Nose Culture Results

Ratatosk

Administrator
Staff member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>AbbysMama</b></i>

Okay...glad to know. Abby's been coughing and was put on Xopenex to help aide in the eradication of a URI.
How do you all coordinate things between your CF center and your Pedi? That is beginning to stress me. Our Pedi is VERY proactive in his care and treatment of Abby, but I don't want to get into battles wondering what to do when and where and how and which Dr and all of that.
Emily</end quote></div>

The Xopenex is a bronchiodialator, similar to albuterol which will help to open up the airways. Basically you want to get that nasty stuff up and out so infection doesn't breed. DS is on atrovent/albuterol to open up his airways while doing cpt/vest.

We prefer to call the CF clinic. For one thing they're more proactive than the peds clinic. And although DS's pediatrician is part of the local CF clinic, in the past, we've just been told to go to urgent care -- that his doctor isn't available . We've learned that for him, augmentin is better than amoxicillan for getting rid of his ear or sinus infections. So he'd get a script for amox from urgent care and 10 days later, he'd still be sick. And it still stresses me out to no end to deal with his peds clinic vs. his CF center which is farther away. The local peds just don't want to cooperate with the CF center, feel threatend almost... Drives me nuts
 

Ratatosk

Administrator
Staff member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>AbbysMama</b></i>

Okay...glad to know. Abby's been coughing and was put on Xopenex to help aide in the eradication of a URI.
How do you all coordinate things between your CF center and your Pedi? That is beginning to stress me. Our Pedi is VERY proactive in his care and treatment of Abby, but I don't want to get into battles wondering what to do when and where and how and which Dr and all of that.
Emily</end quote></div>

The Xopenex is a bronchiodialator, similar to albuterol which will help to open up the airways. Basically you want to get that nasty stuff up and out so infection doesn't breed. DS is on atrovent/albuterol to open up his airways while doing cpt/vest.

We prefer to call the CF clinic. For one thing they're more proactive than the peds clinic. And although DS's pediatrician is part of the local CF clinic, in the past, we've just been told to go to urgent care -- that his doctor isn't available . We've learned that for him, augmentin is better than amoxicillan for getting rid of his ear or sinus infections. So he'd get a script for amox from urgent care and 10 days later, he'd still be sick. And it still stresses me out to no end to deal with his peds clinic vs. his CF center which is farther away. The local peds just don't want to cooperate with the CF center, feel threatend almost... Drives me nuts
 

Ratatosk

Administrator
Staff member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>AbbysMama</b></i>

Okay...glad to know. Abby's been coughing and was put on Xopenex to help aide in the eradication of a URI.
How do you all coordinate things between your CF center and your Pedi? That is beginning to stress me. Our Pedi is VERY proactive in his care and treatment of Abby, but I don't want to get into battles wondering what to do when and where and how and which Dr and all of that.
Emily</end quote></div>

The Xopenex is a bronchiodialator, similar to albuterol which will help to open up the airways. Basically you want to get that nasty stuff up and out so infection doesn't breed. DS is on atrovent/albuterol to open up his airways while doing cpt/vest.

We prefer to call the CF clinic. For one thing they're more proactive than the peds clinic. And although DS's pediatrician is part of the local CF clinic, in the past, we've just been told to go to urgent care -- that his doctor isn't available . We've learned that for him, augmentin is better than amoxicillan for getting rid of his ear or sinus infections. So he'd get a script for amox from urgent care and 10 days later, he'd still be sick. And it still stresses me out to no end to deal with his peds clinic vs. his CF center which is farther away. The local peds just don't want to cooperate with the CF center, feel threatend almost... Drives me nuts
 

Ratatosk

Administrator
Staff member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>AbbysMama</b></i>

Okay...glad to know. Abby's been coughing and was put on Xopenex to help aide in the eradication of a URI.
How do you all coordinate things between your CF center and your Pedi? That is beginning to stress me. Our Pedi is VERY proactive in his care and treatment of Abby, but I don't want to get into battles wondering what to do when and where and how and which Dr and all of that.
Emily</end quote>

The Xopenex is a bronchiodialator, similar to albuterol which will help to open up the airways. Basically you want to get that nasty stuff up and out so infection doesn't breed. DS is on atrovent/albuterol to open up his airways while doing cpt/vest.

We prefer to call the CF clinic. For one thing they're more proactive than the peds clinic. And although DS's pediatrician is part of the local CF clinic, in the past, we've just been told to go to urgent care -- that his doctor isn't available . We've learned that for him, augmentin is better than amoxicillan for getting rid of his ear or sinus infections. So he'd get a script for amox from urgent care and 10 days later, he'd still be sick. And it still stresses me out to no end to deal with his peds clinic vs. his CF center which is farther away. The local peds just don't want to cooperate with the CF center, feel threatend almost... Drives me nuts
 

Ratatosk

Administrator
Staff member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>AbbysMama</b></i>

Okay...glad to know. Abby's been coughing and was put on Xopenex to help aide in the eradication of a URI.
How do you all coordinate things between your CF center and your Pedi? That is beginning to stress me. Our Pedi is VERY proactive in his care and treatment of Abby, but I don't want to get into battles wondering what to do when and where and how and which Dr and all of that.
Emily</end quote>

The Xopenex is a bronchiodialator, similar to albuterol which will help to open up the airways. Basically you want to get that nasty stuff up and out so infection doesn't breed. DS is on atrovent/albuterol to open up his airways while doing cpt/vest.

