Thanks Tom and Melissa. I agree Tom w/ your concerns. I was always in the 'less is more' camp when it came to abx before Emily's dx, as is the ped we use (waiting things out when the kids were sick to try and be sure they really needed an abx- knowing viruses take time to run their course before assuming a 2ndary infection has taken hold etc etc, and still very much am of this view for the boys. I never realized then, of course, that a very conservative approach- which has worked for the boys- is not in Emily's best interests.) The prolific use of abx in the world of CF- despite knowing the absolute necessity of it- has taken a LOT of getting used to.
Emily's clinic does use M/W/F Zithromax for some kids (I've seen the percentage cited somewhere at her clinic but can't remember it), but I think they wait until they colonize PA to do so (which seems to be the indication in the above article... I think by that point, though, it would be considered less of a 'prophylactic ' use and more of a therapeutic one.
I'd prefer to avoid prophylactic use of abx if we can- but we make all our choices with the guidance of her doctors of course. We are still pretty new to this and learning as we go.