Question about telling your parents all about CF

B

bittyhorse23

New member
Ok this might seem like a strange topic but I am hoping I am not the only one to have to do this.

My parents divorced when I was 2 and I was diagnosed at 5 so needless to say my Dad was never eally around for the brunt of CF treatments while my mom was. He always visits me when I go in the hospital and this last time I was in I was talking to him and my stepmom and when I mentioned something about transplant they both got this deer in headlights look on their faces. They asked if transplants were common for CF and it just seemed like they hadn't a clue about anything. My dad got this really weird look on his face so I decided to not jump into anything then and there. BUT I want to sit down with him and my step-mom and explain everything to them.

My question is WHAT do I say? This is entirely different than telling a potential partner I think and I am afraid of scaring him. But I want him to know all that is going on with me. So if anyone has had this talk with their parents before and has any advice I would appreciate it <img src="i/expressions/face-icon-small-smile.gif" border="0">

I'm going to wait till after the holidays of course <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
B

bittyhorse23

New member
Ok this might seem like a strange topic but I am hoping I am not the only one to have to do this.

My parents divorced when I was 2 and I was diagnosed at 5 so needless to say my Dad was never eally around for the brunt of CF treatments while my mom was. He always visits me when I go in the hospital and this last time I was in I was talking to him and my stepmom and when I mentioned something about transplant they both got this deer in headlights look on their faces. They asked if transplants were common for CF and it just seemed like they hadn't a clue about anything. My dad got this really weird look on his face so I decided to not jump into anything then and there. BUT I want to sit down with him and my step-mom and explain everything to them.

My question is WHAT do I say? This is entirely different than telling a potential partner I think and I am afraid of scaring him. But I want him to know all that is going on with me. So if anyone has had this talk with their parents before and has any advice I would appreciate it <img src="i/expressions/face-icon-small-smile.gif" border="0">

I'm going to wait till after the holidays of course <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
B

bittyhorse23

New member
Ok this might seem like a strange topic but I am hoping I am not the only one to have to do this.

My parents divorced when I was 2 and I was diagnosed at 5 so needless to say my Dad was never eally around for the brunt of CF treatments while my mom was. He always visits me when I go in the hospital and this last time I was in I was talking to him and my stepmom and when I mentioned something about transplant they both got this deer in headlights look on their faces. They asked if transplants were common for CF and it just seemed like they hadn't a clue about anything. My dad got this really weird look on his face so I decided to not jump into anything then and there. BUT I want to sit down with him and my step-mom and explain everything to them.

My question is WHAT do I say? This is entirely different than telling a potential partner I think and I am afraid of scaring him. But I want him to know all that is going on with me. So if anyone has had this talk with their parents before and has any advice I would appreciate it <img src="i/expressions/face-icon-small-smile.gif" border="0">

I'm going to wait till after the holidays of course <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
B

bittyhorse23

New member
Ok this might seem like a strange topic but I am hoping I am not the only one to have to do this.

My parents divorced when I was 2 and I was diagnosed at 5 so needless to say my Dad was never eally around for the brunt of CF treatments while my mom was. He always visits me when I go in the hospital and this last time I was in I was talking to him and my stepmom and when I mentioned something about transplant they both got this deer in headlights look on their faces. They asked if transplants were common for CF and it just seemed like they hadn't a clue about anything. My dad got this really weird look on his face so I decided to not jump into anything then and there. BUT I want to sit down with him and my step-mom and explain everything to them.

My question is WHAT do I say? This is entirely different than telling a potential partner I think and I am afraid of scaring him. But I want him to know all that is going on with me. So if anyone has had this talk with their parents before and has any advice I would appreciate it <img src="i/expressions/face-icon-small-smile.gif" border="0">

I'm going to wait till after the holidays of course <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
B

bittyhorse23

New member
Ok this might seem like a strange topic but I am hoping I am not the only one to have to do this.

My parents divorced when I was 2 and I was diagnosed at 5 so needless to say my Dad was never eally around for the brunt of CF treatments while my mom was. He always visits me when I go in the hospital and this last time I was in I was talking to him and my stepmom and when I mentioned something about transplant they both got this deer in headlights look on their faces. They asked if transplants were common for CF and it just seemed like they hadn't a clue about anything. My dad got this really weird look on his face so I decided to not jump into anything then and there. BUT I want to sit down with him and my step-mom and explain everything to them.

