Hi Shell, I found this site after finding out that I am a carrier for CF. I did not know that I was a carrier and had no clue that I was even being tested for my carrier status. I was 10 weeks pregnant when I found out that I'm a carrier. I spent two days crying on the couch because my knowledge of CF was so limited and I was scared to death about what it would mean for our baby if she did have CF. Then I found this site. By the time we got my husband's test results back, I already knew that although I did not want my child to have CF, I could handle it if she did. As it turns out, my husband is not a carrier for the 23 most common mutations. I know, however, that his test only touches the surface and the possibility exists that he has a mutation that he was not tested for. We are optimistic that our daughter (due in December) will not have CF, but if she does we'll deal with it. I continue to visit this site regularly. My daughter has a 50% chance of being a carrier, so even if we escape CF, it still could show up in future generations. This site is the best I've found in terms of understanding the disease and how it affects the lives of people dealing with it. I have had no further testing related my daughter's CF status beyond the testing run for the 23 most common mutations on me and my husband. Our 19 week ultrasound looked good, and as I said, we're hoping for the best. Had my husband been a carrier of any of the mutations he was tested for, we would have done further testing, not because we would terminate, but because we would want to begin looking into CF centers and how to get our daughter started on the best preventitive care available. I would encourage you to begin loooking into where your son will receive care for his CF and begin learning about the treatment options. When I was most afraid of CF, I spent a lot of time researching Children's Mercy in Kansas City as that would have been where our daughter would have most likely received care for CF. It really helped me as I struggled to cope with the unknown. I'm so glad you found this site!
