Please help me....

[NoExcuses]

Ready for fur to fly? Here we go....

Most of the research docs do is either funded by pharma or by the CF Foundation or the hospital itself

NOt sure where Moss got his funding, but if it's from the CFF, I think the CFF has an obligation to put research dollars towards treatments that will help the most patients.

Given that Cepacia affects less than 10% of the total CF population, I'm not surprised more research isn't being done.

People that donate to the CF FOundation expect that their dollars do the most good for the most people.

Yell and scream all you want - but this is simply reality.

Granted, those statements are only valid if Moss gets funding from the CFF. If it's from Stanford, I suppose donors direct where that research goes. If it's the feds or the NIH, they direct it. But Stanford with it's own review can do whatever they want - so perhaps the petition would help if that's the case.... but I"m not sure where Moss gets his funding.

 

[NoExcuses]

Ready for fur to fly? Here we go....

Most of the research docs do is either funded by pharma or by the CF Foundation or the hospital itself

NOt sure where Moss got his funding, but if it's from the CFF, I think the CFF has an obligation to put research dollars towards treatments that will help the most patients.

Given that Cepacia affects less than 10% of the total CF population, I'm not surprised more research isn't being done.

People that donate to the CF FOundation expect that their dollars do the most good for the most people.

Yell and scream all you want - but this is simply reality.

Granted, those statements are only valid if Moss gets funding from the CFF. If it's from Stanford, I suppose donors direct where that research goes. If it's the feds or the NIH, they direct it. But Stanford with it's own review can do whatever they want - so perhaps the petition would help if that's the case.... but I"m not sure where Moss gets his funding.

 

[NoExcuses]

Ready for fur to fly? Here we go....

Most of the research docs do is either funded by pharma or by the CF Foundation or the hospital itself

NOt sure where Moss got his funding, but if it's from the CFF, I think the CFF has an obligation to put research dollars towards treatments that will help the most patients.

Given that Cepacia affects less than 10% of the total CF population, I'm not surprised more research isn't being done.

People that donate to the CF FOundation expect that their dollars do the most good for the most people.

Yell and scream all you want - but this is simply reality.

Granted, those statements are only valid if Moss gets funding from the CFF. If it's from Stanford, I suppose donors direct where that research goes. If it's the feds or the NIH, they direct it. But Stanford with it's own review can do whatever they want - so perhaps the petition would help if that's the case.... but I"m not sure where Moss gets his funding.

 

[NoExcuses]

Ready for fur to fly? Here we go....

Most of the research docs do is either funded by pharma or by the CF Foundation or the hospital itself

NOt sure where Moss got his funding, but if it's from the CFF, I think the CFF has an obligation to put research dollars towards treatments that will help the most patients.

Given that Cepacia affects less than 10% of the total CF population, I'm not surprised more research isn't being done.

People that donate to the CF FOundation expect that their dollars do the most good for the most people.

Yell and scream all you want - but this is simply reality.

Granted, those statements are only valid if Moss gets funding from the CFF. If it's from Stanford, I suppose donors direct where that research goes. If it's the feds or the NIH, they direct it. But Stanford with it's own review can do whatever they want - so perhaps the petition would help if that's the case.... but I"m not sure where Moss gets his funding.

 

[NoExcuses]

Ready for fur to fly? Here we go....
<br />
<br />Most of the research docs do is either funded by pharma or by the CF Foundation or the hospital itself
<br />
<br />NOt sure where Moss got his funding, but if it's from the CFF, I think the CFF has an obligation to put research dollars towards treatments that will help the most patients.
<br />
<br />Given that Cepacia affects less than 10% of the total CF population, I'm not surprised more research isn't being done.
<br />
<br />People that donate to the CF FOundation expect that their dollars do the most good for the most people.
<br />
<br />Yell and scream all you want - but this is simply reality.
<br />
<br />Granted, those statements are only valid if Moss gets funding from the CFF. If it's from Stanford, I suppose donors direct where that research goes. If it's the feds or the NIH, they direct it. But Stanford with it's own review can do whatever they want - so perhaps the petition would help if that's the case.... but I"m not sure where Moss gets his funding.
<br />
<br />
<br />

 

[dramamama]

Suppose someone donates money to the CFF and earmarks it for that kind of study...that is all he needs correct?

Secondly, gamma interferon is being used in mycobacterial disease, aspergilllus and cepacia already with great success...just not in CF. And most CF docs aren't aware of the benefits of gamma interferon to cfers with these infections...so, how do we get the word out if it is not through new studies?

Amy, you are a great resource for this. Moss' words to me were, "I happen to agree completely with you. However, the drug is already on the market for other indications and the drug company is not interested in funding further research with CF."

So, I guess that means we get the ole CFF to fund it for us. Is that possible? And, how much are we talking here?

 

[dramamama]

Suppose someone donates money to the CFF and earmarks it for that kind of study...that is all he needs correct?

