My son was dx@ birth. got the news ten days after being born. then was immediatly @ CF clinic with in two days after that. where we were given his inhalers shown how to use them and tought the manual CPT. our clinic is very aggressive and preventive treatment. he's only use neb when he cultured for pseduonomas. my advise follow your instinct and push for answers and results.
as far as taking the baby out especially during this time of the year, i tried to limit it as much as i could but only when it came to being in cases where i knew it probably would be a good idea to bring the baby. always sanitize everyones hands before holding, feeding. everything. and the baby's hands too. everything is going to go in a baby's mouth starting at 4 months, especialy hands.
now i know im gona get slammed for this one, and please understand by all means i do not mean to be irrational and let your children get sick but.......its ok for children to get colds at the very least. it helps to build their immune system, and gives their bodies the chance to fight off infections. my son has had a couple of colds or upper (above the head) respitory infections, and his body fought them off on his own. he only needed anti biotics once when he was 3 months old.
good luck and hope it works out for you
Elizabeth
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mama to Aidan w/cf 2 yr old. dx @ birth