You are right! It has been my experience over the last 14 years of this that i have to be an advocate for him ALL the time.
I have even written letters to appeal things for the pulmonary doc to sign because I find that they are so busy sometimes that if I really want it to get done, I need to do some of the leg work for them. The good thing for me is that our pulmonary doc does not mind and he is happy to read it and sign it and is grateful not to have to type it himself or dictate to someone.
As far as pharmacies go, I to often call and email the doc and nurse to make sure they even got a message from the pharmacy because I can't tell you how many time a pharmacy had told me stuff to find out that the doc never got a message from them and had no idea that they needed a phone call from him.
It is probably ok that your child misses a couple of days, but that is not the point. However, I might check with the doc because sometimes they have samples that they can give you until you get your script filled.
Lots of Luck, It does get very irritating at times that we have to work so hard to get our kids what they need!