My son Aidan was diagnosed through newborn screening as well. He is a Double Delta. He just turned 4 years old and we just got home from DisneyWorld. He is doing awesome- he's huge and healthy. His major problem is his sinuses right now- surgery #3 coming up next month.
We also have a son Gavin conceived through IVF/PGD. He does not have CF. Both of my sons are true blessings and we wouldn't have it any other way.
Megan, mom to Aidan CF and Gavin no CF