Pregnancy & PFT

I

Irishgal

New member
Hi all! Hope all the moms & mom-to-be's are feeling well. I had my 20 week OB appointment yesterday with ultrasound. The baby looks great, which is a huge relief. My last ultrasound was at 8 weeks, so I was really nervous & hoping things were developing well. My weight is up 10 pounds since getting pregnant which is very exciting for me as I always struggle to gain weight. I have been force feeding myself! Thankfully, it is working.
Today I had my CF appointment. From 4 weeks ago my FEV1 is down from 73% to 66%. Normally, at this FEV1 I feel crappy. Congested, tight, etc, but I really don't. I am a little tighter but still jogging at the same mileage & pace & have not noticed TOO much of a difference, like I usually do when it is time for IV's.
My question is, should my PFT be declining at only 20 weeks pregnant, or could there be an infection brewing? It is just scary to me, because I hate doing nothing about it in case it is an infection. I know too well what can happen if you let an infection go too long-NOT GOOD!
What has been everyone else's experience with this?
I normally do colistin every other month, but my docs do not want me on it while pregnant. I know some of you guys have done colistin during pregnancy, so I am a bit confused with that one.
Please, if you could let me know what your experiences were with pregnancy, PFT decline, & at what point your PFT declined, I would really appreciate it.
Thanks a ton! Take care everyone! I AM SO THANKFUL FOR THIS SITE!
 
I

Irishgal

New member
Hi all! Hope all the moms & mom-to-be's are feeling well. I had my 20 week OB appointment yesterday with ultrasound. The baby looks great, which is a huge relief. My last ultrasound was at 8 weeks, so I was really nervous & hoping things were developing well. My weight is up 10 pounds since getting pregnant which is very exciting for me as I always struggle to gain weight. I have been force feeding myself! Thankfully, it is working.
Today I had my CF appointment. From 4 weeks ago my FEV1 is down from 73% to 66%. Normally, at this FEV1 I feel crappy. Congested, tight, etc, but I really don't. I am a little tighter but still jogging at the same mileage & pace & have not noticed TOO much of a difference, like I usually do when it is time for IV's.
My question is, should my PFT be declining at only 20 weeks pregnant, or could there be an infection brewing? It is just scary to me, because I hate doing nothing about it in case it is an infection. I know too well what can happen if you let an infection go too long-NOT GOOD!
What has been everyone else's experience with this?
I normally do colistin every other month, but my docs do not want me on it while pregnant. I know some of you guys have done colistin during pregnancy, so I am a bit confused with that one.
Please, if you could let me know what your experiences were with pregnancy, PFT decline, & at what point your PFT declined, I would really appreciate it.
Thanks a ton! Take care everyone! I AM SO THANKFUL FOR THIS SITE!
 
I

Irishgal

New member
Hi all! Hope all the moms & mom-to-be's are feeling well. I had my 20 week OB appointment yesterday with ultrasound. The baby looks great, which is a huge relief. My last ultrasound was at 8 weeks, so I was really nervous & hoping things were developing well. My weight is up 10 pounds since getting pregnant which is very exciting for me as I always struggle to gain weight. I have been force feeding myself! Thankfully, it is working.
Today I had my CF appointment. From 4 weeks ago my FEV1 is down from 73% to 66%. Normally, at this FEV1 I feel crappy. Congested, tight, etc, but I really don't. I am a little tighter but still jogging at the same mileage & pace & have not noticed TOO much of a difference, like I usually do when it is time for IV's.
My question is, should my PFT be declining at only 20 weeks pregnant, or could there be an infection brewing? It is just scary to me, because I hate doing nothing about it in case it is an infection. I know too well what can happen if you let an infection go too long-NOT GOOD!
What has been everyone else's experience with this?
I normally do colistin every other month, but my docs do not want me on it while pregnant. I know some of you guys have done colistin during pregnancy, so I am a bit confused with that one.
Please, if you could let me know what your experiences were with pregnancy, PFT decline, & at what point your PFT declined, I would really appreciate it.
Thanks a ton! Take care everyone! I AM SO THANKFUL FOR THIS SITE!
 
I

Irishgal

New member
Hi all! Hope all the moms & mom-to-be's are feeling well. I had my 20 week OB appointment yesterday with ultrasound. The baby looks great, which is a huge relief. My last ultrasound was at 8 weeks, so I was really nervous & hoping things were developing well. My weight is up 10 pounds since getting pregnant which is very exciting for me as I always struggle to gain weight. I have been force feeding myself! Thankfully, it is working.
Today I had my CF appointment. From 4 weeks ago my FEV1 is down from 73% to 66%. Normally, at this FEV1 I feel crappy. Congested, tight, etc, but I really don't. I am a little tighter but still jogging at the same mileage & pace & have not noticed TOO much of a difference, like I usually do when it is time for IV's.
My question is, should my PFT be declining at only 20 weeks pregnant, or could there be an infection brewing? It is just scary to me, because I hate doing nothing about it in case it is an infection. I know too well what can happen if you let an infection go too long-NOT GOOD!
What has been everyone else's experience with this?
I normally do colistin every other month, but my docs do not want me on it while pregnant. I know some of you guys have done colistin during pregnancy, so I am a bit confused with that one.
Please, if you could let me know what your experiences were with pregnancy, PFT decline, & at what point your PFT declined, I would really appreciate it.
Thanks a ton! Take care everyone! I AM SO THANKFUL FOR THIS SITE!
 
