Passing Time In The Hospital

NoDayButToday

New member
I'm currently in the hospital, and not suprisingly, am a little bit bored. I was just wondering how everyone else passes time in the hospital. I've been reading a lot, but any other ideas are appareciated
 

jenhum

New member
I like to watch DVD's on my laptop (or you can usually get a VCR from the hospital). Other than that it's pretty much just sleeping, reading, eating (NOT hospital food!!!), watching TV and talking on the phone. I'm jealous that you have internet though!!!

Don't you find it bizarre that you can't get phone calls after like 10 but the nurses will come take your freaking blood pressure at 3am and try to carry on a conversation with you? lol...Can you tell how much I looove the hospital?

Anyway, I hope the time goes by quickly and that you come out feeling a lot better!!!
 

anonymous

New member
I'm in the hospital right now too. I am having sinus surgery on Mon and also getting a g-tube. I have my laptop so I surf the web talk on boards. I watch TV, read and talk to my bf a lot. I'm so grateful for the laptop if I didn't have this I would go INSANE!!!

Nicole 22 CF
 

anonymous

New member
I go for long walks and also do stuff like search www for recipes and stuff. I am usually allowed out for a couple of hours at a time, so catch the bus to see the art galleries, photo exhibitions etc.. I make it my special me time... but I don't go too often - twice a year or so.
Mosaic can be therapeutic! Putting losts of bits of smashed tile in patterns can be great therapy!
Good luck in there.
 

anonymous

New member
your allowed to leave the hopsital? Here we can't do that. We aren't even supposed ti leave our room.

Nicole 22 CF
 

anonymous

New member
When I'm in I usually do the movie thing, watch some TV, read, play games, go outside and I 'm very rarely in my room...Either the nurses are in my room eating/watching tv or I'm with them getting food. There's usually at least one party in the room too...either New Year's eve or just a sleepover. At my hospital (children's in Detroit) I'm allowed to go on Leave of Absences (LOA's). I can get unhooked and leave the hospital between meds. I usually do it once or twice a week just to keep my insanity.
Ask your docs about LOA's..they're a real life saver,
Emily 22 pwcf
 

Starfall99

New member
You're so lucky about the leave of absences, I used to be allowed to do that but the insurance companies apparently cracked down on it saying if we could leave we clearly weren't sick enough to need to be in the hospital and they weren't going to pay blah blah blah. Of course, that just meant my nurses occasionally let me slip out for a little while without any official leave of absence paperwork. <img src="i/expressions/face-icon-small-wink.gif" border="0">

Laptops are the best invention ever for tune-up sanity! I'm also an artist so I do art stuff to pass the time -- my trademark is making little people out of clay and hanging them all over my IV pole and other available surfaces (I call them Pole People). <img src="i/expressions/face-icon-small-smile.gif" border="0"> Then I started taking them and putting them all around the unit in different nooks and crannies when I was discharged, and apparently the nurses loved finding them, so that was fun. <img src="i/expressions/face-icon-small-smile.gif" border="0">

Of course, for those of us in school, there's always homework to pass the time... <img src="i/expressions/face-icon-small-disgusted.gif" border="0">

Eliana
25 w/ cf
 

1wish

New member
<blockquote>Quote<br><hr><i>Originally posted by: <b>Anonymous</b></i><br>This may sound incredibly boring, but do any of you do word search puzzles, cross words, etc?<hr></blockquote>

Hi, This is Coll's mom Kathy. Unfortunately Colleen awoke this morning to a broken tv/internet at the hospital and cannot post <img src="i/expressions/face-icon-small-sad.gif" border="0">((
I guess she'll be doing Logic Problems and Crosswords until it gets fixed. Hope all who are in the hospital feel better and are home soon!
 

Diane

New member
You could always ask to go to Physical therapy and walk on the treadmill a while. It helps pass the time and the exercise is always beneficial. I also used to put on my normal clothes ( i RARELY EVER wear hospital gowns) and go out side to walk around. We really arent supposed to , but my nurse said as long as i am back in time for my iv meds it would be ok. I always make my own bed while i am in there, gives me something to do, and makes me feel more at home to do normal things like that. Remember to always wash your hands when returning to your room, and wipe off everything in that room with alcohol ( ask the nurses for a box of alcohol wipes) that you touch. Its the best way to prevent b.cepacia. ( i got it while being in the hospital) i had no idea how it was transmitted and was careless about everything i touched. ( didnt even know what b.cepacia was till i got it) . It's so cool that you have internet access while in the hospital. I hope you come out feeling better than new <img src="i/expressions/face-icon-small-smile.gif" border="0"><img src="i/expressions/face-icon-small-smile.gif" border="0">
~Diane 39 / cf / diabetes / b.cepacia
 

1wish

New member
Diane, Thanks for the suggestions; this is our 1st time at this hospital so we're still getting familiar with things. I'm leaving work now to go back to hospital and will see about the treadmill! <img src="i/expressions/face-icon-small-smile.gif" border="0"> Kathy
 

anonymous

New member
first of all, Coll is a girl!? I thought she was a boy, short for Colin or something!! Haha, not that she ever said anything particularly boy-ish, but I just thought, I guess that is dumb of me!

