Hey everyone.. my name is Jessica and my best friend has CF... Hes 19 and the doctors told him that he had a 50/50 Chance of living to be 20. Ive read some of the other peoples ages and diagnoses's and i am holding on to the hope that he will make it to be 20. I was wondering if there is anything whatsoever that i can do to help him and what are the actual chances he will live?
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Question
- Thread starter anonymous
- Start date
Hey everyone.. my name is Jessica and my best friend has CF... Hes 19 and the doctors told him that he had a 50/50 Chance of living to be 20. Ive read some of the other peoples ages and diagnoses's and i am holding on to the hope that he will make it to be 20. I was wondering if there is anything whatsoever that i can do to help him and what are the actual chances he will live?
Hi Jessica,
That's rather harsh of your friend's doctor. Many people do live a long time, but it has to do with MANY different things. I don't know what his particular issues are but my advice is: Learn as much as you can about CF and love him to pieces!!!
You're a good friend, that's what he needs.
That's rather harsh of your friend's doctor. Many people do live a long time, but it has to do with MANY different things. I don't know what his particular issues are but my advice is: Learn as much as you can about CF and love him to pieces!!!
You're a good friend, that's what he needs.
Hi Jessica,
That's rather harsh of your friend's doctor. Many people do live a long time, but it has to do with MANY different things. I don't know what his particular issues are but my advice is: Learn as much as you can about CF and love him to pieces!!!
You're a good friend, that's what he needs.
That's rather harsh of your friend's doctor. Many people do live a long time, but it has to do with MANY different things. I don't know what his particular issues are but my advice is: Learn as much as you can about CF and love him to pieces!!!
You're a good friend, that's what he needs.
boyfriendofCFer
New member
I am currently dating a 24 year old w/CF she was diagnosed at 6 yrs. and her perants were told she would hopefully make it to 12 then 18 then 25 and now 30 or longer. I never loose hope bucause the is so much new reasearch being done that could possibly save her life, or extend it at least, but no matter what just learn as much as you can about CF and spread the word on to everyone you know and be there for your friend they will need your love and support. never asume that you are going to loose them even if things do get really bad just believe in them be there for them and be proud to be their friend
God Bless
God Bless
boyfriendofCFer
New member
I am currently dating a 24 year old w/CF she was diagnosed at 6 yrs. and her perants were told she would hopefully make it to 12 then 18 then 25 and now 30 or longer. I never loose hope bucause the is so much new reasearch being done that could possibly save her life, or extend it at least, but no matter what just learn as much as you can about CF and spread the word on to everyone you know and be there for your friend they will need your love and support. never asume that you are going to loose them even if things do get really bad just believe in them be there for them and be proud to be their friend
God Bless
God Bless
hi hon,
I'm 23, and was diagnosed with it when I was 1. They said I wouldn't make it to 6, when I did, they said I wouldn't make it to 12, then 16, then 20, now I have a new doctor that says......We're getting you to 60!!
That's what you're friends doctor should be saying to him. I don't know his situation, maybe you could fill us in more. Is he sick often? In the hospital?
Positive thinking is SO SO SO important for people with CF. If you think, 'oh well, I won't live anyway, so why care' , you might not actually be here. So as his friend, the best thing you can do is have fun with him, be positive, and help him stay happy. Thanks for caring too.
Christian
I'm 23, and was diagnosed with it when I was 1. They said I wouldn't make it to 6, when I did, they said I wouldn't make it to 12, then 16, then 20, now I have a new doctor that says......We're getting you to 60!!
That's what you're friends doctor should be saying to him. I don't know his situation, maybe you could fill us in more. Is he sick often? In the hospital?
Positive thinking is SO SO SO important for people with CF. If you think, 'oh well, I won't live anyway, so why care' , you might not actually be here. So as his friend, the best thing you can do is have fun with him, be positive, and help him stay happy. Thanks for caring too.
Christian
hi hon,
I'm 23, and was diagnosed with it when I was 1. They said I wouldn't make it to 6, when I did, they said I wouldn't make it to 12, then 16, then 20, now I have a new doctor that says......We're getting you to 60!!
That's what you're friends doctor should be saying to him. I don't know his situation, maybe you could fill us in more. Is he sick often? In the hospital?
Positive thinking is SO SO SO important for people with CF. If you think, 'oh well, I won't live anyway, so why care' , you might not actually be here. So as his friend, the best thing you can do is have fun with him, be positive, and help him stay happy. Thanks for caring too.
Christian
I'm 23, and was diagnosed with it when I was 1. They said I wouldn't make it to 6, when I did, they said I wouldn't make it to 12, then 16, then 20, now I have a new doctor that says......We're getting you to 60!!
That's what you're friends doctor should be saying to him. I don't know his situation, maybe you could fill us in more. Is he sick often? In the hospital?
Positive thinking is SO SO SO important for people with CF. If you think, 'oh well, I won't live anyway, so why care' , you might not actually be here. So as his friend, the best thing you can do is have fun with him, be positive, and help him stay happy. Thanks for caring too.
Christian
coltsfan715
New member
Hey there,
I am also 23 ... diagnosed at 1 yr old. When I was first diagnosed my parents were told to enjoy having me .. til I was 12. Then I passed 12 and it turned to she won't graduate H.S and so on.
There are alot of factors that contribute to how long someone lives, so I don't think anyone can definitely say when someone with CF will die. A friend of mine was told 1.5 yrs ago that if she didn't have a trasplant she would be dead by the end of 2006. Well - she hasn't had a transplant, she went through the testing and they were considering listing her, then they found out she had an infection from her port that had gotten into her blood. Once they took care of that she saw an immediate turn around (going from being on oxygen all the time to only needing it if she was out in the heat), she started taking kick boxing or karate and that helped her too. She went from needing a transplant to then telling her, you could qualify, but you really don't need one right now.
