old episode of ER

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Seana30

New member
First off......Jenn

I am an EMT so I have been a part of many codes, and I agree.......IT IS NOTHING LIKE TV. I have broken ribs on elderly people, and watched parents scream as you try to help their children. I have a hard time with DNR's though because most people don't realize that all it takes is one family member freaking out and saying "DO SOMETHING.......HELP HIM/HER that the DNR is no longer in effect. Once an immediate family member says so the DNR is no longer in effect and we have to do everything to try to save the patient. This REALLY bothers me.

Ok..........Courtney knows just about everything about CF. As a matter of fact we had another long discussion about it after we sat down and watched Amy's show on TV. I have given her the statistics on how long a CFer normally lives and what happens to the body as you age.

We try to keep a very upbeat attitude about it though. I tell her by taking care of herself, and a little bit of luck she could grow to be an old lady.

I told the girls about the show I watched last night and just bluntly asked them what they would want if something happened to them. They seemed okay with me asking. Courtney (13 with CF) immediately said she would not want life support. Lauren (15 no CF) said that she would want everything possible done. I did not ask my 11 year old son, I don't think he is ready to hear something like that.

Seana
 
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Emily65Roses

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Seana30</b></i>
Ok..........Courtney knows just about everything about CF. As a matter of fact we had another long discussion about it after we sat down and watched Amy's show on TV. I have given her the statistics on how long a CFer normally lives and what happens to the body as you age.
We try to keep a very upbeat attitude about it though. I tell her by taking care of herself, and a little bit of luck she could grow to be an old lady.
</end quote></div>

See, that's perfect. I know my opinion doesn't really matter. You're her mother, not me. But that's all I want. I want kids to have all the information. I don't want parents to go around skipping and chanting "You're gonna die! You're gonna die!" I want parents to give their kids hope "Do your meds and therapy, and you'll live longer." Etc. But I do think kids should have the information that you have as well. It's at your disposal, and you're not even the one with it. If it's in their body, I don't see the point of lying or telling half-truths. That's all I mean, really. So I really like the way you handled it. Heh. *shrug*
 
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Seana30

New member
Thank you Emily....your post means a lot. As a parent you seem to have SO MANY doubts. I never second guessed myself as much as I do as a parent!! I want my kids to know what real life is like, but you don't want to scare them to death. It is a really fine line to walk!

Thanks for your words!

Seana
 
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cutiepatootie

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Seana30</b></i> First off......Jenn
I am an EMT so I have been a part of many codes, and I
agree.......IT IS NOTHING LIKE TV. I have broken ribs on elderly
people, and watched parents scream as you try to help their
children. I have a hard time with DNR's though because most people
don't realize that all it takes is one family member freaking out
and saying "DO SOMETHING.......HELP HIM/HER that the DNR is no
longer in effect. Once an immediate family member says so the DNR
is no longer in effect and we have to do everything to try to save
the patient. This REALLY bothers me. Ok..........Courtney knows
just about everything about CF. As a matter of fact we had another
long discussion about it after we sat down and watched Amy's show
on TV. I have given her the statistics on how long a CFer normally
lives and what happens to the body as you age. We try to keep a
very upbeat attitude about it though. I tell her by taking care of
herself, and a little bit of luck she could grow to be an old lady.
I told the girls about the show I watched last night and just
bluntly asked them what they would want if something happened to
them. They seemed okay with me asking. Courtney (13 with CF)
immediately said she would not want life support. Lauren (15 no CF)
said that she would want everything possible done. I did not ask my
11 year old son, I don't think he is ready to hear something like
that. Seana</end quote></div><br>
<br>
<span style=
" color: #800000; font-size: small; font-family: Arial;">I'm glad
to here your conversation went well with your two kids, and your
probalby right about not asking your 11 year old son, he probably
is a little to young for that question.  All I have to say is
that I wish my parents would have asked me instead of me having to
go to them and tell them what I wanted, it would have been allot
easier.  One more thing, I would just like to say you sound
like a great mother and your kids should be lucky to have you as
there mom.  I'm saying this because that's what I think and
also I was reading your post from I can't believe...... and then I
went and red all the posts that were lock out from last year
(7/27/05, 7/28/05, 7/28/05) you sound like a great mother to me. I
just want to say I could only imagine what my parents went through
when they first found out I have CF.  They have told me some
of what they were feeling, but I don't think they told me
everything.  After reading that I want to talk to my parents a
little more on what they went through when they first found out.
 Anyways thanks for posting that, it really made me think.
  You really do sound like a good mother! <img src="i/expressions/sun.gif" border="0">
 
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anonymous

New member
Hmmm... I've never talked to ANYONE about this... not my parents, husband, or doctor! (Gosh, you think I should?!?! doh!) I'm 28 years old. I guess I ought to think about it, but I guess I really don't know what I want. What a difficult decision.

Sonia
 
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Seana30

New member
Karla,

THANK YOU SO MUCH FOR YOUR KIND WORDS!

I became a mom at the age of 17. I did not even finish high school, but the one thing I pride myself on is trying to be the best mom possible.

Throwing CF into that equation makes for some really interesting times!!

Your post brought tears to my eyes. Your words mean alot to me!!

Take care

Seana
 
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cutiepatootie

New member
<span style=
" font-family: Arial; font-size: small; color: #800000;">Seana,<br>
<br>
I just wanted to say hearing that I brought tears to your eyes made
me start tearing up too.  I'm glad that my words mean that
much to you.  I was only speaking the truth though, because if
your anything like my mom was when I was a child, and it sounds
like you are, you must be a great mother then.  I hope all
your kids live long, <span style=
" font-family: Arial; font-size: small; color: #800000;">healthy,
<span style=
" font-family: Arial; font-size: small; color: #800000;">and
<span style=
" font-family: Arial; font-size: small; color: #800000;">happy
<span style=
" font-family: Arial; font-size: small; color: #800000;">lives
<span style=
" font-family: Arial; font-size: small; color: #800000;">especially
Courtney.  Be happy and health!<br>
<br>
Take good care of your self, and your kids!<br>
<br>
<img src="i/expressions/rose.gif" border="0"> Karla <img src="i/expressions/face-icon-small-smile.gif" border="0"><br>
<br>
 <span style=
" font-family: Arial; font-size: small; color: #800000;"> 
 
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Vampy

New member
I dont remember my mom ever talking to me about this. Though my aunt bought my gravesite by my great grandparents ....i dont want to be buried in ohio i want to be buried in our family cemetary. where all my family was buried. its in kentucky. I told them this but i dont think they want to hear it. The drs gave me a living will and i cant fill it out yet because i dont understand things like that. So i am gonna have someone explain it to me.
 
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