Playing sports with CF

[Mommafirst]

I don't know the answer to this because we haven't gotten that far yet. So let me say now that the rest of my advice comes from a pretty limited knowledge base on all this. My first inclination is that you probably don't HAVE to write it in -- though I don't know what kind of legal (insurance for the team organization) type thing might make a difference. The only thing I would be cautious of is that Austin knows its not a secret, that he doesn't have to keep it quiet or be ashamed of his CF. If its just not on the paper to avoid discrimination, but would be something that could be openly discussed, I don't see a problem with it.

 

[Mommafirst]

I don't know the answer to this because we haven't gotten that far yet. So let me say now that the rest of my advice comes from a pretty limited knowledge base on all this. My first inclination is that you probably don't HAVE to write it in -- though I don't know what kind of legal (insurance for the team organization) type thing might make a difference. The only thing I would be cautious of is that Austin knows its not a secret, that he doesn't have to keep it quiet or be ashamed of his CF. If its just not on the paper to avoid discrimination, but would be something that could be openly discussed, I don't see a problem with it.

 

[Mommafirst]

I don't know the answer to this because we haven't gotten that far yet. So let me say now that the rest of my advice comes from a pretty limited knowledge base on all this. My first inclination is that you probably don't HAVE to write it in -- though I don't know what kind of legal (insurance for the team organization) type thing might make a difference. The only thing I would be cautious of is that Austin knows its not a secret, that he doesn't have to keep it quiet or be ashamed of his CF. If its just not on the paper to avoid discrimination, but would be something that could be openly discussed, I don't see a problem with it.

 

[Mommafirst]

I don't know the answer to this because we haven't gotten that far yet. So let me say now that the rest of my advice comes from a pretty limited knowledge base on all this. My first inclination is that you probably don't HAVE to write it in -- though I don't know what kind of legal (insurance for the team organization) type thing might make a difference. The only thing I would be cautious of is that Austin knows its not a secret, that he doesn't have to keep it quiet or be ashamed of his CF. If its just not on the paper to avoid discrimination, but would be something that could be openly discussed, I don't see a problem with it.

 

[Mommafirst]

I don't know the answer to this because we haven't gotten that far yet. So let me say now that the rest of my advice comes from a pretty limited knowledge base on all this. My first inclination is that you probably don't HAVE to write it in -- though I don't know what kind of legal (insurance for the team organization) type thing might make a difference. The only thing I would be cautious of is that Austin knows its not a secret, that he doesn't have to keep it quiet or be ashamed of his CF. If its just not on the paper to avoid discrimination, but would be something that could be openly discussed, I don't see a problem with it.

 

[CFHockeyMom]

I didn't used to write it down but I do now. As mentioned, the organizations carry insurance and if you don't write down an existing condition they can deny coverage for lack of full disclosure. I simply write down that he has CF and is under no physical restrictions. I don't list all the meds but do include albuterol on the list because the need for an inhaler could arise and that he is on pancreatic enzymes.

 

[CFHockeyMom]

I didn't used to write it down but I do now. As mentioned, the organizations carry insurance and if you don't write down an existing condition they can deny coverage for lack of full disclosure. I simply write down that he has CF and is under no physical restrictions. I don't list all the meds but do include albuterol on the list because the need for an inhaler could arise and that he is on pancreatic enzymes.

 

[CFHockeyMom]

I didn't used to write it down but I do now. As mentioned, the organizations carry insurance and if you don't write down an existing condition they can deny coverage for lack of full disclosure. I simply write down that he has CF and is under no physical restrictions. I don't list all the meds but do include albuterol on the list because the need for an inhaler could arise and that he is on pancreatic enzymes.

 

[CFHockeyMom]

I didn't used to write it down but I do now. As mentioned, the organizations carry insurance and if you don't write down an existing condition they can deny coverage for lack of full disclosure. I simply write down that he has CF and is under no physical restrictions. I don't list all the meds but do include albuterol on the list because the need for an inhaler could arise and that he is on pancreatic enzymes.

 

[CFHockeyMom]

I didn't used to write it down but I do now. As mentioned, the organizations carry insurance and if you don't write down an existing condition they can deny coverage for lack of full disclosure. I simply write down that he has CF and is under no physical restrictions. I don't list all the meds but do include albuterol on the list because the need for an inhaler could arise and that he is on pancreatic enzymes.

 

[pnhuffman]

I just wanted to thank everyone for your responses. It is really helpful to see how others would do in this type of situation.

 

[pnhuffman]

I just wanted to thank everyone for your responses. It is really helpful to see how others would do in this type of situation.

 

[pnhuffman]

I just wanted to thank everyone for your responses. It is really helpful to see how others would do in this type of situation.

 

[pnhuffman]

I just wanted to thank everyone for your responses. It is really helpful to see how others would do in this type of situation.

 

[pnhuffman]

I just wanted to thank everyone for your responses. It is really helpful to see how others would do in this type of situation.

