Question about telling your parents all about CF

mamerth

New member
My mom has a hard time with my "adult CF". I am learning now that she just dealt with things when I was a teenager. Never came to terms with my "diagnosis" until I was in college.

I have had to sit down with her and educate her on the new things I am learning (here and other places). She got the "deer in the headlights" look on a few occasions when we talk about serious issues related to CF. I send her articles via email. That way she can read them at her leisure. My step-dad still has a hard time coming to terms with my health. He occasionally wants to know when my cough will go away. I educate him little by little. He understand the diabetes part but everything else is so foreign to him.
 

mamerth

New member
My mom has a hard time with my "adult CF". I am learning now that she just dealt with things when I was a teenager. Never came to terms with my "diagnosis" until I was in college.

I have had to sit down with her and educate her on the new things I am learning (here and other places). She got the "deer in the headlights" look on a few occasions when we talk about serious issues related to CF. I send her articles via email. That way she can read them at her leisure. My step-dad still has a hard time coming to terms with my health. He occasionally wants to know when my cough will go away. I educate him little by little. He understand the diabetes part but everything else is so foreign to him.
 

mamerth

New member
My mom has a hard time with my "adult CF". I am learning now that she just dealt with things when I was a teenager. Never came to terms with my "diagnosis" until I was in college.

I have had to sit down with her and educate her on the new things I am learning (here and other places). She got the "deer in the headlights" look on a few occasions when we talk about serious issues related to CF. I send her articles via email. That way she can read them at her leisure. My step-dad still has a hard time coming to terms with my health. He occasionally wants to know when my cough will go away. I educate him little by little. He understand the diabetes part but everything else is so foreign to him.
 

mamerth

New member
My mom has a hard time with my "adult CF". I am learning now that she just dealt with things when I was a teenager. Never came to terms with my "diagnosis" until I was in college.

I have had to sit down with her and educate her on the new things I am learning (here and other places). She got the "deer in the headlights" look on a few occasions when we talk about serious issues related to CF. I send her articles via email. That way she can read them at her leisure. My step-dad still has a hard time coming to terms with my health. He occasionally wants to know when my cough will go away. I educate him little by little. He understand the diabetes part but everything else is so foreign to him.
 

mamerth

New member
My mom has a hard time with my "adult CF". I am learning now that she just dealt with things when I was a teenager. Never came to terms with my "diagnosis" until I was in college.

I have had to sit down with her and educate her on the new things I am learning (here and other places). She got the "deer in the headlights" look on a few occasions when we talk about serious issues related to CF. I send her articles via email. That way she can read them at her leisure. My step-dad still has a hard time coming to terms with my health. He occasionally wants to know when my cough will go away. I educate him little by little. He understand the diabetes part but everything else is so foreign to him.
 

jfarel

New member
Great thread. I have had the same questions. I hate making my folks worry but at the same time I want them to realize what's going on.

I am always mentioning the cf website to my parents. I talk about other people who have had transplants. I think that is a great way to begin discussion. Once they here, they will start asking you questions.
 

jfarel

New member
Great thread. I have had the same questions. I hate making my folks worry but at the same time I want them to realize what's going on.

I am always mentioning the cf website to my parents. I talk about other people who have had transplants. I think that is a great way to begin discussion. Once they here, they will start asking you questions.
 

jfarel

New member
Great thread. I have had the same questions. I hate making my folks worry but at the same time I want them to realize what's going on.

I am always mentioning the cf website to my parents. I talk about other people who have had transplants. I think that is a great way to begin discussion. Once they here, they will start asking you questions.
 

jfarel

New member
Great thread. I have had the same questions. I hate making my folks worry but at the same time I want them to realize what's going on.

I am always mentioning the cf website to my parents. I talk about other people who have had transplants. I think that is a great way to begin discussion. Once they here, they will start asking you questions.
 

jfarel

New member
Great thread. I have had the same questions. I hate making my folks worry but at the same time I want them to realize what's going on.

I am always mentioning the cf website to my parents. I talk about other people who have had transplants. I think that is a great way to begin discussion. Once they here, they will start asking you questions.
 

JazzysMom

New member
My Mom knew what she needed to know at the time. She doesnt know anything now.

She is thinking like it was 30 years ago & all she says is "you beat the odds". Well yes as far as life expectancy, but not the CF itself which is what she likes to think.

Its frustrating. I dont bother because it makes her too emotional & I cant handle it. My sisters & SIL are great about wanting the updates etc. So someone in my family knows.

HUGS'
 

JazzysMom

New member
My Mom knew what she needed to know at the time. She doesnt know anything now.

She is thinking like it was 30 years ago & all she says is "you beat the odds". Well yes as far as life expectancy, but not the CF itself which is what she likes to think.

Its frustrating. I dont bother because it makes her too emotional & I cant handle it. My sisters & SIL are great about wanting the updates etc. So someone in my family knows.

HUGS'
 

JazzysMom

New member
My Mom knew what she needed to know at the time. She doesnt know anything now.

She is thinking like it was 30 years ago & all she says is "you beat the odds". Well yes as far as life expectancy, but not the CF itself which is what she likes to think.

Its frustrating. I dont bother because it makes her too emotional & I cant handle it. My sisters & SIL are great about wanting the updates etc. So someone in my family knows.

HUGS'
 

JazzysMom

New member
My Mom knew what she needed to know at the time. She doesnt know anything now.

She is thinking like it was 30 years ago & all she says is "you beat the odds". Well yes as far as life expectancy, but not the CF itself which is what she likes to think.

Its frustrating. I dont bother because it makes her too emotional & I cant handle it. My sisters & SIL are great about wanting the updates etc. So someone in my family knows.

HUGS'
 

JazzysMom

New member
My Mom knew what she needed to know at the time. She doesnt know anything now.

She is thinking like it was 30 years ago & all she says is "you beat the odds". Well yes as far as life expectancy, but not the CF itself which is what she likes to think.

Its frustrating. I dont bother because it makes her too emotional & I cant handle it. My sisters & SIL are great about wanting the updates etc. So someone in my family knows.

HUGS'
 

EnergyGal

New member
You can always invite him along to one of your doctors visits and let your doctor know in advance that your dad is not knowledgeable about your illness.

You are bringing him along so he gain some grounding about what this illness means for your future.

He needs to know and will probably feel closer to you as a result. I wish you the best!
 

EnergyGal

New member
You can always invite him along to one of your doctors visits and let your doctor know in advance that your dad is not knowledgeable about your illness.

You are bringing him along so he gain some grounding about what this illness means for your future.

He needs to know and will probably feel closer to you as a result. I wish you the best!
 

EnergyGal

New member
You can always invite him along to one of your doctors visits and let your doctor know in advance that your dad is not knowledgeable about your illness.

You are bringing him along so he gain some grounding about what this illness means for your future.

He needs to know and will probably feel closer to you as a result. I wish you the best!
 

EnergyGal

New member
You can always invite him along to one of your doctors visits and let your doctor know in advance that your dad is not knowledgeable about your illness.

You are bringing him along so he gain some grounding about what this illness means for your future.

He needs to know and will probably feel closer to you as a result. I wish you the best!
 

EnergyGal

New member
You can always invite him along to one of your doctors visits and let your doctor know in advance that your dad is not knowledgeable about your illness.

You are bringing him along so he gain some grounding about what this illness means for your future.

He needs to know and will probably feel closer to you as a result. I wish you the best!
 
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