number of enzymes

J

just1more

New member
NO YOU WERE NOT A FAILURE!! You did everything right; you just got poor/weak information.

The fact you are fighting & trying is wonderful. At 1% she obviously needs a boost. I wish I could help you more.

I think many cf'rs use the amount of fat to judge enzyme qty; but it is a guideline as it works for everything you eat.

I would strongly suggest you find a GI that has CF experience. You sound like you have reached a point where a nutritionist has maxed their ability. I would push for a GI consult, as they have a medical degree; a nutritionist regardless of experience just doesn't have the medical skills/knowledge and your little one is too small to play games.

I hope you find an answer soon....crossing fingers!
 
J

just1more

New member
NO YOU WERE NOT A FAILURE!! You did everything right; you just got poor/weak information.

The fact you are fighting & trying is wonderful. At 1% she obviously needs a boost. I wish I could help you more.

I think many cf'rs use the amount of fat to judge enzyme qty; but it is a guideline as it works for everything you eat.

I would strongly suggest you find a GI that has CF experience. You sound like you have reached a point where a nutritionist has maxed their ability. I would push for a GI consult, as they have a medical degree; a nutritionist regardless of experience just doesn't have the medical skills/knowledge and your little one is too small to play games.

I hope you find an answer soon....crossing fingers!
 
J

just1more

New member
NO YOU WERE NOT A FAILURE!! You did everything right; you just got poor/weak information.

The fact you are fighting & trying is wonderful. At 1% she obviously needs a boost. I wish I could help you more.

I think many cf'rs use the amount of fat to judge enzyme qty; but it is a guideline as it works for everything you eat.

I would strongly suggest you find a GI that has CF experience. You sound like you have reached a point where a nutritionist has maxed their ability. I would push for a GI consult, as they have a medical degree; a nutritionist regardless of experience just doesn't have the medical skills/knowledge and your little one is too small to play games.

I hope you find an answer soon....crossing fingers!
 
J

just1more

New member
NO YOU WERE NOT A FAILURE!! You did everything right; you just got poor/weak information.

The fact you are fighting & trying is wonderful. At 1% she obviously needs a boost. I wish I could help you more.

I think many cf'rs use the amount of fat to judge enzyme qty; but it is a guideline as it works for everything you eat.

I would strongly suggest you find a GI that has CF experience. You sound like you have reached a point where a nutritionist has maxed their ability. I would push for a GI consult, as they have a medical degree; a nutritionist regardless of experience just doesn't have the medical skills/knowledge and your little one is too small to play games.

I hope you find an answer soon....crossing fingers!
 
J

just1more

New member
NO YOU WERE NOT A FAILURE!! You did everything right; you just got poor/weak information.
<br />
<br />The fact you are fighting & trying is wonderful. At 1% she obviously needs a boost. I wish I could help you more.
<br />
<br />I think many cf'rs use the amount of fat to judge enzyme qty; but it is a guideline as it works for everything you eat.
<br />
<br />I would strongly suggest you find a GI that has CF experience. You sound like you have reached a point where a nutritionist has maxed their ability. I would push for a GI consult, as they have a medical degree; a nutritionist regardless of experience just doesn't have the medical skills/knowledge and your little one is too small to play games.
<br />
<br />I hope you find an answer soon....crossing fingers!
 
M

MOMTOGIRL2005

New member
My dd is having her yearly appt next week and I'm going to ask the nutritionist to answer our questions. Everytime we go there she just sits there and types on her computer and to be honest we have learned more reading posts than from her. She gets payed to help us find what is best for our dd. I appreciate everyones input on this topic since we all know how important it is. This has been the main issue for us since getting the diagnosis last year. I'm still really unsure how many creon 10 I should give her for the carnation vhc (560 calories, 32 grams of fat) her weight is 35 pounds.
 
M

MOMTOGIRL2005

New member
My dd is having her yearly appt next week and I'm going to ask the nutritionist to answer our questions. Everytime we go there she just sits there and types on her computer and to be honest we have learned more reading posts than from her. She gets payed to help us find what is best for our dd. I appreciate everyones input on this topic since we all know how important it is. This has been the main issue for us since getting the diagnosis last year. I'm still really unsure how many creon 10 I should give her for the carnation vhc (560 calories, 32 grams of fat) her weight is 35 pounds.
 
