Ohh the fun of the holidays!

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rosesixtyfive

New member
I think maybe relatives don't realize how CF works - that we are fighting bacteria that can get into our children's lungs. I have had a relative pick up a paci off the floor and put it back into my child's mouth. I also had a relative buy a used swing and not wipe all the grime off of it (could've been mold), but I did say something, and after much argument about whether it was mold or grime (like either one would have been good), the chair was thoroughly bleached down for a second time.

I don't want my child in a bubble, but if there are things we can do to help him without stifling his burgeoning quest for independence, then as caregivers we should do them. I plan to type up a sheet called "The Care and Feeding of Samuel" and I want to list the things that are good for Sam and the things that are bad, and explain on this sheet why a mom of a child with CF would live in a constant state of paranoia. After I type it up, I'll give it to any of you who are interested. Also, any tips you have as to what to add would be greatly appreciated.

rosesixtyfive, mother of Sam, 3 months old, DDf508, and a fighter
 
R

rosesixtyfive

New member
I think maybe relatives don't realize how CF works - that we are fighting bacteria that can get into our children's lungs. I have had a relative pick up a paci off the floor and put it back into my child's mouth. I also had a relative buy a used swing and not wipe all the grime off of it (could've been mold), but I did say something, and after much argument about whether it was mold or grime (like either one would have been good), the chair was thoroughly bleached down for a second time.

I don't want my child in a bubble, but if there are things we can do to help him without stifling his burgeoning quest for independence, then as caregivers we should do them. I plan to type up a sheet called "The Care and Feeding of Samuel" and I want to list the things that are good for Sam and the things that are bad, and explain on this sheet why a mom of a child with CF would live in a constant state of paranoia. After I type it up, I'll give it to any of you who are interested. Also, any tips you have as to what to add would be greatly appreciated.

rosesixtyfive, mother of Sam, 3 months old, DDf508, and a fighter
 
R

rosesixtyfive

New member
I think maybe relatives don't realize how CF works - that we are fighting bacteria that can get into our children's lungs. I have had a relative pick up a paci off the floor and put it back into my child's mouth. I also had a relative buy a used swing and not wipe all the grime off of it (could've been mold), but I did say something, and after much argument about whether it was mold or grime (like either one would have been good), the chair was thoroughly bleached down for a second time.

I don't want my child in a bubble, but if there are things we can do to help him without stifling his burgeoning quest for independence, then as caregivers we should do them. I plan to type up a sheet called "The Care and Feeding of Samuel" and I want to list the things that are good for Sam and the things that are bad, and explain on this sheet why a mom of a child with CF would live in a constant state of paranoia. After I type it up, I'll give it to any of you who are interested. Also, any tips you have as to what to add would be greatly appreciated.

rosesixtyfive, mother of Sam, 3 months old, DDf508, and a fighter
 
R

rosesixtyfive

New member
I think maybe relatives don't realize how CF works - that we are fighting bacteria that can get into our children's lungs. I have had a relative pick up a paci off the floor and put it back into my child's mouth. I also had a relative buy a used swing and not wipe all the grime off of it (could've been mold), but I did say something, and after much argument about whether it was mold or grime (like either one would have been good), the chair was thoroughly bleached down for a second time.

I don't want my child in a bubble, but if there are things we can do to help him without stifling his burgeoning quest for independence, then as caregivers we should do them. I plan to type up a sheet called "The Care and Feeding of Samuel" and I want to list the things that are good for Sam and the things that are bad, and explain on this sheet why a mom of a child with CF would live in a constant state of paranoia. After I type it up, I'll give it to any of you who are interested. Also, any tips you have as to what to add would be greatly appreciated.

rosesixtyfive, mother of Sam, 3 months old, DDf508, and a fighter
 
R

rosesixtyfive

New member
I think maybe relatives don't realize how CF works - that we are fighting bacteria that can get into our children's lungs. I have had a relative pick up a paci off the floor and put it back into my child's mouth. I also had a relative buy a used swing and not wipe all the grime off of it (could've been mold), but I did say something, and after much argument about whether it was mold or grime (like either one would have been good), the chair was thoroughly bleached down for a second time.
<br />
<br />I don't want my child in a bubble, but if there are things we can do to help him without stifling his burgeoning quest for independence, then as caregivers we should do them. I plan to type up a sheet called "The Care and Feeding of Samuel" and I want to list the things that are good for Sam and the things that are bad, and explain on this sheet why a mom of a child with CF would live in a constant state of paranoia. After I type it up, I'll give it to any of you who are interested. Also, any tips you have as to what to add would be greatly appreciated.
<br />
<br />rosesixtyfive, mother of Sam, 3 months old, DDf508, and a fighter
 
F

fourkidsmom

New member
I understand where you are coming from- they still do it though...... Frustrating I know.
The worst for me was when my husbands 1/2 brother with cf spoon fed my son with cf when he was a baby-- I freaked out-it was bad enough to have them together and my son had been in the hospital for months before that. It is HARD I know!!!

Hang in there. The thing is we can't keep them from them but I do wish they would honor our wishes.....
 
F

fourkidsmom

New member
I understand where you are coming from- they still do it though...... Frustrating I know.
The worst for me was when my husbands 1/2 brother with cf spoon fed my son with cf when he was a baby-- I freaked out-it was bad enough to have them together and my son had been in the hospital for months before that. It is HARD I know!!!

Hang in there. The thing is we can't keep them from them but I do wish they would honor our wishes.....
 
