oral antibiotics for pseudomonas

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anonymous

New member
Hi all,
I was wondering what antibiotics people usually go on, other than Cipro, when they have a flare up. Even though I am technically still sensitive to Cipro, it rarely does anything, and when I get sick I almost always need IV meds. I was on IV meds 3 weeks ago, and I am already sick again.
Mary
 
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Jo

New member
i have the same problem. i came out of hospital 2 weeks ago and have been taking cipro but im sick again now. <img src="i/expressions/face-icon-small-sad.gif" border="0">
 
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Joblazer86

New member
I always go on IV meds now! I just got off of them 3 days ago and I already have a cold but I have been using oral gsh and it helps. They do not give me any antibiotics to take orally anymore maybe b/c it won't work with me anymore.
 
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Emily65Roses

New member
Cipro hasn't worked for me in quite some time as well. They always try it with the pseudomonas, but it never does anything other than tear up my intestines. Heh. Zithromax is a good idea, it seems to work well for me. Other than that, usually they try Cipro and then give up and put me on IV again, so I don't know.
 
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anonymous

New member
I am on Zithromax too, but I have found that it doesn't do much. I've been on it since I think january 2003...I dont know it just doesnt seem to have made much of a difference...and I never noticed feeling any better when I first went on it. I wish there were more meds!!

Caitlin
 
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jenhum

New member
i'm on zithro everyday...i used to do the MWF schedule, but i was bad about remembering to take it. it's easier for me to just take a smaller dose everyday. when i first started taking it i gained lotsa weight and my numbers jumped up. but it doesn't seem to have much of an effect anymore. hmmm, in fact it stopped having an effect when i switched from taking it mwf to everyday...maybe i should switch back!
 
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anonymous

New member
Have you tried Leviquin? It may be too much like Cipro that it wouldn't do much good either, but may be worth a shot.
The last time I did Cipro, it did absolutely nothing for me, then I found out I had staph as well as pseudomonas, so I did doxycycline for the staph & that helped. It just turned out that I was treating the wrong infection I guess. Do you have both as well?
 
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anonymous

New member
I am given a lot of Tobramycin - I can't recall if it attacks Pseud or whether it just stops Strep and Staph getting worse around the Pseud infection
Cindy
 
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NoDayButToday

New member
I've always been under the impression that Zithromax is used in CF primarily as an anti-inflammatory as opposed to an antibiotic. That's why Cfers are on it continously. Anyone else hear differntly?
 
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jaime

New member
Yeah, coll, thats what I was told also that zithromax is not for infections. For pseudomonas I have taken cipro too and it never helps. Recently I did take cipro in a liquid form and that helped a little. My doc suggested it because she thought maybe my liver was not processing the pill well (due to cirrhosis) Anyway, I noticed the liquid form was a little more useful than the pill---but it does taste nasty!! I have to admit that nothing works quite like good old IVs.
 
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anonymous

New member
Leviquin works really well for me when I'm sick. I have never taken cipro befor that I recall. I take zithro on MWF as well. Eva
 
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anonymous

New member
I already take Zithromax 3x a week also. I've been on that for about a yr and half. I have tried Levaquin, but it didn't do anything. That's in the same family as Cipro, so usually if Cipro doesn't work, neither will Levaquin.
Mary
 
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anonymous

New member
I have pseudonomas and b. cepacia. They constantly test my sputum for sensitivities and do synergy testing. I don't know if they do this because I have b. cepacia, or do they always test you guys to see which antibiotic works best? I'm guessing not, since it seems they keep 'trying' antibiotics on you. It seems I do 2 iv antibiotics every 6 weeks for 3 weeks (because of an increase in my symptoms). It is exhausting. Does that seem to be the norm for you guys that do iv's? I thought the regime was indicated due to my cepacia.
 
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anonymous

New member
Hi, I also have pseudomonas and b cepacia, I was put on nebulised Taurolin eight weeks ago for the cepacia does anyone have any experience of this? I nebulise colomycin and tobi alternate months for the pseudomonas and take fluclox orally for staph, I don't take any oral antibiotic for the pseudomonas . The hope is that the taurolin will cut down on the amount of iv's needed, can't really tell yet if it's working yet. What is synergy testing? They do check my sputum for sensitivities all the time but this was done even when I didn't have cepacia. RM. Ireland.
 
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anonymous

New member
Never heard of the neb you mentioned - would like more info. My husband does 28 days TOBI 28 days colistin. His adult CF clinic sends his culture to somewhere in NY for synergy testing - since no one antibiotic is effective, they test different combinations of antibiotics to see if they will show sensitivity. It takes a while for the results. They alwasy say they 'hope' what works in the petry dish works in his lungs. He's 45 - how old are you? Good luck!
 
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