R
rarab43
Guest
When Will was taking the study drug he did continue all his other meds- like I said this was a short period of time that he was on the drug mainly to test for safety and dosage.
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PTC124
- Thread starter zoeg
- Start date
R
rarab43
Guest
When Will was taking the study drug he did continue all his other meds- like I said this was a short period of time that he was on the drug mainly to test for safety and dosage.
R
rarab43
Guest
When Will was taking the study drug he did continue all his other meds- like I said this was a short period of time that he was on the drug mainly to test for safety and dosage.
hopefullmom
New member
I have wondered that same thing, but I would guess that the cpt will not stop until they see how the meds work for the kids, but that is a guess. Christa
hopefullmom
New member
I have wondered that same thing, but I would guess that the cpt will not stop until they see how the meds work for the kids, but that is a guess. Christa
hopefullmom
New member
I have wondered that same thing, but I would guess that the cpt will not stop until they see how the meds work for the kids, but that is a guess. Christa
hopefullmom
New member
We are so excited...Maci which is 7 now should be starting the ptc124 trial within a month. I will keep you all posted on how it is going, praying for great results. It has been a rough year so far!!!
hopefullmom
New member
We are so excited...Maci which is 7 now should be starting the ptc124 trial within a month. I will keep you all posted on how it is going, praying for great results. It has been a rough year so far!!!
hopefullmom
New member
We are so excited...Maci which is 7 now should be starting the ptc124 trial within a month. I will keep you all posted on how it is going, praying for great results. It has been a rough year so far!!!
hopefullmom
New member
We are so excited...Maci which is 7 now should be starting the ptc124 trial within a month. I will keep you all posted on how it is going, praying for great results. It has been a rough year so far!!!
hopefullmom
New member
We are so excited...Maci which is 7 now should be starting the ptc124 trial within a month. I will keep you all posted on how it is going, praying for great results. It has been a rough year so far!!!
hopefullmom
New member
At Ut Tyler Health Center/CF Clinic 1800-877-7777...hope that helps. If you have any other questions you can always call me also at 903-363-7309. What mutations does your daughter have? Maci has DF508 and W1282X.
hopefullmom
New member
At Ut Tyler Health Center/CF Clinic 1800-877-7777...hope that helps. If you have any other questions you can always call me also at 903-363-7309. What mutations does your daughter have? Maci has DF508 and W1282X.
hopefullmom
New member
At Ut Tyler Health Center/CF Clinic 1800-877-7777...hope that helps. If you have any other questions you can always call me also at 903-363-7309. What mutations does your daughter have? Maci has DF508 and W1282X.
hopefullmom
New member
At Ut Tyler Health Center/CF Clinic 1800-877-7777...hope that helps. If you have any other questions you can always call me also at 903-363-7309. What mutations does your daughter have? Maci has DF508 and W1282X.