Perhaps this post will seem a bit callous. I have always been a fiercely independent person and I do what I think is right regardless of what others think or say. I realize that a lot of people want to appease family members, but you are 27 years old. If you mum doesn't approve, well then tough luck. We are talking about you and your health, which has nothing to do with you mum. Do what you and your doctor feel is the best option for you. Your mum will either accept it or not. My thinking is that after all is said and done, she will see the error in her knee-jerk reaction.
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M
MCGrad2006
Guest
Thank you so much for all the words of advice! I do realize that I am adult and I had kind of already made the decision. My mom is going through a very rough time (brother is very sick, nephew very sick, and BIL also not well) so I think that the news that I wanted a port short of shocked her on top of everything else.
@ Jonathan...I think she has already seen the error in her reaction. I called again and talked her off the ledge, claiming what a convenience it would be for me...yada yada.
@ Tom and Jen...thank you so much! I am pretty sure that she is ok with the idea now, she just needed some time to adjust and not be sad.
So I guess now it is just a matter of time. I am ok with the idea, but I don't want to have to go through surgery...and like I said it is a big decision. I know it is the best thing for me so I will be trying it as soon as possible since I am relatively healthy at the moment.
@ Jonathan...I think she has already seen the error in her reaction. I called again and talked her off the ledge, claiming what a convenience it would be for me...yada yada.
@ Tom and Jen...thank you so much! I am pretty sure that she is ok with the idea now, she just needed some time to adjust and not be sad.
So I guess now it is just a matter of time. I am ok with the idea, but I don't want to have to go through surgery...and like I said it is a big decision. I know it is the best thing for me so I will be trying it as soon as possible since I am relatively healthy at the moment.
M
MCGrad2006
Guest
Thank you so much for all the words of advice! I do realize that I am adult and I had kind of already made the decision. My mom is going through a very rough time (brother is very sick, nephew very sick, and BIL also not well) so I think that the news that I wanted a port short of shocked her on top of everything else.
@ Jonathan...I think she has already seen the error in her reaction. I called again and talked her off the ledge, claiming what a convenience it would be for me...yada yada.
@ Tom and Jen...thank you so much! I am pretty sure that she is ok with the idea now, she just needed some time to adjust and not be sad.
So I guess now it is just a matter of time. I am ok with the idea, but I don't want to have to go through surgery...and like I said it is a big decision. I know it is the best thing for me so I will be trying it as soon as possible since I am relatively healthy at the moment.
@ Jonathan...I think she has already seen the error in her reaction. I called again and talked her off the ledge, claiming what a convenience it would be for me...yada yada.
@ Tom and Jen...thank you so much! I am pretty sure that she is ok with the idea now, she just needed some time to adjust and not be sad.
So I guess now it is just a matter of time. I am ok with the idea, but I don't want to have to go through surgery...and like I said it is a big decision. I know it is the best thing for me so I will be trying it as soon as possible since I am relatively healthy at the moment.
M
MCGrad2006
Guest
Thank you so much for all the words of advice! I do realize that I am adult and I had kind of already made the decision. My mom is going through a very rough time (brother is very sick, nephew very sick, and BIL also not well) so I think that the news that I wanted a port short of shocked her on top of everything else.
<br />
<br />@ Jonathan...I think she has already seen the error in her reaction. I called again and talked her off the ledge, claiming what a convenience it would be for me...yada yada.
<br />
<br />@ Tom and Jen...thank you so much! I am pretty sure that she is ok with the idea now, she just needed some time to adjust and not be sad.
<br />
<br />So I guess now it is just a matter of time. I am ok with the idea, but I don't want to have to go through surgery...and like I said it is a big decision. I know it is the best thing for me so I will be trying it as soon as possible since I am relatively healthy at the moment.
<br />
<br />@ Jonathan...I think she has already seen the error in her reaction. I called again and talked her off the ledge, claiming what a convenience it would be for me...yada yada.
<br />
<br />@ Tom and Jen...thank you so much! I am pretty sure that she is ok with the idea now, she just needed some time to adjust and not be sad.
<br />
<br />So I guess now it is just a matter of time. I am ok with the idea, but I don't want to have to go through surgery...and like I said it is a big decision. I know it is the best thing for me so I will be trying it as soon as possible since I am relatively healthy at the moment.
I'm glad to read all this good info from people who have experience with ports. I'm on my 4th PICC Line, 3rd this yr. I know it's not alot of PICCs but I was ok health wise till about 2010. Then this yr I seen my health go a bit downhill. I brought up the Port discussion with my Dr. He did agree that I could get one but my wife wanted to be there when I got the port put in and I wanted her there too so we both could learn everything we can about it but she couldn't come down to the hospital because my clinic is 2 and 1/2 hours away and it was too hard to bring all three kids. Next time I think I'll IV's I'm going to schedule it so my wife can be there and get it done.
