Really Mad

L

Lety

Guest
I'm getting really mad about this situation. It kind of bothers me that some teachers at my dd's preschool don't take her nutritional needs seriously because she doesn't look sick. Sometimes they don't give her enough time to eat and question why she needs more food especially fats than the other kids. They provide meals but I bring her own meals because their's don't have enough fat for her. I can tell they don't like it. Last week I showed up early and she was eating a vegeterian meal and the meal that I prepared at 5:00 am at home was still in their refrigerator. It's really frustrating. Any advice on this.
I've talked to them many times (teachers, director, cook). I even brought material that CF center gave me. They don't take it seriously because they say "she looks fine". Is there another approach?
 
L

Lety

Guest
I'm getting really mad about this situation. It kind of bothers me that some teachers at my dd's preschool don't take her nutritional needs seriously because she doesn't look sick. Sometimes they don't give her enough time to eat and question why she needs more food especially fats than the other kids. They provide meals but I bring her own meals because their's don't have enough fat for her. I can tell they don't like it. Last week I showed up early and she was eating a vegeterian meal and the meal that I prepared at 5:00 am at home was still in their refrigerator. It's really frustrating. Any advice on this.
I've talked to them many times (teachers, director, cook). I even brought material that CF center gave me. They don't take it seriously because they say "she looks fine". Is there another approach?
 
L

Lety

Guest
I'm getting really mad about this situation. It kind of bothers me that some teachers at my dd's preschool don't take her nutritional needs seriously because she doesn't look sick. Sometimes they don't give her enough time to eat and question why she needs more food especially fats than the other kids. They provide meals but I bring her own meals because their's don't have enough fat for her. I can tell they don't like it. Last week I showed up early and she was eating a vegeterian meal and the meal that I prepared at 5:00 am at home was still in their refrigerator. It's really frustrating. Any advice on this.
I've talked to them many times (teachers, director, cook). I even brought material that CF center gave me. They don't take it seriously because they say "she looks fine". Is there another approach?
 
L

Lety

Guest
I'm getting really mad about this situation. It kind of bothers me that some teachers at my dd's preschool don't take her nutritional needs seriously because she doesn't look sick. Sometimes they don't give her enough time to eat and question why she needs more food especially fats than the other kids. They provide meals but I bring her own meals because their's don't have enough fat for her. I can tell they don't like it. Last week I showed up early and she was eating a vegeterian meal and the meal that I prepared at 5:00 am at home was still in their refrigerator. It's really frustrating. Any advice on this.
I've talked to them many times (teachers, director, cook). I even brought material that CF center gave me. They don't take it seriously because they say "she looks fine". Is there another approach?
 
L

Lety

Guest
I'm getting really mad about this situation. It kind of bothers me that some teachers at my dd's preschool don't take her nutritional needs seriously because she doesn't look sick. Sometimes they don't give her enough time to eat and question why she needs more food especially fats than the other kids. They provide meals but I bring her own meals because their's don't have enough fat for her. I can tell they don't like it. Last week I showed up early and she was eating a vegeterian meal and the meal that I prepared at 5:00 am at home was still in their refrigerator. It's really frustrating. Any advice on this.
<br />I've talked to them many times (teachers, director, cook). I even brought material that CF center gave me. They don't take it seriously because they say "she looks fine". Is there another approach?
<br />
 

Ratatosk

Administrator
Staff member
Ugh, I don't know what to tell you 'cuz DS' daycare/preschool has always been very supportive. I even offered to buy extra food and they've told me it wasn't necessary. I provided them with the CFF info on nutrition when he was a baby, and once I had to provide a letter from his doctor explaining why they had things like ice cream (sometimes they'd make him malts and claim his formula/milk go too thick) and high calorie snacks in their kitchen if the social services inspectors wonder.

Would your dietician/nutritionist be willing to come talk to them? I know our local cf clinic has a form for the daycare to fill out before clinic days with any questions they may have and they've offered to come visit if there are issues...
 

