possible cure for cf on the horizon?

[dyza]

If this is the same gene therapy that is nearing its third phase trial in the UK, and I'm sure it is this one, well it is funded by the CF trust here in the UK ( much the same as the 'Foundation' in the US I geues). So no pharmacuetecal firms involved

If memory serves me correct, when they first started on the gene therapy they did manage to alter the transmembranes to allow water to pass through. This state however was not constant in that the effect would only last a matter of mintues. So they have spent the last two years attempting to have this state increased in time, where they have got to on this, i dont know, but it does sound very hopeful.

Craig

 

[dyza]

If this is the same gene therapy that is nearing its third phase trial in the UK, and I'm sure it is this one, well it is funded by the CF trust here in the UK ( much the same as the 'Foundation' in the US I geues). So no pharmacuetecal firms involved

If memory serves me correct, when they first started on the gene therapy they did manage to alter the transmembranes to allow water to pass through. This state however was not constant in that the effect would only last a matter of mintues. So they have spent the last two years attempting to have this state increased in time, where they have got to on this, i dont know, but it does sound very hopeful.

Craig

 

[dyza]

If this is the same gene therapy that is nearing its third phase trial in the UK, and I'm sure it is this one, well it is funded by the CF trust here in the UK ( much the same as the 'Foundation' in the US I geues). So no pharmacuetecal firms involved

If memory serves me correct, when they first started on the gene therapy they did manage to alter the transmembranes to allow water to pass through. This state however was not constant in that the effect would only last a matter of mintues. So they have spent the last two years attempting to have this state increased in time, where they have got to on this, i dont know, but it does sound very hopeful.

Craig

 

[dyza]

If this is the same gene therapy that is nearing its third phase trial in the UK, and I'm sure it is this one, well it is funded by the CF trust here in the UK ( much the same as the 'Foundation' in the US I geues). So no pharmacuetecal firms involved

If memory serves me correct, when they first started on the gene therapy they did manage to alter the transmembranes to allow water to pass through. This state however was not constant in that the effect would only last a matter of mintues. So they have spent the last two years attempting to have this state increased in time, where they have got to on this, i dont know, but it does sound very hopeful.

Craig

 

[dyza]

If this is the same gene therapy that is nearing its third phase trial in the UK, and I'm sure it is this one, well it is funded by the CF trust here in the UK ( much the same as the 'Foundation' in the US I geues). So no pharmacuetecal firms involved

If memory serves me correct, when they first started on the gene therapy they did manage to alter the transmembranes to allow water to pass through. This state however was not constant in that the effect would only last a matter of mintues. So they have spent the last two years attempting to have this state increased in time, where they have got to on this, i dont know, but it does sound very hopeful.

Craig

 

[dyza]

<a target=_blank class=ftalternatingbarlinklarge href="http://www.cftrust.org.uk/aboutcf/publications/cftoday/cftoday_backissues
">http://www.cftrust.org.uk/abou...ay/cftoday_backissues
</a>
Here is a link to issues of CFtoday, our quaterly update magazine in the UK. There are articles in Summer 2005 (page 13), and Autumn 2005 (page 4), about gene therapy.

The new mag will be out soon, and I expect ther to be an update on gene therapy in there....will let you know

Craig

 

[dyza]

<a target=_blank class=ftalternatingbarlinklarge href="http://www.cftrust.org.uk/aboutcf/publications/cftoday/cftoday_backissues
">http://www.cftrust.org.uk/abou...ay/cftoday_backissues
</a>
Here is a link to issues of CFtoday, our quaterly update magazine in the UK. There are articles in Summer 2005 (page 13), and Autumn 2005 (page 4), about gene therapy.

The new mag will be out soon, and I expect ther to be an update on gene therapy in there....will let you know

Craig

 

[dyza]

<a target=_blank class=ftalternatingbarlinklarge href="http://www.cftrust.org.uk/aboutcf/publications/cftoday/cftoday_backissues
">http://www.cftrust.org.uk/abou...ay/cftoday_backissues
</a>
Here is a link to issues of CFtoday, our quaterly update magazine in the UK. There are articles in Summer 2005 (page 13), and Autumn 2005 (page 4), about gene therapy.

