hopefullmom
New member
At Ut Tyler Health Center/CF Clinic 1800-877-7777...hope that helps. If you have any other questions you can always call me also at 903-363-7309. What mutations does your daughter have? Maci has DF508 and W1282X.
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PTC124
- Thread starter zoeg
- Start date
MargaritaChic
New member
This is a GREAT thread!
I have also been following PTC124. My daughter, Emma is 2 and she has DF508 and W1282X.
I have also been following PTC124. My daughter, Emma is 2 and she has DF508 and W1282X.
MargaritaChic
New member
This is a GREAT thread!
I have also been following PTC124. My daughter, Emma is 2 and she has DF508 and W1282X.
I have also been following PTC124. My daughter, Emma is 2 and she has DF508 and W1282X.
MargaritaChic
New member
This is a GREAT thread!
I have also been following PTC124. My daughter, Emma is 2 and she has DF508 and W1282X.
I have also been following PTC124. My daughter, Emma is 2 and she has DF508 and W1282X.
MargaritaChic
New member
This is a GREAT thread!
I have also been following PTC124. My daughter, Emma is 2 and she has DF508 and W1282X.
I have also been following PTC124. My daughter, Emma is 2 and she has DF508 and W1282X.
MargaritaChic
New member
This is a GREAT thread!
<br />
<br />I have also been following PTC124. My daughter, Emma is 2 and she has DF508 and W1282X.
<br />
<br />I have also been following PTC124. My daughter, Emma is 2 and she has DF508 and W1282X.
janddburke
New member
what do we need to do? wait for them to contact us or volunteer? how does this work?
janddburke
New member
what do we need to do? wait for them to contact us or volunteer? how does this work?
janddburke
New member
what do we need to do? wait for them to contact us or volunteer? how does this work?
janddburke
New member
what do we need to do? wait for them to contact us or volunteer? how does this work?
janddburke
New member
what do we need to do? wait for them to contact us or volunteer? how does this work?
hopefullmom
New member
I don't ever find out about anything unless I do research myself and bug our research cordinator to death about what is coming out. I still wouldn't know about this but I have been following it for so long and makeing phone calls is how we are getting involved. You can email me anytime and maybe we can help each other find things that will help these precious kids.
Christa mom to Maci 7 DF508 and W1282X
drewry5@embarqmail.com
I believe you can look under clinicaltrials.gov also
Christa mom to Maci 7 DF508 and W1282X
drewry5@embarqmail.com
I believe you can look under clinicaltrials.gov also
hopefullmom
New member
I don't ever find out about anything unless I do research myself and bug our research cordinator to death about what is coming out. I still wouldn't know about this but I have been following it for so long and makeing phone calls is how we are getting involved. You can email me anytime and maybe we can help each other find things that will help these precious kids.
Christa mom to Maci 7 DF508 and W1282X
drewry5@embarqmail.com
I believe you can look under clinicaltrials.gov also
Christa mom to Maci 7 DF508 and W1282X
drewry5@embarqmail.com
I believe you can look under clinicaltrials.gov also
hopefullmom
New member
I don't ever find out about anything unless I do research myself and bug our research cordinator to death about what is coming out. I still wouldn't know about this but I have been following it for so long and makeing phone calls is how we are getting involved. You can email me anytime and maybe we can help each other find things that will help these precious kids.
Christa mom to Maci 7 DF508 and W1282X
drewry5@embarqmail.com
I believe you can look under clinicaltrials.gov also
Christa mom to Maci 7 DF508 and W1282X
drewry5@embarqmail.com
I believe you can look under clinicaltrials.gov also
hopefullmom
New member
I don't ever find out about anything unless I do research myself and bug our research cordinator to death about what is coming out. I still wouldn't know about this but I have been following it for so long and makeing phone calls is how we are getting involved. You can email me anytime and maybe we can help each other find things that will help these precious kids.
Christa mom to Maci 7 DF508 and W1282X
drewry5@embarqmail.com
I believe you can look under clinicaltrials.gov also
Christa mom to Maci 7 DF508 and W1282X
drewry5@embarqmail.com
I believe you can look under clinicaltrials.gov also
hopefullmom
New member
I don't ever find out about anything unless I do research myself and bug our research cordinator to death about what is coming out. I still wouldn't know about this but I have been following it for so long and makeing phone calls is how we are getting involved. You can email me anytime and maybe we can help each other find things that will help these precious kids.
<br />Christa mom to Maci 7 DF508 and W1282X
<br />drewry5@embarqmail.com
<br />I believe you can look under clinicaltrials.gov also
<br />Christa mom to Maci 7 DF508 and W1282X
<br />drewry5@embarqmail.com
<br />I believe you can look under clinicaltrials.gov also