Really frusterated and looking for help, sigh.

J

Jbenjamin152

New member
Believe me I understand that is how my winter has gone...started out st 80% in Oct/Nov...now 3 hospital stays and at least 4 infections that I know of and I'm at 53%...so It's not just u this winter has been hard I keep dropping, even on 3 iv antibiotics...actually 4, Zocyn, Vanco, and Levaquin, Tobi and cipro...that's 5 sorry...I can't win...but my creatine levels and my vanco levels came down in the night thank god....I'm still now sleeping thought
 
J

Jbenjamin152

New member
Believe me I understand that is how my winter has gone...started out st 80% in Oct/Nov...now 3 hospital stays and at least 4 infections that I know of and I'm at 53%...so It's not just u this winter has been hard I keep dropping, even on 3 iv antibiotics...actually 4, Zocyn, Vanco, and Levaquin, Tobi and cipro...that's 5 sorry...I can't win...but my creatine levels and my vanco levels came down in the night thank god....I'm still now sleeping thought
 
J

Jbenjamin152

New member
Believe me I understand that is how my winter has gone...started out st 80% in Oct/Nov...now 3 hospital stays and at least 4 infections that I know of and I'm at 53%...so It's not just u this winter has been hard I keep dropping, even on 3 iv antibiotics...actually 4, Zocyn, Vanco, and Levaquin, Tobi and cipro...that's 5 sorry...I can't win...but my creatine levels and my vanco levels came down in the night thank god....I'm still now sleeping thought
 
J

Jbenjamin152

New member
Believe me I understand that is how my winter has gone...started out st 80% in Oct/Nov...now 3 hospital stays and at least 4 infections that I know of and I'm at 53%...so It's not just u this winter has been hard I keep dropping, even on 3 iv antibiotics...actually 4, Zocyn, Vanco, and Levaquin, Tobi and cipro...that's 5 sorry...I can't win...but my creatine levels and my vanco levels came down in the night thank god....I'm still now sleeping thought
 
J

Jbenjamin152

New member
Believe me I understand that is how my winter has gone...started out st 80% in Oct/Nov...now 3 hospital stays and at least 4 infections that I know of and I'm at 53%...so It's not just u this winter has been hard I keep dropping, even on 3 iv antibiotics...actually 4, Zocyn, Vanco, and Levaquin, Tobi and cipro...that's 5 sorry...I can't win...but my creatine levels and my vanco levels came down in the night thank god....I'm still now sleeping thought
 
I

Iamqueenofeverything

New member
Not sure of all your habits but these help me:
<br />Exericise
<br />Eat healthy
<br />Sinus Rinses
<br />Sleep a good amount
<br />Extra treatmens with Extra CPT
 
K

krisgabes

New member
Hey there,

I know exactly how you're feeling. I'm in the same boat. Been on IV's since September with only a 3 week relief. They keep changing up the antibiotics to no avail. My FEV is down to 56%; my baseline is between 75-80. I'm out of breath with the most mundane tasks like taking a shower or getting ready for work in the morning. My doctor can't pinpoint why this is happening so often and he's claiming that my lungs sound clear but I'm coughing up all kinds of green gunk and plugs. Awful awful. This infection has brought on awful joint pain and back pain which just makes a work day seem like an eternity. I have to keep working though because I have to keep up on my bills.

He upped my Pulmozyme treatment to 2x a day, he prescribed the new Aztraneum inhalation treatment, and I've been doing double time CPT. Plus he put me back on Prednisone. I just started this new regimen, I'll let you know if it helps! Until then, feel better!! <img src="i/expressions/iv.gif" border="0">
 
K

krisgabes

New member
Hey there,

I know exactly how you're feeling. I'm in the same boat. Been on IV's since September with only a 3 week relief. They keep changing up the antibiotics to no avail. My FEV is down to 56%; my baseline is between 75-80. I'm out of breath with the most mundane tasks like taking a shower or getting ready for work in the morning. My doctor can't pinpoint why this is happening so often and he's claiming that my lungs sound clear but I'm coughing up all kinds of green gunk and plugs. Awful awful. This infection has brought on awful joint pain and back pain which just makes a work day seem like an eternity. I have to keep working though because I have to keep up on my bills.

