pregnancy complications

Tombliboo · Jul 30, 2009

Your current health status should be able to help give a idea as to how well things may go...for example if you have a good lung function, good weight, no diabetes, few IV courses per year, etc. you may do better than someone with more complications. However this isn't always the case, which is why I guess your doctor can't say with any certainty what will happen.

I'm currently 13 weeks pregnant so I'm not much help at giving an overview as I don't know what will happen over the next 6 months. However one thing I have noticed is that I pick up colds more easily and chest infections seem harder to get on top of. I've been told that a pregnant woman's immune system is lowered slightly so it doesn't reject the baby as "foreign". May be this is why I've had two colds in the last 11 weeks when I never normally get any! I've had nearly 4 weeks of IV's in total so far but then I normally need IV's every 2-3 months anyway and my lung function is at the lower end of accepatable for pregnancy.

I'm pleased that I was a good weight to start with as this really helps in pregnancy, and I've been really off my food and being sick so it's just as well I started off at a good level.

I hope your CF doctors help you to come to the right decision for you and GOOD LUCK!

Tombliboo · Jul 30, 2009

Your current health status should be able to help give a idea as to how well things may go...for example if you have a good lung function, good weight, no diabetes, few IV courses per year, etc. you may do better than someone with more complications. However this isn't always the case, which is why I guess your doctor can't say with any certainty what will happen.

I'm currently 13 weeks pregnant so I'm not much help at giving an overview as I don't know what will happen over the next 6 months. However one thing I have noticed is that I pick up colds more easily and chest infections seem harder to get on top of. I've been told that a pregnant woman's immune system is lowered slightly so it doesn't reject the baby as "foreign". May be this is why I've had two colds in the last 11 weeks when I never normally get any! I've had nearly 4 weeks of IV's in total so far but then I normally need IV's every 2-3 months anyway and my lung function is at the lower end of accepatable for pregnancy.

I'm pleased that I was a good weight to start with as this really helps in pregnancy, and I've been really off my food and being sick so it's just as well I started off at a good level.

I hope your CF doctors help you to come to the right decision for you and GOOD LUCK!

Tombliboo · Jul 30, 2009

Your current health status should be able to help give a idea as to how well things may go...for example if you have a good lung function, good weight, no diabetes, few IV courses per year, etc. you may do better than someone with more complications. However this isn't always the case, which is why I guess your doctor can't say with any certainty what will happen.

I'm currently 13 weeks pregnant so I'm not much help at giving an overview as I don't know what will happen over the next 6 months. However one thing I have noticed is that I pick up colds more easily and chest infections seem harder to get on top of. I've been told that a pregnant woman's immune system is lowered slightly so it doesn't reject the baby as "foreign". May be this is why I've had two colds in the last 11 weeks when I never normally get any! I've had nearly 4 weeks of IV's in total so far but then I normally need IV's every 2-3 months anyway and my lung function is at the lower end of accepatable for pregnancy.

I'm pleased that I was a good weight to start with as this really helps in pregnancy, and I've been really off my food and being sick so it's just as well I started off at a good level.

I hope your CF doctors help you to come to the right decision for you and GOOD LUCK!

Tombliboo · Jul 30, 2009

Your current health status should be able to help give a idea as to how well things may go...for example if you have a good lung function, good weight, no diabetes, few IV courses per year, etc. you may do better than someone with more complications. However this isn't always the case, which is why I guess your doctor can't say with any certainty what will happen.

I'm currently 13 weeks pregnant so I'm not much help at giving an overview as I don't know what will happen over the next 6 months. However one thing I have noticed is that I pick up colds more easily and chest infections seem harder to get on top of. I've been told that a pregnant woman's immune system is lowered slightly so it doesn't reject the baby as "foreign". May be this is why I've had two colds in the last 11 weeks when I never normally get any! I've had nearly 4 weeks of IV's in total so far but then I normally need IV's every 2-3 months anyway and my lung function is at the lower end of accepatable for pregnancy.

I'm pleased that I was a good weight to start with as this really helps in pregnancy, and I've been really off my food and being sick so it's just as well I started off at a good level.

