Question about telling your parents all about CF

jamie6girl

New member
I had a weird situation with my parents a while back when I told them I was going on IV's. I went on IV's back when I was like 15 or so, and I felt like they made me feel like it was my fault. I was scared to tell my mom recently when I got my first Picc line. She was a little shocked at first, but then got used to it. I know that is nothing compared to talking about a transplant, but I do understand where you're coming from. I agree with Emily. I think it's all about how you approach it and you have be positive. If you plan on telling them on a particular day, and that day arrives, and you aren't in the mood to talk about it or you feel kind of negative that day, I would say wait until a better time arrives. I hope this helps. Good luck!
 

jamie6girl

New member
I had a weird situation with my parents a while back when I told them I was going on IV's. I went on IV's back when I was like 15 or so, and I felt like they made me feel like it was my fault. I was scared to tell my mom recently when I got my first Picc line. She was a little shocked at first, but then got used to it. I know that is nothing compared to talking about a transplant, but I do understand where you're coming from. I agree with Emily. I think it's all about how you approach it and you have be positive. If you plan on telling them on a particular day, and that day arrives, and you aren't in the mood to talk about it or you feel kind of negative that day, I would say wait until a better time arrives. I hope this helps. Good luck!
 

jamie6girl

New member
I had a weird situation with my parents a while back when I told them I was going on IV's. I went on IV's back when I was like 15 or so, and I felt like they made me feel like it was my fault. I was scared to tell my mom recently when I got my first Picc line. She was a little shocked at first, but then got used to it. I know that is nothing compared to talking about a transplant, but I do understand where you're coming from. I agree with Emily. I think it's all about how you approach it and you have be positive. If you plan on telling them on a particular day, and that day arrives, and you aren't in the mood to talk about it or you feel kind of negative that day, I would say wait until a better time arrives. I hope this helps. Good luck!
 

jamie6girl

New member
I had a weird situation with my parents a while back when I told them I was going on IV's. I went on IV's back when I was like 15 or so, and I felt like they made me feel like it was my fault. I was scared to tell my mom recently when I got my first Picc line. She was a little shocked at first, but then got used to it. I know that is nothing compared to talking about a transplant, but I do understand where you're coming from. I agree with Emily. I think it's all about how you approach it and you have be positive. If you plan on telling them on a particular day, and that day arrives, and you aren't in the mood to talk about it or you feel kind of negative that day, I would say wait until a better time arrives. I hope this helps. Good luck!
 

jamie6girl

New member
I had a weird situation with my parents a while back when I told them I was going on IV's. I went on IV's back when I was like 15 or so, and I felt like they made me feel like it was my fault. I was scared to tell my mom recently when I got my first Picc line. She was a little shocked at first, but then got used to it. I know that is nothing compared to talking about a transplant, but I do understand where you're coming from. I agree with Emily. I think it's all about how you approach it and you have be positive. If you plan on telling them on a particular day, and that day arrives, and you aren't in the mood to talk about it or you feel kind of negative that day, I would say wait until a better time arrives. I hope this helps. Good luck!
 

izemmom

New member
Could you start by asking him if there is anything we wants to know about Cf or your health status or your future outlook...open the door for him and see how he reacts? He may have questions he's afraid of asking for fear of looking ignorant or seeming like he doesn't care about it. You could just say, "You know Dad, you didn't get to learn about cf the way mom and I did, so if you ever have any questions about anything, plese just ask." It's a starting point, and it gives him the OK to make the first move with asking.

Just a thought.
 

izemmom

New member
Could you start by asking him if there is anything we wants to know about Cf or your health status or your future outlook...open the door for him and see how he reacts? He may have questions he's afraid of asking for fear of looking ignorant or seeming like he doesn't care about it. You could just say, "You know Dad, you didn't get to learn about cf the way mom and I did, so if you ever have any questions about anything, plese just ask." It's a starting point, and it gives him the OK to make the first move with asking.

Just a thought.
 

izemmom

New member
Could you start by asking him if there is anything we wants to know about Cf or your health status or your future outlook...open the door for him and see how he reacts? He may have questions he's afraid of asking for fear of looking ignorant or seeming like he doesn't care about it. You could just say, "You know Dad, you didn't get to learn about cf the way mom and I did, so if you ever have any questions about anything, plese just ask." It's a starting point, and it gives him the OK to make the first move with asking.