He upped my Pulmozyme treatment to 2x a day, he prescribed the new Aztraneum inhalation treatment, and I've been doing double time CPT. Plus he put me back on Prednisone. I just started this new regimen, I'll let you know if it helps! Until then, feel better!! <img src="i/expressions/iv.gif" border="0">
 
K

krisgabes

New member
Hey there,

I know exactly how you're feeling. I'm in the same boat. Been on IV's since September with only a 3 week relief. They keep changing up the antibiotics to no avail. My FEV is down to 56%; my baseline is between 75-80. I'm out of breath with the most mundane tasks like taking a shower or getting ready for work in the morning. My doctor can't pinpoint why this is happening so often and he's claiming that my lungs sound clear but I'm coughing up all kinds of green gunk and plugs. Awful awful. This infection has brought on awful joint pain and back pain which just makes a work day seem like an eternity. I have to keep working though because I have to keep up on my bills.

He upped my Pulmozyme treatment to 2x a day, he prescribed the new Aztraneum inhalation treatment, and I've been doing double time CPT. Plus he put me back on Prednisone. I just started this new regimen, I'll let you know if it helps! Until then, feel better!! <img src="i/expressions/iv.gif" border="0">
 
K

krisgabes

New member
Hey there,

I know exactly how you're feeling. I'm in the same boat. Been on IV's since September with only a 3 week relief. They keep changing up the antibiotics to no avail. My FEV is down to 56%; my baseline is between 75-80. I'm out of breath with the most mundane tasks like taking a shower or getting ready for work in the morning. My doctor can't pinpoint why this is happening so often and he's claiming that my lungs sound clear but I'm coughing up all kinds of green gunk and plugs. Awful awful. This infection has brought on awful joint pain and back pain which just makes a work day seem like an eternity. I have to keep working though because I have to keep up on my bills.

He upped my Pulmozyme treatment to 2x a day, he prescribed the new Aztraneum inhalation treatment, and I've been doing double time CPT. Plus he put me back on Prednisone. I just started this new regimen, I'll let you know if it helps! Until then, feel better!! <img src="i/expressions/iv.gif" border="0">
 
K

krisgabes

New member
Hey there,
<br />
<br />I know exactly how you're feeling. I'm in the same boat. Been on IV's since September with only a 3 week relief. They keep changing up the antibiotics to no avail. My FEV is down to 56%; my baseline is between 75-80. I'm out of breath with the most mundane tasks like taking a shower or getting ready for work in the morning. My doctor can't pinpoint why this is happening so often and he's claiming that my lungs sound clear but I'm coughing up all kinds of green gunk and plugs. Awful awful. This infection has brought on awful joint pain and back pain which just makes a work day seem like an eternity. I have to keep working though because I have to keep up on my bills.
<br />
<br />He upped my Pulmozyme treatment to 2x a day, he prescribed the new Aztraneum inhalation treatment, and I've been doing double time CPT. Plus he put me back on Prednisone. I just started this new regimen, I'll let you know if it helps! Until then, feel better!! <img src="i/expressions/iv.gif" border="0">
 
C

crystalina0814

New member
Thank you everyone for all of your nice words and support.

The 2nd abx seems to be helping, so I will be curious to see where I am at my next visit on Tuesday.
 
C

crystalina0814

New member
Thank you everyone for all of your nice words and support.

The 2nd abx seems to be helping, so I will be curious to see where I am at my next visit on Tuesday.
 
C

crystalina0814

New member
Thank you everyone for all of your nice words and support.

The 2nd abx seems to be helping, so I will be curious to see where I am at my next visit on Tuesday.
 
C

crystalina0814

New member
Thank you everyone for all of your nice words and support.

The 2nd abx seems to be helping, so I will be curious to see where I am at my next visit on Tuesday.
 
C

crystalina0814

New member
Thank you everyone for all of your nice words and support.
<br />
<br />The 2nd abx seems to be helping, so I will be curious to see where I am at my next visit on Tuesday.
 
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