I hope your CF doctors help you to come to the right decision for you and GOOD LUCK!

Tombliboo · Jul 30, 2009

Your current health status should be able to help give a idea as to how well things may go...for example if you have a good lung function, good weight, no diabetes, few IV courses per year, etc. you may do better than someone with more complications. However this isn't always the case, which is why I guess your doctor can't say with any certainty what will happen.
 
 I'm currently 13 weeks pregnant so I'm not much help at giving an overview as I don't know what will happen over the next 6 months. However one thing I have noticed is that I pick up colds more easily and chest infections seem harder to get on top of. I've been told that a pregnant woman's immune system is lowered slightly so it doesn't reject the baby as "foreign". May be this is why I've had two colds in the last 11 weeks when I never normally get any! I've had nearly 4 weeks of IV's in total so far but then I normally need IV's every 2-3 months anyway and my lung function is at the lower end of accepatable for pregnancy.
 
 I'm pleased that I was a good weight to start with as this really helps in pregnancy, and I've been really off my food and being sick so it's just as well I started off at a good level.
 
 I hope your CF doctors help you to come to the right decision for you and GOOD LUCK!

kelbuckeyesrn · Aug 3, 2009

First off, I am so excited I discovered this website this evening. I only wish I would've discovered it sooner when I was pregnant to talk with all you moms with CF! I had my first baby on 12/31/08. Healthy baby girl 6lbs 6oz. I did not have too many complications. My starting fev1 was high 90's and only dropped to high 80's. After delivery I was back up to the 90's.
My only complication was gestational diabetes. I am wondering for those of you who also had this, did they just do a one hour glucose test, or a three hour and what were your numbers if you remember? My dr only had me do a one hour test and diagnosed me with just that. My CF dr. seemed to think was not appropriate since the cf pancreas is sluggish to react in the first place. Long story short, none of my blood sugars were ever high when I checked them at home and I had not changed my diet at all.

Kelly 26, Oncology nurse, married to Luke, mommy to Ella

kelbuckeyesrn · Aug 3, 2009

First off, I am so excited I discovered this website this evening. I only wish I would've discovered it sooner when I was pregnant to talk with all you moms with CF! I had my first baby on 12/31/08. Healthy baby girl 6lbs 6oz. I did not have too many complications. My starting fev1 was high 90's and only dropped to high 80's. After delivery I was back up to the 90's.
My only complication was gestational diabetes. I am wondering for those of you who also had this, did they just do a one hour glucose test, or a three hour and what were your numbers if you remember? My dr only had me do a one hour test and diagnosed me with just that. My CF dr. seemed to think was not appropriate since the cf pancreas is sluggish to react in the first place. Long story short, none of my blood sugars were ever high when I checked them at home and I had not changed my diet at all.

Kelly 26, Oncology nurse, married to Luke, mommy to Ella

kelbuckeyesrn · Aug 3, 2009

First off, I am so excited I discovered this website this evening. I only wish I would've discovered it sooner when I was pregnant to talk with all you moms with CF! I had my first baby on 12/31/08. Healthy baby girl 6lbs 6oz. I did not have too many complications. My starting fev1 was high 90's and only dropped to high 80's. After delivery I was back up to the 90's.
My only complication was gestational diabetes. I am wondering for those of you who also had this, did they just do a one hour glucose test, or a three hour and what were your numbers if you remember? My dr only had me do a one hour test and diagnosed me with just that. My CF dr. seemed to think was not appropriate since the cf pancreas is sluggish to react in the first place. Long story short, none of my blood sugars were ever high when I checked them at home and I had not changed my diet at all.