We prefer to call the CF clinic. For one thing they're more proactive than the peds clinic. And although DS's pediatrician is part of the local CF clinic, in the past, we've just been told to go to urgent care -- that his doctor isn't available . We've learned that for him, augmentin is better than amoxicillan for getting rid of his ear or sinus infections. So he'd get a script for amox from urgent care and 10 days later, he'd still be sick. And it still stresses me out to no end to deal with his peds clinic vs. his CF center which is farther away. The local peds just don't want to cooperate with the CF center, feel threatend almost... Drives me nuts
 

AbbysMama

New member
Thanks for the info Liza!

One of my biggest issues is that in order to get to the CF clinic, it is a 2.5 hour drive to Atlanta (about 150 miles one way) so if we call, they say that they want to see us. Our Pedi will do whatever and prescribe whatever we need for him to (from the clinic). He doesn't have any ego issues with coordinating care, but since there is such a distance, he would prefer more information from them after her appointments. We can relay stuff all we want, but in order for him to feel like he will give her the level of care that he wants her to have, he wants to see what they are doing. Not to second-guess, but to ensure he's doing what is right for her.

Guess that is a BIG subject for Dave to discuss with the clinic tomorrow when Abby goes for her follow-up after the appointment last month when we got the breating treatments AND CPT. <img src="i/expressions/face-icon-small-smile.gif" border="0"> I hate it that I have to work, because I would really like to go and have all of these issues laid to rest, so to speak. <img src="i/expressions/face-icon-small-smile.gif" border="0">

Thanks for all of the info folks! I appreciate it more than you know!

Em
 

AbbysMama

New member
Thanks for the info Liza!

One of my biggest issues is that in order to get to the CF clinic, it is a 2.5 hour drive to Atlanta (about 150 miles one way) so if we call, they say that they want to see us. Our Pedi will do whatever and prescribe whatever we need for him to (from the clinic). He doesn't have any ego issues with coordinating care, but since there is such a distance, he would prefer more information from them after her appointments. We can relay stuff all we want, but in order for him to feel like he will give her the level of care that he wants her to have, he wants to see what they are doing. Not to second-guess, but to ensure he's doing what is right for her.

Guess that is a BIG subject for Dave to discuss with the clinic tomorrow when Abby goes for her follow-up after the appointment last month when we got the breating treatments AND CPT. <img src="i/expressions/face-icon-small-smile.gif" border="0"> I hate it that I have to work, because I would really like to go and have all of these issues laid to rest, so to speak. <img src="i/expressions/face-icon-small-smile.gif" border="0">

Thanks for all of the info folks! I appreciate it more than you know!

Em
 

AbbysMama

New member
Thanks for the info Liza!

One of my biggest issues is that in order to get to the CF clinic, it is a 2.5 hour drive to Atlanta (about 150 miles one way) so if we call, they say that they want to see us. Our Pedi will do whatever and prescribe whatever we need for him to (from the clinic). He doesn't have any ego issues with coordinating care, but since there is such a distance, he would prefer more information from them after her appointments. We can relay stuff all we want, but in order for him to feel like he will give her the level of care that he wants her to have, he wants to see what they are doing. Not to second-guess, but to ensure he's doing what is right for her.

Guess that is a BIG subject for Dave to discuss with the clinic tomorrow when Abby goes for her follow-up after the appointment last month when we got the breating treatments AND CPT. <img src="i/expressions/face-icon-small-smile.gif" border="0"> I hate it that I have to work, because I would really like to go and have all of these issues laid to rest, so to speak. <img src="i/expressions/face-icon-small-smile.gif" border="0">

Thanks for all of the info folks! I appreciate it more than you know!

Em
 

AbbysMama

New member
Thanks for the info Liza!

One of my biggest issues is that in order to get to the CF clinic, it is a 2.5 hour drive to Atlanta (about 150 miles one way) so if we call, they say that they want to see us. Our Pedi will do whatever and prescribe whatever we need for him to (from the clinic). He doesn't have any ego issues with coordinating care, but since there is such a distance, he would prefer more information from them after her appointments. We can relay stuff all we want, but in order for him to feel like he will give her the level of care that he wants her to have, he wants to see what they are doing. Not to second-guess, but to ensure he's doing what is right for her.

Guess that is a BIG subject for Dave to discuss with the clinic tomorrow when Abby goes for her follow-up after the appointment last month when we got the breating treatments AND CPT. <img src="i/expressions/face-icon-small-smile.gif" border="0"> I hate it that I have to work, because I would really like to go and have all of these issues laid to rest, so to speak. <img src="i/expressions/face-icon-small-smile.gif" border="0">

Thanks for all of the info folks! I appreciate it more than you know!

Em
 

AbbysMama

New member
Thanks for the info Liza!

One of my biggest issues is that in order to get to the CF clinic, it is a 2.5 hour drive to Atlanta (about 150 miles one way) so if we call, they say that they want to see us. Our Pedi will do whatever and prescribe whatever we need for him to (from the clinic). He doesn't have any ego issues with coordinating care, but since there is such a distance, he would prefer more information from them after her appointments. We can relay stuff all we want, but in order for him to feel like he will give her the level of care that he wants her to have, he wants to see what they are doing. Not to second-guess, but to ensure he's doing what is right for her.

Guess that is a BIG subject for Dave to discuss with the clinic tomorrow when Abby goes for her follow-up after the appointment last month when we got the breating treatments AND CPT. <img src="i/expressions/face-icon-small-smile.gif" border="0"> I hate it that I have to work, because I would really like to go and have all of these issues laid to rest, so to speak. <img src="i/expressions/face-icon-small-smile.gif" border="0">

Thanks for all of the info folks! I appreciate it more than you know!

Em
 
Top