would go in vitro either. It's tough because I'm am just about to start the fertility pills, and I think I would rather go through with trying rather than not so I'm frantically trying to find information that would make me question my decision if I'm supposed to. I don't want to blindly inflict CF on my child without fully considering the consequences of our actions.
 
K

kr14v

New member
Yes, I doubt we would do the amniocentesis either. Seems like other people dealing with CF babies found out further down the pike without doing it, and I would feel better about that.

Just a question, Heather - did you know you were a carrier before you tried to conceive? I have nagging feelings about being irresponsible if I have that information while still in the planning stages, but I doubt we would go in vitro either. It's tough because I'm am just about to start the fertility pills, and I think I would rather go through with trying rather than not so I'm frantically trying to find information that would make me question my decision if I'm supposed to. I don't want to blindly inflict CF on my child without fully considering the consequences of our actions.
 
K

kr14v

New member
Yes, I doubt we would do the amniocentesis either. Seems like other people dealing with CF babies found out further down the pike without doing it, and I would feel better about that.

Just a question, Heather - did you know you were a carrier before you tried to conceive? I have nagging feelings about being irresponsible if I have that information while still in the planning stages, but I doubt we would go in vitro either. It's tough because I'm am just about to start the fertility pills, and I think I would rather go through with trying rather than not so I'm frantically trying to find information that would make me question my decision if I'm supposed to. I don't want to blindly inflict CF on my child without fully considering the consequences of our actions.
 
K

kr14v

New member
Yes, I doubt we would do the amniocentesis either. Seems like other people dealing with CF babies found out further down the pike without doing it, and I would feel better about that.

Just a question, Heather - did you know you were a carrier before you tried to conceive? I have nagging feelings about being irresponsible if I have that information while still in the planning stages, but I doubt we would go in vitro either. It's tough because I'm am just about to start the fertility pills, and I think I would rather go through with trying rather than not so I'm frantically trying to find information that would make me question my decision if I'm supposed to. I don't want to blindly inflict CF on my child without fully considering the consequences of our actions.
 
K

kr14v

New member
Yes, I doubt we would do the amniocentesis either. Seems like other people dealing with CF babies found out further down the pike without doing it, and I would feel better about that.
<br />
<br />Just a question, Heather - did you know you were a carrier before you tried to conceive? I have nagging feelings about being irresponsible if I have that information while still in the planning stages, but I doubt we would go in vitro either. It's tough because I'm am just about to start the fertility pills, and I think I would rather go through with trying rather than not so I'm frantically trying to find information that would make me question my decision if I'm supposed to. I don't want to blindly inflict CF on my child without fully considering the consequences of our actions.
 
J

JazzysMom

New member
I applaud you for trying to make the right decision for both the child and yourselves. Some people automatically feel that IF you know you can pass CF onto a child that its cut/dry & dont do it.

Others feel that a child is a child & since there are no guarantees with CF one way or the other that its ok.

Its definitely a personal choice & one that should not be taken lightly. The odds are in your favor of NOT having a CF child, but those passionate about this topic also says its not fair to even pass the gene on. Thus the reason why its so personal......

HUGS
 
J

JazzysMom

New member
I applaud you for trying to make the right decision for both the child and yourselves. Some people automatically feel that IF you know you can pass CF onto a child that its cut/dry & dont do it.

Others feel that a child is a child & since there are no guarantees with CF one way or the other that its ok.

Its definitely a personal choice & one that should not be taken lightly. The odds are in your favor of NOT having a CF child, but those passionate about this topic also says its not fair to even pass the gene on. Thus the reason why its so personal......

HUGS
 
J

JazzysMom

New member
I applaud you for trying to make the right decision for both the child and yourselves. Some people automatically feel that IF you know you can pass CF onto a child that its cut/dry & dont do it.

Others feel that a child is a child & since there are no guarantees with CF one way or the other that its ok.

Its definitely a personal choice & one that should not be taken lightly. The odds are in your favor of NOT having a CF child, but those passionate about this topic also says its not fair to even pass the gene on. Thus the reason why its so personal......