After reading the comments from everybody. I feel less stressed about getting it done. It's just makes it easier to live life for myself and family.
Thanks for all insight.
After reading the comments from everybody. I feel less stressed about getting it done. It's just makes it easier to live life for myself and family.
Thanks for all insight.
I'm glad to read all this good info from people who have experience with ports. I'm on my 4th PICC Line, 3rd this yr. I know it's not alot of PICCs but I was ok health wise till about 2010. Then this yr I seen my health go a bit downhill. I brought up the Port discussion with my Dr. He did agree that I could get one but my wife wanted to be there when I got the port put in and I wanted her there too so we both could learn everything we can about it but she couldn't come down to the hospital because my clinic is 2 and 1/2 hours away and it was too hard to bring all three kids. Next time I think I'll IV's I'm going to schedule it so my wife can be there and get it done.
After reading the comments from everybody. I feel less stressed about getting it done. It's just makes it easier to live life for myself and family.
Thanks for all insight.
After reading the comments from everybody. I feel less stressed about getting it done. It's just makes it easier to live life for myself and family.
Thanks for all insight.
I'm glad to read all this good info from people who have experience with ports. I'm on my 4th PICC Line, 3rd this yr. I know it's not alot of PICCs but I was ok health wise till about 2010. Then this yr I seen my health go a bit downhill. I brought up the Port discussion with my Dr. He did agree that I could get one but my wife wanted to be there when I got the port put in and I wanted her there too so we both could learn everything we can about it but she couldn't come down to the hospital because my clinic is 2 and 1/2 hours away and it was too hard to bring all three kids. Next time I think I'll IV's I'm going to schedule it so my wife can be there and get it done.
<br />
<br />After reading the comments from everybody. I feel less stressed about getting it done. It's just makes it easier to live life for myself and family.
<br />
<br />Thanks for all insight.
<br />
<br />After reading the comments from everybody. I feel less stressed about getting it done. It's just makes it easier to live life for myself and family.
<br />
<br />Thanks for all insight.
krisjohn53223
New member
I was hesitant to get a port, but I did finally get one. I have had it for 11 years and LOVE it!! I have never had any issues with it either. Also, I had mine placed in the side of my breast, because I am super boney too. I can wear tank tops, swimsuits, etc and you never see it!! Good luck!
krisjohn53223
New member
I was hesitant to get a port, but I did finally get one. I have had it for 11 years and LOVE it!! I have never had any issues with it either. Also, I had mine placed in the side of my breast, because I am super boney too. I can wear tank tops, swimsuits, etc and you never see it!! Good luck!
krisjohn53223
New member
I was hesitant to get a port, but I did finally get one. I have had it for 11 years and LOVE it!! I have never had any issues with it either. Also, I had mine placed in the side of my breast, because I am super boney too. I can wear tank tops, swimsuits, etc and you never see it!! Good luck!
After not being able to find any more veins in my arms (in Spain they just don't do PICCs) I had a port on my upper thigh from ages 13-18. Then I wasn't using it anymore so they took it out. I got a new one last year, this time on my upper chest (right below the bra strap - of course it was a male surgeon who inserted it, dang it, but at least it doesn't interfere with the car's safety belt). Putting it in caused me a pneumothorax, unfortunately, but I wouldn't change it for anything.
My main motivation wasn't only the comfort of "finding a vein" easily, but independence: being able to do home treatments using my both hands, being able to take care of me without help (eating, dressing, etc) which is quite hard to do if you have the needle on your hand. I wanted to be able to do things by myself and not require help from my mother or future husband.
Right now I'm on treatment and have discovered a new plus side: I got an interpreting job out of town and I'll be able to go and work while on treatment! That would be unthinkable without a port.
Answering your concern: I've had ports for 6 years total and never got an infection. And while some times ports do cause trouble, the comfort of using them makes up for it, several times over! I love it!
My main motivation wasn't only the comfort of "finding a vein" easily, but independence: being able to do home treatments using my both hands, being able to take care of me without help (eating, dressing, etc) which is quite hard to do if you have the needle on your hand. I wanted to be able to do things by myself and not require help from my mother or future husband.
Right now I'm on treatment and have discovered a new plus side: I got an interpreting job out of town and I'll be able to go and work while on treatment! That would be unthinkable without a port.
Answering your concern: I've had ports for 6 years total and never got an infection. And while some times ports do cause trouble, the comfort of using them makes up for it, several times over! I love it!
After not being able to find any more veins in my arms (in Spain they just don't do PICCs) I had a port on my upper thigh from ages 13-18. Then I wasn't using it anymore so they took it out. I got a new one last year, this time on my upper chest (right below the bra strap - of course it was a male surgeon who inserted it, dang it, but at least it doesn't interfere with the car's safety belt). Putting it in caused me a pneumothorax, unfortunately, but I wouldn't change it for anything.
