Pulmozyme and Tobi questions, and a quick intro

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BoardkilL

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>coltsfan715</b></i> I personally
wouldn't use the meds, but that is just me. I have been known to
use meds that have an expiration date of like a month past .. but a
year is a long time when dealing with some meds. As for pulmozyme
... I definitely would not use it if it has NOT been refrigerated
the ENTIRE time you have had it. Also don't use it if it is ANY
color other than clear. I don't know just the fact that you are
inhaling that stuff right into your lungs make me wary of using it
after the expiration date. Take Care and hope you start feeling
better soon. Also an idea - if someone already mentioned this sorry
- but could you get a script for Saline or Hypertonic saline to do
as a neb treatment. It is much much cheaper than pulmozyme and
essentially does the same thing (thins mucus so you can clear it
easier). Just a thought. Lindsey</end quote></div><br>
<br>
That was my problem with it too, straight to the lungs. I'm already
inhaling mucomyst anv ventoline with saline, it works quite well,
but Pulmozyme on top of that works even better. I also use quite a
lot of Mucomyst tablets (the stuff you mix with water) along with
my ventoline inhaler. I guess I'll just up the use of that until I
get back home. Would be good to know if expired pulmozyme was bad
though, or just weaker, that I could live with <img src="i/expressions/face-icon-small-wink.gif" border="0">.
 
B

BoardkilL

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>coltsfan715</b></i> I personally
wouldn't use the meds, but that is just me. I have been known to
use meds that have an expiration date of like a month past .. but a
year is a long time when dealing with some meds. As for pulmozyme
... I definitely would not use it if it has NOT been refrigerated
the ENTIRE time you have had it. Also don't use it if it is ANY
color other than clear. I don't know just the fact that you are
inhaling that stuff right into your lungs make me wary of using it
after the expiration date. Take Care and hope you start feeling
better soon. Also an idea - if someone already mentioned this sorry
- but could you get a script for Saline or Hypertonic saline to do
as a neb treatment. It is much much cheaper than pulmozyme and
essentially does the same thing (thins mucus so you can clear it
easier). Just a thought. Lindsey</end quote></div><br>
<br>
That was my problem with it too, straight to the lungs. I'm already
inhaling mucomyst anv ventoline with saline, it works quite well,
but Pulmozyme on top of that works even better. I also use quite a
lot of Mucomyst tablets (the stuff you mix with water) along with
my ventoline inhaler. I guess I'll just up the use of that until I
get back home. Would be good to know if expired pulmozyme was bad
though, or just weaker, that I could live with <img src="i/expressions/face-icon-small-wink.gif" border="0">.
 
B

BoardkilL

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Lynda</b></i> By feeling worse, do
you mean more short of breath or something?</end quote></div><br>
<br>
Or something yeah. It's pretty much that I'm a lot shorter of
breath than I'd like. I guess I shouldn't complain as a lot of
people in here are probably heaps worse than I am, I think I was at
around 90% lung function last I checked, but then again I felt a
lot better then than I do now.<br>
<br>
<div class="FTQUOTE"><begin quote>As for the cold climate....do you think you actually felt better
in the cooler climate? When I was younger we lived in a much colder
State then where I live now and my sister & myself actually did
better w/ our CF there where it was colder....as crazy as that
sounds. It could have all been coincidence I suppose. Welcome to
the forums<img src="i/expressions/face-icon-small-smile.gif" border="0"></end quote></div><br>
<br>
That is a bit strange, but certainly lucky for you <img src="i/expressions/face-icon-small-smile.gif" border="0"> . Both my
brother and I feel worse in cold weather, and the warm climate in
Australia has helped me a lot. I think I have the climate to thank
for the fact that I have been able to get away with three IV
treatments compared to my normal 14 or so, these last 3,5 years.
And the ones I had were mostly because I went on holidays to Norway
for 1-2 months and got sick from the bad climate.
 