Secondly, gamma interferon is being used in mycobacterial disease, aspergilllus and cepacia already with great success...just not in CF. And most CF docs aren't aware of the benefits of gamma interferon to cfers with these infections...so, how do we get the word out if it is not through new studies?

Amy, you are a great resource for this. Moss' words to me were, "I happen to agree completely with you. However, the drug is already on the market for other indications and the drug company is not interested in funding further research with CF."

So, I guess that means we get the ole CFF to fund it for us. Is that possible? And, how much are we talking here?

 

[dramamama]

Suppose someone donates money to the CFF and earmarks it for that kind of study...that is all he needs correct?

Secondly, gamma interferon is being used in mycobacterial disease, aspergilllus and cepacia already with great success...just not in CF. And most CF docs aren't aware of the benefits of gamma interferon to cfers with these infections...so, how do we get the word out if it is not through new studies?

Amy, you are a great resource for this. Moss' words to me were, "I happen to agree completely with you. However, the drug is already on the market for other indications and the drug company is not interested in funding further research with CF."

So, I guess that means we get the ole CFF to fund it for us. Is that possible? And, how much are we talking here?

 

[dramamama]

Suppose someone donates money to the CFF and earmarks it for that kind of study...that is all he needs correct?

Secondly, gamma interferon is being used in mycobacterial disease, aspergilllus and cepacia already with great success...just not in CF. And most CF docs aren't aware of the benefits of gamma interferon to cfers with these infections...so, how do we get the word out if it is not through new studies?

Amy, you are a great resource for this. Moss' words to me were, "I happen to agree completely with you. However, the drug is already on the market for other indications and the drug company is not interested in funding further research with CF."

So, I guess that means we get the ole CFF to fund it for us. Is that possible? And, how much are we talking here?

 

[dramamama]

Suppose someone donates money to the CFF and earmarks it for that kind of study...that is all he needs correct?
<br />
<br />Secondly, gamma interferon is being used in mycobacterial disease, aspergilllus and cepacia already with great success...just not in CF. And most CF docs aren't aware of the benefits of gamma interferon to cfers with these infections...so, how do we get the word out if it is not through new studies?
<br />
<br />Amy, you are a great resource for this. Moss' words to me were, "I happen to agree completely with you. However, the drug is already on the market for other indications and the drug company is not interested in funding further research with CF."
<br />
<br />So, I guess that means we get the ole CFF to fund it for us. Is that possible? And, how much are we talking here?

 

[NoExcuses]

Yup, get the CFF to fund it.

Pfizer, however, I think paid for the clinical trials for CF and azithro..I think. So it's not out of the question.

Clinical trials can cost a wide range. Ask Moss how much it cost him to do Phase I and II of his NAC studies. He'll have a great ballpark figure....

 

[NoExcuses]

Yup, get the CFF to fund it.

Pfizer, however, I think paid for the clinical trials for CF and azithro..I think. So it's not out of the question.

Clinical trials can cost a wide range. Ask Moss how much it cost him to do Phase I and II of his NAC studies. He'll have a great ballpark figure....

 

[NoExcuses]

Yup, get the CFF to fund it.

Pfizer, however, I think paid for the clinical trials for CF and azithro..I think. So it's not out of the question.

Clinical trials can cost a wide range. Ask Moss how much it cost him to do Phase I and II of his NAC studies. He'll have a great ballpark figure....

 

[NoExcuses]

Yup, get the CFF to fund it.

Pfizer, however, I think paid for the clinical trials for CF and azithro..I think. So it's not out of the question.

Clinical trials can cost a wide range. Ask Moss how much it cost him to do Phase I and II of his NAC studies. He'll have a great ballpark figure....

 

[NoExcuses]

Yup, get the CFF to fund it.
<br />
<br />Pfizer, however, I think paid for the clinical trials for CF and azithro..I think. So it's not out of the question.
<br />
<br />Clinical trials can cost a wide range. Ask Moss how much it cost him to do Phase I and II of his NAC studies. He'll have a great ballpark figure....

 

[dramamama]

Thank you so much for your help. You are a wealth of info, especially when it comes to the drug companies!!

I am on a mission... This is going to happen<img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[dramamama]

Thank you so much for your help. You are a wealth of info, especially when it comes to the drug companies!!

I am on a mission... This is going to happen<img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[dramamama]

Thank you so much for your help. You are a wealth of info, especially when it comes to the drug companies!!

I am on a mission... This is going to happen<img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[dramamama]

Thank you so much for your help. You are a wealth of info, especially when it comes to the drug companies!!

I am on a mission... This is going to happen<img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[dramamama]

Thank you so much for your help. You are a wealth of info, especially when it comes to the drug companies!!
<br />
<br />I am on a mission... This is going to happen<img src="i/expressions/face-icon-small-smile.gif" border="0">