M

MOMTOGIRL2005

New member
My dd is having her yearly appt next week and I'm going to ask the nutritionist to answer our questions. Everytime we go there she just sits there and types on her computer and to be honest we have learned more reading posts than from her. She gets payed to help us find what is best for our dd. I appreciate everyones input on this topic since we all know how important it is. This has been the main issue for us since getting the diagnosis last year. I'm still really unsure how many creon 10 I should give her for the carnation vhc (560 calories, 32 grams of fat) her weight is 35 pounds.
 
M

MOMTOGIRL2005

New member
My dd is having her yearly appt next week and I'm going to ask the nutritionist to answer our questions. Everytime we go there she just sits there and types on her computer and to be honest we have learned more reading posts than from her. She gets payed to help us find what is best for our dd. I appreciate everyones input on this topic since we all know how important it is. This has been the main issue for us since getting the diagnosis last year. I'm still really unsure how many creon 10 I should give her for the carnation vhc (560 calories, 32 grams of fat) her weight is 35 pounds.
 
M

MOMTOGIRL2005

New member
My dd is having her yearly appt next week and I'm going to ask the nutritionist to answer our questions. Everytime we go there she just sits there and types on her computer and to be honest we have learned more reading posts than from her. She gets payed to help us find what is best for our dd. I appreciate everyones input on this topic since we all know how important it is. This has been the main issue for us since getting the diagnosis last year. I'm still really unsure how many creon 10 I should give her for the carnation vhc (560 calories, 32 grams of fat) her weight is 35 pounds.
 
H

hmw

New member
<div class="FTQUOTE"><begin quote>Does anyone use fat grams as the basis for the number of enzymes to be taken with a meal, snack or nutritional drink?</end quote></div>
We have no experience with that particular Carnation drink, but I can tell you that we adjust Emily's enzymes a bit with some foods w/ high fat content. We were noticing that upon starting enzymes she started gaining weight- and her bm's became more 'normal' looking a greater percentage of the time, except on a predictable basis when she had certain foods. Adding an extra enzyme when she has foods like pizza, sausage, hot dogs and a few others has made a big difference w/ her bm's (not to mention gas.) As a rule though, she gets the same number of enzymes for every meal, and the same goes for snacks. The high-fat stuff is the rare exception.

<div class="FTQUOTE"><begin quote>I'm still really unsure how many creon 10 I should give her for the carnation vhc (560 calories, 32 grams of fat) her weight is 35 pounds.</end quote></div>

The only thing I could suggest- since everyone takes a different number of enzymes (some kids need one Creon with a meal, others need 4, depending on their level of PI, etc): When it comes to that Carnation drink, you don't mention protein, but when it comes to calorie and fat, it does sound comparable to the values of a hearty meal. (i.e. I try to get 500-600cal into Emily for breakfast.) So giving the same amount of enzymes as you would for a meal doesn't sound too unreasonable to me- as long as her bm's seem OK (an increase in oily poop, etc would seem to flag a problem) and she's not having stomachaches, excessive gas, etc.

Like Tom said, when it comes to the enzymes, we were told that they were needed to digest all but the very simplest of sugars (i.e. apple juice.)

The nutritional stuff has been a big issue for us as well- Emily is just a little thing too; was in the 5th% for wt/ht at dx, has grown something like 3" in 7mo (hooray enzymes!!) but the weight is still a huge struggle- despite gains, losing weight when she gets sick leaves her still in the 14% for BMI at this time. It's very frustrating to feel like you are constantly worrying about food and analyzing every bite that goes into their mouths!
 
H

hmw

New member
<div class="FTQUOTE"><begin quote>Does anyone use fat grams as the basis for the number of enzymes to be taken with a meal, snack or nutritional drink?</end quote></div>
We have no experience with that particular Carnation drink, but I can tell you that we adjust Emily's enzymes a bit with some foods w/ high fat content. We were noticing that upon starting enzymes she started gaining weight- and her bm's became more 'normal' looking a greater percentage of the time, except on a predictable basis when she had certain foods. Adding an extra enzyme when she has foods like pizza, sausage, hot dogs and a few others has made a big difference w/ her bm's (not to mention gas.) As a rule though, she gets the same number of enzymes for every meal, and the same goes for snacks. The high-fat stuff is the rare exception.