B

BoardkilL

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Lynda</b></i> By feeling worse, do
you mean more short of breath or something?</end quote></div><br>
<br>
Or something yeah. It's pretty much that I'm a lot shorter of
breath than I'd like. I guess I shouldn't complain as a lot of
people in here are probably heaps worse than I am, I think I was at
around 90% lung function last I checked, but then again I felt a
lot better then than I do now.<br>
<br>
<div class="FTQUOTE"><begin quote>As for the cold climate....do you think you actually felt better
in the cooler climate? When I was younger we lived in a much colder
State then where I live now and my sister & myself actually did
better w/ our CF there where it was colder....as crazy as that
sounds. It could have all been coincidence I suppose. Welcome to
the forums<img src="i/expressions/face-icon-small-smile.gif" border="0"></end quote></div><br>
<br>
That is a bit strange, but certainly lucky for you <img src="i/expressions/face-icon-small-smile.gif" border="0"> . Both my
brother and I feel worse in cold weather, and the warm climate in
Australia has helped me a lot. I think I have the climate to thank
for the fact that I have been able to get away with three IV
treatments compared to my normal 14 or so, these last 3,5 years.
And the ones I had were mostly because I went on holidays to Norway
for 1-2 months and got sick from the bad climate.
 
B

BoardkilL

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Lynda</b></i> By feeling worse, do
you mean more short of breath or something?</end quote></div><br>
<br>
Or something yeah. It's pretty much that I'm a lot shorter of
breath than I'd like. I guess I shouldn't complain as a lot of
people in here are probably heaps worse than I am, I think I was at
around 90% lung function last I checked, but then again I felt a
lot better then than I do now.<br>
<br>
<div class="FTQUOTE"><begin quote>As for the cold climate....do you think you actually felt better
in the cooler climate? When I was younger we lived in a much colder
State then where I live now and my sister & myself actually did
better w/ our CF there where it was colder....as crazy as that
sounds. It could have all been coincidence I suppose. Welcome to
the forums<img src="i/expressions/face-icon-small-smile.gif" border="0"></end quote></div><br>
<br>
That is a bit strange, but certainly lucky for you <img src="i/expressions/face-icon-small-smile.gif" border="0"> . Both my
brother and I feel worse in cold weather, and the warm climate in
Australia has helped me a lot. I think I have the climate to thank
for the fact that I have been able to get away with three IV
treatments compared to my normal 14 or so, these last 3,5 years.
And the ones I had were mostly because I went on holidays to Norway
for 1-2 months and got sick from the bad climate.
 
B

BoardkilL

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Ender</b></i> Ya I dunno... Enzymes
ya sure...the least they can do is digest less..I've even had bad
batches of non expired enzymes (why are they not regulated!
biotches) I wouldn't for the antibiotics. When things expire, it
usually means it has lost some of it's integrity, and therefor some
of it's function. Is it 90%, 80% 50% good? If you are taking
antibiotics that are 50% effective, it won't kill the bugs.
However, it will create a great place for resistance. Pulmozyme is
50/50 for me. I don't think it can hurt you. And if ALL it does is
lose it's function a bit, some of it will help. Try googleing
"pulmozyme expired" and see what happens If australia is
anything like canada, you can buy the 5% saline bags at a hospital
for about 5 dollars, and draw it with a needle. Take 4cc's of that
twice a day, and it may help. Or you can try and get a script for
mucomyst. It's not overly expensive. Good luck dude Oh and welcome.
I'm Kiel <img src="i/expressions/face-icon-small-tongue.gif" border="0"></end quote></div><br>
<br>
When I first moved to Australia I brought a ton of meds with me
from Norway, over a years worth. I had a big suitcase full of meds
and another big bag almost full (screw clothes, Australia was
<i>supposed</i> to be warm). Later my parents sent me boxes with
the stuff through the mail every now and then.<br>
<br>
I have heaps of mucomyst, saline, ventoline, enzymes and so forth,
so I don't have to buy any, luckily.<br>
<br>
I think you probably have a good point about the antibiotics, I'll
just skip that idea. I'm inclined to try the pulmozyme. I tried
googling it, but found nothing. I did find this forum however, so
some good came of it <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
B

