letsrockcfem
New member
Ports are sweet!! I currently have one on the inside of my upper left arm...I have it accessed once a month and usually have to go in for IV's 1-2 times a year.
After dozens of piccs my veins were like "No More!!!" so we opted for the port and it was the best thing since. The first year or two I honestly thought about and looked at my port everyday..sounds crazy but it is a foriegn object under my skin in my arm..I am very used to it now though and get the occasional "is that a tattoo" or "kill scar" but that cool, I get to tell these people about me and CF!
I did have trouble with my first port thought..it coiled up inside of my chest and despite best efforts from angio (femural vein puncture) we just had to put a whole new port in. The coiling wasn't painful or anything but was seen on my chest x-ray and if left coiled up it could have fused to my vein and caused problems if it ever needed to come out. So we caught it very quick.
good luck and rock cf,
Em
After dozens of piccs my veins were like "No More!!!" so we opted for the port and it was the best thing since. The first year or two I honestly thought about and looked at my port everyday..sounds crazy but it is a foriegn object under my skin in my arm..I am very used to it now though and get the occasional "is that a tattoo" or "kill scar" but that cool, I get to tell these people about me and CF!
I did have trouble with my first port thought..it coiled up inside of my chest and despite best efforts from angio (femural vein puncture) we just had to put a whole new port in. The coiling wasn't painful or anything but was seen on my chest x-ray and if left coiled up it could have fused to my vein and caused problems if it ever needed to come out. So we caught it very quick.
good luck and rock cf,
Em