<div class="FTQUOTE"><begin quote>I'm still really unsure how many creon 10 I should give her for the carnation vhc (560 calories, 32 grams of fat) her weight is 35 pounds.</end quote></div>

The only thing I could suggest- since everyone takes a different number of enzymes (some kids need one Creon with a meal, others need 4, depending on their level of PI, etc): When it comes to that Carnation drink, you don't mention protein, but when it comes to calorie and fat, it does sound comparable to the values of a hearty meal. (i.e. I try to get 500-600cal into Emily for breakfast.) So giving the same amount of enzymes as you would for a meal doesn't sound too unreasonable to me- as long as her bm's seem OK (an increase in oily poop, etc would seem to flag a problem) and she's not having stomachaches, excessive gas, etc.

Like Tom said, when it comes to the enzymes, we were told that they were needed to digest all but the very simplest of sugars (i.e. apple juice.)

The nutritional stuff has been a big issue for us as well- Emily is just a little thing too; was in the 5th% for wt/ht at dx, has grown something like 3" in 7mo (hooray enzymes!!) but the weight is still a huge struggle- despite gains, losing weight when she gets sick leaves her still in the 14% for BMI at this time. It's very frustrating to feel like you are constantly worrying about food and analyzing every bite that goes into their mouths!
 
H

hmw

New member
<div class="FTQUOTE"><begin quote>Does anyone use fat grams as the basis for the number of enzymes to be taken with a meal, snack or nutritional drink?</end quote></div>
We have no experience with that particular Carnation drink, but I can tell you that we adjust Emily's enzymes a bit with some foods w/ high fat content. We were noticing that upon starting enzymes she started gaining weight- and her bm's became more 'normal' looking a greater percentage of the time, except on a predictable basis when she had certain foods. Adding an extra enzyme when she has foods like pizza, sausage, hot dogs and a few others has made a big difference w/ her bm's (not to mention gas.) As a rule though, she gets the same number of enzymes for every meal, and the same goes for snacks. The high-fat stuff is the rare exception.

<div class="FTQUOTE"><begin quote>I'm still really unsure how many creon 10 I should give her for the carnation vhc (560 calories, 32 grams of fat) her weight is 35 pounds.</end quote></div>

The only thing I could suggest- since everyone takes a different number of enzymes (some kids need one Creon with a meal, others need 4, depending on their level of PI, etc): When it comes to that Carnation drink, you don't mention protein, but when it comes to calorie and fat, it does sound comparable to the values of a hearty meal. (i.e. I try to get 500-600cal into Emily for breakfast.) So giving the same amount of enzymes as you would for a meal doesn't sound too unreasonable to me- as long as her bm's seem OK (an increase in oily poop, etc would seem to flag a problem) and she's not having stomachaches, excessive gas, etc.

Like Tom said, when it comes to the enzymes, we were told that they were needed to digest all but the very simplest of sugars (i.e. apple juice.)

The nutritional stuff has been a big issue for us as well- Emily is just a little thing too; was in the 5th% for wt/ht at dx, has grown something like 3" in 7mo (hooray enzymes!!) but the weight is still a huge struggle- despite gains, losing weight when she gets sick leaves her still in the 14% for BMI at this time. It's very frustrating to feel like you are constantly worrying about food and analyzing every bite that goes into their mouths!
 
H

hmw

New member
<div class="FTQUOTE"><begin quote>Does anyone use fat grams as the basis for the number of enzymes to be taken with a meal, snack or nutritional drink?</end quote>
We have no experience with that particular Carnation drink, but I can tell you that we adjust Emily's enzymes a bit with some foods w/ high fat content. We were noticing that upon starting enzymes she started gaining weight- and her bm's became more 'normal' looking a greater percentage of the time, except on a predictable basis when she had certain foods. Adding an extra enzyme when she has foods like pizza, sausage, hot dogs and a few others has made a big difference w/ her bm's (not to mention gas.) As a rule though, she gets the same number of enzymes for every meal, and the same goes for snacks. The high-fat stuff is the rare exception.

<div class="FTQUOTE"><begin quote>I'm still really unsure how many creon 10 I should give her for the carnation vhc (560 calories, 32 grams of fat) her weight is 35 pounds.</end quote>

The only thing I could suggest- since everyone takes a different number of enzymes (some kids need one Creon with a meal, others need 4, depending on their level of PI, etc): When it comes to that Carnation drink, you don't mention protein, but when it comes to calorie and fat, it does sound comparable to the values of a hearty meal. (i.e. I try to get 500-600cal into Emily for breakfast.) So giving the same amount of enzymes as you would for a meal doesn't sound too unreasonable to me- as long as her bm's seem OK (an increase in oily poop, etc would seem to flag a problem) and she's not having stomachaches, excessive gas, etc.