HUGS
 
J

JazzysMom

New member
I applaud you for trying to make the right decision for both the child and yourselves. Some people automatically feel that IF you know you can pass CF onto a child that its cut/dry & dont do it.

Others feel that a child is a child & since there are no guarantees with CF one way or the other that its ok.

Its definitely a personal choice & one that should not be taken lightly. The odds are in your favor of NOT having a CF child, but those passionate about this topic also says its not fair to even pass the gene on. Thus the reason why its so personal......

HUGS
 
J

JazzysMom

New member
I applaud you for trying to make the right decision for both the child and yourselves. Some people automatically feel that IF you know you can pass CF onto a child that its cut/dry & dont do it.
<br />
<br />Others feel that a child is a child & since there are no guarantees with CF one way or the other that its ok.
<br />
<br />Its definitely a personal choice & one that should not be taken lightly. The odds are in your favor of NOT having a CF child, but those passionate about this topic also says its not fair to even pass the gene on. Thus the reason why its so personal......
<br />
<br />HUGS
 
R

Ratatosk

Administrator
Staff member
DH and I both carry the Delta f508 gene and like you, we had no family history. We didn't find out about CF until DS was born -- normal pregnancy, neither of us had gone thru carrier testing -- it just isn't done in our area. DS was born with a bowel obstruction caused by meconium illeus.

I would advise you that, should you get pregnant, to make sure that you child is monitor via ultrasound to make sure that there aren't issues with bright bowel, bowel obstruction and if there is that you continue to be montitored, have access to a high level nicu.
 
R

Ratatosk

Administrator
Staff member
DH and I both carry the Delta f508 gene and like you, we had no family history. We didn't find out about CF until DS was born -- normal pregnancy, neither of us had gone thru carrier testing -- it just isn't done in our area. DS was born with a bowel obstruction caused by meconium illeus.

I would advise you that, should you get pregnant, to make sure that you child is monitor via ultrasound to make sure that there aren't issues with bright bowel, bowel obstruction and if there is that you continue to be montitored, have access to a high level nicu.
 
R

Ratatosk

Administrator
Staff member
DH and I both carry the Delta f508 gene and like you, we had no family history. We didn't find out about CF until DS was born -- normal pregnancy, neither of us had gone thru carrier testing -- it just isn't done in our area. DS was born with a bowel obstruction caused by meconium illeus.

I would advise you that, should you get pregnant, to make sure that you child is monitor via ultrasound to make sure that there aren't issues with bright bowel, bowel obstruction and if there is that you continue to be montitored, have access to a high level nicu.
 
R

Ratatosk

Administrator
Staff member
DH and I both carry the Delta f508 gene and like you, we had no family history. We didn't find out about CF until DS was born -- normal pregnancy, neither of us had gone thru carrier testing -- it just isn't done in our area. DS was born with a bowel obstruction caused by meconium illeus.

I would advise you that, should you get pregnant, to make sure that you child is monitor via ultrasound to make sure that there aren't issues with bright bowel, bowel obstruction and if there is that you continue to be montitored, have access to a high level nicu.
 
R

Ratatosk

Administrator
Staff member
DH and I both carry the Delta f508 gene and like you, we had no family history. We didn't find out about CF until DS was born -- normal pregnancy, neither of us had gone thru carrier testing -- it just isn't done in our area. DS was born with a bowel obstruction caused by meconium illeus.
<br />
<br />I would advise you that, should you get pregnant, to make sure that you child is monitor via ultrasound to make sure that there aren't issues with bright bowel, bowel obstruction and if there is that you continue to be montitored, have access to a high level nicu.
 
M

Mommafirst

Guest
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>kr14v</b></i>

Just a question, Heather - did you know you were a carrier before you tried to conceive? I have nagging feelings about being irresponsible if I have that information while still in the planning stages, but I doubt we would go in vitro either. It's tough because I'm am just about to start the fertility pills, and I think I would rather go through with trying rather than not so I'm frantically trying to find information that would make me question my decision if I'm supposed to. I don't want to blindly inflict CF on my child without fully considering the consequences of our actions.</end quote></div>

No, we didn't learn about our carrier status until after my daughter was born and diagnosed. While I would never abort a baby because of CF, I won't knowingly create ANOTHER child with CF in my family. I have no clue what I would have done before having kids alltogether, though, so I am not in any way judging you or your decision. I'm sad to think that my sons will have to make this decision in the future... knowing that they are carriers and knowing that their sister has this disease, well its going to be a tough decision for them too.
 
