Ohh Boy....2 CF kids at a dinner party.

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SARAHSARAH253

New member
<DIV>Grandpa and his girlfriend are coming to town this weekend. The visit is for Grandpa's Birthday Dinner & Celebrating. One catch Grandpas Girlfriends brother is coming and he has a son w/cf. The plan was for all of us to have dinner together. Until I heard of it this morning.Yikes!! Apparently my Dad hasn't taken anytime to learn any CF101. I don't fault him, I understand that most people in "our family" don't go out of their way educate themselves on cf. Guess that's my job<img src="i/expressions/face-icon-small-sad.gif" border="0"> Just feel very disappointed and deflated that once again I have to make the stink. Perhaps if my son wasn't 4 and didn't jump in everyone's lap and understood more. Perhaps if my almost 2 year old would stop licking people..YUCK!! we could handle a social gathering with less fear of cross contamination. </DIV>
<DIV> </DIV>
<DIV>So, obviously we will not be making the dinner party. Later that evening we most likely join up with Grandpa. Do I Grandpa to change his shirt? We are a family of "huggers". I don't like this..I see the docs come in fully gowned and they don't even hug us or kiss the kids, and I'm suppose to calm down and go with the flow..I can't!!..Guess I'm just looking for pointers on how to do this with out offending everyone. My husband thinks I should send my thoughts in email that way it's clear. Thanks in advance.</DIV>
<DIV> </DIV>
<DIV>Sarah</DIV>
 
S

SARAHSARAH253

New member
<DIV>Grandpa and his girlfriend are coming to town this weekend. The visit is for Grandpa's Birthday Dinner & Celebrating. One catch Grandpas Girlfriends brother is coming and he has a son w/cf. The plan was for all of us to have dinner together. Until I heard of it this morning.Yikes!! Apparently my Dad hasn't taken anytime to learn any CF101. I don't fault him, I understand that most people in "our family" don'tgo out of their way educate themselves on cf. Guess that's my job<img src="i/expressions/face-icon-small-sad.gif" border="0"> Just feel very disappointed anddeflatedthatonce again I have to make the stink.Perhapsifmy son wasn't 4 anddidn't jump ineveryone's lap and understood more. Perhaps if my almost 2 year old would stop licking people..YUCK!! we could handle a social gatheringwith lessfear of cross contamination. </DIV>
<DIV></DIV>
<DIV>So, obviously we will not be making the dinner party. Later that evening we most likely join up with Grandpa. Do I Grandpa to change his shirt? We are a family of "huggers". I don't like this..I see the docs come in fully gowned and they don't even hug us or kiss the kids, and I'm suppose to calm down and go with the flow..I can't!!..Guess I'm just looking for pointers on how to do this with out offending everyone. My husband thinks I should send my thoughts in email that way it's clear. Thanks in advance.</DIV>
<DIV></DIV>
<DIV>Sarah</DIV>
 
S

SARAHSARAH253

New member
<DIV>Grandpa and his girlfriend are coming to town this weekend. The visit is for Grandpa's Birthday Dinner & Celebrating. One catch Grandpas Girlfriends brother is coming and he has a son w/cf. The plan was for all of us to have dinner together. Until I heard of it this morning.Yikes!! Apparently my Dad hasn't taken anytime to learn any CF101. I don't fault him, I understand that most people in "our family" don'tgo out of their way educate themselves on cf. Guess that's my job<img src="i/expressions/face-icon-small-sad.gif" border="0"> Just feel very disappointed anddeflatedthatonce again I have to make the stink.Perhapsifmy son wasn't 4 anddidn't jump ineveryone's lap and understood more. Perhaps if my almost 2 year old would stop licking people..YUCK!! we could handle a social gatheringwith lessfear of cross contamination. </DIV>
<DIV></DIV>
<DIV>So, obviously we will not be making the dinner party. Later that evening we most likely join up with Grandpa. Do I Grandpa to change his shirt? We are a family of "huggers". I don't like this..I see the docs come in fully gowned and they don't even hug us or kiss the kids, and I'm suppose to calm down and go with the flow..I can't!!..Guess I'm just looking for pointers on how to do this with out offending everyone. My husband thinks I should send my thoughts in email that way it's clear. Thanks in advance.</DIV>
<DIV></DIV>
<DIV>Sarah</DIV><BR>
 
R

Ratatosk

Administrator
Staff member
Ugh, while we never really had to deal with other CFers, we had similar issues with DS when he was younger. He'd drink out of people's glasses -- heck people would OFFER him drinks from their glasses and food from their plates, sit on people's laps, lick things.... And there are/were a couple relatives with health issues -- one had an autoimmune disorder and arthritis and was prone to infections. Another has COPD, is on oxygen, productive cough... Just not something we were willing to risk.

How old is this other child? Would he have been in really cross proximity to grandpa which would necessitate a change in clothing? I'd be nervous as well with the unknowns -- what does he culture, productive cough.... IMO, call or email grandpa and explain the situation, so there's no misunderstanding regarding your concerns.

Unforunately, sometimes family just doesn't get it and we have to make the tough decisions. But I'd rather miss out on an event, than risk DS' lung function just because someone might be offended.
 
R

Ratatosk

Administrator
Staff member
Ugh, while we never really had to deal with other CFers, we had similar issues with DS when he was younger. He'd drink out of people's glasses -- heck people would OFFER him drinks from their glasses and food from their plates, sit on people's laps, lick things.... And there are/were a couple relatives with health issues -- one had an autoimmune disorder and arthritis and was prone to infections. Another has COPD, is on oxygen, productive cough... Just not something we were willing to risk.