The new mag will be out soon, and I expect ther to be an update on gene therapy in there....will let you know

Craig

 

[dyza]

<a target=_blank class=ftalternatingbarlinklarge href="http://www.cftrust.org.uk/aboutcf/publications/cftoday/cftoday_backissues
">http://www.cftrust.org.uk/abou...ay/cftoday_backissues
</a>
Here is a link to issues of CFtoday, our quaterly update magazine in the UK. There are articles in Summer 2005 (page 13), and Autumn 2005 (page 4), about gene therapy.

The new mag will be out soon, and I expect ther to be an update on gene therapy in there....will let you know

Craig

 

[dyza]

<a target=_blank class=ftalternatingbarlinklarge href="http://www.cftrust.org.uk/aboutcf/publications/cftoday/cftoday_backissues
">http://www.cftrust.org.uk/abou...ay/cftoday_backissues
</a>
Here is a link to issues of CFtoday, our quaterly update magazine in the UK. There are articles in Summer 2005 (page 13), and Autumn 2005 (page 4), about gene therapy.

The new mag will be out soon, and I expect ther to be an update on gene therapy in there....will let you know

Craig

 

[kswitch]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Mommafirst</b></i>

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>JazzysMom</b></i>



<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>kswitch</b></i>















what i'm curious about is, should there ever be a cure, whether insurance companies will cover it or not. even more curious, will they cover cf treatments anymore since they will be unnecessary in the wake of this new cure...that will likely be inaccessible to a significant portion of the effected community</end quote></div>







Very good point (as usual <img src="i/expressions/face-icon-small-tongue.gif" border="0">)! What if the "cure" doesnt handle all aspect of all CFers.....then what? Back to the CF care!</end quote></div>



I can't imagine any of the smart "e-patients" on here willingly dropping all their preventative care while they wait to see if the long term effects of a "cure" actually come to pass. I mean, even if there something that works, its not going to be a magic dust that automatically ceases CF symptoms. It would have to be taken daily (hourly, who knows) and since its ALL sooo new, I can't imagine the CF centers telling everyone to ditch the known preventative care in the hopes that this will work forever.</end quote></div>

well, the question there isn't at all whether the patient WANTS to drop preventative care, it's whether or not insurance will continue to cover it. insurance companies don't always cover what cf care teams deem best, much less what the patient wishes.

 

[kswitch]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Mommafirst</b></i>

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>JazzysMom</b></i>



<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>kswitch</b></i>















what i'm curious about is, should there ever be a cure, whether insurance companies will cover it or not. even more curious, will they cover cf treatments anymore since they will be unnecessary in the wake of this new cure...that will likely be inaccessible to a significant portion of the effected community</end quote></div>







Very good point (as usual <img src="i/expressions/face-icon-small-tongue.gif" border="0">)! What if the "cure" doesnt handle all aspect of all CFers.....then what? Back to the CF care!</end quote></div>



I can't imagine any of the smart "e-patients" on here willingly dropping all their preventative care while they wait to see if the long term effects of a "cure" actually come to pass. I mean, even if there something that works, its not going to be a magic dust that automatically ceases CF symptoms. It would have to be taken daily (hourly, who knows) and since its ALL sooo new, I can't imagine the CF centers telling everyone to ditch the known preventative care in the hopes that this will work forever.</end quote></div>

well, the question there isn't at all whether the patient WANTS to drop preventative care, it's whether or not insurance will continue to cover it. insurance companies don't always cover what cf care teams deem best, much less what the patient wishes.

