Question to Parents of children with CF

[MargaritaChic]

mneville,
We get 2 prescriptions from the pharmacy. Albuterol & Acetylcysteine and we mix them together. We did the treatment tonight and I did not smell anything.

 

[MargaritaChic]

mneville,
We get 2 prescriptions from the pharmacy. Albuterol & Acetylcysteine and we mix them together. We did the treatment tonight and I did not smell anything.

 

[MargaritaChic]

mneville,
We get 2 prescriptions from the pharmacy. Albuterol & Acetylcysteine and we mix them together. We did the treatment tonight and I did not smell anything.

 

[MargaritaChic]

mneville,
We get 2 prescriptions from the pharmacy. Albuterol & Acetylcysteine and we mix them together. We did the treatment tonight and I did not smell anything.

 

[MargaritaChic]

mneville,
We get 2 prescriptions from the pharmacy. Albuterol & Acetylcysteine and we mix them together. We did the treatment tonight and I did not smell anything.

 

[Sevenstars]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>zoeg</b></i>
I'm pregnant with our second (no idea about CF in this one) and am curious- will I be able to do the nebs with her if I am pregnant? I didn't know if the fumes would be bad for me. </end quote></div>

For a while at my children's hospital, it became protocol to put a filter on the end of the nebulizer for TOBI treatments. Somewhere along they way, they stopped doing that. I was told that it's because it's bad for pregnant women to be around it (and possibly others?) If your daughter isn't doing ANY nebs now though, I doubt they'll put her on TOBI anytime soon. I'm sure her doctor can tell you more about individual medicines though.

Short answer: If you are really worried, I am sure they still make those filters that go on the end of a neb. <img src="i/expressions/face-icon-small-smile.gif" border="0"> Or get an eflow which has remarkably little 'excess smoke' and finishes treatments really, really fast.

 

[Sevenstars]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>zoeg</b></i>
I'm pregnant with our second (no idea about CF in this one) and am curious- will I be able to do the nebs with her if I am pregnant? I didn't know if the fumes would be bad for me. </end quote></div>

For a while at my children's hospital, it became protocol to put a filter on the end of the nebulizer for TOBI treatments. Somewhere along they way, they stopped doing that. I was told that it's because it's bad for pregnant women to be around it (and possibly others?) If your daughter isn't doing ANY nebs now though, I doubt they'll put her on TOBI anytime soon. I'm sure her doctor can tell you more about individual medicines though.

Short answer: If you are really worried, I am sure they still make those filters that go on the end of a neb. <img src="i/expressions/face-icon-small-smile.gif" border="0"> Or get an eflow which has remarkably little 'excess smoke' and finishes treatments really, really fast.

 

[Sevenstars]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>zoeg</b></i>
I'm pregnant with our second (no idea about CF in this one) and am curious- will I be able to do the nebs with her if I am pregnant? I didn't know if the fumes would be bad for me. </end quote></div>

For a while at my children's hospital, it became protocol to put a filter on the end of the nebulizer for TOBI treatments. Somewhere along they way, they stopped doing that. I was told that it's because it's bad for pregnant women to be around it (and possibly others?) If your daughter isn't doing ANY nebs now though, I doubt they'll put her on TOBI anytime soon. I'm sure her doctor can tell you more about individual medicines though.

Short answer: If you are really worried, I am sure they still make those filters that go on the end of a neb. <img src="i/expressions/face-icon-small-smile.gif" border="0"> Or get an eflow which has remarkably little 'excess smoke' and finishes treatments really, really fast.

 

[Sevenstars]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>zoeg</b></i>
I'm pregnant with our second (no idea about CF in this one) and am curious- will I be able to do the nebs with her if I am pregnant? I didn't know if the fumes would be bad for me. </end quote>

For a while at my children's hospital, it became protocol to put a filter on the end of the nebulizer for TOBI treatments. Somewhere along they way, they stopped doing that. I was told that it's because it's bad for pregnant women to be around it (and possibly others?) If your daughter isn't doing ANY nebs now though, I doubt they'll put her on TOBI anytime soon. I'm sure her doctor can tell you more about individual medicines though.

Short answer: If you are really worried, I am sure they still make those filters that go on the end of a neb. <img src="i/expressions/face-icon-small-smile.gif" border="0"> Or get an eflow which has remarkably little 'excess smoke' and finishes treatments really, really fast.

 

[Sevenstars]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>zoeg</b></i>
I'm pregnant with our second (no idea about CF in this one) and am curious- will I be able to do the nebs with her if I am pregnant? I didn't know if the fumes would be bad for me. </end quote>

For a while at my children's hospital, it became protocol to put a filter on the end of the nebulizer for TOBI treatments. Somewhere along they way, they stopped doing that. I was told that it's because it's bad for pregnant women to be around it (and possibly others?) If your daughter isn't doing ANY nebs now though, I doubt they'll put her on TOBI anytime soon. I'm sure her doctor can tell you more about individual medicines though.

Short answer: If you are really worried, I am sure they still make those filters that go on the end of a neb. <img src="i/expressions/face-icon-small-smile.gif" border="0"> Or get an eflow which has remarkably little 'excess smoke' and finishes treatments really, really fast.