Kelly 26, Oncology nurse, married to Luke, mommy to Ella

kelbuckeyesrn · Aug 3, 2009

First off, I am so excited I discovered this website this evening. I only wish I would've discovered it sooner when I was pregnant to talk with all you moms with CF! I had my first baby on 12/31/08. Healthy baby girl 6lbs 6oz. I did not have too many complications. My starting fev1 was high 90's and only dropped to high 80's. After delivery I was back up to the 90's.
My only complication was gestational diabetes. I am wondering for those of you who also had this, did they just do a one hour glucose test, or a three hour and what were your numbers if you remember? My dr only had me do a one hour test and diagnosed me with just that. My CF dr. seemed to think was not appropriate since the cf pancreas is sluggish to react in the first place. Long story short, none of my blood sugars were ever high when I checked them at home and I had not changed my diet at all.

Kelly 26, Oncology nurse, married to Luke, mommy to Ella

kelbuckeyesrn · Aug 3, 2009

First off, I am so excited I discovered this website this evening. I only wish I would've discovered it sooner when I was pregnant to talk with all you moms with CF! I had my first baby on 12/31/08. Healthy baby girl 6lbs 6oz. I did not have too many complications. My starting fev1 was high 90's and only dropped to high 80's. After delivery I was back up to the 90's.
 My only complication was gestational diabetes. I am wondering for those of you who also had this, did they just do a one hour glucose test, or a three hour and what were your numbers if you remember? My dr only had me do a one hour test and diagnosed me with just that. My CF dr. seemed to think was not appropriate since the cf pancreas is sluggish to react in the first place. Long story short, none of my blood sugars were ever high when I checked them at home and I had not changed my diet at all.
 
 Kelly 26, Oncology nurse, married to Luke, mommy to Ella

austinchick · Aug 10, 2009

Nessa,

I am really glad that you asked these important questions. My husband and I are getting ready to conceive and I had the same questions. I have also talked to my doctor and OB/GYN and have come to the conclusion that I am healthy enough. FEV1 80%, sometimes better, sometimes worse. We are getting my husband tested for the carrier gene this Wed. I am concerned that the family practice doctor won't know how to order the test. I have been told that there are two different tests, one for the more common gene, and one for the more rare gene. I obviously need the most extensive test. None of my doctors know what this test is called. They just say it is CF genotype. Does anyone have any insight?
For reasons of my own, I do not want to have a baby if my husband has the carrier gene. I would rather try to adopt if that is so. So, I want to take every precaution. I am trying to stay positive though! <img src="">

austinchick · Aug 10, 2009

Nessa,

I am really glad that you asked these important questions. My husband and I are getting ready to conceive and I had the same questions. I have also talked to my doctor and OB/GYN and have come to the conclusion that I am healthy enough. FEV1 80%, sometimes better, sometimes worse. We are getting my husband tested for the carrier gene this Wed. I am concerned that the family practice doctor won't know how to order the test. I have been told that there are two different tests, one for the more common gene, and one for the more rare gene. I obviously need the most extensive test. None of my doctors know what this test is called. They just say it is CF genotype. Does anyone have any insight?
For reasons of my own, I do not want to have a baby if my husband has the carrier gene. I would rather try to adopt if that is so. So, I want to take every precaution. I am trying to stay positive though! <img src="">

austinchick · Aug 10, 2009

Nessa,

I am really glad that you asked these important questions. My husband and I are getting ready to conceive and I had the same questions. I have also talked to my doctor and OB/GYN and have come to the conclusion that I am healthy enough. FEV1 80%, sometimes better, sometimes worse. We are getting my husband tested for the carrier gene this Wed. I am concerned that the family practice doctor won't know how to order the test. I have been told that there are two different tests, one for the more common gene, and one for the more rare gene. I obviously need the most extensive test. None of my doctors know what this test is called. They just say it is CF genotype. Does anyone have any insight?
For reasons of my own, I do not want to have a baby if my husband has the carrier gene. I would rather try to adopt if that is so. So, I want to take every precaution. I am trying to stay positive though! <img src="">

austinchick · Aug 10, 2009

Nessa,

I am really glad that you asked these important questions. My husband and I are getting ready to conceive and I had the same questions. I have also talked to my doctor and OB/GYN and have come to the conclusion that I am healthy enough. FEV1 80%, sometimes better, sometimes worse. We are getting my husband tested for the carrier gene this Wed. I am concerned that the family practice doctor won't know how to order the test. I have been told that there are two different tests, one for the more common gene, and one for the more rare gene. I obviously need the most extensive test. None of my doctors know what this test is called. They just say it is CF genotype. Does anyone have any insight?
For reasons of my own, I do not want to have a baby if my husband has the carrier gene. I would rather try to adopt if that is so. So, I want to take every precaution. I am trying to stay positive though! <img src="">

