talk to your doctors and tell them that the ibprofen isnt taking affect that your still havin the pain, i understand where they are coming from on getting addicted to pain killers, but they dont understand the pain we have to deal with or you have to deal with...just keep informing him that your still havin the pain... 22 CF/CFRD
You are using an out of date browser. It may not display this or other websites correctly.
You should upgrade or use an alternative browser.
You should upgrade or use an alternative browser.
Pain killers
- Thread starter crystalina0814
- Start date
talk to your doctors and tell them that the ibprofen isnt taking affect that your still havin the pain, i understand where they are coming from on getting addicted to pain killers, but they dont understand the pain we have to deal with or you have to deal with...just keep informing him that your still havin the pain... 22 CF/CFRD
talk to your doctors and tell them that the ibprofen isnt taking affect that your still havin the pain, i understand where they are coming from on getting addicted to pain killers, but they dont understand the pain we have to deal with or you have to deal with...just keep informing him that your still havin the pain... 22 CF/CFRD
talk to your doctors and tell them that the ibprofen isnt taking affect that your still havin the pain, i understand where they are coming from on getting addicted to pain killers, but they dont understand the pain we have to deal with or you have to deal with...just keep informing him that your still havin the pain... 22 CF/CFRD
talk to your doctors and tell them that the ibprofen isnt taking affect that your still havin the pain, i understand where they are coming from on getting addicted to pain killers, but they dont understand the pain we have to deal with or you have to deal with...just keep informing him that your still havin the pain... 22 CF/CFRD
bagged2drag
Active member
I know exactly what you are talking about as well. I too, have constant joint pain; sometimes it is difficult to walk, and I swell up pretty bad/joints turn all red. I also have a tremendous amount of stomach pain. It is extremely painful to eat much of the time, and hurts without eating as well. I also have 2 confirmed, but I think a 3rd hernia as well. If there is one thing I hate most about cf, it is the almost constant pain I am in, at least these past few years. I get lung discomfort occasionally, but that is nothing compared to the rest. Occasionally, my stomach gets soooooo bad that I will literally become drenched with sweat fighting the pain. My doc, who is a great doc by the way, doesn't want me to have the pain meds because of all my stomach problems. I really want something for the really bad days, but I haven't gotten anything. I understand her concern, and she definitely has tried many other types of pain meds (such as rx strength aleve and various in the ibuprofen family) , but they don't do anything for the pain.
I guess I haven't pushed super hard, but these past few months are really starting to push my limits. I have been quite stressed out as well, but I don't portray that to anyone (except here-where nobody knows my face). About now, I wouldn't even mind something just to take the edge off-get my mind off things. I really don't like reality too much anymore. <img src="i/expressions/face-icon-small-blush.gif" border="0">(
I hope things turn out for you okay, I wish you luck.
I guess I haven't pushed super hard, but these past few months are really starting to push my limits. I have been quite stressed out as well, but I don't portray that to anyone (except here-where nobody knows my face). About now, I wouldn't even mind something just to take the edge off-get my mind off things. I really don't like reality too much anymore. <img src="i/expressions/face-icon-small-blush.gif" border="0">(
I hope things turn out for you okay, I wish you luck.
bagged2drag
Active member
I know exactly what you are talking about as well. I too, have constant joint pain; sometimes it is difficult to walk, and I swell up pretty bad/joints turn all red. I also have a tremendous amount of stomach pain. It is extremely painful to eat much of the time, and hurts without eating as well. I also have 2 confirmed, but I think a 3rd hernia as well. If there is one thing I hate most about cf, it is the almost constant pain I am in, at least these past few years. I get lung discomfort occasionally, but that is nothing compared to the rest. Occasionally, my stomach gets soooooo bad that I will literally become drenched with sweat fighting the pain. My doc, who is a great doc by the way, doesn't want me to have the pain meds because of all my stomach problems. I really want something for the really bad days, but I haven't gotten anything. I understand her concern, and she definitely has tried many other types of pain meds (such as rx strength aleve and various in the ibuprofen family) , but they don't do anything for the pain.
I guess I haven't pushed super hard, but these past few months are really starting to push my limits. I have been quite stressed out as well, but I don't portray that to anyone (except here-where nobody knows my face). About now, I wouldn't even mind something just to take the edge off-get my mind off things. I really don't like reality too much anymore. <img src="i/expressions/face-icon-small-blush.gif" border="0">(
I hope things turn out for you okay, I wish you luck.