My question is WHAT do I say? This is entirely different than telling a potential partner I think and I am afraid of scaring him. But I want him to know all that is going on with me. So if anyone has had this talk with their parents before and has any advice I would appreciate it <img src="i/expressions/face-icon-small-smile.gif" border="0">

I'm going to wait till after the holidays of course <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
E

Emily65Roses

New member
I have zero advice. I have not been in this situation. But if it were me, I'd go about it the same basic way I go about telling anyone else. Honest, but keep the mood as "light" as possible. People take cues off of you. If you talk about it without making it seem like you're discussing funeral plans, then the people are less likely to freak out. Basically, be at ease, and so will the people who are hearing it. <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
E

Emily65Roses

New member
I have zero advice. I have not been in this situation. But if it were me, I'd go about it the same basic way I go about telling anyone else. Honest, but keep the mood as "light" as possible. People take cues off of you. If you talk about it without making it seem like you're discussing funeral plans, then the people are less likely to freak out. Basically, be at ease, and so will the people who are hearing it. <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
E

Emily65Roses

New member
I have zero advice. I have not been in this situation. But if it were me, I'd go about it the same basic way I go about telling anyone else. Honest, but keep the mood as "light" as possible. People take cues off of you. If you talk about it without making it seem like you're discussing funeral plans, then the people are less likely to freak out. Basically, be at ease, and so will the people who are hearing it. <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
E

Emily65Roses

New member
I have zero advice. I have not been in this situation. But if it were me, I'd go about it the same basic way I go about telling anyone else. Honest, but keep the mood as "light" as possible. People take cues off of you. If you talk about it without making it seem like you're discussing funeral plans, then the people are less likely to freak out. Basically, be at ease, and so will the people who are hearing it. <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
E

Emily65Roses

New member
I have zero advice. I have not been in this situation. But if it were me, I'd go about it the same basic way I go about telling anyone else. Honest, but keep the mood as "light" as possible. People take cues off of you. If you talk about it without making it seem like you're discussing funeral plans, then the people are less likely to freak out. Basically, be at ease, and so will the people who are hearing it. <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
S

Skye

New member
Amy,
I think we all deal with this at all levels. Frankly, I deal with this with my own husband. No one knows as much about this disease or understands it as much as we as patients do. Heck, I have had to explain things to doctors. I think Emily had some good advice. By the way, check out my praise report in the prayer request section. We had an AWESOME day at the Cleveland Clinic last week.

Merry Christmas to you and congrats on your recent graduation. You are awesome!
 
S

Skye

New member
Amy,
I think we all deal with this at all levels. Frankly, I deal with this with my own husband. No one knows as much about this disease or understands it as much as we as patients do. Heck, I have had to explain things to doctors. I think Emily had some good advice. By the way, check out my praise report in the prayer request section. We had an AWESOME day at the Cleveland Clinic last week.

Merry Christmas to you and congrats on your recent graduation. You are awesome!
 
S

Skye

New member
Amy,
I think we all deal with this at all levels. Frankly, I deal with this with my own husband. No one knows as much about this disease or understands it as much as we as patients do. Heck, I have had to explain things to doctors. I think Emily had some good advice. By the way, check out my praise report in the prayer request section. We had an AWESOME day at the Cleveland Clinic last week.

Merry Christmas to you and congrats on your recent graduation. You are awesome!
 
S

Skye

New member
Amy,
I think we all deal with this at all levels. Frankly, I deal with this with my own husband. No one knows as much about this disease or understands it as much as we as patients do. Heck, I have had to explain things to doctors. I think Emily had some good advice. By the way, check out my praise report in the prayer request section. We had an AWESOME day at the Cleveland Clinic last week.

Merry Christmas to you and congrats on your recent graduation. You are awesome!
 
S

Skye

New member
Amy,
I think we all deal with this at all levels. Frankly, I deal with this with my own husband. No one knows as much about this disease or understands it as much as we as patients do. Heck, I have had to explain things to doctors. I think Emily had some good advice. By the way, check out my praise report in the prayer request section. We had an AWESOME day at the Cleveland Clinic last week.

Merry Christmas to you and congrats on your recent graduation. You are awesome!
 