austinchick · Aug 10, 2009

Nessa,
 
 I am really glad that you asked these important questions. My husband and I are getting ready to conceive and I had the same questions. I have also talked to my doctor and OB/GYN and have come to the conclusion that I am healthy enough. FEV1 80%, sometimes better, sometimes worse. We are getting my husband tested for the carrier gene this Wed. I am concerned that the family practice doctor won't know how to order the test. I have been told that there are two different tests, one for the more common gene, and one for the more rare gene. I obviously need the most extensive test. None of my doctors know what this test is called. They just say it is CF genotype. Does anyone have any insight?
 For reasons of my own, I do not want to have a baby if my husband has the carrier gene. I would rather try to adopt if that is so. So, I want to take every precaution. I am trying to stay positive though! <img src="">

LouLou · Aug 10, 2009

You want gene sequencing not panel testing. Ensure that he is tested for over one thousand mutations of the cf gene. The best lab to use is Ambry but you can also use Genzyme just make sure it's there most extensive testing.

I lived in Austin when my husband was tested for cf carrier status. I got the lab slip from my cf doctor then we brought it to his primary thinking we had really covered our bases. The cf doctor should have been more specific about the lab to use, etc. He was tested for 89 mutations which accounts for 95% of the incidence of the cf gene. Later he was tested again for over 1000 mutations and they found a 2nd mutation.

LouLou · Aug 10, 2009

You want gene sequencing not panel testing. Ensure that he is tested for over one thousand mutations of the cf gene. The best lab to use is Ambry but you can also use Genzyme just make sure it's there most extensive testing.

I lived in Austin when my husband was tested for cf carrier status. I got the lab slip from my cf doctor then we brought it to his primary thinking we had really covered our bases. The cf doctor should have been more specific about the lab to use, etc. He was tested for 89 mutations which accounts for 95% of the incidence of the cf gene. Later he was tested again for over 1000 mutations and they found a 2nd mutation.

LouLou · Aug 10, 2009

You want gene sequencing not panel testing. Ensure that he is tested for over one thousand mutations of the cf gene. The best lab to use is Ambry but you can also use Genzyme just make sure it's there most extensive testing.

I lived in Austin when my husband was tested for cf carrier status. I got the lab slip from my cf doctor then we brought it to his primary thinking we had really covered our bases. The cf doctor should have been more specific about the lab to use, etc. He was tested for 89 mutations which accounts for 95% of the incidence of the cf gene. Later he was tested again for over 1000 mutations and they found a 2nd mutation.

LouLou · Aug 10, 2009

You want gene sequencing not panel testing. Ensure that he is tested for over one thousand mutations of the cf gene. The best lab to use is Ambry but you can also use Genzyme just make sure it's there most extensive testing.

I lived in Austin when my husband was tested for cf carrier status. I got the lab slip from my cf doctor then we brought it to his primary thinking we had really covered our bases. The cf doctor should have been more specific about the lab to use, etc. He was tested for 89 mutations which accounts for 95% of the incidence of the cf gene. Later he was tested again for over 1000 mutations and they found a 2nd mutation.

LouLou · Aug 10, 2009

You want gene sequencing not panel testing. Ensure that he is tested for over one thousand mutations of the cf gene. The best lab to use is Ambry but you can also use Genzyme just make sure it's there most extensive testing.
 
 I lived in Austin when my husband was tested for cf carrier status. I got the lab slip from my cf doctor then we brought it to his primary thinking we had really covered our bases. The cf doctor should have been more specific about the lab to use, etc. He was tested for 89 mutations which accounts for 95% of the incidence of the cf gene. Later he was tested again for over 1000 mutations and they found a 2nd mutation.

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