Scarlett81
New member
The one time I had hemoptysis they had me stop pulmozyme, and the vest for a few days. I did light chest clapping, but didn't force coughs.
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Restarting Pulmozyme and BLEEDING
- Thread starter Kelli
- Start date
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>mom2lillian</b></i>
I have hemoptysis 1-2x a year I will have to keep this in mind next time, Ihad never heard about the link - is it documented anywhere or just experience?
Also why vitamin K and how much?</end quote></div>
I thought it was documented, but I would have to find it. Its an aeresol enzyme of sorts (for lack of better words) so IMHO it would make sense that it can aggrivate hemoptysis. The Vitamin K is added since we dont absorb vitamin K well. Vitamin K helps with blood clotting. How much you need depends on what your normal levels are and what your clotting time is. I personally use 10 mg tablets (up from 5 mg) taking 1 tablet twice daily. I take a couple at the time of an active bleed also.
I have hemoptysis 1-2x a year I will have to keep this in mind next time, Ihad never heard about the link - is it documented anywhere or just experience?
Also why vitamin K and how much?</end quote></div>
I thought it was documented, but I would have to find it. Its an aeresol enzyme of sorts (for lack of better words) so IMHO it would make sense that it can aggrivate hemoptysis. The Vitamin K is added since we dont absorb vitamin K well. Vitamin K helps with blood clotting. How much you need depends on what your normal levels are and what your clotting time is. I personally use 10 mg tablets (up from 5 mg) taking 1 tablet twice daily. I take a couple at the time of an active bleed also.
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>mom2lillian</b></i>
I have hemoptysis 1-2x a year I will have to keep this in mind next time, Ihad never heard about the link - is it documented anywhere or just experience?
Also why vitamin K and how much?</end quote></div>
I thought it was documented, but I would have to find it. Its an aeresol enzyme of sorts (for lack of better words) so IMHO it would make sense that it can aggrivate hemoptysis. The Vitamin K is added since we dont absorb vitamin K well. Vitamin K helps with blood clotting. How much you need depends on what your normal levels are and what your clotting time is. I personally use 10 mg tablets (up from 5 mg) taking 1 tablet twice daily. I take a couple at the time of an active bleed also.
I have hemoptysis 1-2x a year I will have to keep this in mind next time, Ihad never heard about the link - is it documented anywhere or just experience?
Also why vitamin K and how much?</end quote></div>
I thought it was documented, but I would have to find it. Its an aeresol enzyme of sorts (for lack of better words) so IMHO it would make sense that it can aggrivate hemoptysis. The Vitamin K is added since we dont absorb vitamin K well. Vitamin K helps with blood clotting. How much you need depends on what your normal levels are and what your clotting time is. I personally use 10 mg tablets (up from 5 mg) taking 1 tablet twice daily. I take a couple at the time of an active bleed also.
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>mom2lillian</b></i>
I have hemoptysis 1-2x a year I will have to keep this in mind next time, Ihad never heard about the link - is it documented anywhere or just experience?
Also why vitamin K and how much?</end quote></div>
I thought it was documented, but I would have to find it. Its an aeresol enzyme of sorts (for lack of better words) so IMHO it would make sense that it can aggrivate hemoptysis. The Vitamin K is added since we dont absorb vitamin K well. Vitamin K helps with blood clotting. How much you need depends on what your normal levels are and what your clotting time is. I personally use 10 mg tablets (up from 5 mg) taking 1 tablet twice daily. I take a couple at the time of an active bleed also.
I have hemoptysis 1-2x a year I will have to keep this in mind next time, Ihad never heard about the link - is it documented anywhere or just experience?
Also why vitamin K and how much?</end quote></div>
I thought it was documented, but I would have to find it. Its an aeresol enzyme of sorts (for lack of better words) so IMHO it would make sense that it can aggrivate hemoptysis. The Vitamin K is added since we dont absorb vitamin K well. Vitamin K helps with blood clotting. How much you need depends on what your normal levels are and what your clotting time is. I personally use 10 mg tablets (up from 5 mg) taking 1 tablet twice daily. I take a couple at the time of an active bleed also.
Pulmozyme caused hemoptysis for me too. I never had bleeds, as a matter of fact, until I started Pulmozyme. It was determined that I could use it every 3rd day w/o bleeds, but I finally just quit it all together....too hard to keep track of which day was the 3rd day and I wasn't sure just how effective it was to use it twice a week anyway.