 

[biz]

My son was dx@ birth. got the news ten days after being born. then was immediatly @ CF clinic with in two days after that. where we were given his inhalers shown how to use them and tought the manual CPT. our clinic is very aggressive and preventive treatment. he's only use neb when he cultured for pseduonomas. my advise follow your instinct and push for answers and results.

as far as taking the baby out especially during this time of the year, i tried to limit it as much as i could but only when it came to being in cases where i knew it probably would be a good idea to bring the baby. always sanitize everyones hands before holding, feeding. everything. and the baby's hands too. everything is going to go in a baby's mouth starting at 4 months, especialy hands.

now i know im gona get slammed for this one, and please understand by all means i do not mean to be irrational and let your children get sick but.......its ok for children to get colds at the very least. it helps to build their immune system, and gives their bodies the chance to fight off infections. my son has had a couple of colds or upper (above the head) respitory infections, and his body fought them off on his own. he only needed anti biotics once when he was 3 months old.
good luck and hope it works out for you

Elizabeth
----------------------------------------------------------------------------------------
mama to Aidan w/cf 2 yr old. dx @ birth

 

[biz]

My son was dx@ birth. got the news ten days after being born. then was immediatly @ CF clinic with in two days after that. where we were given his inhalers shown how to use them and tought the manual CPT. our clinic is very aggressive and preventive treatment. he's only use neb when he cultured for pseduonomas. my advise follow your instinct and push for answers and results.

as far as taking the baby out especially during this time of the year, i tried to limit it as much as i could but only when it came to being in cases where i knew it probably would be a good idea to bring the baby. always sanitize everyones hands before holding, feeding. everything. and the baby's hands too. everything is going to go in a baby's mouth starting at 4 months, especialy hands.

now i know im gona get slammed for this one, and please understand by all means i do not mean to be irrational and let your children get sick but.......its ok for children to get colds at the very least. it helps to build their immune system, and gives their bodies the chance to fight off infections. my son has had a couple of colds or upper (above the head) respitory infections, and his body fought them off on his own. he only needed anti biotics once when he was 3 months old.
good luck and hope it works out for you

Elizabeth
----------------------------------------------------------------------------------------
mama to Aidan w/cf 2 yr old. dx @ birth

 

[biz]

My son was dx@ birth. got the news ten days after being born. then was immediatly @ CF clinic with in two days after that. where we were given his inhalers shown how to use them and tought the manual CPT. our clinic is very aggressive and preventive treatment. he's only use neb when he cultured for pseduonomas. my advise follow your instinct and push for answers and results.

as far as taking the baby out especially during this time of the year, i tried to limit it as much as i could but only when it came to being in cases where i knew it probably would be a good idea to bring the baby. always sanitize everyones hands before holding, feeding. everything. and the baby's hands too. everything is going to go in a baby's mouth starting at 4 months, especialy hands.

now i know im gona get slammed for this one, and please understand by all means i do not mean to be irrational and let your children get sick but.......its ok for children to get colds at the very least. it helps to build their immune system, and gives their bodies the chance to fight off infections. my son has had a couple of colds or upper (above the head) respitory infections, and his body fought them off on his own. he only needed anti biotics once when he was 3 months old.
good luck and hope it works out for you

Elizabeth
----------------------------------------------------------------------------------------
mama to Aidan w/cf 2 yr old. dx @ birth

 

[biz]

My son was dx@ birth. got the news ten days after being born. then was immediatly @ CF clinic with in two days after that. where we were given his inhalers shown how to use them and tought the manual CPT. our clinic is very aggressive and preventive treatment. he's only use neb when he cultured for pseduonomas. my advise follow your instinct and push for answers and results.

as far as taking the baby out especially during this time of the year, i tried to limit it as much as i could but only when it came to being in cases where i knew it probably would be a good idea to bring the baby. always sanitize everyones hands before holding, feeding. everything. and the baby's hands too. everything is going to go in a baby's mouth starting at 4 months, especialy hands.

now i know im gona get slammed for this one, and please understand by all means i do not mean to be irrational and let your children get sick but.......its ok for children to get colds at the very least. it helps to build their immune system, and gives their bodies the chance to fight off infections. my son has had a couple of colds or upper (above the head) respitory infections, and his body fought them off on his own. he only needed anti biotics once when he was 3 months old.
good luck and hope it works out for you

Elizabeth
----------------------------------------------------------------------------------------
mama to Aidan w/cf 2 yr old. dx @ birth

 

[biz]

My son was dx@ birth. got the news ten days after being born. then was immediatly @ CF clinic with in two days after that. where we were given his inhalers shown how to use them and tought the manual CPT. our clinic is very aggressive and preventive treatment. he's only use neb when he cultured for pseduonomas. my advise follow your instinct and push for answers and results.

as far as taking the baby out especially during this time of the year, i tried to limit it as much as i could but only when it came to being in cases where i knew it probably would be a good idea to bring the baby. always sanitize everyones hands before holding, feeding. everything. and the baby's hands too. everything is going to go in a baby's mouth starting at 4 months, especialy hands.

now i know im gona get slammed for this one, and please understand by all means i do not mean to be irrational and let your children get sick but.......its ok for children to get colds at the very least. it helps to build their immune system, and gives their bodies the chance to fight off infections. my son has had a couple of colds or upper (above the head) respitory infections, and his body fought them off on his own. he only needed anti biotics once when he was 3 months old.
good luck and hope it works out for you

Elizabeth
----------------------------------------------------------------------------------------
mama to Aidan w/cf 2 yr old. dx @ birth