Ratatosk

Administrator
Staff member
Ugh, I don't know what to tell you 'cuz DS' daycare/preschool has always been very supportive. I even offered to buy extra food and they've told me it wasn't necessary. I provided them with the CFF info on nutrition when he was a baby, and once I had to provide a letter from his doctor explaining why they had things like ice cream (sometimes they'd make him malts and claim his formula/milk go too thick) and high calorie snacks in their kitchen if the social services inspectors wonder.

Would your dietician/nutritionist be willing to come talk to them? I know our local cf clinic has a form for the daycare to fill out before clinic days with any questions they may have and they've offered to come visit if there are issues...
 

Ratatosk

Administrator
Staff member
Ugh, I don't know what to tell you 'cuz DS' daycare/preschool has always been very supportive. I even offered to buy extra food and they've told me it wasn't necessary. I provided them with the CFF info on nutrition when he was a baby, and once I had to provide a letter from his doctor explaining why they had things like ice cream (sometimes they'd make him malts and claim his formula/milk go too thick) and high calorie snacks in their kitchen if the social services inspectors wonder.

Would your dietician/nutritionist be willing to come talk to them? I know our local cf clinic has a form for the daycare to fill out before clinic days with any questions they may have and they've offered to come visit if there are issues...
 

Ratatosk

Administrator
Staff member
Ugh, I don't know what to tell you 'cuz DS' daycare/preschool has always been very supportive. I even offered to buy extra food and they've told me it wasn't necessary. I provided them with the CFF info on nutrition when he was a baby, and once I had to provide a letter from his doctor explaining why they had things like ice cream (sometimes they'd make him malts and claim his formula/milk go too thick) and high calorie snacks in their kitchen if the social services inspectors wonder.

Would your dietician/nutritionist be willing to come talk to them? I know our local cf clinic has a form for the daycare to fill out before clinic days with any questions they may have and they've offered to come visit if there are issues...
 

Ratatosk

Administrator
Staff member
Ugh, I don't know what to tell you 'cuz DS' daycare/preschool has always been very supportive. I even offered to buy extra food and they've told me it wasn't necessary. I provided them with the CFF info on nutrition when he was a baby, and once I had to provide a letter from his doctor explaining why they had things like ice cream (sometimes they'd make him malts and claim his formula/milk go too thick) and high calorie snacks in their kitchen if the social services inspectors wonder.
<br />
<br />Would your dietician/nutritionist be willing to come talk to them? I know our local cf clinic has a form for the daycare to fill out before clinic days with any questions they may have and they've offered to come visit if there are issues...
 
M

Mommafirst

Guest
I'm so sorry they are making this so hard. I would insist that they sit down with you and create a 504 plan. Its just pre-school, so they might not be familiar with the process, but it is within your right to have her needs outlined and assured she will get them.

Having the CF nurse or dietician come do an education program for them might work, but might be going overboard as well.

I find the statement "she looks fine" super annoying. Not all illness is obvious, and we CF moms work very hard to keep our kids "looking fine" as much as we can.

I think I would repeated be saying things like, "I know it sounds counter intuitive to you, but for her food is like medicine and she NEEDS high fat, high calorie foods." You might want to add that if she doesnt' keep her weight up, she might be forced to get a feeding tube, something you surely don't want.
 
M

Mommafirst

Guest
I'm so sorry they are making this so hard. I would insist that they sit down with you and create a 504 plan. Its just pre-school, so they might not be familiar with the process, but it is within your right to have her needs outlined and assured she will get them.

Having the CF nurse or dietician come do an education program for them might work, but might be going overboard as well.

I find the statement "she looks fine" super annoying. Not all illness is obvious, and we CF moms work very hard to keep our kids "looking fine" as much as we can.

I think I would repeated be saying things like, "I know it sounds counter intuitive to you, but for her food is like medicine and she NEEDS high fat, high calorie foods." You might want to add that if she doesnt' keep her weight up, she might be forced to get a feeding tube, something you surely don't want.
 
M

Mommafirst

Guest
I'm so sorry they are making this so hard. I would insist that they sit down with you and create a 504 plan. Its just pre-school, so they might not be familiar with the process, but it is within your right to have her needs outlined and assured she will get them.

Having the CF nurse or dietician come do an education program for them might work, but might be going overboard as well.