I

Irishgal

New member
Hi all! Hope all the moms & mom-to-be's are feeling well. I had my 20 week OB appointment yesterday with ultrasound. The baby looks great, which is a huge relief. My last ultrasound was at 8 weeks, so I was really nervous & hoping things were developing well. My weight is up 10 pounds since getting pregnant which is very exciting for me as I always struggle to gain weight. I have been force feeding myself! Thankfully, it is working.
<br />Today I had my CF appointment. From 4 weeks ago my FEV1 is down from 73% to 66%. Normally, at this FEV1 I feel crappy. Congested, tight, etc, but I really don't. I am a little tighter but still jogging at the same mileage & pace & have not noticed TOO much of a difference, like I usually do when it is time for IV's.
<br />My question is, should my PFT be declining at only 20 weeks pregnant, or could there be an infection brewing? It is just scary to me, because I hate doing nothing about it in case it is an infection. I know too well what can happen if you let an infection go too long-NOT GOOD!
<br />What has been everyone else's experience with this?
<br />I normally do colistin every other month, but my docs do not want me on it while pregnant. I know some of you guys have done colistin during pregnancy, so I am a bit confused with that one.
<br />Please, if you could let me know what your experiences were with pregnancy, PFT decline, & at what point your PFT declined, I would really appreciate it.
<br />Thanks a ton! Take care everyone! I AM SO THANKFUL FOR THIS SITE!
 
T

tara

New member
My PFTs declined rapidly between weeks 16-20 due to infection. I started inhaled Aztreonam, as an alternative to IV antibiotics and my PFTs rose higher than pre-pregnancy by 38 weeks. I think I started at the mid 50's before pregnancy and dipped into the 40's half way through pregnancy, then rose into the mid 60's by delivery.

My advice, start the colistin, because if you don't you may be headed for IVs in the coming months.
 
T

tara

New member
My PFTs declined rapidly between weeks 16-20 due to infection. I started inhaled Aztreonam, as an alternative to IV antibiotics and my PFTs rose higher than pre-pregnancy by 38 weeks. I think I started at the mid 50's before pregnancy and dipped into the 40's half way through pregnancy, then rose into the mid 60's by delivery.

My advice, start the colistin, because if you don't you may be headed for IVs in the coming months.
 
T

tara

New member
My PFTs declined rapidly between weeks 16-20 due to infection. I started inhaled Aztreonam, as an alternative to IV antibiotics and my PFTs rose higher than pre-pregnancy by 38 weeks. I think I started at the mid 50's before pregnancy and dipped into the 40's half way through pregnancy, then rose into the mid 60's by delivery.

My advice, start the colistin, because if you don't you may be headed for IVs in the coming months.
 
T

tara

New member
My PFTs declined rapidly between weeks 16-20 due to infection. I started inhaled Aztreonam, as an alternative to IV antibiotics and my PFTs rose higher than pre-pregnancy by 38 weeks. I think I started at the mid 50's before pregnancy and dipped into the 40's half way through pregnancy, then rose into the mid 60's by delivery.

My advice, start the colistin, because if you don't you may be headed for IVs in the coming months.
 
T

tara

New member
My PFTs declined rapidly between weeks 16-20 due to infection. I started inhaled Aztreonam, as an alternative to IV antibiotics and my PFTs rose higher than pre-pregnancy by 38 weeks. I think I started at the mid 50's before pregnancy and dipped into the 40's half way through pregnancy, then rose into the mid 60's by delivery.
<br />
<br />My advice, start the colistin, because if you don't you may be headed for IVs in the coming months.
 
K

Keepercjr

Guest
I honestly can't remember what my PFTs were during my pregnancy w/ my son. I'm pretty sure they declined a bit towards the end though.

As of last week at just about 25 weeks my PFTs were the exact same as they've been for the past several years (upper 60s). I seem to blow 67% as my FEV1 almost every time. I don't feel that the baby has increased on my lungs at all yet. My next visit will be at 36 weeks so we'll see what they are then.

From reading posts on here for a while it appears that some women lose lung function while pregnant and others don't. Everyone's experience is different. If I were in your shoes I wouldn't worry yet especially if you are feeling ok. Your drop wasn't huge. When are you going back to CF clinic?

As for colistin, I couldn't find very much info on for use during pregnancy. Seems that its not advisable though. HOWEVER, inhaled medications are not absorbed as well into the blood stream as oral or injected meds. So blood plasma levels of inhaled colistin would be lower than what any studies were done on. I guess it comes down to benefits vs risk for any particular situation.

Good luck!
 
K

Keepercjr

Guest
I honestly can't remember what my PFTs were during my pregnancy w/ my son. I'm pretty sure they declined a bit towards the end though.

