Overwhelmed & Discouraged

amyr

New member
I usually always try to stay upbeat and focus all of my energy on raising awareness of this disease and it's atypical presentations but lately it's getting the best of me. All three of my kids have had various non stop lung and belly issues over the past several months and honestly I'm just maxed out with all of the illness. It really gets old!
Then there is my "healthy" oldest son who for whatever reason had lost 10+lbs since the fall. He's 15 and should be gaining not losing. I took him to our GI and his immediate response was I think we need to look into CF here.. Were starting off with labs and as horrible as this sounds I am praying that it's Crohns. (My exhusband and his father have crohns) because having four with Atypical CF would, I'm pretty sure, put me over the edge! 
 

amyr

New member
I usually always try to stayupbeat and focus all of my energy on raising awareness of this disease and it's atypical presentations but lately it's getting the best of me. All three of my kidshave had various non stop lung and bellyissues over the past several months and honestly I'm just maxed out with all of the illness. It really gets old!
Then there is my "healthy" oldest son who for whatever reason had lost 10+lbs since the fall. He's 15 and should be gaining not losing.I took him to our GI and hisimmediate response was I think we need to look into CF here.. Were starting off with labs and as horrible as this sounds I am praying that it's Crohns. (My exhusband and his father have crohns) because having four with Atypical CF would, I'm pretty sure, put me over the edge!
 

amyr

New member
<p>I usually always try to stayupbeat and focus all of my energy on raising awareness of this disease and it's atypical presentations but lately it's getting the best of me. All three of my kidshave had various non stop lung and bellyissues over the past several months and honestly I'm just maxed out with all of the illness. It really gets old!
<p>Then there is my "healthy" oldest son who for whatever reason had lost 10+lbs since the fall. He's 15 and should be gaining not losing.I took him to our GI and hisimmediate response was I think we need to look into CF here.. Were starting off with labs and as horrible as this sounds I am praying that it's Crohns. (My exhusband and his father have crohns) because having four with Atypical CF would, I'm pretty sure, put me over the edge!
 

Beccamom

New member
I don't have any real advice as I only have one child being tested for CF, but you are in my thoughts and preyers.  I cannot imagine what your day to day must be.  I have just taken a 6 week leave of absence from work to take one child to a million doctor's appointment and medical tests.  Keep your head up.  I keep trying to convince myself that God wouldn't deal me more than I can handle.  However, I did have a long middle of the night cry last night.  Big hug!
 

Beccamom

New member
I don't have any real advice as I only have one child being tested for CF, but you are in my thoughts and preyers. I cannot imagine what your day to day must be. I have just taken a 6 week leave of absence from work to takeone child to a million doctor's appointment and medical tests. Keep your head up. I keep trying to convince myself that God wouldn't deal me more than I can handle. However, I did have a long middle of the night cry last night. Big hug!
 

Beccamom

New member
<p>I don't have any real advice as I only have one child being tested for CF, but you are in my thoughts and preyers. I cannot imagine what your day to day must be. I have just taken a 6 week leave of absence from work to takeone child to a million doctor's appointment and medical tests. Keep your head up. I keep trying to convince myself that God wouldn't deal me more than I can handle. However, I did have a long middle of the night cry last night. Big hug!
 

mom2owen

New member
Hi Amy, I am so sorry to hear about your troubles. I know how hard it has been for you and I am really sad to hear it is not getting better fast. Isn't it weird to hope your son has Crohn's, yet I know exactly how you feel. Is there anything that helps reduce your stress? I hope you will take some amount of time for yourself to keep up your own strength. And lean on those around you, including us here. Write me anytime and vent when you need to, we can take it and we understand in our own ways. Hang in there, sending hugs to you!
 

mom2owen

New member
Hi Amy, I am so sorry to hear about your troubles. I know how hard it has been for you and I am really sad to hear it is not getting better fast. Isn't it weird to hope your son has Crohn's, yet I know exactly how you feel. Is there anything that helps reduce your stress? I hope you will take some amount of time for yourself to keep up your own strength. And lean on those around you, including us here. Write me anytime and vent when you need to, we can take it and we understand in our own ways. Hang in there, sending hugs to you!
 

mom2owen

New member
Hi Amy, I am so sorry to hear about your troubles. I know how hard it has been for you and I am really sad to hear it is not getting better fast. Isn't it weird to hope your son has Crohn's, yet I know exactly how you feel. Is there anything that helps reduce your stress? I hope you will take some amount of time for yourself to keep up your own strength. And lean on those around you, including us here. Write me anytime and vent when you need to, we can take it and we understand in our own ways. Hang in there, sending hugs to you!
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M

Mommafirst

Guest
((((HUGS))))) I have no other words. Life is completely unfair. I hope your oldest does not have CF.
 
M

Mommafirst

Guest
((((HUGS))))) I have no other words. Life is completely unfair. I hope your oldest does not have CF.
 
M

Mommafirst

Guest
((((HUGS))))) I have no other words. Life is completely unfair. I hope your oldest does not have CF.
 
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