Port Information for family members...

Jane

Digital opinion leader
<P>We decided on a port for Josh during the time he was being treated for the weird myco. His PICC kept having problems ranging from getting clogged to a rash from the dressing. It was so frustrating, not to mention uncomfortable.</P>
<P>The port surgery was quick and easy, not much recovery. He's had it for 6 years with no problem.</P>
<P>The only thing that bothers him/us about the port is visual.Since he's thin, itis quite pronounced on his chest. As a mom, I understand your mom's reaction.The port, (as with any medical apparatus)is a constant reminder of the illness, whereas when a PICC is removed there is no visual sign. I know it sounds like denial, but sometimes it's nice to look at your child, even adult childwithout seeing the CF first.</P>
<P>Of course, having said that, I wouldn't change anything. The bottom line is his medical need, not aesthetics. </P>
 

Jane

Digital opinion leader
<P><BR>We decided on a port for Josh during the time he was being treated for the weird myco. His PICC kept having problems ranging from getting clogged to a rash from the dressing. It was so frustrating, not to mention uncomfortable.</P>
<P>The port surgery was quick and easy, not much recovery. He's had it for 6 years with no problem.</P>
<P>The only thing that bothers him/us about the port is visual.Since he's thin, itis quite pronounced on his chest. As a mom, I understand your mom's reaction.The port, (as with any medical apparatus)is a constant reminder of the illness, whereas when a PICC is removed there is no visual sign. I know it sounds like denial, but sometimes it's nice to look at your child, even adult childwithout seeing the CF first.</P>
<P>Of course, having said that, I wouldn't change anything. The bottom line is his medical need, not aesthetics. </P>
 
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