BoardkilL

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Ender</b></i> Ya I dunno... Enzymes
ya sure...the least they can do is digest less..I've even had bad
batches of non expired enzymes (why are they not regulated!
biotches) I wouldn't for the antibiotics. When things expire, it
usually means it has lost some of it's integrity, and therefor some
of it's function. Is it 90%, 80% 50% good? If you are taking
antibiotics that are 50% effective, it won't kill the bugs.
However, it will create a great place for resistance. Pulmozyme is
50/50 for me. I don't think it can hurt you. And if ALL it does is
lose it's function a bit, some of it will help. Try googleing
"pulmozyme expired" and see what happens If australia is
anything like canada, you can buy the 5% saline bags at a hospital
for about 5 dollars, and draw it with a needle. Take 4cc's of that
twice a day, and it may help. Or you can try and get a script for
mucomyst. It's not overly expensive. Good luck dude Oh and welcome.
I'm Kiel <img src="i/expressions/face-icon-small-tongue.gif" border="0"></end quote></div><br>
<br>
When I first moved to Australia I brought a ton of meds with me
from Norway, over a years worth. I had a big suitcase full of meds
and another big bag almost full (screw clothes, Australia was
<i>supposed</i> to be warm). Later my parents sent me boxes with
the stuff through the mail every now and then.<br>
<br>
I have heaps of mucomyst, saline, ventoline, enzymes and so forth,
so I don't have to buy any, luckily.<br>
<br>
I think you probably have a good point about the antibiotics, I'll
just skip that idea. I'm inclined to try the pulmozyme. I tried
googling it, but found nothing. I did find this forum however, so
some good came of it <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
B

BoardkilL

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Ender</b></i> Ya I dunno... Enzymes
ya sure...the least they can do is digest less..I've even had bad
batches of non expired enzymes (why are they not regulated!
biotches) I wouldn't for the antibiotics. When things expire, it
usually means it has lost some of it's integrity, and therefor some
of it's function. Is it 90%, 80% 50% good? If you are taking
antibiotics that are 50% effective, it won't kill the bugs.
However, it will create a great place for resistance. Pulmozyme is
50/50 for me. I don't think it can hurt you. And if ALL it does is
lose it's function a bit, some of it will help. Try googleing
"pulmozyme expired" and see what happens If australia is
anything like canada, you can buy the 5% saline bags at a hospital
for about 5 dollars, and draw it with a needle. Take 4cc's of that
twice a day, and it may help. Or you can try and get a script for
mucomyst. It's not overly expensive. Good luck dude Oh and welcome.
I'm Kiel <img src="i/expressions/face-icon-small-tongue.gif" border="0"></end quote></div><br>
<br>
When I first moved to Australia I brought a ton of meds with me
from Norway, over a years worth. I had a big suitcase full of meds
and another big bag almost full (screw clothes, Australia was
<i>supposed</i> to be warm). Later my parents sent me boxes with
the stuff through the mail every now and then.<br>
<br>
I have heaps of mucomyst, saline, ventoline, enzymes and so forth,
so I don't have to buy any, luckily.<br>
<br>
I think you probably have a good point about the antibiotics, I'll
just skip that idea. I'm inclined to try the pulmozyme. I tried
googling it, but found nothing. I did find this forum however, so
some good came of it <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
H

HairGirl

New member
Welcome to the forum! I know one thing they say about Pulmozyme is not to use it if it becomes discolored. I personally wouldn't use meds that have expired over a year. My only suggestion is to try and not wait until you move back in December, the longer you wait the harder it is to get your health back.
 
H

HairGirl

New member
Welcome to the forum! I know one thing they say about Pulmozyme is not to use it if it becomes discolored. I personally wouldn't use meds that have expired over a year. My only suggestion is to try and not wait until you move back in December, the longer you wait the harder it is to get your health back.
 
H

HairGirl

New member
Welcome to the forum! I know one thing they say about Pulmozyme is not to use it if it becomes discolored. I personally wouldn't use meds that have expired over a year. My only suggestion is to try and not wait until you move back in December, the longer you wait the harder it is to get your health back.
 
L

Landy

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>BoardkilL</b></i>

<div class="FTQUOTE"><begin quote>As for the cold climate....do you think you actually felt better
in the cooler climate? When I was younger we lived in a much colder
State then where I live now and my sister & myself actually did
better w/ our CF there where it was colder....as crazy as that
sounds. It could have all been coincidence I suppose. Welcome to
the forums<img src="i/expressions/face-icon-small-smile.gif" border="0"></end quote></div>

That is a bit strange, but certainly lucky for you <img src="i/expressions/face-icon-small-smile.gif" border="0"> . Both my
brother and I feel worse in cold weather, and the warm climate in
Australia has helped me a lot. I think I have the climate to thank
for the fact that I have been able to get away with three IV
treatments compared to my normal 14 or so, these last 3,5 years.
And the ones I had were mostly because I went on holidays to Norway
for 1-2 months and got sick from the bad climate.</end quote></div>

Well....so much for my theory<img src="i/expressions/face-icon-small-confused.gif" border="0"><img src="i/expressions/face-icon-small-smile.gif" border="0">

I was basing in on the fact that my sister & I had done well and also the fact that Minnesota, which isn't exactly known for it's warm climate supposedly has some of the oldest CFers in the US.
I know, I know....before someone bashes me on the fact that Dr. Warwick's care has to do with longevity of Minnesota CFers, I thought that maybe the cooler climate played a small part in it too. Who knows.
 