How old is this other child? Would he have been in really cross proximity to grandpa which would necessitate a change in clothing? I'd be nervous as well with the unknowns -- what does he culture, productive cough.... IMO, call or email grandpa and explain the situation, so there's no misunderstanding regarding your concerns.

Unforunately, sometimes family just doesn't get it and we have to make the tough decisions. But I'd rather miss out on an event, than risk DS' lung function just because someone might be offended.
 
R

Ratatosk

Administrator
Staff member
Ugh, while we never really had to deal with other CFers, we had similar issues with DS when he was younger. He'd drink out of people's glasses -- heck people would OFFER him drinks from their glasses and food from their plates, sit on people's laps, lick things.... And there are/were a couple relatives with health issues -- one had an autoimmune disorder and arthritis and was prone to infections. Another has COPD, is on oxygen, productive cough... Just not something we were willing to risk.
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<br />How old is this other child? Would he have been in really cross proximity to grandpa which would necessitate a change in clothing? I'd be nervous as well with the unknowns -- what does he culture, productive cough.... IMO, call or email grandpa and explain the situation, so there's no misunderstanding regarding your concerns.
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<br />Unforunately, sometimes family just doesn't get it and we have to make the tough decisions. But I'd rather miss out on an event, than risk DS' lung function just because someone might be offended.
 
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Mommafirst

Guest
When I visit my friend who has CF, I don't change my clothes when I return home. But she isn't sitting all over me or slobbering on me (LOL -- what a mental picture that makes). I suppose if she did, I'd feel inclined to change. She and my daughter culture different things, so I'm always cautious about hand cleaning, etc. afterward. I imagine once your son is older and can understand cross contamination protocol this won't be as much of an issue, but for now its probably a smart thing to visit separately.
 
M

Mommafirst

Guest
When I visit my friend who has CF, I don't change my clothes when I return home. But she isn't sitting all over me or slobbering on me (LOL -- what a mental picture that makes). I suppose if she did, I'd feel inclined to change. She and my daughter culture different things, so I'm always cautious about hand cleaning, etc. afterward. I imagine once your son is older and can understand cross contamination protocol this won't be as much of an issue, but for now its probably a smart thing to visit separately.
 
M

Mommafirst

Guest
When I visit my friend who has CF, I don't change my clothes when I return home. But she isn't sitting all over me or slobbering on me (LOL -- what a mental picture that makes). I suppose if she did, I'd feel inclined to change. She and my daughter culture different things, so I'm always cautious about hand cleaning, etc. afterward. I imagine once your son is older and can understand cross contamination protocol this won't be as much of an issue, but for now its probably a smart thing to visit separately.
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TonyaH

Guest
Sarah, if your Grandpa is dating someone his own age, that would make your grandpa's girlfriend's brother's son around the age of your parents, right? I would certainly not ask him to change his clothes before seeing you. As for the dinner, if you are in a restaurant I would say go. Keeping the three foot rule is more than doable with a large dinner party. In fact, it might really benefit your son to know a cfer who is older than him. I have a dear friend in her 60s with CF and my son is very comforted by her CF story. She is a great resource for him, and I think she benefits from the relationship, too. I'm sure the older he gets the more they will communicate themselves rather than through me. I understand your hesitation, but I think there are plenty of ways to make this a nice visit and keep both CFers safe and healthy! You are certainly knowledgible enough about precautions. As long as the other party is equally aware, I say go for it!
 
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TonyaH

Guest
Sarah, if your Grandpa is dating someone his own age, that would make your grandpa's girlfriend's brother's son around the age of your parents, right? I would certainly not ask him to change his clothes before seeing you. As for the dinner, if you are in a restaurant I would say go. Keeping the three foot rule is more than doable with a large dinner party. In fact, it might really benefit your son to know a cfer who is older than him. I have a dear friend in her 60s with CF and my son is very comforted by her CF story. She is a great resource for him, and I think she benefits from the relationship, too. I'm sure the older he gets the more they will communicate themselves rather than through me. I understand your hesitation, but I think there are plenty of ways to make this a nice visit and keep both CFers safe and healthy! You are certainly knowledgible enough about precautions. As long as the other party is equally aware, I say go for it!
 
T

TonyaH

Guest
Sarah, if your Grandpa is dating someone his own age, that would make your grandpa's girlfriend's brother's son around the age of your parents, right? I would certainly not ask him to change his clothes before seeing you. As for the dinner, if you are in a restaurant I would say go. Keeping the three foot rule is more than doable with a large dinner party. In fact, it might really benefit your son to know a cfer who is older than him. I have a dear friend in her 60s with CF and my son is very comforted by her CF story. She is a great resource for him, and I think she benefits from the relationship, too. I'm sure the older he gets the more they will communicate themselves rather than through me. I understand your hesitation, but I think there are plenty of ways to make this a nice visit and keep both CFers safe and healthy! You are certainly knowledgible enough about precautions. As long as the other party is equally aware, I say go for it!
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S

SARAHSARAH253

New member
Hi there, Well the dinner didn't happen. I was relieved that my father "Grandpa's New Girlfriend" was informed later that this wasn't a good idea by her side of the family too. Thank Goodness!! I'm didn't want the confrontation. Situation avoided!! The other boy I believe is 11 or 12. Thanks for your replies

Thanks,

Sarah
 
S

SARAHSARAH253

New member
Hi there, Well the dinner didn't happen. I was relieved that my father "Grandpa's New Girlfriend" was informed later that this wasn't a good idea by her side of the family too. Thank Goodness!! I'm didn't want the confrontation. Situation avoided!! The other boy I believe is 11 or 12. Thanks for your replies

Thanks,

Sarah
 
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