Just a thought.
 

izemmom

New member
Could you start by asking him if there is anything we wants to know about Cf or your health status or your future outlook...open the door for him and see how he reacts? He may have questions he's afraid of asking for fear of looking ignorant or seeming like he doesn't care about it. You could just say, "You know Dad, you didn't get to learn about cf the way mom and I did, so if you ever have any questions about anything, plese just ask." It's a starting point, and it gives him the OK to make the first move with asking.

Just a thought.
 

izemmom

New member
Could you start by asking him if there is anything we wants to know about Cf or your health status or your future outlook...open the door for him and see how he reacts? He may have questions he's afraid of asking for fear of looking ignorant or seeming like he doesn't care about it. You could just say, "You know Dad, you didn't get to learn about cf the way mom and I did, so if you ever have any questions about anything, plese just ask." It's a starting point, and it gives him the OK to make the first move with asking.

Just a thought.
 

bagged2drag

Active member
I don't know about how to approach your dad, but at least it seems as though he has some interest in whats goin on now, I guess you just need to be great full about that. My parents have been around my whole life, even though they express some interest, neither really has a clue whats going on with my health, no matter how much I explain. My parents don't even visit me in the hospital because an hour is too far away. I guess I would ask him if he has any questions about it, and try to explain it in a casual tone that doesn't put him on high alert. You probably have a lot of stress in your life, as most of us do, the last thing I would want myself is to stress out my parents because that would stress me out too.

Good luck with whatever you do.

Congratulations on Graduating too by the way!!!!!
 

bagged2drag

Active member
I don't know about how to approach your dad, but at least it seems as though he has some interest in whats goin on now, I guess you just need to be great full about that. My parents have been around my whole life, even though they express some interest, neither really has a clue whats going on with my health, no matter how much I explain. My parents don't even visit me in the hospital because an hour is too far away. I guess I would ask him if he has any questions about it, and try to explain it in a casual tone that doesn't put him on high alert. You probably have a lot of stress in your life, as most of us do, the last thing I would want myself is to stress out my parents because that would stress me out too.

Good luck with whatever you do.

Congratulations on Graduating too by the way!!!!!
 

bagged2drag

Active member
I don't know about how to approach your dad, but at least it seems as though he has some interest in whats goin on now, I guess you just need to be great full about that. My parents have been around my whole life, even though they express some interest, neither really has a clue whats going on with my health, no matter how much I explain. My parents don't even visit me in the hospital because an hour is too far away. I guess I would ask him if he has any questions about it, and try to explain it in a casual tone that doesn't put him on high alert. You probably have a lot of stress in your life, as most of us do, the last thing I would want myself is to stress out my parents because that would stress me out too.

Good luck with whatever you do.

Congratulations on Graduating too by the way!!!!!
 

bagged2drag

Active member
I don't know about how to approach your dad, but at least it seems as though he has some interest in whats goin on now, I guess you just need to be great full about that. My parents have been around my whole life, even though they express some interest, neither really has a clue whats going on with my health, no matter how much I explain. My parents don't even visit me in the hospital because an hour is too far away. I guess I would ask him if he has any questions about it, and try to explain it in a casual tone that doesn't put him on high alert. You probably have a lot of stress in your life, as most of us do, the last thing I would want myself is to stress out my parents because that would stress me out too.

Good luck with whatever you do.

Congratulations on Graduating too by the way!!!!!
 

bagged2drag

Active member
I don't know about how to approach your dad, but at least it seems as though he has some interest in whats goin on now, I guess you just need to be great full about that. My parents have been around my whole life, even though they express some interest, neither really has a clue whats going on with my health, no matter how much I explain. My parents don't even visit me in the hospital because an hour is too far away. I guess I would ask him if he has any questions about it, and try to explain it in a casual tone that doesn't put him on high alert. You probably have a lot of stress in your life, as most of us do, the last thing I would want myself is to stress out my parents because that would stress me out too.

