M
moxie1
Guest
Kelli,
I've had bad hemoptysis for 3 years--enough that I had three embolizations. after the 3rd embolization I was still bleeding. Every day I would have several mouthfuls. I stopped Pulmozyme and have not had so much as a streak since. That was before Christmas. Pulmozyme definitely made me bleed.
It was hard for me the first week after I stopped because I felt so congested. However I have supplemented with Hypertonic Saline and oral N-acetyl cysteine. Last visit my pfts were actually higher. There is no way I would ever go on Pulmozyme again.
If you have any questions, you can e-mail me at moxie1@ptd.net. I don't always check back at posts so I might not see if you wrote anything back.
Becki
I've had bad hemoptysis for 3 years--enough that I had three embolizations. after the 3rd embolization I was still bleeding. Every day I would have several mouthfuls. I stopped Pulmozyme and have not had so much as a streak since. That was before Christmas. Pulmozyme definitely made me bleed.
It was hard for me the first week after I stopped because I felt so congested. However I have supplemented with Hypertonic Saline and oral N-acetyl cysteine. Last visit my pfts were actually higher. There is no way I would ever go on Pulmozyme again.
If you have any questions, you can e-mail me at moxie1@ptd.net. I don't always check back at posts so I might not see if you wrote anything back.
Becki