M

MCGrad2006

Guest
I have not had to deal with that aspect of CF yet either, as far as Tx anyway. I think like Skye said, we all deal with it at different levels. My mom is less understanding than my dad, but I can talk to her more about these things. Like I tell her all about you guys on here, but I dont talk to my dad that much. But he knows that I will most likely be getting admitted on Wed at my appt...my mom still thinks that maybe I wont be (even tho I am sick for like the 4th time since sept and am coughing up a storm).

Like Emily said, play it down. If they see that you are less concerned, they will follow your lead. Unless of course they are my Nana or my aunt, who blows everything out of proportion...even when I sauy 212497947 times that I dont care about the Hosp or IV's. I tell them I am not worried and that its no big deal, but they are like well it is for me. WTF does it matter to you...lol. But if you feel comfortable tell them the facts, and let them know how you feel. Let them know what you want them to do for you if they ask.

Glad you are back!!
 
M

MCGrad2006

Guest
I have not had to deal with that aspect of CF yet either, as far as Tx anyway. I think like Skye said, we all deal with it at different levels. My mom is less understanding than my dad, but I can talk to her more about these things. Like I tell her all about you guys on here, but I dont talk to my dad that much. But he knows that I will most likely be getting admitted on Wed at my appt...my mom still thinks that maybe I wont be (even tho I am sick for like the 4th time since sept and am coughing up a storm).

Like Emily said, play it down. If they see that you are less concerned, they will follow your lead. Unless of course they are my Nana or my aunt, who blows everything out of proportion...even when I sauy 212497947 times that I dont care about the Hosp or IV's. I tell them I am not worried and that its no big deal, but they are like well it is for me. WTF does it matter to you...lol. But if you feel comfortable tell them the facts, and let them know how you feel. Let them know what you want them to do for you if they ask.

Glad you are back!!
 
M

MCGrad2006

Guest
I have not had to deal with that aspect of CF yet either, as far as Tx anyway. I think like Skye said, we all deal with it at different levels. My mom is less understanding than my dad, but I can talk to her more about these things. Like I tell her all about you guys on here, but I dont talk to my dad that much. But he knows that I will most likely be getting admitted on Wed at my appt...my mom still thinks that maybe I wont be (even tho I am sick for like the 4th time since sept and am coughing up a storm).

Like Emily said, play it down. If they see that you are less concerned, they will follow your lead. Unless of course they are my Nana or my aunt, who blows everything out of proportion...even when I sauy 212497947 times that I dont care about the Hosp or IV's. I tell them I am not worried and that its no big deal, but they are like well it is for me. WTF does it matter to you...lol. But if you feel comfortable tell them the facts, and let them know how you feel. Let them know what you want them to do for you if they ask.

Glad you are back!!
 
M

MCGrad2006

Guest
I have not had to deal with that aspect of CF yet either, as far as Tx anyway. I think like Skye said, we all deal with it at different levels. My mom is less understanding than my dad, but I can talk to her more about these things. Like I tell her all about you guys on here, but I dont talk to my dad that much. But he knows that I will most likely be getting admitted on Wed at my appt...my mom still thinks that maybe I wont be (even tho I am sick for like the 4th time since sept and am coughing up a storm).

Like Emily said, play it down. If they see that you are less concerned, they will follow your lead. Unless of course they are my Nana or my aunt, who blows everything out of proportion...even when I sauy 212497947 times that I dont care about the Hosp or IV's. I tell them I am not worried and that its no big deal, but they are like well it is for me. WTF does it matter to you...lol. But if you feel comfortable tell them the facts, and let them know how you feel. Let them know what you want them to do for you if they ask.

Glad you are back!!
 
M

MCGrad2006

Guest
I have not had to deal with that aspect of CF yet either, as far as Tx anyway. I think like Skye said, we all deal with it at different levels. My mom is less understanding than my dad, but I can talk to her more about these things. Like I tell her all about you guys on here, but I dont talk to my dad that much. But he knows that I will most likely be getting admitted on Wed at my appt...my mom still thinks that maybe I wont be (even tho I am sick for like the 4th time since sept and am coughing up a storm).

Like Emily said, play it down. If they see that you are less concerned, they will follow your lead. Unless of course they are my Nana or my aunt, who blows everything out of proportion...even when I sauy 212497947 times that I dont care about the Hosp or IV's. I tell them I am not worried and that its no big deal, but they are like well it is for me. WTF does it matter to you...lol. But if you feel comfortable tell them the facts, and let them know how you feel. Let them know what you want them to do for you if they ask.

Glad you are back!!
 
You must log in or register to reply here.
Top