Pulmozyme and Tobi questions, and a quick intro

BoardkilL

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>MyNewfy</b></i> Welcome aboard
boardkill. By the way, I like your site. Nice stuff.</end quote></div><br>
<br>
Thank you. I try my best <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

BoardkilL

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>MyNewfy</b></i> Welcome aboard
boardkill. By the way, I like your site. Nice stuff.</end quote></div><br>
<br>
Thank you. I try my best <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

BoardkilL

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>MyNewfy</b></i> Welcome aboard
boardkill. By the way, I like your site. Nice stuff.</end quote></div><br>
<br>
Thank you. I try my best <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

Justsmurfin

New member
As long as the Pulmozyme is clear I would use it. Thats my rule of thumb for MOST inhaled meds(excluding TOBI and MucoMyst)

Heck I've used Pulmozyme after its been out of the fridge for a week or so and it still worked just as good!

TOBI however I probably wouldn't use unless it had just expired
 

Justsmurfin

New member
As long as the Pulmozyme is clear I would use it. Thats my rule of thumb for MOST inhaled meds(excluding TOBI and MucoMyst)

Heck I've used Pulmozyme after its been out of the fridge for a week or so and it still worked just as good!

TOBI however I probably wouldn't use unless it had just expired
 

Justsmurfin

New member
As long as the Pulmozyme is clear I would use it. Thats my rule of thumb for MOST inhaled meds(excluding TOBI and MucoMyst)

Heck I've used Pulmozyme after its been out of the fridge for a week or so and it still worked just as good!

TOBI however I probably wouldn't use unless it had just expired
 

kybert

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>BoardkilL</b></i>

Mate, that sucks. I didn't know it was that bad down here. I guess
I've been lucky living in my own little bubble, with everything
supplied from Norway free of charge.

Well, at least the climate isn't as bad as in Norway. I've only
been to se Dr Ryan at Charlie Gardner a couple of times, he seems
cool. The hospital, especially the respiratory department, reminds
me of the clinics they had when we went on CF camp in yugoslavia
back in the day (before the war).

It would be really interesting to hear more about CF treatment in
Oz, more than the little I've been told by the doctor down here...</end quote></div>

yeah, doctor ryan is good. its just a shame that he isnt given much to work with and his patient load is pretty insane. rofl to the clinic comparison! have you seen it since it was refurbished? looks much better than before but things still dont work and most of the staff are still unprofessional morons. i went to the toilet one day, the brand new toilet, and the lock wouldnt work, the toilet wouldnt flush, then the door fell off! its not as bad in the eastern states. in fact, ive heard extremely good things about sydney and melbourne. they are pretty much on par with US hospitals by the sounds of things.
 

kybert

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>BoardkilL</b></i>

Mate, that sucks. I didn't know it was that bad down here. I guess
I've been lucky living in my own little bubble, with everything
supplied from Norway free of charge.

Well, at least the climate isn't as bad as in Norway. I've only
been to se Dr Ryan at Charlie Gardner a couple of times, he seems
cool. The hospital, especially the respiratory department, reminds
me of the clinics they had when we went on CF camp in yugoslavia
back in the day (before the war).

It would be really interesting to hear more about CF treatment in
Oz, more than the little I've been told by the doctor down here...</end quote></div>

yeah, doctor ryan is good. its just a shame that he isnt given much to work with and his patient load is pretty insane. rofl to the clinic comparison! have you seen it since it was refurbished? looks much better than before but things still dont work and most of the staff are still unprofessional morons. i went to the toilet one day, the brand new toilet, and the lock wouldnt work, the toilet wouldnt flush, then the door fell off! its not as bad in the eastern states. in fact, ive heard extremely good things about sydney and melbourne. they are pretty much on par with US hospitals by the sounds of things.
 

kybert

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>BoardkilL</b></i>

Mate, that sucks. I didn't know it was that bad down here. I guess
I've been lucky living in my own little bubble, with everything
supplied from Norway free of charge.

Well, at least the climate isn't as bad as in Norway. I've only
been to se Dr Ryan at Charlie Gardner a couple of times, he seems
cool. The hospital, especially the respiratory department, reminds
me of the clinics they had when we went on CF camp in yugoslavia
back in the day (before the war).

It would be really interesting to hear more about CF treatment in
Oz, more than the little I've been told by the doctor down here...</end quote></div>

yeah, doctor ryan is good. its just a shame that he isnt given much to work with and his patient load is pretty insane. rofl to the clinic comparison! have you seen it since it was refurbished? looks much better than before but things still dont work and most of the staff are still unprofessional morons. i went to the toilet one day, the brand new toilet, and the lock wouldnt work, the toilet wouldnt flush, then the door fell off! its not as bad in the eastern states. in fact, ive heard extremely good things about sydney and melbourne. they are pretty much on par with US hospitals by the sounds of things.
 

BoardkilL

New member
I haven't been to the clinic since they fixed it up, I think. I've
been to Charlie Gardiner a bunch of times while, and after, they
fixed that up. I used to work as a courier, delivering flowers, and
a lot of those went to SCGH. It looks better than a lot of the
other hospitals now that they spruced it up a little. It's still
nothing like Hollywood, Mounts Bay or those other private
hospitals. <img src="i/expressions/face-icon-small-wink.gif" border="0">
 

BoardkilL

New member
I haven't been to the clinic since they fixed it up, I think. I've
been to Charlie Gardiner a bunch of times while, and after, they
fixed that up. I used to work as a courier, delivering flowers, and
a lot of those went to SCGH. It looks better than a lot of the
other hospitals now that they spruced it up a little. It's still
nothing like Hollywood, Mounts Bay or those other private
hospitals. <img src="i/expressions/face-icon-small-wink.gif" border="0">
 

BoardkilL

New member
I haven't been to the clinic since they fixed it up, I think. I've
been to Charlie Gardiner a bunch of times while, and after, they
fixed that up. I used to work as a courier, delivering flowers, and
a lot of those went to SCGH. It looks better than a lot of the
other hospitals now that they spruced it up a little. It's still
nothing like Hollywood, Mounts Bay or those other private
hospitals. <img src="i/expressions/face-icon-small-wink.gif" border="0">
 

kybert

New member
do you mean the emergency/foyer section that they refurbished? thats actually the only section they did up, they left the rest of the hospital to rot. i guess they did that just to make a good impression for the people who go no further than the foyer rofl! oh yeah i wish i could go to st john of god instead haha. i have private health insurance and i hardly ever get to use it because there are no private cf services. apparently you get wine with dinner at the private hospitals lol.
 

kybert

New member
do you mean the emergency/foyer section that they refurbished? thats actually the only section they did up, they left the rest of the hospital to rot. i guess they did that just to make a good impression for the people who go no further than the foyer rofl! oh yeah i wish i could go to st john of god instead haha. i have private health insurance and i hardly ever get to use it because there are no private cf services. apparently you get wine with dinner at the private hospitals lol.
 

kybert

New member
do you mean the emergency/foyer section that they refurbished? thats actually the only section they did up, they left the rest of the hospital to rot. i guess they did that just to make a good impression for the people who go no further than the foyer rofl! oh yeah i wish i could go to st john of god instead haha. i have private health insurance and i hardly ever get to use it because there are no private cf services. apparently you get wine with dinner at the private hospitals lol.
 
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