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pseudomonas meds
- Thread starter anonymous
- Start date
Tessalonikki
New member
Hi ,
My kids just got diagnosed in November and have been put on TOBI (nebulizer) for 30 days on and 30 days off. I am not sure yet if it worked - we are in the 30 day off now and have to get cultured again next week.
I will keep you posted,
Tanja
Mom to Nicky (3) and Tessa(14 mo.) both w/cf
My kids just got diagnosed in November and have been put on TOBI (nebulizer) for 30 days on and 30 days off. I am not sure yet if it worked - we are in the 30 day off now and have to get cultured again next week.
I will keep you posted,
Tanja
Mom to Nicky (3) and Tessa(14 mo.) both w/cf
Tessalonikki
New member
Hi ,
My kids just got diagnosed in November and have been put on TOBI (nebulizer) for 30 days on and 30 days off. I am not sure yet if it worked - we are in the 30 day off now and have to get cultured again next week.
I will keep you posted,
Tanja
Mom to Nicky (3) and Tessa(14 mo.) both w/cf
My kids just got diagnosed in November and have been put on TOBI (nebulizer) for 30 days on and 30 days off. I am not sure yet if it worked - we are in the 30 day off now and have to get cultured again next week.
I will keep you posted,
Tanja
Mom to Nicky (3) and Tessa(14 mo.) both w/cf
Mikayla was 5 months old when she cultured pseudo, they put her on IV TOBI in hospital for 2 weeks and then nebulized TOBI for 3 months. After this her pseudo was gone. That is the benefit of her having cultured pseudo at such a young age becasue they can usually erradicate it completely if the child is under the age of 5 I think it is. After that the body seems to hold onto it more and things are a little more difficult. she has not cultured it again since and she is almost 5 now.
Mikayla was 5 months old when she cultured pseudo, they put her on IV TOBI in hospital for 2 weeks and then nebulized TOBI for 3 months. After this her pseudo was gone. That is the benefit of her having cultured pseudo at such a young age becasue they can usually erradicate it completely if the child is under the age of 5 I think it is. After that the body seems to hold onto it more and things are a little more difficult. she has not cultured it again since and she is almost 5 now.
debs2girls
New member
We are currently awaiting culture results...this is the first time and I am kind of nervous about it...we find out Monday.
Debbie
Debbie
debs2girls
New member
We are currently awaiting culture results...this is the first time and I am kind of nervous about it...we find out Monday.
Debbie
Debbie
thelizardqueen
New member
I'm on one month TOBI, one month off, as well as 2 weeks of cipro when I actually am culturing.
thelizardqueen
New member
I'm on one month TOBI, one month off, as well as 2 weeks of cipro when I actually am culturing.
Dee, I was told by our doctors that it is impossible to erradicate and it would always come back....eventually. I am back in clinic next week and will ask them to explain it further. I wonder if it helped your child at 5 months, why they wouldn't put Tessa and Nicky on Toby IV, but on the nebulizer instead? Does anyone know about the amount of pseudo found in cultures. I was told Tessa and Nicky both has the same amount of cultures. They each had two. However I cannot figure out if this is good or bad or in between. Anybody know more? Also like to know more about how to possibly prevent it aside from the obvious handwashing etc.
Tanja (Mom to Nicky 3 and Tessa 14 months both w/cf)
Tanja (Mom to Nicky 3 and Tessa 14 months both w/cf)
Dee, I was told by our doctors that it is impossible to erradicate and it would always come back....eventually. I am back in clinic next week and will ask them to explain it further. I wonder if it helped your child at 5 months, why they wouldn't put Tessa and Nicky on Toby IV, but on the nebulizer instead? Does anyone know about the amount of pseudo found in cultures. I was told Tessa and Nicky both has the same amount of cultures. They each had two. However I cannot figure out if this is good or bad or in between. Anybody know more? Also like to know more about how to possibly prevent it aside from the obvious handwashing etc.
Tanja (Mom to Nicky 3 and Tessa 14 months both w/cf)
Tanja (Mom to Nicky 3 and Tessa 14 months both w/cf)
thelizardqueen
New member
I sometimes culture pseudo +4. That's not necessarily a bad thing, as I've ben culturing pseudo +4 since I was about 15. Its just different strenghs and strains. Sometimes I culture 2, sometimes 4.
thelizardqueen
New member
I sometimes culture pseudo +4. That's not necessarily a bad thing, as I've ben culturing pseudo +4 since I was about 15. Its just different strenghs and strains. Sometimes I culture 2, sometimes 4.
skydiverchic
New member
I am doing nebulizer tobi-off one month on one month and also taking zithromax three times a week.
skydiverchic
New member
I am doing nebulizer tobi-off one month on one month and also taking zithromax three times a week.
threecolors
New member
I nebulise colistin - twice daily, no breaks .... seems effective in my case <img src="i/expressions/nebulizer.gif" border="0">
<img src="i/expressions/face-icon-small-smile.gif" border="0">
<img src="i/expressions/face-icon-small-smile.gif" border="0">
threecolors
New member
I nebulise colistin - twice daily, no breaks .... seems effective in my case <img src="i/expressions/nebulizer.gif" border="0">
<img src="i/expressions/face-icon-small-smile.gif" border="0">
<img src="i/expressions/face-icon-small-smile.gif" border="0">
For years I took Cipro when I had a flare up. I have been on TObi alternating months for about 3 years or so. Last year things got a bit complicated & I switched to alternating TObi/Colistin neb, bactrim & zithromax daily. Saving the cipro for when things are really bad. AT the moment I have stailized so hopefully I can pull back on some things soon.
For years I took Cipro when I had a flare up. I have been on TObi alternating months for about 3 years or so. Last year things got a bit complicated & I switched to alternating TObi/Colistin neb, bactrim & zithromax daily. Saving the cipro for when things are really bad. AT the moment I have stailized so hopefully I can pull back on some things soon.