I guess I haven't pushed super hard, but these past few months are really starting to push my limits. I have been quite stressed out as well, but I don't portray that to anyone (except here-where nobody knows my face). About now, I wouldn't even mind something just to take the edge off-get my mind off things. I really don't like reality too much anymore. <img src="i/expressions/face-icon-small-blush.gif" border="0">(
I hope things turn out for you okay, I wish you luck.
bagged2drag
Active member
I know exactly what you are talking about as well. I too, have constant joint pain; sometimes it is difficult to walk, and I swell up pretty bad/joints turn all red. I also have a tremendous amount of stomach pain. It is extremely painful to eat much of the time, and hurts without eating as well. I also have 2 confirmed, but I think a 3rd hernia as well. If there is one thing I hate most about cf, it is the almost constant pain I am in, at least these past few years. I get lung discomfort occasionally, but that is nothing compared to the rest. Occasionally, my stomach gets soooooo bad that I will literally become drenched with sweat fighting the pain. My doc, who is a great doc by the way, doesn't want me to have the pain meds because of all my stomach problems. I really want something for the really bad days, but I haven't gotten anything. I understand her concern, and she definitely has tried many other types of pain meds (such as rx strength aleve and various in the ibuprofen family) , but they don't do anything for the pain.
I guess I haven't pushed super hard, but these past few months are really starting to push my limits. I have been quite stressed out as well, but I don't portray that to anyone (except here-where nobody knows my face). About now, I wouldn't even mind something just to take the edge off-get my mind off things. I really don't like reality too much anymore. <img src="i/expressions/face-icon-small-blush.gif" border="0">(
I hope things turn out for you okay, I wish you luck.
I guess I haven't pushed super hard, but these past few months are really starting to push my limits. I have been quite stressed out as well, but I don't portray that to anyone (except here-where nobody knows my face). About now, I wouldn't even mind something just to take the edge off-get my mind off things. I really don't like reality too much anymore. <img src="i/expressions/face-icon-small-blush.gif" border="0">(
I hope things turn out for you okay, I wish you luck.
bagged2drag
Active member
I know exactly what you are talking about as well. I too, have constant joint pain; sometimes it is difficult to walk, and I swell up pretty bad/joints turn all red. I also have a tremendous amount of stomach pain. It is extremely painful to eat much of the time, and hurts without eating as well. I also have 2 confirmed, but I think a 3rd hernia as well. If there is one thing I hate most about cf, it is the almost constant pain I am in, at least these past few years. I get lung discomfort occasionally, but that is nothing compared to the rest. Occasionally, my stomach gets soooooo bad that I will literally become drenched with sweat fighting the pain. My doc, who is a great doc by the way, doesn't want me to have the pain meds because of all my stomach problems. I really want something for the really bad days, but I haven't gotten anything. I understand her concern, and she definitely has tried many other types of pain meds (such as rx strength aleve and various in the ibuprofen family) , but they don't do anything for the pain.
I guess I haven't pushed super hard, but these past few months are really starting to push my limits. I have been quite stressed out as well, but I don't portray that to anyone (except here-where nobody knows my face). About now, I wouldn't even mind something just to take the edge off-get my mind off things. I really don't like reality too much anymore. <img src="i/expressions/face-icon-small-blush.gif" border="0">(
I hope things turn out for you okay, I wish you luck.
I guess I haven't pushed super hard, but these past few months are really starting to push my limits. I have been quite stressed out as well, but I don't portray that to anyone (except here-where nobody knows my face). About now, I wouldn't even mind something just to take the edge off-get my mind off things. I really don't like reality too much anymore. <img src="i/expressions/face-icon-small-blush.gif" border="0">(
I hope things turn out for you okay, I wish you luck.
bagged2drag
Active member
I know exactly what you are talking about as well. I too, have constant joint pain; sometimes it is difficult to walk, and I swell up pretty bad/joints turn all red. I also have a tremendous amount of stomach pain. It is extremely painful to eat much of the time, and hurts without eating as well. I also have 2 confirmed, but I think a 3rd hernia as well. If there is one thing I hate most about cf, it is the almost constant pain I am in, at least these past few years. I get lung discomfort occasionally, but that is nothing compared to the rest. Occasionally, my stomach gets soooooo bad that I will literally become drenched with sweat fighting the pain. My doc, who is a great doc by the way, doesn't want me to have the pain meds because of all my stomach problems. I really want something for the really bad days, but I haven't gotten anything. I understand her concern, and she definitely has tried many other types of pain meds (such as rx strength aleve and various in the ibuprofen family) , but they don't do anything for the pain.
<br />
<br />I guess I haven't pushed super hard, but these past few months are really starting to push my limits. I have been quite stressed out as well, but I don't portray that to anyone (except here-where nobody knows my face). About now, I wouldn't even mind something just to take the edge off-get my mind off things. I really don't like reality too much anymore. <img src="i/expressions/face-icon-small-blush.gif" border="0">(
<br />
<br />I hope things turn out for you okay, I wish you luck.