Good luck with whatever you do.

Congratulations on Graduating too by the way!!!!!
 

mcbrash

New member
I'm sorry that you are feeling uncomfortable with the fact that your father and stepmom don't seem to know what's going on with you and your health. I find it so hard to believe that parents aren't involved 100% when it comes to their children's health, and when I say children, I mean whatever age, whether it be 10, 20, 30 etc.
My "children's" father left when they were very young and didn't keep in touch with them. When I got in touch with him after my son passed away, his comment was "I thought he would be ok as I've heard of so many advances over the years regarding better treatments etc. Oh how I wanted to reach down that phone at him and...... well you can imagine the rest.

I'm sorry but I certainly wouldn't worry about scaring them, it's up to them to have been more involved with your health over the years. I think I would tell him like it is, whether it's a shock to him or not, he should be up to date on anything and everything to do with cf and how it's affecting your life.


Sandy
 

mcbrash

New member
I'm sorry that you are feeling uncomfortable with the fact that your father and stepmom don't seem to know what's going on with you and your health. I find it so hard to believe that parents aren't involved 100% when it comes to their children's health, and when I say children, I mean whatever age, whether it be 10, 20, 30 etc.
My "children's" father left when they were very young and didn't keep in touch with them. When I got in touch with him after my son passed away, his comment was "I thought he would be ok as I've heard of so many advances over the years regarding better treatments etc. Oh how I wanted to reach down that phone at him and...... well you can imagine the rest.

I'm sorry but I certainly wouldn't worry about scaring them, it's up to them to have been more involved with your health over the years. I think I would tell him like it is, whether it's a shock to him or not, he should be up to date on anything and everything to do with cf and how it's affecting your life.


Sandy
 

mcbrash

New member
I'm sorry that you are feeling uncomfortable with the fact that your father and stepmom don't seem to know what's going on with you and your health. I find it so hard to believe that parents aren't involved 100% when it comes to their children's health, and when I say children, I mean whatever age, whether it be 10, 20, 30 etc.
My "children's" father left when they were very young and didn't keep in touch with them. When I got in touch with him after my son passed away, his comment was "I thought he would be ok as I've heard of so many advances over the years regarding better treatments etc. Oh how I wanted to reach down that phone at him and...... well you can imagine the rest.

I'm sorry but I certainly wouldn't worry about scaring them, it's up to them to have been more involved with your health over the years. I think I would tell him like it is, whether it's a shock to him or not, he should be up to date on anything and everything to do with cf and how it's affecting your life.


Sandy
 

mcbrash

New member
I'm sorry that you are feeling uncomfortable with the fact that your father and stepmom don't seem to know what's going on with you and your health. I find it so hard to believe that parents aren't involved 100% when it comes to their children's health, and when I say children, I mean whatever age, whether it be 10, 20, 30 etc.
My "children's" father left when they were very young and didn't keep in touch with them. When I got in touch with him after my son passed away, his comment was "I thought he would be ok as I've heard of so many advances over the years regarding better treatments etc. Oh how I wanted to reach down that phone at him and...... well you can imagine the rest.

I'm sorry but I certainly wouldn't worry about scaring them, it's up to them to have been more involved with your health over the years. I think I would tell him like it is, whether it's a shock to him or not, he should be up to date on anything and everything to do with cf and how it's affecting your life.


Sandy
 

mcbrash

New member
I'm sorry that you are feeling uncomfortable with the fact that your father and stepmom don't seem to know what's going on with you and your health. I find it so hard to believe that parents aren't involved 100% when it comes to their children's health, and when I say children, I mean whatever age, whether it be 10, 20, 30 etc.
My "children's" father left when they were very young and didn't keep in touch with them. When I got in touch with him after my son passed away, his comment was "I thought he would be ok as I've heard of so many advances over the years regarding better treatments etc. Oh how I wanted to reach down that phone at him and...... well you can imagine the rest.

I'm sorry but I certainly wouldn't worry about scaring them, it's up to them to have been more involved with your health over the years. I think I would tell him like it is, whether it's a shock to him or not, he should be up to date on anything and everything to do with cf and how it's affecting your life.


Sandy
 
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