F

fourkidsmom

New member
I understand where you are coming from- they still do it though...... Frustrating I know.
The worst for me was when my husbands 1/2 brother with cf spoon fed my son with cf when he was a baby-- I freaked out-it was bad enough to have them together and my son had been in the hospital for months before that. It is HARD I know!!!

Hang in there. The thing is we can't keep them from them but I do wish they would honor our wishes.....
 
F

fourkidsmom

New member
I understand where you are coming from- they still do it though...... Frustrating I know.
The worst for me was when my husbands 1/2 brother with cf spoon fed my son with cf when he was a baby-- I freaked out-it was bad enough to have them together and my son had been in the hospital for months before that. It is HARD I know!!!

Hang in there. The thing is we can't keep them from them but I do wish they would honor our wishes.....
 
F

fourkidsmom

New member
I understand where you are coming from- they still do it though...... Frustrating I know.
<br />The worst for me was when my husbands 1/2 brother with cf spoon fed my son with cf when he was a baby-- I freaked out-it was bad enough to have them together and my son had been in the hospital for months before that. It is HARD I know!!!
<br />
<br />Hang in there. The thing is we can't keep them from them but I do wish they would honor our wishes.....
<br />
<br />
<br />
<br />
 
F

fourkidsmom

New member
I understand where you are coming from- they still do it though...... Frustrating I know.
The worst for me was when my husbands 1/2 brother with cf spoon fed my son with cf when he was a baby-- I freaked out-it was bad enough to have them together and my son had been in the hospital for months before that. It is HARD I know!!!

Hang in there. The thing is we can't keep them from them but I do wish they would honor our wishes.....
 
F

fourkidsmom

New member
I understand where you are coming from- they still do it though...... Frustrating I know.
The worst for me was when my husbands 1/2 brother with cf spoon fed my son with cf when he was a baby-- I freaked out-it was bad enough to have them together and my son had been in the hospital for months before that. It is HARD I know!!!

Hang in there. The thing is we can't keep them from them but I do wish they would honor our wishes.....
 
F

fourkidsmom

New member
I understand where you are coming from- they still do it though...... Frustrating I know.
The worst for me was when my husbands 1/2 brother with cf spoon fed my son with cf when he was a baby-- I freaked out-it was bad enough to have them together and my son had been in the hospital for months before that. It is HARD I know!!!

Hang in there. The thing is we can't keep them from them but I do wish they would honor our wishes.....
 
F

fourkidsmom

New member
I understand where you are coming from- they still do it though...... Frustrating I know.
The worst for me was when my husbands 1/2 brother with cf spoon fed my son with cf when he was a baby-- I freaked out-it was bad enough to have them together and my son had been in the hospital for months before that. It is HARD I know!!!

Hang in there. The thing is we can't keep them from them but I do wish they would honor our wishes.....
 
F

fourkidsmom

New member
I understand where you are coming from- they still do it though...... Frustrating I know.
<br />The worst for me was when my husbands 1/2 brother with cf spoon fed my son with cf when he was a baby-- I freaked out-it was bad enough to have them together and my son had been in the hospital for months before that. It is HARD I know!!!
<br />
<br />Hang in there. The thing is we can't keep them from them but I do wish they would honor our wishes.....
<br />
<br />
 
T

TonyaH

Guest
Hey Sarah,

You could always put a spoon in your mouth, slobber all over it, then stuff it in Grandma's mouth and see how she feels! That's just gross!

We never had that issue, but we do have the smoking issue with my father. Andrew has been to his home maybe 10 times in the 12 years of his life. And those times were mostly spent outside. I won't pretend to understand his addiction, so he better not pretend to understand what I go through every day to keep Andrew healthy!

Good luck!
 
T

TonyaH

Guest
Hey Sarah,

You could always put a spoon in your mouth, slobber all over it, then stuff it in Grandma's mouth and see how she feels! That's just gross!

We never had that issue, but we do have the smoking issue with my father. Andrew has been to his home maybe 10 times in the 12 years of his life. And those times were mostly spent outside. I won't pretend to understand his addiction, so he better not pretend to understand what I go through every day to keep Andrew healthy!

Good luck!
 
T

TonyaH

Guest
Hey Sarah,

You could always put a spoon in your mouth, slobber all over it, then stuff it in Grandma's mouth and see how she feels! That's just gross!

We never had that issue, but we do have the smoking issue with my father. Andrew has been to his home maybe 10 times in the 12 years of his life. And those times were mostly spent outside. I won't pretend to understand his addiction, so he better not pretend to understand what I go through every day to keep Andrew healthy!

Good luck!
 
T

TonyaH

Guest
Hey Sarah,

You could always put a spoon in your mouth, slobber all over it, then stuff it in Grandma's mouth and see how she feels! That's just gross!

We never had that issue, but we do have the smoking issue with my father. Andrew has been to his home maybe 10 times in the 12 years of his life. And those times were mostly spent outside. I won't pretend to understand his addiction, so he better not pretend to understand what I go through every day to keep Andrew healthy!

Good luck!
 
T

TonyaH

Guest
Hey Sarah,
<br />
<br />You could always put a spoon in your mouth, slobber all over it, then stuff it in Grandma's mouth and see how she feels! That's just gross!
<br />
<br />We never had that issue, but we do have the smoking issue with my father. Andrew has been to his home maybe 10 times in the 12 years of his life. And those times were mostly spent outside. I won't pretend to understand his addiction, so he better not pretend to understand what I go through every day to keep Andrew healthy!
<br />
<br />Good luck!
<br />
<br />
 
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