Pulmozyme caused hemoptysis for me too. I never had bleeds, as a matter of fact, until I started Pulmozyme. It was determined that I could use it every 3rd day w/o bleeds, but I finally just quit it all together....too hard to keep track of which day was the 3rd day and I wasn't sure just how effective it was to use it twice a week anyway.
Pulmozyme caused hemoptysis for me too. I never had bleeds, as a matter of fact, until I started Pulmozyme. It was determined that I could use it every 3rd day w/o bleeds, but I finally just quit it all together....too hard to keep track of which day was the 3rd day and I wasn't sure just how effective it was to use it twice a week anyway.
A friend of mine has the same problem with pulmo
I don't have bleeding, however since I started hypertonic saline, I think it's works better than pulmo anyway.
If you aren't on it, and really need something to clean you out, perhaps it's something to consider.
Best of Wishes,
I don't have bleeding, however since I started hypertonic saline, I think it's works better than pulmo anyway.
If you aren't on it, and really need something to clean you out, perhaps it's something to consider.
Best of Wishes,
A friend of mine has the same problem with pulmo
I don't have bleeding, however since I started hypertonic saline, I think it's works better than pulmo anyway.
If you aren't on it, and really need something to clean you out, perhaps it's something to consider.
Best of Wishes,
I don't have bleeding, however since I started hypertonic saline, I think it's works better than pulmo anyway.
If you aren't on it, and really need something to clean you out, perhaps it's something to consider.
Best of Wishes,
A friend of mine has the same problem with pulmo
I don't have bleeding, however since I started hypertonic saline, I think it's works better than pulmo anyway.
If you aren't on it, and really need something to clean you out, perhaps it's something to consider.
Best of Wishes,
I don't have bleeding, however since I started hypertonic saline, I think it's works better than pulmo anyway.
If you aren't on it, and really need something to clean you out, perhaps it's something to consider.
Best of Wishes,
Thank you so much, I will be checking into HS the next time I go to clinic. (March 23rd).
I appreciate all of your responses, at least I know I'm not in this alone and I'm not the only one who gets frustrated!
<img src="i/expressions/face-icon-small-smile.gif" border="0">
KELLI
I appreciate all of your responses, at least I know I'm not in this alone and I'm not the only one who gets frustrated!
<img src="i/expressions/face-icon-small-smile.gif" border="0">
KELLI
Thank you so much, I will be checking into HS the next time I go to clinic. (March 23rd).
I appreciate all of your responses, at least I know I'm not in this alone and I'm not the only one who gets frustrated!
<img src="i/expressions/face-icon-small-smile.gif" border="0">
KELLI
I appreciate all of your responses, at least I know I'm not in this alone and I'm not the only one who gets frustrated!
<img src="i/expressions/face-icon-small-smile.gif" border="0">
KELLI
Thank you so much, I will be checking into HS the next time I go to clinic. (March 23rd).
I appreciate all of your responses, at least I know I'm not in this alone and I'm not the only one who gets frustrated!
<img src="i/expressions/face-icon-small-smile.gif" border="0">
KELLI
I appreciate all of your responses, at least I know I'm not in this alone and I'm not the only one who gets frustrated!
<img src="i/expressions/face-icon-small-smile.gif" border="0">
KELLI
M
moxie1
Guest
Kelli,
I've had bad hemoptysis for 3 years--enough that I had three embolizations. after the 3rd embolization I was still bleeding. Every day I would have several mouthfuls. I stopped Pulmozyme and have not had so much as a streak since. That was before Christmas. Pulmozyme definitely made me bleed.
It was hard for me the first week after I stopped because I felt so congested. However I have supplemented with Hypertonic Saline and oral N-acetyl cysteine. Last visit my pfts were actually higher. There is no way I would ever go on Pulmozyme again.
If you have any questions, you can e-mail me at moxie1@ptd.net. I don't always check back at posts so I might not see if you wrote anything back.
Becki
I've had bad hemoptysis for 3 years--enough that I had three embolizations. after the 3rd embolization I was still bleeding. Every day I would have several mouthfuls. I stopped Pulmozyme and have not had so much as a streak since. That was before Christmas. Pulmozyme definitely made me bleed.
It was hard for me the first week after I stopped because I felt so congested. However I have supplemented with Hypertonic Saline and oral N-acetyl cysteine. Last visit my pfts were actually higher. There is no way I would ever go on Pulmozyme again.
If you have any questions, you can e-mail me at moxie1@ptd.net. I don't always check back at posts so I might not see if you wrote anything back.
Becki