Like Tom said, when it comes to the enzymes, we were told that they were needed to digest all but the very simplest of sugars (i.e. apple juice.)

The nutritional stuff has been a big issue for us as well- Emily is just a little thing too; was in the 5th% for wt/ht at dx, has grown something like 3" in 7mo (hooray enzymes!!) but the weight is still a huge struggle- despite gains, losing weight when she gets sick leaves her still in the 14% for BMI at this time. It's very frustrating to feel like you are constantly worrying about food and analyzing every bite that goes into their mouths!
 
H

hmw

New member
<div class="FTQUOTE"><begin quote>Does anyone use fat grams as the basis for the number of enzymes to be taken with a meal, snack or nutritional drink?</end quote>
<br />We have no experience with that particular Carnation drink, but I can tell you that we adjust Emily's enzymes a bit with some foods w/ high fat content. We were noticing that upon starting enzymes she started gaining weight- and her bm's became more 'normal' looking a greater percentage of the time, except on a predictable basis when she had certain foods. Adding an extra enzyme when she has foods like pizza, sausage, hot dogs and a few others has made a big difference w/ her bm's (not to mention gas.) As a rule though, she gets the same number of enzymes for every meal, and the same goes for snacks. The high-fat stuff is the rare exception.
<br />
<br /><div class="FTQUOTE"><begin quote>I'm still really unsure how many creon 10 I should give her for the carnation vhc (560 calories, 32 grams of fat) her weight is 35 pounds.</end quote>
<br />
<br />The only thing I could suggest- since everyone takes a different number of enzymes (some kids need one Creon with a meal, others need 4, depending on their level of PI, etc): When it comes to that Carnation drink, you don't mention protein, but when it comes to calorie and fat, it does sound comparable to the values of a hearty meal. (i.e. I try to get 500-600cal into Emily for breakfast.) So giving the same amount of enzymes as you would for a meal doesn't sound too unreasonable to me- as long as her bm's seem OK (an increase in oily poop, etc would seem to flag a problem) and she's not having stomachaches, excessive gas, etc.
<br />
<br />Like Tom said, when it comes to the enzymes, we were told that they were needed to digest all but the very simplest of sugars (i.e. apple juice.)
<br />
<br />The nutritional stuff has been a big issue for us as well- Emily is just a little thing too; was in the 5th% for wt/ht at dx, has grown something like 3" in 7mo (hooray enzymes!!) but the weight is still a huge struggle- despite gains, losing weight when she gets sick leaves her still in the 14% for BMI at this time. It's very frustrating to feel like you are constantly worrying about food and analyzing every bite that goes into their mouths!
 
Z

zoe4life

New member
Hi guys! Just thought I'd give what my nutrionist recommends......every Creon10 is good for 5-6 grams of fat. That is all I base Zoe's enzymes on. I calculate fat. that's it. It seems to work. She did have her first weight gaining issue finally this year. Never had any issues before then. They think some of it is related to her sicknesses, hospitalizations.....
Good luck!
 
Z

zoe4life

New member
Hi guys! Just thought I'd give what my nutrionist recommends......every Creon10 is good for 5-6 grams of fat. That is all I base Zoe's enzymes on. I calculate fat. that's it. It seems to work. She did have her first weight gaining issue finally this year. Never had any issues before then. They think some of it is related to her sicknesses, hospitalizations.....
Good luck!
 
Z

zoe4life

New member
Hi guys! Just thought I'd give what my nutrionist recommends......every Creon10 is good for 5-6 grams of fat. That is all I base Zoe's enzymes on. I calculate fat. that's it. It seems to work. She did have her first weight gaining issue finally this year. Never had any issues before then. They think some of it is related to her sicknesses, hospitalizations.....
Good luck!
 
Z

zoe4life

New member
Hi guys! Just thought I'd give what my nutrionist recommends......every Creon10 is good for 5-6 grams of fat. That is all I base Zoe's enzymes on. I calculate fat. that's it. It seems to work. She did have her first weight gaining issue finally this year. Never had any issues before then. They think some of it is related to her sicknesses, hospitalizations.....
Good luck!
 
Z

zoe4life

New member
Hi guys! Just thought I'd give what my nutrionist recommends......every Creon10 is good for 5-6 grams of fat. That is all I base Zoe's enzymes on. I calculate fat. that's it. It seems to work. She did have her first weight gaining issue finally this year. Never had any issues before then. They think some of it is related to her sicknesses, hospitalizations.....
<br />Good luck!
<br />
 
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