Recently diagonised 4 yr old with CF. Any help appreciated!

csan00

New member
We have just recently found out the 4 yr old we have has CF. Low weight, fever.
He has the vest, and Nebulizer. He is on Ceron for weight. WE are new to this and so uncertain. Any help from more experciened ones would be appreciated!
 

csan00

New member
We have just recently found out the 4 yr old we have has CF. Low weight, fever.
He has the vest, and Nebulizer. He is on Ceron for weight. WE are new to this and so uncertain. Any help from more experciened ones would be appreciated!
 

csan00

New member
We have just recently found out the 4 yr old we have has CF. Low weight, fever.
He has the vest, and Nebulizer. He is on Ceron for weight. WE are new to this and so uncertain. Any help from more experciened ones would be appreciated!
 

csan00

New member
We have just recently found out the 4 yr old we have has CF. Low weight, fever.
He has the vest, and Nebulizer. He is on Ceron for weight. WE are new to this and so uncertain. Any help from more experciened ones would be appreciated!
 

csan00

New member
We have just recently found out the 4 yr old we have has CF. Low weight, fever.
He has the vest, and Nebulizer. He is on Ceron for weight. WE are new to this and so uncertain. Any help from more experciened ones would be appreciated!
 

pnhuffman

New member
You have come to the right place. Just ask any questions you may have and there are so many peopple on here that can give you help.
 

pnhuffman

New member
You have come to the right place. Just ask any questions you may have and there are so many peopple on here that can give you help.
 

pnhuffman

New member
You have come to the right place. Just ask any questions you may have and there are so many peopple on here that can give you help.
 

pnhuffman

New member
You have come to the right place. Just ask any questions you may have and there are so many peopple on here that can give you help.
 

pnhuffman

New member
You have come to the right place. Just ask any questions you may have and there are so many peopple on here that can give you help.
 
T

TonyaH

Guest
It sounds like you have a good treatment plan started. How is the vest working for you? It is wonderful that you already have one!

How long has your child been diagnosed?

Try to take things a day at a time and like Paula said, ask any questions you would like. There is a ton of information on this site that can be obtained just from reading through other posts. I came to this site seeking support more than information, but have ended up learning so much more about CF than I ever knew was available! The more we know about the disease, the more informed we can be at clinic visits. You will find through the years that this site prepares you for situations you will face in your child's future.

Welcome! We look forward to getting to know you!
 
T

TonyaH

Guest
It sounds like you have a good treatment plan started. How is the vest working for you? It is wonderful that you already have one!

How long has your child been diagnosed?

Try to take things a day at a time and like Paula said, ask any questions you would like. There is a ton of information on this site that can be obtained just from reading through other posts. I came to this site seeking support more than information, but have ended up learning so much more about CF than I ever knew was available! The more we know about the disease, the more informed we can be at clinic visits. You will find through the years that this site prepares you for situations you will face in your child's future.

Welcome! We look forward to getting to know you!
 
T

TonyaH

Guest
It sounds like you have a good treatment plan started. How is the vest working for you? It is wonderful that you already have one!

How long has your child been diagnosed?

Try to take things a day at a time and like Paula said, ask any questions you would like. There is a ton of information on this site that can be obtained just from reading through other posts. I came to this site seeking support more than information, but have ended up learning so much more about CF than I ever knew was available! The more we know about the disease, the more informed we can be at clinic visits. You will find through the years that this site prepares you for situations you will face in your child's future.

Welcome! We look forward to getting to know you!
 
T

TonyaH

Guest
It sounds like you have a good treatment plan started. How is the vest working for you? It is wonderful that you already have one!

How long has your child been diagnosed?

Try to take things a day at a time and like Paula said, ask any questions you would like. There is a ton of information on this site that can be obtained just from reading through other posts. I came to this site seeking support more than information, but have ended up learning so much more about CF than I ever knew was available! The more we know about the disease, the more informed we can be at clinic visits. You will find through the years that this site prepares you for situations you will face in your child's future.

Welcome! We look forward to getting to know you!
 
T

TonyaH

Guest
It sounds like you have a good treatment plan started. How is the vest working for you? It is wonderful that you already have one!

How long has your child been diagnosed?

Try to take things a day at a time and like Paula said, ask any questions you would like. There is a ton of information on this site that can be obtained just from reading through other posts. I came to this site seeking support more than information, but have ended up learning so much more about CF than I ever knew was available! The more we know about the disease, the more informed we can be at clinic visits. You will find through the years that this site prepares you for situations you will face in your child's future.

Welcome! We look forward to getting to know you!
 

Ratatosk

Administrator
Staff member
Welcome. I imagine this is all a bit overwhelming to you at this point. Probably in a state of disbelief, shock... Lot of information to process, but eventually you'll get into a routine in terms of treatments, meds. Please do not hesitate to ask any questions. We've all pretty much had similar experiences or can maybe point you in the right direction.
 

Ratatosk

Administrator
Staff member
Welcome. I imagine this is all a bit overwhelming to you at this point. Probably in a state of disbelief, shock... Lot of information to process, but eventually you'll get into a routine in terms of treatments, meds. Please do not hesitate to ask any questions. We've all pretty much had similar experiences or can maybe point you in the right direction.
 

Ratatosk

Administrator
Staff member
Welcome. I imagine this is all a bit overwhelming to you at this point. Probably in a state of disbelief, shock... Lot of information to process, but eventually you'll get into a routine in terms of treatments, meds. Please do not hesitate to ask any questions. We've all pretty much had similar experiences or can maybe point you in the right direction.
 

Ratatosk

Administrator
Staff member
Welcome. I imagine this is all a bit overwhelming to you at this point. Probably in a state of disbelief, shock... Lot of information to process, but eventually you'll get into a routine in terms of treatments, meds. Please do not hesitate to ask any questions. We've all pretty much had similar experiences or can maybe point you in the right direction.
 

Ratatosk

Administrator
Staff member
Welcome. I imagine this is all a bit overwhelming to you at this point. Probably in a state of disbelief, shock... Lot of information to process, but eventually you'll get into a routine in terms of treatments, meds. Please do not hesitate to ask any questions. We've all pretty much had similar experiences or can maybe point you in the right direction.
 
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