<br />
<br />I guess I haven't pushed super hard, but these past few months are really starting to push my limits. I have been quite stressed out as well, but I don't portray that to anyone (except here-where nobody knows my face). About now, I wouldn't even mind something just to take the edge off-get my mind off things. I really don't like reality too much anymore. <img src="i/expressions/face-icon-small-blush.gif" border="0">(
<br />
<br />I hope things turn out for you okay, I wish you luck.
Let me just put this thought out - CF doctors are usually pulmonologists. They may have experience and knowledge of pain management, but especially for ongoing issues, they are not the experts.
If you have an arthritis-type condition, if you are seeing a specialist for that (just like you should see an Endocrinologist for CFRD, or a GI specialist for hiatal hernia, for example), that is who you should be talking to for treatment. Just because a problem is common in people with CF, doesn't mean that your CF should be the go-to person for treatment and management.
If you have issues relating to CF outside of lung involvement, it's probably a good idea to at least "retain" a specialist in those particular areas, see them at least once for an evaluation. If you don't have specialist(s), ask for a referral. Good luck!
If you have an arthritis-type condition, if you are seeing a specialist for that (just like you should see an Endocrinologist for CFRD, or a GI specialist for hiatal hernia, for example), that is who you should be talking to for treatment. Just because a problem is common in people with CF, doesn't mean that your CF should be the go-to person for treatment and management.
If you have issues relating to CF outside of lung involvement, it's probably a good idea to at least "retain" a specialist in those particular areas, see them at least once for an evaluation. If you don't have specialist(s), ask for a referral. Good luck!
Let me just put this thought out - CF doctors are usually pulmonologists. They may have experience and knowledge of pain management, but especially for ongoing issues, they are not the experts.
If you have an arthritis-type condition, if you are seeing a specialist for that (just like you should see an Endocrinologist for CFRD, or a GI specialist for hiatal hernia, for example), that is who you should be talking to for treatment. Just because a problem is common in people with CF, doesn't mean that your CF should be the go-to person for treatment and management.
If you have issues relating to CF outside of lung involvement, it's probably a good idea to at least "retain" a specialist in those particular areas, see them at least once for an evaluation. If you don't have specialist(s), ask for a referral. Good luck!
If you have an arthritis-type condition, if you are seeing a specialist for that (just like you should see an Endocrinologist for CFRD, or a GI specialist for hiatal hernia, for example), that is who you should be talking to for treatment. Just because a problem is common in people with CF, doesn't mean that your CF should be the go-to person for treatment and management.
If you have issues relating to CF outside of lung involvement, it's probably a good idea to at least "retain" a specialist in those particular areas, see them at least once for an evaluation. If you don't have specialist(s), ask for a referral. Good luck!
Let me just put this thought out - CF doctors are usually pulmonologists. They may have experience and knowledge of pain management, but especially for ongoing issues, they are not the experts.
If you have an arthritis-type condition, if you are seeing a specialist for that (just like you should see an Endocrinologist for CFRD, or a GI specialist for hiatal hernia, for example), that is who you should be talking to for treatment. Just because a problem is common in people with CF, doesn't mean that your CF should be the go-to person for treatment and management.
If you have issues relating to CF outside of lung involvement, it's probably a good idea to at least "retain" a specialist in those particular areas, see them at least once for an evaluation. If you don't have specialist(s), ask for a referral. Good luck!
If you have an arthritis-type condition, if you are seeing a specialist for that (just like you should see an Endocrinologist for CFRD, or a GI specialist for hiatal hernia, for example), that is who you should be talking to for treatment. Just because a problem is common in people with CF, doesn't mean that your CF should be the go-to person for treatment and management.
If you have issues relating to CF outside of lung involvement, it's probably a good idea to at least "retain" a specialist in those particular areas, see them at least once for an evaluation. If you don't have specialist(s), ask for a referral. Good luck!
Let me just put this thought out - CF doctors are usually pulmonologists. They may have experience and knowledge of pain management, but especially for ongoing issues, they are not the experts.
If you have an arthritis-type condition, if you are seeing a specialist for that (just like you should see an Endocrinologist for CFRD, or a GI specialist for hiatal hernia, for example), that is who you should be talking to for treatment. Just because a problem is common in people with CF, doesn't mean that your CF should be the go-to person for treatment and management.
If you have issues relating to CF outside of lung involvement, it's probably a good idea to at least "retain" a specialist in those particular areas, see them at least once for an evaluation. If you don't have specialist(s), ask for a referral. Good luck!
If you have an arthritis-type condition, if you are seeing a specialist for that (just like you should see an Endocrinologist for CFRD, or a GI specialist for hiatal hernia, for example), that is who you should be talking to for treatment. Just because a problem is common in people with CF, doesn't mean that your CF should be the go-to person for treatment and management.
If you have issues relating to CF outside of lung involvement, it's probably a good idea to at least "retain" a specialist in those particular areas, see them at least once for an evaluation. If you don't have specialist(s), ask for a referral. Good luck!