You are a great friend to be concerned and looking into what you can do to help. I say stand by your friend and be there for him. If you are scared I am sure he probably is too. I hope that things work out for him - and you can always start planning his birthday party - give him something to look forward too (that is something I would do because I am stubborn and would stick around just cause they told me I wouldn't <img src="i/expressions/face-icon-small-smile.gif" border="0">)
Thinking of you,
Lindsey
I am also 23 ... diagnosed at 1 yr old. When I was first diagnosed my parents were told to enjoy having me .. til I was 12. Then I passed 12 and it turned to she won't graduate H.S and so on.
There are alot of factors that contribute to how long someone lives, so I don't think anyone can definitely say when someone with CF will die. A friend of mine was told 1.5 yrs ago that if she didn't have a trasplant she would be dead by the end of 2006. Well - she hasn't had a transplant, she went through the testing and they were considering listing her, then they found out she had an infection from her port that had gotten into her blood. Once they took care of that she saw an immediate turn around (going from being on oxygen all the time to only needing it if she was out in the heat), she started taking kick boxing or karate and that helped her too. She went from needing a transplant to then telling her, you could qualify, but you really don't need one right now.
You are a great friend to be concerned and looking into what you can do to help. I say stand by your friend and be there for him. If you are scared I am sure he probably is too. I hope that things work out for him - and you can always start planning his birthday party - give him something to look forward too (that is something I would do because I am stubborn and would stick around just cause they told me I wouldn't <img src="i/expressions/face-icon-small-smile.gif" border="0">)
Thinking of you,
Lindsey
coltsfan715
New member
Hey there,
I am also 23 ... diagnosed at 1 yr old. When I was first diagnosed my parents were told to enjoy having me .. til I was 12. Then I passed 12 and it turned to she won't graduate H.S and so on.
There are alot of factors that contribute to how long someone lives, so I don't think anyone can definitely say when someone with CF will die. A friend of mine was told 1.5 yrs ago that if she didn't have a trasplant she would be dead by the end of 2006. Well - she hasn't had a transplant, she went through the testing and they were considering listing her, then they found out she had an infection from her port that had gotten into her blood. Once they took care of that she saw an immediate turn around (going from being on oxygen all the time to only needing it if she was out in the heat), she started taking kick boxing or karate and that helped her too. She went from needing a transplant to then telling her, you could qualify, but you really don't need one right now.
You are a great friend to be concerned and looking into what you can do to help. I say stand by your friend and be there for him. If you are scared I am sure he probably is too. I hope that things work out for him - and you can always start planning his birthday party - give him something to look forward too (that is something I would do because I am stubborn and would stick around just cause they told me I wouldn't <img src="i/expressions/face-icon-small-smile.gif" border="0">)
Thinking of you,
Lindsey
I am also 23 ... diagnosed at 1 yr old. When I was first diagnosed my parents were told to enjoy having me .. til I was 12. Then I passed 12 and it turned to she won't graduate H.S and so on.
There are alot of factors that contribute to how long someone lives, so I don't think anyone can definitely say when someone with CF will die. A friend of mine was told 1.5 yrs ago that if she didn't have a trasplant she would be dead by the end of 2006. Well - she hasn't had a transplant, she went through the testing and they were considering listing her, then they found out she had an infection from her port that had gotten into her blood. Once they took care of that she saw an immediate turn around (going from being on oxygen all the time to only needing it if she was out in the heat), she started taking kick boxing or karate and that helped her too. She went from needing a transplant to then telling her, you could qualify, but you really don't need one right now.
You are a great friend to be concerned and looking into what you can do to help. I say stand by your friend and be there for him. If you are scared I am sure he probably is too. I hope that things work out for him - and you can always start planning his birthday party - give him something to look forward too (that is something I would do because I am stubborn and would stick around just cause they told me I wouldn't <img src="i/expressions/face-icon-small-smile.gif" border="0">)
Thinking of you,
Lindsey
thelizardqueen
New member
I'm 24 years old, and am very healthy for a CFer. I was diagnosed at 6 weeks of age, and my docs told my mum that I wouldn't make it past 6 years. Once I hit 6 years, she was told I wouldn't live past 12, then 14, then 18, then 24, and now 30 and older. Learn as much as you can about CF, support him, and love him to death. Who's to say that he won't live to be 35 or even 45?
thelizardqueen
New member
I'm 24 years old, and am very healthy for a CFer. I was diagnosed at 6 weeks of age, and my docs told my mum that I wouldn't make it past 6 years. Once I hit 6 years, she was told I wouldn't live past 12, then 14, then 18, then 24, and now 30 and older. Learn as much as you can about CF, support him, and love him to death. Who's to say that he won't live to be 35 or even 45?
You never really know how it's going to go for anyone, but I don't like it at all when doctors start voicing "time lines." I was given a "time line" once, and I truly don't believe they can determine those things. I think I mentally over came what my doctor was referring to and now that point in my life was around 10 years ago! I wish you and your friend the best and offer him all the support and love you can give.
You never really know how it's going to go for anyone, but I don't like it at all when doctors start voicing "time lines." I was given a "time line" once, and I truly don't believe they can determine those things. I think I mentally over came what my doctor was referring to and now that point in my life was around 10 years ago! I wish you and your friend the best and offer him all the support and love you can give.
thefrogprincess
New member
I am 24, diagnosed at birth, and doing great! What is your friend's situation exactly?
thefrogprincess
New member
I am 24, diagnosed at birth, and doing great! What is your friend's situation exactly?