noncompliant

NoExcuses

New member
Another aspect that I forgot to mention is the fact that many CFers don't have access to the meds that some in the US have. And part of me feels a bit of responsibility to take advantage of the medicine I have access to because some CFers simply just don't.

I've had the Vest for 10 years and I know many of those in socialized medicine countries don't have access to it. I feel it has contributed positively to my health.

We have a gentleman from Lebanon on this board who has a hard time getting access to digestive enzymes, let alone antibiotics and nebs, etc. How can I not be compliant with medication that this poor guy so desperately needs?

It's all about perspective <img src="i/expressions/face-icon-small-smile.gif" border="0"> Best of luck!
 

NoExcuses

New member
Another aspect that I forgot to mention is the fact that many CFers don't have access to the meds that some in the US have. And part of me feels a bit of responsibility to take advantage of the medicine I have access to because some CFers simply just don't.

I've had the Vest for 10 years and I know many of those in socialized medicine countries don't have access to it. I feel it has contributed positively to my health.

We have a gentleman from Lebanon on this board who has a hard time getting access to digestive enzymes, let alone antibiotics and nebs, etc. How can I not be compliant with medication that this poor guy so desperately needs?

It's all about perspective <img src="i/expressions/face-icon-small-smile.gif" border="0"> Best of luck!
 

NoExcuses

New member
Another aspect that I forgot to mention is the fact that many CFers don't have access to the meds that some in the US have. And part of me feels a bit of responsibility to take advantage of the medicine I have access to because some CFers simply just don't.

I've had the Vest for 10 years and I know many of those in socialized medicine countries don't have access to it. I feel it has contributed positively to my health.

We have a gentleman from Lebanon on this board who has a hard time getting access to digestive enzymes, let alone antibiotics and nebs, etc. How can I not be compliant with medication that this poor guy so desperately needs?

It's all about perspective <img src="i/expressions/face-icon-small-smile.gif" border="0"> Best of luck!
 

NoExcuses

New member
Another aspect that I forgot to mention is the fact that many CFers don't have access to the meds that some in the US have. And part of me feels a bit of responsibility to take advantage of the medicine I have access to because some CFers simply just don't.

I've had the Vest for 10 years and I know many of those in socialized medicine countries don't have access to it. I feel it has contributed positively to my health.

We have a gentleman from Lebanon on this board who has a hard time getting access to digestive enzymes, let alone antibiotics and nebs, etc. How can I not be compliant with medication that this poor guy so desperately needs?

It's all about perspective <img src="i/expressions/face-icon-small-smile.gif" border="0"> Best of luck!
 

NoExcuses

New member
Another aspect that I forgot to mention is the fact that many CFers don't have access to the meds that some in the US have. And part of me feels a bit of responsibility to take advantage of the medicine I have access to because some CFers simply just don't.
<br />
<br />I've had the Vest for 10 years and I know many of those in socialized medicine countries don't have access to it. I feel it has contributed positively to my health.
<br />
<br />We have a gentleman from Lebanon on this board who has a hard time getting access to digestive enzymes, let alone antibiotics and nebs, etc. How can I not be compliant with medication that this poor guy so desperately needs?
<br />
<br />It's all about perspective <img src="i/expressions/face-icon-small-smile.gif" border="0"> Best of luck!
 

AneJ1986

New member
You and I are the same age and I can totally relate. I attribute my non-compliance to ignorance about my disease. I don't know how to read my PFT's, I don't know what gene mutation I have and I could only tell you what the name of my enzymes were. I am fairly healthy so I assume I have a common genetic mutation. I know I can be almost "normal" if I followed my medication regimen.

I attend a four year university, although I'm not much of a partier, I do hang out with friends much of the time so I don't want to stop what I'm doing in the middle of the day to go do treatments. Many of my friends don't know about my CF - it's easier for me to be "normal" than to play the "sick role". I feel like a little kid sometimes, like I'm going to miss something.

Even crazier, I am a senior nursing student. Soon to be a registered nurse. I explain to my patients on a daily basis why they should be compliant but I on the other hand don't do it. What a horrible example I am!

I realized I needed to change my habits when I got a new doctor at my CF clinic. She is very proactive and with a slight decline in my PFT's she's ready to insert a PICC line and put me on IV antibiotics. Reality hit quick and I'm ready to do right. It's sad that this feeling didn't come from within but who cares, as long as it came. Also, joining this site and seeing the older CFers who are older and are compliant with families.

I am new and really enjoying the site Just like you Kate, I have to find my niche and do what's healthy for me.
 

AneJ1986

New member
You and I are the same age and I can totally relate. I attribute my non-compliance to ignorance about my disease. I don't know how to read my PFT's, I don't know what gene mutation I have and I could only tell you what the name of my enzymes were. I am fairly healthy so I assume I have a common genetic mutation. I know I can be almost "normal" if I followed my medication regimen.