Let me just put this thought out - CF doctors are usually pulmonologists. They may have experience and knowledge of pain management, but especially for ongoing issues, they are not the experts.
<br />
<br />If you have an arthritis-type condition, if you are seeing a specialist for that (just like you should see an Endocrinologist for CFRD, or a GI specialist for hiatal hernia, for example), that is who you should be talking to for treatment. Just because a problem is common in people with CF, doesn't mean that your CF should be the go-to person for treatment and management.
<br />
<br />If you have issues relating to CF outside of lung involvement, it's probably a good idea to at least "retain" a specialist in those particular areas, see them at least once for an evaluation. If you don't have specialist(s), ask for a referral. Good luck!
<br />
<br />If you have an arthritis-type condition, if you are seeing a specialist for that (just like you should see an Endocrinologist for CFRD, or a GI specialist for hiatal hernia, for example), that is who you should be talking to for treatment. Just because a problem is common in people with CF, doesn't mean that your CF should be the go-to person for treatment and management.
<br />
<br />If you have issues relating to CF outside of lung involvement, it's probably a good idea to at least "retain" a specialist in those particular areas, see them at least once for an evaluation. If you don't have specialist(s), ask for a referral. Good luck!
My doctor was hesitant about darvocet and others b/c they contain a lot of tylenol, but that was right after my problem with the liver enzymes being too high with the meropenum. I take my husbands darvocet . I break them in half other wise they cause me a lot of anxiety. I try and take them just when i cant take the pain any more. I have noticed that they dry out my secretions in my lungs and nasal. I can have a runny nose and drip down the back of my throat and it stops also. That's just how it affects me though. I hope my pain doesn't get much more severe b/c I cant take hydrocodone or anything close to it. Makes me very sick for days (vomiting and dizzy)
regina/44/w/cf/b cepacia complex/cenocepacia/mrsa
regina/44/w/cf/b cepacia complex/cenocepacia/mrsa
My doctor was hesitant about darvocet and others b/c they contain a lot of tylenol, but that was right after my problem with the liver enzymes being too high with the meropenum. I take my husbands darvocet . I break them in half other wise they cause me a lot of anxiety. I try and take them just when i cant take the pain any more. I have noticed that they dry out my secretions in my lungs and nasal. I can have a runny nose and drip down the back of my throat and it stops also. That's just how it affects me though. I hope my pain doesn't get much more severe b/c I cant take hydrocodone or anything close to it. Makes me very sick for days (vomiting and dizzy)
regina/44/w/cf/b cepacia complex/cenocepacia/mrsa
regina/44/w/cf/b cepacia complex/cenocepacia/mrsa
My doctor was hesitant about darvocet and others b/c they contain a lot of tylenol, but that was right after my problem with the liver enzymes being too high with the meropenum. I take my husbands darvocet . I break them in half other wise they cause me a lot of anxiety. I try and take them just when i cant take the pain any more. I have noticed that they dry out my secretions in my lungs and nasal. I can have a runny nose and drip down the back of my throat and it stops also. That's just how it affects me though. I hope my pain doesn't get much more severe b/c I cant take hydrocodone or anything close to it. Makes me very sick for days (vomiting and dizzy)
regina/44/w/cf/b cepacia complex/cenocepacia/mrsa
regina/44/w/cf/b cepacia complex/cenocepacia/mrsa
My doctor was hesitant about darvocet and others b/c they contain a lot of tylenol, but that was right after my problem with the liver enzymes being too high with the meropenum. I take my husbands darvocet . I break them in half other wise they cause me a lot of anxiety. I try and take them just when i cant take the pain any more. I have noticed that they dry out my secretions in my lungs and nasal. I can have a runny nose and drip down the back of my throat and it stops also. That's just how it affects me though. I hope my pain doesn't get much more severe b/c I cant take hydrocodone or anything close to it. Makes me very sick for days (vomiting and dizzy)
regina/44/w/cf/b cepacia complex/cenocepacia/mrsa
regina/44/w/cf/b cepacia complex/cenocepacia/mrsa
My doctor was hesitant about darvocet and others b/c they contain a lot of tylenol, but that was right after my problem with the liver enzymes being too high with the meropenum. I take my husbands darvocet . I break them in half other wise they cause me a lot of anxiety. I try and take them just when i cant take the pain any more. I have noticed that they dry out my secretions in my lungs and nasal. I can have a runny nose and drip down the back of my throat and it stops also. That's just how it affects me though. I hope my pain doesn't get much more severe b/c I cant take hydrocodone or anything close to it. Makes me very sick for days (vomiting and dizzy)
<br />
<br /> regina/44/w/cf/b cepacia complex/cenocepacia/mrsa
<br />
<br /> regina/44/w/cf/b cepacia complex/cenocepacia/mrsa