L

Landy

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>BoardkilL</b></i>

<div class="FTQUOTE"><begin quote>As for the cold climate....do you think you actually felt better
in the cooler climate? When I was younger we lived in a much colder
State then where I live now and my sister & myself actually did
better w/ our CF there where it was colder....as crazy as that
sounds. It could have all been coincidence I suppose. Welcome to
the forums<img src="i/expressions/face-icon-small-smile.gif" border="0"></end quote></div>

That is a bit strange, but certainly lucky for you <img src="i/expressions/face-icon-small-smile.gif" border="0"> . Both my
brother and I feel worse in cold weather, and the warm climate in
Australia has helped me a lot. I think I have the climate to thank
for the fact that I have been able to get away with three IV
treatments compared to my normal 14 or so, these last 3,5 years.
And the ones I had were mostly because I went on holidays to Norway
for 1-2 months and got sick from the bad climate.</end quote></div>

Well....so much for my theory<img src="i/expressions/face-icon-small-confused.gif" border="0"><img src="i/expressions/face-icon-small-smile.gif" border="0">

I was basing in on the fact that my sister & I had done well and also the fact that Minnesota, which isn't exactly known for it's warm climate supposedly has some of the oldest CFers in the US.
I know, I know....before someone bashes me on the fact that Dr. Warwick's care has to do with longevity of Minnesota CFers, I thought that maybe the cooler climate played a small part in it too. Who knows.
 
L

Landy

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>BoardkilL</b></i>

<div class="FTQUOTE"><begin quote>As for the cold climate....do you think you actually felt better
in the cooler climate? When I was younger we lived in a much colder
State then where I live now and my sister & myself actually did
better w/ our CF there where it was colder....as crazy as that
sounds. It could have all been coincidence I suppose. Welcome to
the forums<img src="i/expressions/face-icon-small-smile.gif" border="0"></end quote></div>

That is a bit strange, but certainly lucky for you <img src="i/expressions/face-icon-small-smile.gif" border="0"> . Both my
brother and I feel worse in cold weather, and the warm climate in
Australia has helped me a lot. I think I have the climate to thank
for the fact that I have been able to get away with three IV
treatments compared to my normal 14 or so, these last 3,5 years.
And the ones I had were mostly because I went on holidays to Norway
for 1-2 months and got sick from the bad climate.</end quote></div>

Well....so much for my theory<img src="i/expressions/face-icon-small-confused.gif" border="0"><img src="i/expressions/face-icon-small-smile.gif" border="0">

I was basing in on the fact that my sister & I had done well and also the fact that Minnesota, which isn't exactly known for it's warm climate supposedly has some of the oldest CFers in the US.
I know, I know....before someone bashes me on the fact that Dr. Warwick's care has to do with longevity of Minnesota CFers, I thought that maybe the cooler climate played a small part in it too. Who knows.
 
B

BoardkilL

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Diane</b></i> Welcome to the site
<img src="i/expressions/face-icon-small-smile.gif" border="0"></end quote></div><br>
<br>
Thank you. As you might have notice I have done my best to spam the
site during my first day here. Just great to find a place like this
on a whim <img src="i/expressions/face-icon-small-smile.gif" border="0">.
 
B

BoardkilL

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Diane</b></i> Welcome to the site
<img src="i/expressions/face-icon-small-smile.gif" border="0"></end quote></div><br>
<br>
Thank you. As you might have notice I have done my best to spam the
site during my first day here. Just great to find a place like this
on a whim <img src="i/expressions/face-icon-small-smile.gif" border="0">.
 
B

BoardkilL

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Diane</b></i> Welcome to the site
<img src="i/expressions/face-icon-small-smile.gif" border="0"></end quote></div><br>
<br>
Thank you. As you might have notice I have done my best to spam the
site during my first day here. Just great to find a place like this
on a whim <img src="i/expressions/face-icon-small-smile.gif" border="0">.
 
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