As of last week at just about 25 weeks my PFTs were the exact same as they've been for the past several years (upper 60s). I seem to blow 67% as my FEV1 almost every time. I don't feel that the baby has increased on my lungs at all yet. My next visit will be at 36 weeks so we'll see what they are then.

From reading posts on here for a while it appears that some women lose lung function while pregnant and others don't. Everyone's experience is different. If I were in your shoes I wouldn't worry yet especially if you are feeling ok. Your drop wasn't huge. When are you going back to CF clinic?

As for colistin, I couldn't find very much info on for use during pregnancy. Seems that its not advisable though. HOWEVER, inhaled medications are not absorbed as well into the blood stream as oral or injected meds. So blood plasma levels of inhaled colistin would be lower than what any studies were done on. I guess it comes down to benefits vs risk for any particular situation.

Good luck!
 
K

Keepercjr

Guest
I honestly can't remember what my PFTs were during my pregnancy w/ my son. I'm pretty sure they declined a bit towards the end though.

As of last week at just about 25 weeks my PFTs were the exact same as they've been for the past several years (upper 60s). I seem to blow 67% as my FEV1 almost every time. I don't feel that the baby has increased on my lungs at all yet. My next visit will be at 36 weeks so we'll see what they are then.

From reading posts on here for a while it appears that some women lose lung function while pregnant and others don't. Everyone's experience is different. If I were in your shoes I wouldn't worry yet especially if you are feeling ok. Your drop wasn't huge. When are you going back to CF clinic?

As for colistin, I couldn't find very much info on for use during pregnancy. Seems that its not advisable though. HOWEVER, inhaled medications are not absorbed as well into the blood stream as oral or injected meds. So blood plasma levels of inhaled colistin would be lower than what any studies were done on. I guess it comes down to benefits vs risk for any particular situation.

Good luck!
 
K

Keepercjr

Guest
I honestly can't remember what my PFTs were during my pregnancy w/ my son. I'm pretty sure they declined a bit towards the end though.

As of last week at just about 25 weeks my PFTs were the exact same as they've been for the past several years (upper 60s). I seem to blow 67% as my FEV1 almost every time. I don't feel that the baby has increased on my lungs at all yet. My next visit will be at 36 weeks so we'll see what they are then.

From reading posts on here for a while it appears that some women lose lung function while pregnant and others don't. Everyone's experience is different. If I were in your shoes I wouldn't worry yet especially if you are feeling ok. Your drop wasn't huge. When are you going back to CF clinic?

As for colistin, I couldn't find very much info on for use during pregnancy. Seems that its not advisable though. HOWEVER, inhaled medications are not absorbed as well into the blood stream as oral or injected meds. So blood plasma levels of inhaled colistin would be lower than what any studies were done on. I guess it comes down to benefits vs risk for any particular situation.

Good luck!
 
K

Keepercjr

Guest
I honestly can't remember what my PFTs were during my pregnancy w/ my son. I'm pretty sure they declined a bit towards the end though.
<br />
<br />As of last week at just about 25 weeks my PFTs were the exact same as they've been for the past several years (upper 60s). I seem to blow 67% as my FEV1 almost every time. I don't feel that the baby has increased on my lungs at all yet. My next visit will be at 36 weeks so we'll see what they are then.
<br />
<br />From reading posts on here for a while it appears that some women lose lung function while pregnant and others don't. Everyone's experience is different. If I were in your shoes I wouldn't worry yet especially if you are feeling ok. Your drop wasn't huge. When are you going back to CF clinic?
<br />
<br />As for colistin, I couldn't find very much info on for use during pregnancy. Seems that its not advisable though. HOWEVER, inhaled medications are not absorbed as well into the blood stream as oral or injected meds. So blood plasma levels of inhaled colistin would be lower than what any studies were done on. I guess it comes down to benefits vs risk for any particular situation.
<br />
<br />Good luck!
 
A

ashleydog

New member
my pft's actually went up while I was pregnant, my sinuses got better too. weird.
as for colistin, that is what my cf doc switched me to while I was pregant, I was on Tobi every other month, but while pregnant I switched to Colistin and sometimes fortaz
 
A

ashleydog

New member
my pft's actually went up while I was pregnant, my sinuses got better too. weird.
as for colistin, that is what my cf doc switched me to while I was pregant, I was on Tobi every other month, but while pregnant I switched to Colistin and sometimes fortaz
 
A

ashleydog

New member
my pft's actually went up while I was pregnant, my sinuses got better too. weird.
as for colistin, that is what my cf doc switched me to while I was pregant, I was on Tobi every other month, but while pregnant I switched to Colistin and sometimes fortaz
 
A

ashleydog

New member
my pft's actually went up while I was pregnant, my sinuses got better too. weird.
as for colistin, that is what my cf doc switched me to while I was pregant, I was on Tobi every other month, but while pregnant I switched to Colistin and sometimes fortaz
 
A

ashleydog

New member
my pft's actually went up while I was pregnant, my sinuses got better too. weird.
<br />as for colistin, that is what my cf doc switched me to while I was pregant, I was on Tobi every other month, but while pregnant I switched to Colistin and sometimes fortaz
 
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