 

[LeneSouthAfrica]

My mom always wrote something down, because one cannot always predict future situations and its better to be on the safe side, but maybe this will be more applicable at older age and it also depends on how healthy he is, and the type of activity (chess vs sports). I think my mom was scared people would discriminate if they did NOT know about the CF, like shout at me for being last or missing a practice, or make me do extra punishment laps on a hot day, instead of encouraging me. Sometimes we would just write 'Asthma' or 'has lung problem, needs water break' or something we knew they can understand. Many children have asthma and they are absolutely normal, so we knew this would not mean discrimination. We never just wrote CF because, like you say they would think it is cerebral palsy, so we always wrote an explanation of what it is. All trainers and teachers have always only been supportive knowing this and in the long run it has benefited me much more that people knew. I was never cheated out of opportunities. If you were the trainer and had to take care of a group of children and do what is best, wouldn't you like to know if a child has a condition? Just my 2 cents' worth, but I understand everyone deals with this in a different way.

 

[LeneSouthAfrica]

My mom always wrote something down, because one cannot always predict future situations and its better to be on the safe side, but maybe this will be more applicable at older age and it also depends on how healthy he is, and the type of activity (chess vs sports). I think my mom was scared people would discriminate if they did NOT know about the CF, like shout at me for being last or missing a practice, or make me do extra punishment laps on a hot day, instead of encouraging me. Sometimes we would just write 'Asthma' or 'has lung problem, needs water break' or something we knew they can understand. Many children have asthma and they are absolutely normal, so we knew this would not mean discrimination. We never just wrote CF because, like you say they would think it is cerebral palsy, so we always wrote an explanation of what it is. All trainers and teachers have always only been supportive knowing this and in the long run it has benefited me much more that people knew. I was never cheated out of opportunities. If you were the trainer and had to take care of a group of children and do what is best, wouldn't you like to know if a child has a condition? Just my 2 cents' worth, but I understand everyone deals with this in a different way.

 

[LeneSouthAfrica]

My mom always wrote something down, because one cannot always predict future situations and its better to be on the safe side, but maybe this will be more applicable at older age and it also depends on how healthy he is, and the type of activity (chess vs sports). I think my mom was scared people would discriminate if they did NOT know about the CF, like shout at me for being last or missing a practice, or make me do extra punishment laps on a hot day, instead of encouraging me. Sometimes we would just write 'Asthma' or 'has lung problem, needs water break' or something we knew they can understand. Many children have asthma and they are absolutely normal, so we knew this would not mean discrimination. We never just wrote CF because, like you say they would think it is cerebral palsy, so we always wrote an explanation of what it is. All trainers and teachers have always only been supportive knowing this and in the long run it has benefited me much more that people knew. I was never cheated out of opportunities. If you were the trainer and had to take care of a group of children and do what is best, wouldn't you like to know if a child has a condition? Just my 2 cents' worth, but I understand everyone deals with this in a different way.

 

[LeneSouthAfrica]

My mom always wrote something down, because one cannot always predict future situations and its better to be on the safe side, but maybe this will be more applicable at older age and it also depends on how healthy he is, and the type of activity (chess vs sports). I think my mom was scared people would discriminate if they did NOT know about the CF, like shout at me for being last or missing a practice, or make me do extra punishment laps on a hot day, instead of encouraging me. Sometimes we would just write 'Asthma' or 'has lung problem, needs water break' or something we knew they can understand. Many children have asthma and they are absolutely normal, so we knew this would not mean discrimination. We never just wrote CF because, like you say they would think it is cerebral palsy, so we always wrote an explanation of what it is. All trainers and teachers have always only been supportive knowing this and in the long run it has benefited me much more that people knew. I was never cheated out of opportunities. If you were the trainer and had to take care of a group of children and do what is best, wouldn't you like to know if a child has a condition? Just my 2 cents' worth, but I understand everyone deals with this in a different way.

 

[LeneSouthAfrica]

My mom always wrote something down, because one cannot always predict future situations and its better to be on the safe side, but maybe this will be more applicable at older age and it also depends on how healthy he is, and the type of activity (chess vs sports). I think my mom was scared people would discriminate if they did NOT know about the CF, like shout at me for being last or missing a practice, or make me do extra punishment laps on a hot day, instead of encouraging me. Sometimes we would just write 'Asthma' or 'has lung problem, needs water break' or something we knew they can understand. Many children have asthma and they are absolutely normal, so we knew this would not mean discrimination. We never just wrote CF because, like you say they would think it is cerebral palsy, so we always wrote an explanation of what it is. All trainers and teachers have always only been supportive knowing this and in the long run it has benefited me much more that people knew. I was never cheated out of opportunities. If you were the trainer and had to take care of a group of children and do what is best, wouldn't you like to know if a child has a condition? Just my 2 cents' worth, but I understand everyone deals with this in a different way.