I find the statement "she looks fine" super annoying. Not all illness is obvious, and we CF moms work very hard to keep our kids "looking fine" as much as we can.

I think I would repeated be saying things like, "I know it sounds counter intuitive to you, but for her food is like medicine and she NEEDS high fat, high calorie foods." You might want to add that if she doesnt' keep her weight up, she might be forced to get a feeding tube, something you surely don't want.
 
M

Mommafirst

Guest
I'm so sorry they are making this so hard. I would insist that they sit down with you and create a 504 plan. Its just pre-school, so they might not be familiar with the process, but it is within your right to have her needs outlined and assured she will get them.

Having the CF nurse or dietician come do an education program for them might work, but might be going overboard as well.

I find the statement "she looks fine" super annoying. Not all illness is obvious, and we CF moms work very hard to keep our kids "looking fine" as much as we can.

I think I would repeated be saying things like, "I know it sounds counter intuitive to you, but for her food is like medicine and she NEEDS high fat, high calorie foods." You might want to add that if she doesnt' keep her weight up, she might be forced to get a feeding tube, something you surely don't want.
 
M

Mommafirst

Guest
I'm so sorry they are making this so hard. I would insist that they sit down with you and create a 504 plan. Its just pre-school, so they might not be familiar with the process, but it is within your right to have her needs outlined and assured she will get them.
<br />
<br />Having the CF nurse or dietician come do an education program for them might work, but might be going overboard as well.
<br />
<br />I find the statement "she looks fine" super annoying. Not all illness is obvious, and we CF moms work very hard to keep our kids "looking fine" as much as we can.
<br />
<br />I think I would repeated be saying things like, "I know it sounds counter intuitive to you, but for her food is like medicine and she NEEDS high fat, high calorie foods." You might want to add that if she doesnt' keep her weight up, she might be forced to get a feeding tube, something you surely don't want.
 

MicheleGazelle

New member
If you haven't seen them before, you might pick up a copy of "Getting to Yes" and/or "The Mind and Heart of the Negotiator" (by Leigh Thompson). The first one is short and a relatively quick read. Start with that. The second one is a much harder read but is loaded with valuable information. If I recall correctly, they are both research-based books, which is a rarity in this area of information. They were both required texts in a college class I had on "Negotiation and Conflict Management", so I know both books are widely respected resources.
 

MicheleGazelle

New member
If you haven't seen them before, you might pick up a copy of "Getting to Yes" and/or "The Mind and Heart of the Negotiator" (by Leigh Thompson). The first one is short and a relatively quick read. Start with that. The second one is a much harder read but is loaded with valuable information. If I recall correctly, they are both research-based books, which is a rarity in this area of information. They were both required texts in a college class I had on "Negotiation and Conflict Management", so I know both books are widely respected resources.
 

MicheleGazelle

New member
If you haven't seen them before, you might pick up a copy of "Getting to Yes" and/or "The Mind and Heart of the Negotiator" (by Leigh Thompson). The first one is short and a relatively quick read. Start with that. The second one is a much harder read but is loaded with valuable information. If I recall correctly, they are both research-based books, which is a rarity in this area of information. They were both required texts in a college class I had on "Negotiation and Conflict Management", so I know both books are widely respected resources.
 

MicheleGazelle

New member
If you haven't seen them before, you might pick up a copy of "Getting to Yes" and/or "The Mind and Heart of the Negotiator" (by Leigh Thompson). The first one is short and a relatively quick read. Start with that. The second one is a much harder read but is loaded with valuable information. If I recall correctly, they are both research-based books, which is a rarity in this area of information. They were both required texts in a college class I had on "Negotiation and Conflict Management", so I know both books are widely respected resources.
 

MicheleGazelle

New member
If you haven't seen them before, you might pick up a copy of "Getting to Yes" and/or "The Mind and Heart of the Negotiator" (by Leigh Thompson). The first one is short and a relatively quick read. Start with that. The second one is a much harder read but is loaded with valuable information. If I recall correctly, they are both research-based books, which is a rarity in this area of information. They were both required texts in a college class I had on "Negotiation and Conflict Management", so I know both books are widely respected resources.
 
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