put on feeding tube.

shimmereestar

New member
Hi,
First I want you to know that I'm praying for you and your family. I really hope Kayla feels better soon. Ellie had to use the viokase before as well (before she learned how to take the creon) and it worked for her as well. I send you hugs.
 

shimmereestar

New member
Hi,
First I want you to know that I'm praying for you and your family. I really hope Kayla feels better soon. Ellie had to use the viokase before as well (before she learned how to take the creon) and it worked for her as well. I send you hugs.
 

shimmereestar

New member
Hi,
First I want you to know that I'm praying for you and your family. I really hope Kayla feels better soon. Ellie had to use the viokase before as well (before she learned how to take the creon) and it worked for her as well. I send you hugs.
 

shimmereestar

New member
Hi,
First I want you to know that I'm praying for you and your family. I really hope Kayla feels better soon. Ellie had to use the viokase before as well (before she learned how to take the creon) and it worked for her as well. I send you hugs.
 

shimmereestar

New member
Hi,
<br />First I want you to know that I'm praying for you and your family. I really hope Kayla feels better soon. Ellie had to use the viokase before as well (before she learned how to take the creon) and it worked for her as well. I send you hugs.
 

kaylasdad

New member
Let me start by saying thanks to you all for your support.
Kayla is starting to take her enzymes better, and they sent her home with the ngtube. She already gained a few oz before we left the hospital ,
she is still breathing alittle fast from the from the holes she had to have fixed in her heart witch is burning cals.
Thanks again i will keep you posted.
 

kaylasdad

New member
Let me start by saying thanks to you all for your support.
Kayla is starting to take her enzymes better, and they sent her home with the ngtube. She already gained a few oz before we left the hospital ,
she is still breathing alittle fast from the from the holes she had to have fixed in her heart witch is burning cals.
Thanks again i will keep you posted.
 

kaylasdad

New member
Let me start by saying thanks to you all for your support.
Kayla is starting to take her enzymes better, and they sent her home with the ngtube. She already gained a few oz before we left the hospital ,
she is still breathing alittle fast from the from the holes she had to have fixed in her heart witch is burning cals.
Thanks again i will keep you posted.
 

kaylasdad

New member
Let me start by saying thanks to you all for your support.
Kayla is starting to take her enzymes better, and they sent her home with the ngtube. She already gained a few oz before we left the hospital ,
she is still breathing alittle fast from the from the holes she had to have fixed in her heart witch is burning cals.
Thanks again i will keep you posted.
 

kaylasdad

New member
Let me start by saying thanks to you all for your support.
<br />Kayla is starting to take her enzymes better, and they sent her home with the ngtube. She already gained a few oz before we left the hospital ,
<br />she is still breathing alittle fast from the from the holes she had to have fixed in her heart witch is burning cals.
<br />Thanks again i will keep you posted.
 

BabyBeauty

New member
Kaylasdad,

I think we joined around the same time. I keep up with you a bit. I am really sorry to hear about your little angel! You guys are in my prayers!

I wish I had some advice, but I am new to this just as you. The one great benefit we have is modern medicine. I can't imagine getting the diagnosis of CF 10-20 years ago. Now we have access to technology to get our babies healthy.

Like I said before I am praying for your family. She is an absolute doll by the way! She reminds me of my Avery sleeping!
 

BabyBeauty

New member
Kaylasdad,

I think we joined around the same time. I keep up with you a bit. I am really sorry to hear about your little angel! You guys are in my prayers!

I wish I had some advice, but I am new to this just as you. The one great benefit we have is modern medicine. I can't imagine getting the diagnosis of CF 10-20 years ago. Now we have access to technology to get our babies healthy.

Like I said before I am praying for your family. She is an absolute doll by the way! She reminds me of my Avery sleeping!
 

BabyBeauty

New member
Kaylasdad,

I think we joined around the same time. I keep up with you a bit. I am really sorry to hear about your little angel! You guys are in my prayers!

I wish I had some advice, but I am new to this just as you. The one great benefit we have is modern medicine. I can't imagine getting the diagnosis of CF 10-20 years ago. Now we have access to technology to get our babies healthy.

Like I said before I am praying for your family. She is an absolute doll by the way! She reminds me of my Avery sleeping!
 

BabyBeauty

New member
Kaylasdad,

I think we joined around the same time. I keep up with you a bit. I am really sorry to hear about your little angel! You guys are in my prayers!

I wish I had some advice, but I am new to this just as you. The one great benefit we have is modern medicine. I can't imagine getting the diagnosis of CF 10-20 years ago. Now we have access to technology to get our babies healthy.

Like I said before I am praying for your family. She is an absolute doll by the way! She reminds me of my Avery sleeping!
 

BabyBeauty

New member
Kaylasdad,
<br />
<br />I think we joined around the same time. I keep up with you a bit. I am really sorry to hear about your little angel! You guys are in my prayers!
<br />
<br />I wish I had some advice, but I am new to this just as you. The one great benefit we have is modern medicine. I can't imagine getting the diagnosis of CF 10-20 years ago. Now we have access to technology to get our babies healthy.
<br />
<br />Like I said before I am praying for your family. She is an absolute doll by the way! She reminds me of my Avery sleeping!
 
Top