We had the same thing happen with LOA's at my hospital, but I still leave anyway. My hospital is right in the city in a really busy area, and I usually will just escape and go outside and walk up and down the street. I walk up to fenway (im in boston) and just revel in the smell of gasoline because it is so much better than that sick smell of hospital!

The last cleanout i had I was able to do the entire thing at home, I just went in and got my IV placed and then left. I am doing the same thing again starting tomorrow. I have to go in at 9 am to get my picc line placed, which hopefully will go ok. I am feeling unusually nervous, its like i just DONT want to go
 

anonymous

New member
<blockquote>Quote<br><hr><i>Originally posted by: <b>Anonymous</b></i><br>first of all, Coll is a girl!? I thought she was a boy, short for Colin or something!! Haha, not that she ever said anything particularly boy-ish, but I just thought, I guess that is dumb of me!



We had the same thing happen with LOA's at my hospital, but I still leave anyway. My hospital is right in the city in a really busy area, and I usually will just escape and go outside and walk up and down the street. I walk up to fenway (im in boston) and just revel in the smell of gasoline because it is so much better than that sick smell of hospital!



The last cleanout i had I was able to do the entire thing at home, I just went in and got my IV placed and then left. I am doing the same thing again starting tomorrow. I have to go in at 9 am to get my picc line placed, which hopefully will go ok. I am feeling unusually nervous, its like i just DONT want to go<hr></blockquote>

Hey I am in Boston too. I'm in childrens' right now I have surgery tomorrow. Man they never let me leave!! Ya most of the time I start my cleanouts here ans hen do the rest at home its so much better that way. I hate stayin here with a passion and the food is pretty bad!!

Nicole 22 CF
 

anonymous

New member
Yeah Nicole children's is crazy. Now they NEVER let people leave on LOA's, and when I have joked about "sneaking out" to the nurses they do not think it is funny, or at least they sure pretend not to. I got my PICC line placed this morning in interventional radiology...what a nightmare...the first part went ok but then a "student" was finishing the rest and massacreing my arm. I am home now though, and it is much better than doing a cleanout in the hospital that is for sure. Coll I am sorry I thought you were a boy! I hope everything is going well for you and it looks like you got your internet back up so that is good.

Caitlin
21 w CF
 

jenhum

New member
My hospital also doesn't approve of leaving. But when I know I have a few hours between treatments, I tell the nurses I'm going to walk around the hospital for exercise (they can't say no to that!) and my mom picks me up out front and we go have fun for a bit.
 

anonymous

New member
I think it is nicer to be home also because everything is at my disposal. At my hospital people with CF cannot go into the kitchen, they have to ask a nurse to get them something. Half the time if I have been in the hospital, i am not necessarily that sick, and therefore I am not the nurses first priority and I feel like I am constantly annoying them if all I want is a glass of juice. Luckily the last time I was in I got my own fridge, which made a huge difference.

On another note I jsut need to vent that I started my meds at home last night, Tobramycin, Meropenem, and oral bactrim and zithromax, and i FEEL AWFUL. It sucks so much because I am doing this as a somewhat preventative cleanout: even though my pft's had dropped a little I was feeling fine and my ct scan was fine. And so I went from feeling fine over the holiday too feeling SOOO sick today. I guess it means the meds are working, I always spike a low grade fever on the first or second day of meds...does that happen to anyone else? My doctors always tell me it is a good sign because it means they are attacking the bugs, etc., so judging from how bad I feel I suppose I should be happy.

Caitlin 21 w CF
 

jenhum

New member
Caitlin, I just did almost that exact same regiment about a month ago! I'm allergic to Bactrim, so I did Tobi/Cipro instead. The Tobra and Meropenum made me feel really crappy for a while. The docs are right though, you'll feel better soon!!!
 
I am at home with a picc line as well. I did 3 weeks of the tobra /cipro but it didn't work. Now I am on Zosyn and Cipro. It seems to be working well. I hope so, I can't afford to be off work any longer! Whenever I get a picc line I have to have it placed down in radiology. The nurses always try to talk me into getting it placed up in my room (probably because it is cheaper for them and I have an HMO) but the few times I have tried this the picc won't go in. Does anyone else have a problem getting one in when they try it bedside?

One way I like to pass time in the hospital is to go to the maternity floor and look at all the brand new babies! You can only look through the glass, but it is still fun. Usually someone always asks me "which one is yours?" because they can obviously tell I am a patient.

Lindsey, 23
 

Diane

New member
I wanted to respond to Caitlin about the merepenum. I just got off of iv merepenum, and it always makes me nauseas about an hour after i administer it. The good thing is ....merepenum works well for patients with b.cepacia so i can deal with the nausea. Usually about a week or so into the iv's the nausea gets less frequent so its easier to deal with. As crazy as this may sound i find that if i eat some yogurt when the nausea starts its gets a little better. Hope you feel better soon<img src="i/expressions/face-icon-small-smile.gif" border="0">
~Diane 39 / cf / diabetes / b.cepacia
 
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