My main motivation wasn't only the comfort of "finding a vein" easily, but independence: being able to do home treatments using my both hands, being able to take care of me without help (eating, dressing, etc) which is quite hard to do if you have the needle on your hand. I wanted to be able to do things by myself and not require help from my mother or future husband.
Right now I'm on treatment and have discovered a new plus side: I got an interpreting job out of town and I'll be able to go and work while on treatment! That would be unthinkable without a port.
Answering your concern: I've had ports for 6 years total and never got an infection. And while some times ports do cause trouble, the comfort of using them makes up for it, several times over! I love it!
My main motivation wasn't only the comfort of "finding a vein" easily, but independence: being able to do home treatments using my both hands, being able to take care of me without help (eating, dressing, etc) which is quite hard to do if you have the needle on your hand. I wanted to be able to do things by myself and not require help from my mother or future husband.
Right now I'm on treatment and have discovered a new plus side: I got an interpreting job out of town and I'll be able to go and work while on treatment! That would be unthinkable without a port.
Answering your concern: I've had ports for 6 years total and never got an infection. And while some times ports do cause trouble, the comfort of using them makes up for it, several times over! I love it!
After not being able to find any more veins in my arms (in Spain they just don't do PICCs) I had a port on my upper thigh from ages 13-18. Then I wasn't using it anymore so they took it out. I got a new one last year, this time on my upper chest (right below the bra strap - of course it was a male surgeon who inserted it, dang it, but at least it doesn't interfere with the car's safety belt). Putting it in caused me a pneumothorax, unfortunately, but I wouldn't change it for anything.
<br />
<br />My main motivation wasn't only the comfort of "finding a vein" easily, but independence: being able to do home treatments using my both hands, being able to take care of me without help (eating, dressing, etc) which is quite hard to do if you have the needle on your hand. I wanted to be able to do things by myself and not require help from my mother or future husband.
<br />
<br />Right now I'm on treatment and have discovered a new plus side: I got an interpreting job out of town and I'll be able to go and work while on treatment! That would be unthinkable without a port.
<br />
<br />Answering your concern: I've had ports for 6 years total and never got an infection. And while some times ports do cause trouble, the comfort of using them makes up for it, several times over! I love it!
<br />
<br />My main motivation wasn't only the comfort of "finding a vein" easily, but independence: being able to do home treatments using my both hands, being able to take care of me without help (eating, dressing, etc) which is quite hard to do if you have the needle on your hand. I wanted to be able to do things by myself and not require help from my mother or future husband.
<br />
<br />Right now I'm on treatment and have discovered a new plus side: I got an interpreting job out of town and I'll be able to go and work while on treatment! That would be unthinkable without a port.
<br />
<br />Answering your concern: I've had ports for 6 years total and never got an infection. And while some times ports do cause trouble, the comfort of using them makes up for it, several times over! I love it!
So glad you decided that you are going to get one! Trust me, you will love it....I have learned to access it myself, I made sure the surgeon placed so that I could easily do that, thus adding to my independence in my care. If you have any more questions, fire away Yancee and Caitlin.
Jenn
Jenn
So glad you decided that you are going to get one! Trust me, you will love it....I have learned to access it myself, I made sure the surgeon placed so that I could easily do that, thus adding to my independence in my care. If you have any more questions, fire away Yancee and Caitlin.
Jenn
Jenn
So glad you decided that you are going to get one! Trust me, you will love it....I have learned to access it myself, I made sure the surgeon placed so that I could easily do that, thus adding to my independence in my care. If you have any more questions, fire away Yancee and Caitlin.
<br />
<br />Jenn
<br />
<br />Jenn
<P>We decided on a port for Josh during the time he was being treated for the weird myco. His PICC kept having problems ranging from getting clogged to a rash from the dressing. It was so frustrating, not to mention uncomfortable.</P>
<P>The port surgery was quick and easy, not much recovery. He's had it for 6 years with no problem.</P>
<P>The only thing that bothers him/us about the port is visual. Since he's thin, it is quite pronounced on his chest. As a mom, I understand your mom's reaction. The port, (as with any medical apparatus) is a constant reminder of the illness, whereas when a PICC is removed there is no visual sign. I know it sounds like denial, but sometimes it's nice to look at your child, even adult child without seeing the CF first.</P>
<P>Of course, having said that, I wouldn't change anything. The bottom line is his medical need, not aesthetics. </P>
<P>The port surgery was quick and easy, not much recovery. He's had it for 6 years with no problem.</P>
<P>The only thing that bothers him/us about the port is visual. Since he's thin, it is quite pronounced on his chest. As a mom, I understand your mom's reaction. The port, (as with any medical apparatus) is a constant reminder of the illness, whereas when a PICC is removed there is no visual sign. I know it sounds like denial, but sometimes it's nice to look at your child, even adult child without seeing the CF first.</P>
<P>Of course, having said that, I wouldn't change anything. The bottom line is his medical need, not aesthetics. </P>