I attend a four year university, although I'm not much of a partier, I do hang out with friends much of the time so I don't want to stop what I'm doing in the middle of the day to go do treatments. Many of my friends don't know about my CF - it's easier for me to be "normal" than to play the "sick role". I feel like a little kid sometimes, like I'm going to miss something.

Even crazier, I am a senior nursing student. Soon to be a registered nurse. I explain to my patients on a daily basis why they should be compliant but I on the other hand don't do it. What a horrible example I am!

I realized I needed to change my habits when I got a new doctor at my CF clinic. She is very proactive and with a slight decline in my PFT's she's ready to insert a PICC line and put me on IV antibiotics. Reality hit quick and I'm ready to do right. It's sad that this feeling didn't come from within but who cares, as long as it came. Also, joining this site and seeing the older CFers who are older and are compliant with families.

I am new and really enjoying the site Just like you Kate, I have to find my niche and do what's healthy for me.
 

AneJ1986

New member
You and I are the same age and I can totally relate. I attribute my non-compliance to ignorance about my disease. I don't know how to read my PFT's, I don't know what gene mutation I have and I could only tell you what the name of my enzymes were. I am fairly healthy so I assume I have a common genetic mutation. I know I can be almost "normal" if I followed my medication regimen.

I attend a four year university, although I'm not much of a partier, I do hang out with friends much of the time so I don't want to stop what I'm doing in the middle of the day to go do treatments. Many of my friends don't know about my CF - it's easier for me to be "normal" than to play the "sick role". I feel like a little kid sometimes, like I'm going to miss something.

Even crazier, I am a senior nursing student. Soon to be a registered nurse. I explain to my patients on a daily basis why they should be compliant but I on the other hand don't do it. What a horrible example I am!

I realized I needed to change my habits when I got a new doctor at my CF clinic. She is very proactive and with a slight decline in my PFT's she's ready to insert a PICC line and put me on IV antibiotics. Reality hit quick and I'm ready to do right. It's sad that this feeling didn't come from within but who cares, as long as it came. Also, joining this site and seeing the older CFers who are older and are compliant with families.

I am new and really enjoying the site Just like you Kate, I have to find my niche and do what's healthy for me.
 

AneJ1986

New member
You and I are the same age and I can totally relate. I attribute my non-compliance to ignorance about my disease. I don't know how to read my PFT's, I don't know what gene mutation I have and I could only tell you what the name of my enzymes were. I am fairly healthy so I assume I have a common genetic mutation. I know I can be almost "normal" if I followed my medication regimen.

I attend a four year university, although I'm not much of a partier, I do hang out with friends much of the time so I don't want to stop what I'm doing in the middle of the day to go do treatments. Many of my friends don't know about my CF - it's easier for me to be "normal" than to play the "sick role". I feel like a little kid sometimes, like I'm going to miss something.

Even crazier, I am a senior nursing student. Soon to be a registered nurse. I explain to my patients on a daily basis why they should be compliant but I on the other hand don't do it. What a horrible example I am!

I realized I needed to change my habits when I got a new doctor at my CF clinic. She is very proactive and with a slight decline in my PFT's she's ready to insert a PICC line and put me on IV antibiotics. Reality hit quick and I'm ready to do right. It's sad that this feeling didn't come from within but who cares, as long as it came. Also, joining this site and seeing the older CFers who are older and are compliant with families.

I am new and really enjoying the site Just like you Kate, I have to find my niche and do what's healthy for me.
 

AneJ1986

New member
You and I are the same age and I can totally relate. I attribute my non-compliance to ignorance about my disease. I don't know how to read my PFT's, I don't know what gene mutation I have and I could only tell you what the name of my enzymes were. I am fairly healthy so I assume I have a common genetic mutation. I know I can be almost "normal" if I followed my medication regimen.
<br />
<br />I attend a four year university, although I'm not much of a partier, I do hang out with friends much of the time so I don't want to stop what I'm doing in the middle of the day to go do treatments. Many of my friends don't know about my CF - it's easier for me to be "normal" than to play the "sick role". I feel like a little kid sometimes, like I'm going to miss something.
<br />
<br />Even crazier, I am a senior nursing student. Soon to be a registered nurse. I explain to my patients on a daily basis why they should be compliant but I on the other hand don't do it. What a horrible example I am!
<br />
<br />I realized I needed to change my habits when I got a new doctor at my CF clinic. She is very proactive and with a slight decline in my PFT's she's ready to insert a PICC line and put me on IV antibiotics. Reality hit quick and I'm ready to do right. It's sad that this feeling didn't come from within but who cares, as long as it came. Also, joining this site and seeing the older CFers who are older and are compliant with families.
<br />
<br />I am new and really enjoying the site Just like you Kate, I have to find my niche and do what's healthy for me.
 
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