M

Mommafirst

Guest
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>kr14v</b></i>

Just a question, Heather - did you know you were a carrier before you tried to conceive? I have nagging feelings about being irresponsible if I have that information while still in the planning stages, but I doubt we would go in vitro either. It's tough because I'm am just about to start the fertility pills, and I think I would rather go through with trying rather than not so I'm frantically trying to find information that would make me question my decision if I'm supposed to. I don't want to blindly inflict CF on my child without fully considering the consequences of our actions.</end quote></div>

No, we didn't learn about our carrier status until after my daughter was born and diagnosed. While I would never abort a baby because of CF, I won't knowingly create ANOTHER child with CF in my family. I have no clue what I would have done before having kids alltogether, though, so I am not in any way judging you or your decision. I'm sad to think that my sons will have to make this decision in the future... knowing that they are carriers and knowing that their sister has this disease, well its going to be a tough decision for them too.
 
M

Mommafirst

Guest
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>kr14v</b></i>

Just a question, Heather - did you know you were a carrier before you tried to conceive? I have nagging feelings about being irresponsible if I have that information while still in the planning stages, but I doubt we would go in vitro either. It's tough because I'm am just about to start the fertility pills, and I think I would rather go through with trying rather than not so I'm frantically trying to find information that would make me question my decision if I'm supposed to. I don't want to blindly inflict CF on my child without fully considering the consequences of our actions.</end quote></div>

No, we didn't learn about our carrier status until after my daughter was born and diagnosed. While I would never abort a baby because of CF, I won't knowingly create ANOTHER child with CF in my family. I have no clue what I would have done before having kids alltogether, though, so I am not in any way judging you or your decision. I'm sad to think that my sons will have to make this decision in the future... knowing that they are carriers and knowing that their sister has this disease, well its going to be a tough decision for them too.
 
M

Mommafirst

Guest
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>kr14v</b></i>

Just a question, Heather - did you know you were a carrier before you tried to conceive? I have nagging feelings about being irresponsible if I have that information while still in the planning stages, but I doubt we would go in vitro either. It's tough because I'm am just about to start the fertility pills, and I think I would rather go through with trying rather than not so I'm frantically trying to find information that would make me question my decision if I'm supposed to. I don't want to blindly inflict CF on my child without fully considering the consequences of our actions.</end quote>

No, we didn't learn about our carrier status until after my daughter was born and diagnosed. While I would never abort a baby because of CF, I won't knowingly create ANOTHER child with CF in my family. I have no clue what I would have done before having kids alltogether, though, so I am not in any way judging you or your decision. I'm sad to think that my sons will have to make this decision in the future... knowing that they are carriers and knowing that their sister has this disease, well its going to be a tough decision for them too.
 
M

Mommafirst

Guest
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>kr14v</b></i>
<br />
<br />Just a question, Heather - did you know you were a carrier before you tried to conceive? I have nagging feelings about being irresponsible if I have that information while still in the planning stages, but I doubt we would go in vitro either. It's tough because I'm am just about to start the fertility pills, and I think I would rather go through with trying rather than not so I'm frantically trying to find information that would make me question my decision if I'm supposed to. I don't want to blindly inflict CF on my child without fully considering the consequences of our actions.</end quote>
<br />
<br />No, we didn't learn about our carrier status until after my daughter was born and diagnosed. While I would never abort a baby because of CF, I won't knowingly create ANOTHER child with CF in my family. I have no clue what I would have done before having kids alltogether, though, so I am not in any way judging you or your decision. I'm sad to think that my sons will have to make this decision in the future... knowing that they are carriers and knowing that their sister has this disease, well its going to be a tough decision for them too.
 
You must log in or register to reply here.
Top