 

[kswitch]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Mommafirst</b></i>

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>JazzysMom</b></i>



<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>kswitch</b></i>















what i'm curious about is, should there ever be a cure, whether insurance companies will cover it or not. even more curious, will they cover cf treatments anymore since they will be unnecessary in the wake of this new cure...that will likely be inaccessible to a significant portion of the effected community</end quote></div>







Very good point (as usual <img src="i/expressions/face-icon-small-tongue.gif" border="0">)! What if the "cure" doesnt handle all aspect of all CFers.....then what? Back to the CF care!</end quote></div>



I can't imagine any of the smart "e-patients" on here willingly dropping all their preventative care while they wait to see if the long term effects of a "cure" actually come to pass. I mean, even if there something that works, its not going to be a magic dust that automatically ceases CF symptoms. It would have to be taken daily (hourly, who knows) and since its ALL sooo new, I can't imagine the CF centers telling everyone to ditch the known preventative care in the hopes that this will work forever.</end quote></div>

well, the question there isn't at all whether the patient WANTS to drop preventative care, it's whether or not insurance will continue to cover it. insurance companies don't always cover what cf care teams deem best, much less what the patient wishes.

 

[kswitch]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Mommafirst</b></i>

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>JazzysMom</b></i>



<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>kswitch</b></i>















what i'm curious about is, should there ever be a cure, whether insurance companies will cover it or not. even more curious, will they cover cf treatments anymore since they will be unnecessary in the wake of this new cure...that will likely be inaccessible to a significant portion of the effected community</end quote>







Very good point (as usual <img src="i/expressions/face-icon-small-tongue.gif" border="0">)! What if the "cure" doesnt handle all aspect of all CFers.....then what? Back to the CF care!</end quote>



I can't imagine any of the smart "e-patients" on here willingly dropping all their preventative care while they wait to see if the long term effects of a "cure" actually come to pass. I mean, even if there something that works, its not going to be a magic dust that automatically ceases CF symptoms. It would have to be taken daily (hourly, who knows) and since its ALL sooo new, I can't imagine the CF centers telling everyone to ditch the known preventative care in the hopes that this will work forever.</end quote>

well, the question there isn't at all whether the patient WANTS to drop preventative care, it's whether or not insurance will continue to cover it. insurance companies don't always cover what cf care teams deem best, much less what the patient wishes.

 

[kswitch]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Mommafirst</b></i>

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>JazzysMom</b></i>



<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>kswitch</b></i>















what i'm curious about is, should there ever be a cure, whether insurance companies will cover it or not. even more curious, will they cover cf treatments anymore since they will be unnecessary in the wake of this new cure...that will likely be inaccessible to a significant portion of the effected community</end quote>







Very good point (as usual <img src="i/expressions/face-icon-small-tongue.gif" border="0">)! What if the "cure" doesnt handle all aspect of all CFers.....then what? Back to the CF care!</end quote>



I can't imagine any of the smart "e-patients" on here willingly dropping all their preventative care while they wait to see if the long term effects of a "cure" actually come to pass. I mean, even if there something that works, its not going to be a magic dust that automatically ceases CF symptoms. It would have to be taken daily (hourly, who knows) and since its ALL sooo new, I can't imagine the CF centers telling everyone to ditch the known preventative care in the hopes that this will work forever.</end quote>

well, the question there isn't at all whether the patient WANTS to drop preventative care, it's whether or not insurance will continue to cover it. insurance companies don't always cover what cf care teams deem best, much less what the patient wishes.

 

[wanderlost]

Has anything ever been cured? I know diseases have been eradicated, prevented and treated effectively - but has any disease ever been cured? As in, you have it and now you don't?? I can't think of any.

 

[wanderlost]

Has anything ever been cured? I know diseases have been eradicated, prevented and treated effectively - but has any disease ever been cured? As in, you have it and now you don't?? I can't think of any.

 

[wanderlost]

Has anything ever been cured? I know diseases have been eradicated, prevented and treated effectively - but has any disease ever been cured? As in, you have it and now you don't?? I can't think of any.

 

[wanderlost]

Has anything ever been cured? I know diseases have been eradicated, prevented and treated effectively - but has any disease ever been cured? As in, you have it and now you don't?? I can't think of any.

 

[wanderlost]

Has anything ever been cured? I know diseases have been eradicated, prevented and treated effectively - but has any disease ever been cured? As in, you have it and now you don't?? I can't think of any.